Elijah update ~ Markells not staying on

[Guest guest]

Firstly, someone asked why going to Iowa wasnt an option right now.

My husband is deployed yet again, only for a month this time, we

have 3 other kids and 2 of them just started the school year today.

We have no family or close friends here to help out. And, we're

supposed to be moving in 2 months.

Someone suggested that maybe the boots were too big and thinking

back, this 'did' start to happen when we got new shoes. I still

have his old shoes but couldnt use his right one b/c he's all but

ripped the boot off the sole, so I took the left boot and put it on

the right side of his bar. I put him down in the shoes last night

and he took them off twice. Once before 8PM and the second time was

a little before 2AM. He's supposed to be taking his morning nap now

with the shoes on and when I went to check on him screaming, he had

already pulled his foot out to the point where the heel was at the

top of the shoe. I took it off and put it back on. Its not that

he's unlacing the shoes.. he's pulling his feet out w/ them still

strapped and laced.

As for the military and my options:

First, I warned my husband via email just how much of a fight this

is going to be. I called Tricare South this AM about finding a

qualified provider, altho' I know there arent any in this area. They

sent me on a wild goose chase and after calling 5 people, I gave

up. I told the benefits counselor that there arent any qualified

providers in FL, AL, South GA, MS or LA. In order to receive care

in Hawaii, Id have to switch our benefits to Tricare West first....

but I dont need to do that until I know we're really going over

there.

I called my husbands Master Chief and told him what was going on and

it took awhile to get him to understand just HOW imperative it is

that Elijah be treated by a qualified person. He suggested that I

call our PCM, family doctor, and ask for a referral first of all.

Im waiting on them to return my call now. Master Chief said that

they might fly me to Bethesda Naval Medical Center and I explained

that still didnt get me to a certified provider. I saw that Dr

Herzenberg is also in land so I dont see why I couldnt get a

referral to him. In fact, for that matter, I should be able to get

a referral to Dr Ponseti himself, and the Navy would provide travel.

I asked about a Temporary TAD to Hawaii for treatment like Faith

suggested and he said that the Navy, nor the command would pay for

that since it was the end of the fiscal year and everyone's out of

money. If I go the route with the referral, the Navy's medical

program would cover the costs.

My fear is that all this crap is going to take too long and I'll end

up waiting the two months anyway before seeing someone qualified.

Thanks to everyone that contacted me on the board and privately.

Ya'll have helped me to keep a level head about it and not give into

the stress of it all.

Lori

[Guest guest]

Firstly, someone asked why going to Iowa wasnt an option right now.

My husband is deployed yet again, only for a month this time, we

have 3 other kids and 2 of them just started the school year today.

We have no family or close friends here to help out. And, we're

supposed to be moving in 2 months.

Someone suggested that maybe the boots were too big and thinking

back, this 'did' start to happen when we got new shoes. I still

have his old shoes but couldnt use his right one b/c he's all but

ripped the boot off the sole, so I took the left boot and put it on

the right side of his bar. I put him down in the shoes last night

and he took them off twice. Once before 8PM and the second time was

a little before 2AM. He's supposed to be taking his morning nap now

with the shoes on and when I went to check on him screaming, he had

already pulled his foot out to the point where the heel was at the

top of the shoe. I took it off and put it back on. Its not that

he's unlacing the shoes.. he's pulling his feet out w/ them still

strapped and laced.

As for the military and my options:

First, I warned my husband via email just how much of a fight this

is going to be. I called Tricare South this AM about finding a

qualified provider, altho' I know there arent any in this area. They

sent me on a wild goose chase and after calling 5 people, I gave

up. I told the benefits counselor that there arent any qualified

providers in FL, AL, South GA, MS or LA. In order to receive care

in Hawaii, Id have to switch our benefits to Tricare West first....

but I dont need to do that until I know we're really going over

there.

I called my husbands Master Chief and told him what was going on and

it took awhile to get him to understand just HOW imperative it is

that Elijah be treated by a qualified person. He suggested that I

call our PCM, family doctor, and ask for a referral first of all.

Im waiting on them to return my call now. Master Chief said that

they might fly me to Bethesda Naval Medical Center and I explained

that still didnt get me to a certified provider. I saw that Dr

Herzenberg is also in land so I dont see why I couldnt get a

referral to him. In fact, for that matter, I should be able to get

a referral to Dr Ponseti himself, and the Navy would provide travel.

I asked about a Temporary TAD to Hawaii for treatment like Faith

suggested and he said that the Navy, nor the command would pay for

that since it was the end of the fiscal year and everyone's out of

money. If I go the route with the referral, the Navy's medical

program would cover the costs.

My fear is that all this crap is going to take too long and I'll end

up waiting the two months anyway before seeing someone qualified.

Thanks to everyone that contacted me on the board and privately.

Ya'll have helped me to keep a level head about it and not give into

the stress of it all.

Lori

[Guest guest]

I forgot to add that Ive since taken his shoes off the bar and he's

just wearing the shoes now. He's done well w/ maintaining his 70 deg

ext. rot. so Im not really worried about losing ground there.

However, Im starting to notice slight changes in his foot so I figure

its better to have the foot straight and flat than nothing at all.

My mom commented during our trip home last week that he slings his

right foot out when he's walking. Has anyone else noticed that with

clubfoot babies? I assumed that it was normal since that 70 degrees

has been a constant throughout treatment.

Lori

[Guest guest]

I forgot to add that Ive since taken his shoes off the bar and he's

just wearing the shoes now. He's done well w/ maintaining his 70 deg

ext. rot. so Im not really worried about losing ground there.

However, Im starting to notice slight changes in his foot so I figure

its better to have the foot straight and flat than nothing at all.

My mom commented during our trip home last week that he slings his

right foot out when he's walking. Has anyone else noticed that with

clubfoot babies? I assumed that it was normal since that 70 degrees

has been a constant throughout treatment.

Lori

[Guest guest]

Lori,

So he's doing fine without the bar? Are you sure the bar is the right

length then? If everything is perfect with these... I'm really thinking

relapse. I really hope you can get some kind of approval to see Dr. P. or

Dr. Dobbs for this. Can you take any pictures of his feet and send to us

at CFPics?

Kori

At 09:13 AM 8/4/2005, you wrote:

>Firstly, someone asked why going to Iowa wasnt an option right now.

>My husband is deployed yet again, only for a month this time, we

>have 3 other kids and 2 of them just started the school year today.

>We have no family or close friends here to help out. And, we're

>supposed to be moving in 2 months.

>

>Someone suggested that maybe the boots were too big and thinking

>back, this 'did' start to happen when we got new shoes. I still

>have his old shoes but couldnt use his right one b/c he's all but

>ripped the boot off the sole, so I took the left boot and put it on

>the right side of his bar. I put him down in the shoes last night

>and he took them off twice. Once before 8PM and the second time was

>a little before 2AM. He's supposed to be taking his morning nap now

>with the shoes on and when I went to check on him screaming, he had

>already pulled his foot out to the point where the heel was at the

>top of the shoe. I took it off and put it back on. Its not that

>he's unlacing the shoes.. he's pulling his feet out w/ them still

>strapped and laced.

>

>As for the military and my options:

>

>First, I warned my husband via email just how much of a fight this

>is going to be. I called Tricare South this AM about finding a

>qualified provider, altho' I know there arent any in this area. They

>sent me on a wild goose chase and after calling 5 people, I gave

>up. I told the benefits counselor that there arent any qualified

>providers in FL, AL, South GA, MS or LA. In order to receive care

>in Hawaii, Id have to switch our benefits to Tricare West first....

>but I dont need to do that until I know we're really going over

>there.

>

>I called my husbands Master Chief and told him what was going on and

>it took awhile to get him to understand just HOW imperative it is

>that Elijah be treated by a qualified person. He suggested that I

>call our PCM, family doctor, and ask for a referral first of all.

>Im waiting on them to return my call now. Master Chief said that

>they might fly me to Bethesda Naval Medical Center and I explained

>that still didnt get me to a certified provider. I saw that Dr

>Herzenberg is also in land so I dont see why I couldnt get a

>referral to him. In fact, for that matter, I should be able to get

>a referral to Dr Ponseti himself, and the Navy would provide travel.

>

>I asked about a Temporary TAD to Hawaii for treatment like Faith

>suggested and he said that the Navy, nor the command would pay for

>that since it was the end of the fiscal year and everyone's out of

>money. If I go the route with the referral, the Navy's medical

>program would cover the costs.

>

>My fear is that all this crap is going to take too long and I'll end

>up waiting the two months anyway before seeing someone qualified.

>

>Thanks to everyone that contacted me on the board and privately.

>Ya'll have helped me to keep a level head about it and not give into

>the stress of it all.

>

>

>Lori

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Lori,

So he's doing fine without the bar? Are you sure the bar is the right

length then? If everything is perfect with these... I'm really thinking

relapse. I really hope you can get some kind of approval to see Dr. P. or

Dr. Dobbs for this. Can you take any pictures of his feet and send to us

at CFPics?

Kori

At 09:13 AM 8/4/2005, you wrote:

>Firstly, someone asked why going to Iowa wasnt an option right now.

>My husband is deployed yet again, only for a month this time, we

>have 3 other kids and 2 of them just started the school year today.

>We have no family or close friends here to help out. And, we're

>supposed to be moving in 2 months.

>

>Someone suggested that maybe the boots were too big and thinking

>back, this 'did' start to happen when we got new shoes. I still

>have his old shoes but couldnt use his right one b/c he's all but

>ripped the boot off the sole, so I took the left boot and put it on

>the right side of his bar. I put him down in the shoes last night

>and he took them off twice. Once before 8PM and the second time was

>a little before 2AM. He's supposed to be taking his morning nap now

>with the shoes on and when I went to check on him screaming, he had

>already pulled his foot out to the point where the heel was at the

>top of the shoe. I took it off and put it back on. Its not that

>he's unlacing the shoes.. he's pulling his feet out w/ them still

>strapped and laced.

>

>As for the military and my options:

>

>First, I warned my husband via email just how much of a fight this

>is going to be. I called Tricare South this AM about finding a

>qualified provider, altho' I know there arent any in this area. They

>sent me on a wild goose chase and after calling 5 people, I gave

>up. I told the benefits counselor that there arent any qualified

>providers in FL, AL, South GA, MS or LA. In order to receive care

>in Hawaii, Id have to switch our benefits to Tricare West first....

>but I dont need to do that until I know we're really going over

>there.

>

>I called my husbands Master Chief and told him what was going on and

>it took awhile to get him to understand just HOW imperative it is

>that Elijah be treated by a qualified person. He suggested that I

>call our PCM, family doctor, and ask for a referral first of all.

>Im waiting on them to return my call now. Master Chief said that

>they might fly me to Bethesda Naval Medical Center and I explained

>that still didnt get me to a certified provider. I saw that Dr

>Herzenberg is also in land so I dont see why I couldnt get a

>referral to him. In fact, for that matter, I should be able to get

>a referral to Dr Ponseti himself, and the Navy would provide travel.

>

>I asked about a Temporary TAD to Hawaii for treatment like Faith

>suggested and he said that the Navy, nor the command would pay for

>that since it was the end of the fiscal year and everyone's out of

>money. If I go the route with the referral, the Navy's medical

>program would cover the costs.

>

>My fear is that all this crap is going to take too long and I'll end

>up waiting the two months anyway before seeing someone qualified.

>

>Thanks to everyone that contacted me on the board and privately.

>Ya'll have helped me to keep a level head about it and not give into

>the stress of it all.

>

>

>Lori

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

My son had a pair of shoes that were too big last time. I had nothing but

trouble with them. He took them off and had red marks and was crying during

the night ( I don't know why) and so I got the size smaller. From that night

on the shoes have stayed on, red marks are gone and he sleeps through (most

nights). Some children fair ok with the bigger shoes but I definately will

not be getting them bigger again for him. I guess we are lucky as we are in

the UK and don't have to pay for them anyway but even so it wasn't worth the

hassle. His toes were maybe 1/2 inch from the end with these so that is how

I will measure them again. I also adjusted the bar in slightly as I have

always set them shoulder width from the edge of the heels but I took them in

one mark and it is more shoulder width from the bolts now and this seemed to

help slightly. I also emailed Dr Ponseti with some pictures and he said it

would be ok to turn the degree down to 60 degrees now (he is 2) as his feet

were well corrected. As it is I have them set on 65 degrees just to be

safe!!!!

Rach, Steve & Connor

-- Elijah update ~ Markells not staying on

Firstly, someone asked why going to Iowa wasnt an option right now.

My husband is deployed yet again, only for a month this time, we

have 3 other kids and 2 of them just started the school year today.

We have no family or close friends here to help out. And, we're

supposed to be moving in 2 months.

Someone suggested that maybe the boots were too big and thinking

back, this 'did' start to happen when we got new shoes. I still

have his old shoes but couldnt use his right one b/c he's all but

ripped the boot off the sole, so I took the left boot and put it on

the right side of his bar. I put him down in the shoes last night

and he took them off twice. Once before 8PM and the second time was

a little before 2AM. He's supposed to be taking his morning nap now

with the shoes on and when I went to check on him screaming, he had

already pulled his foot out to the point where the heel was at the

top of the shoe. I took it off and put it back on. Its not that

he's unlacing the shoes.. he's pulling his feet out w/ them still

strapped and laced.

As for the military and my options:

First, I warned my husband via email just how much of a fight this

is going to be. I called Tricare South this AM about finding a

qualified provider, altho' I know there arent any in this area. They

sent me on a wild goose chase and after calling 5 people, I gave

up. I told the benefits counselor that there arent any qualified

providers in FL, AL, South GA, MS or LA. In order to receive care

in Hawaii, Id have to switch our benefits to Tricare West first....

but I dont need to do that until I know we're really going over

there.

I called my husbands Master Chief and told him what was going on and

it took awhile to get him to understand just HOW imperative it is

that Elijah be treated by a qualified person. He suggested that I

call our PCM, family doctor, and ask for a referral first of all.

Im waiting on them to return my call now. Master Chief said that

they might fly me to Bethesda Naval Medical Center and I explained

that still didnt get me to a certified provider. I saw that Dr

Herzenberg is also in land so I dont see why I couldnt get a

referral to him. In fact, for that matter, I should be able to get

a referral to Dr Ponseti himself, and the Navy would provide travel.

I asked about a Temporary TAD to Hawaii for treatment like Faith

suggested and he said that the Navy, nor the command would pay for

that since it was the end of the fiscal year and everyone's out of

money. If I go the route with the referral, the Navy's medical

program would cover the costs.

My fear is that all this crap is going to take too long and I'll end

up waiting the two months anyway before seeing someone qualified.

Thanks to everyone that contacted me on the board and privately.

Ya'll have helped me to keep a level head about it and not give into

the stress of it all.

Lori

[Guest guest]

My son had a pair of shoes that were too big last time. I had nothing but

trouble with them. He took them off and had red marks and was crying during

the night ( I don't know why) and so I got the size smaller. From that night

on the shoes have stayed on, red marks are gone and he sleeps through (most

nights). Some children fair ok with the bigger shoes but I definately will

not be getting them bigger again for him. I guess we are lucky as we are in

the UK and don't have to pay for them anyway but even so it wasn't worth the

hassle. His toes were maybe 1/2 inch from the end with these so that is how

I will measure them again. I also adjusted the bar in slightly as I have

always set them shoulder width from the edge of the heels but I took them in

one mark and it is more shoulder width from the bolts now and this seemed to

help slightly. I also emailed Dr Ponseti with some pictures and he said it

would be ok to turn the degree down to 60 degrees now (he is 2) as his feet

were well corrected. As it is I have them set on 65 degrees just to be

safe!!!!

Rach, Steve & Connor

-- Elijah update ~ Markells not staying on

Firstly, someone asked why going to Iowa wasnt an option right now.

My husband is deployed yet again, only for a month this time, we

have 3 other kids and 2 of them just started the school year today.

We have no family or close friends here to help out. And, we're

supposed to be moving in 2 months.

Someone suggested that maybe the boots were too big and thinking

back, this 'did' start to happen when we got new shoes. I still

have his old shoes but couldnt use his right one b/c he's all but

ripped the boot off the sole, so I took the left boot and put it on

the right side of his bar. I put him down in the shoes last night

and he took them off twice. Once before 8PM and the second time was

a little before 2AM. He's supposed to be taking his morning nap now

with the shoes on and when I went to check on him screaming, he had

already pulled his foot out to the point where the heel was at the

top of the shoe. I took it off and put it back on. Its not that

he's unlacing the shoes.. he's pulling his feet out w/ them still

strapped and laced.

As for the military and my options:

First, I warned my husband via email just how much of a fight this

is going to be. I called Tricare South this AM about finding a

qualified provider, altho' I know there arent any in this area. They

sent me on a wild goose chase and after calling 5 people, I gave

up. I told the benefits counselor that there arent any qualified

providers in FL, AL, South GA, MS or LA. In order to receive care

in Hawaii, Id have to switch our benefits to Tricare West first....

but I dont need to do that until I know we're really going over

there.

I called my husbands Master Chief and told him what was going on and

it took awhile to get him to understand just HOW imperative it is

that Elijah be treated by a qualified person. He suggested that I

call our PCM, family doctor, and ask for a referral first of all.

Im waiting on them to return my call now. Master Chief said that

they might fly me to Bethesda Naval Medical Center and I explained

that still didnt get me to a certified provider. I saw that Dr

Herzenberg is also in land so I dont see why I couldnt get a

referral to him. In fact, for that matter, I should be able to get

a referral to Dr Ponseti himself, and the Navy would provide travel.

I asked about a Temporary TAD to Hawaii for treatment like Faith

suggested and he said that the Navy, nor the command would pay for

that since it was the end of the fiscal year and everyone's out of

money. If I go the route with the referral, the Navy's medical

program would cover the costs.

My fear is that all this crap is going to take too long and I'll end

up waiting the two months anyway before seeing someone qualified.

Thanks to everyone that contacted me on the board and privately.

Ya'll have helped me to keep a level head about it and not give into

the stress of it all.

Lori

[Guest guest]

He's doing okay w/ the shoes on. He's pulling at the strings trying

to get them off but theyre double tied so he's not having any luck

w/ that yet. I double checked the bar width last night and its

perfect. The more I check and recheck, Im thinking relapse as well.

Lori

> >Firstly, someone asked why going to Iowa wasnt an option right

now.

> >My husband is deployed yet again, only for a month this time, we

> >have 3 other kids and 2 of them just started the school year

today.

> >We have no family or close friends here to help out. And, we're

> >supposed to be moving in 2 months.

> >

> >Someone suggested that maybe the boots were too big and thinking

> >back, this 'did' start to happen when we got new shoes. I still

> >have his old shoes but couldnt use his right one b/c he's all but

> >ripped the boot off the sole, so I took the left boot and put it

on

> >the right side of his bar. I put him down in the shoes last night

> >and he took them off twice. Once before 8PM and the second time

was

> >a little before 2AM. He's supposed to be taking his morning nap

now

> >with the shoes on and when I went to check on him screaming, he

had

> >already pulled his foot out to the point where the heel was at the

> >top of the shoe. I took it off and put it back on. Its not that

> >he's unlacing the shoes.. he's pulling his feet out w/ them still

> >strapped and laced.

> >

> >As for the military and my options:

> >

> >First, I warned my husband via email just how much of a fight this

> >is going to be. I called Tricare South this AM about finding a

> >qualified provider, altho' I know there arent any in this area.

They

> >sent me on a wild goose chase and after calling 5 people, I gave

> >up. I told the benefits counselor that there arent any qualified

> >providers in FL, AL, South GA, MS or LA. In order to receive care

> >in Hawaii, Id have to switch our benefits to Tricare West

first....

> >but I dont need to do that until I know we're really going over

> >there.

> >

> >I called my husbands Master Chief and told him what was going on

and

> >it took awhile to get him to understand just HOW imperative it is

> >that Elijah be treated by a qualified person. He suggested that I

> >call our PCM, family doctor, and ask for a referral first of all.

> >Im waiting on them to return my call now. Master Chief said that

> >they might fly me to Bethesda Naval Medical Center and I explained

> >that still didnt get me to a certified provider. I saw that Dr

> >Herzenberg is also in land so I dont see why I couldnt get a

> >referral to him. In fact, for that matter, I should be able to

get

> >a referral to Dr Ponseti himself, and the Navy would provide

travel.

> >

> >I asked about a Temporary TAD to Hawaii for treatment like Faith

> >suggested and he said that the Navy, nor the command would pay for

> >that since it was the end of the fiscal year and everyone's out of

> >money. If I go the route with the referral, the Navy's medical

> >program would cover the costs.

> >

> >My fear is that all this crap is going to take too long and I'll

end

> >up waiting the two months anyway before seeing someone qualified.

> >

> >Thanks to everyone that contacted me on the board and privately.

> >Ya'll have helped me to keep a level head about it and not give

into

> >the stress of it all.

> >

> >

> >Lori

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

He's doing okay w/ the shoes on. He's pulling at the strings trying

to get them off but theyre double tied so he's not having any luck

w/ that yet. I double checked the bar width last night and its

perfect. The more I check and recheck, Im thinking relapse as well.

Lori

> >Firstly, someone asked why going to Iowa wasnt an option right

now.

> >My husband is deployed yet again, only for a month this time, we

> >have 3 other kids and 2 of them just started the school year

today.

> >We have no family or close friends here to help out. And, we're

> >supposed to be moving in 2 months.

> >

> >Someone suggested that maybe the boots were too big and thinking

> >back, this 'did' start to happen when we got new shoes. I still

> >have his old shoes but couldnt use his right one b/c he's all but

> >ripped the boot off the sole, so I took the left boot and put it

on

> >the right side of his bar. I put him down in the shoes last night

> >and he took them off twice. Once before 8PM and the second time

was

> >a little before 2AM. He's supposed to be taking his morning nap

now

> >with the shoes on and when I went to check on him screaming, he

had

> >already pulled his foot out to the point where the heel was at the

> >top of the shoe. I took it off and put it back on. Its not that

> >he's unlacing the shoes.. he's pulling his feet out w/ them still

> >strapped and laced.

> >

> >As for the military and my options:

> >

> >First, I warned my husband via email just how much of a fight this

> >is going to be. I called Tricare South this AM about finding a

> >qualified provider, altho' I know there arent any in this area.

They

> >sent me on a wild goose chase and after calling 5 people, I gave

> >up. I told the benefits counselor that there arent any qualified

> >providers in FL, AL, South GA, MS or LA. In order to receive care

> >in Hawaii, Id have to switch our benefits to Tricare West

first....

> >but I dont need to do that until I know we're really going over

> >there.

> >

> >I called my husbands Master Chief and told him what was going on

and

> >it took awhile to get him to understand just HOW imperative it is

> >that Elijah be treated by a qualified person. He suggested that I

> >call our PCM, family doctor, and ask for a referral first of all.

> >Im waiting on them to return my call now. Master Chief said that

> >they might fly me to Bethesda Naval Medical Center and I explained

> >that still didnt get me to a certified provider. I saw that Dr

> >Herzenberg is also in land so I dont see why I couldnt get a

> >referral to him. In fact, for that matter, I should be able to

get

> >a referral to Dr Ponseti himself, and the Navy would provide

travel.

> >

> >I asked about a Temporary TAD to Hawaii for treatment like Faith

> >suggested and he said that the Navy, nor the command would pay for

> >that since it was the end of the fiscal year and everyone's out of

> >money. If I go the route with the referral, the Navy's medical

> >program would cover the costs.

> >

> >My fear is that all this crap is going to take too long and I'll

end

> >up waiting the two months anyway before seeing someone qualified.

> >

> >Thanks to everyone that contacted me on the board and privately.

> >Ya'll have helped me to keep a level head about it and not give

into

> >the stress of it all.

> >

> >

> >Lori

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Lori,

i read your post about all the difficulties .. and the roadblocks and

administrative hoops to jump through. I agree that it might take

months to get it resolved, which is such a shame..

I know this might sound hard to imagine doing, but would you

consider just hopping in the car with all your kids and driving to

Iowa or St. Louis? You can stay in the RMH .. talk to Dr. Ponseti's

or Dr. Dobbs' office about the insurance/payment issues, and see what

they say.. you might be surprised that they can work it out..

just a thought..

> > >Firstly, someone asked why going to Iowa wasnt an option right

> now.

> > >My husband is deployed yet again, only for a month this time, we

> > >have 3 other kids and 2 of them just started the school year

> today.

> > >We have no family or close friends here to help out. And, we're

> > >supposed to be moving in 2 months.

> > >

> > >Someone suggested that maybe the boots were too big and thinking

> > >back, this 'did' start to happen when we got new shoes. I still

> > >have his old shoes but couldnt use his right one b/c he's all but

> > >ripped the boot off the sole, so I took the left boot and put it

> on

> > >the right side of his bar. I put him down in the shoes last

night

> > >and he took them off twice. Once before 8PM and the second time

> was

> > >a little before 2AM. He's supposed to be taking his morning nap

> now

> > >with the shoes on and when I went to check on him screaming, he

> had

> > >already pulled his foot out to the point where the heel was at

the

> > >top of the shoe. I took it off and put it back on. Its not that

> > >he's unlacing the shoes.. he's pulling his feet out w/ them still

> > >strapped and laced.

> > >

> > >As for the military and my options:

> > >

> > >First, I warned my husband via email just how much of a fight

this

> > >is going to be. I called Tricare South this AM about finding a

> > >qualified provider, altho' I know there arent any in this area.

> They

> > >sent me on a wild goose chase and after calling 5 people, I gave

> > >up. I told the benefits counselor that there arent any qualified

> > >providers in FL, AL, South GA, MS or LA. In order to receive

care

> > >in Hawaii, Id have to switch our benefits to Tricare West

> first....

> > >but I dont need to do that until I know we're really going over

> > >there.

> > >

> > >I called my husbands Master Chief and told him what was going on

> and

> > >it took awhile to get him to understand just HOW imperative it is

> > >that Elijah be treated by a qualified person. He suggested that

I

> > >call our PCM, family doctor, and ask for a referral first of all.

> > >Im waiting on them to return my call now. Master Chief said that

> > >they might fly me to Bethesda Naval Medical Center and I

explained

> > >that still didnt get me to a certified provider. I saw that Dr

> > >Herzenberg is also in land so I dont see why I couldnt get a

> > >referral to him. In fact, for that matter, I should be able to

> get

> > >a referral to Dr Ponseti himself, and the Navy would provide

> travel.

> > >

> > >I asked about a Temporary TAD to Hawaii for treatment like Faith

> > >suggested and he said that the Navy, nor the command would pay

for

> > >that since it was the end of the fiscal year and everyone's out

of

> > >money. If I go the route with the referral, the Navy's medical

> > >program would cover the costs.

> > >

> > >My fear is that all this crap is going to take too long and I'll

> end

> > >up waiting the two months anyway before seeing someone qualified.

> > >

> > >Thanks to everyone that contacted me on the board and privately.

> > >Ya'll have helped me to keep a level head about it and not give

> into

> > >the stress of it all.

> > >

> > >

> > >Lori

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Lori,

i read your post about all the difficulties .. and the roadblocks and

administrative hoops to jump through. I agree that it might take

months to get it resolved, which is such a shame..

I know this might sound hard to imagine doing, but would you

consider just hopping in the car with all your kids and driving to

Iowa or St. Louis? You can stay in the RMH .. talk to Dr. Ponseti's

or Dr. Dobbs' office about the insurance/payment issues, and see what

they say.. you might be surprised that they can work it out..

just a thought..

> > >Firstly, someone asked why going to Iowa wasnt an option right

> now.

> > >My husband is deployed yet again, only for a month this time, we

> > >have 3 other kids and 2 of them just started the school year

> today.

> > >We have no family or close friends here to help out. And, we're

> > >supposed to be moving in 2 months.

> > >

> > >Someone suggested that maybe the boots were too big and thinking

> > >back, this 'did' start to happen when we got new shoes. I still

> > >have his old shoes but couldnt use his right one b/c he's all but

> > >ripped the boot off the sole, so I took the left boot and put it

> on

> > >the right side of his bar. I put him down in the shoes last

night

> > >and he took them off twice. Once before 8PM and the second time

> was

> > >a little before 2AM. He's supposed to be taking his morning nap

> now

> > >with the shoes on and when I went to check on him screaming, he

> had

> > >already pulled his foot out to the point where the heel was at

the

> > >top of the shoe. I took it off and put it back on. Its not that

> > >he's unlacing the shoes.. he's pulling his feet out w/ them still

> > >strapped and laced.

> > >

> > >As for the military and my options:

> > >

> > >First, I warned my husband via email just how much of a fight

this

> > >is going to be. I called Tricare South this AM about finding a

> > >qualified provider, altho' I know there arent any in this area.

> They

> > >sent me on a wild goose chase and after calling 5 people, I gave

> > >up. I told the benefits counselor that there arent any qualified

> > >providers in FL, AL, South GA, MS or LA. In order to receive

care

> > >in Hawaii, Id have to switch our benefits to Tricare West

> first....

> > >but I dont need to do that until I know we're really going over

> > >there.

> > >

> > >I called my husbands Master Chief and told him what was going on

> and

> > >it took awhile to get him to understand just HOW imperative it is

> > >that Elijah be treated by a qualified person. He suggested that

I

> > >call our PCM, family doctor, and ask for a referral first of all.

> > >Im waiting on them to return my call now. Master Chief said that

> > >they might fly me to Bethesda Naval Medical Center and I

explained

> > >that still didnt get me to a certified provider. I saw that Dr

> > >Herzenberg is also in land so I dont see why I couldnt get a

> > >referral to him. In fact, for that matter, I should be able to

> get

> > >a referral to Dr Ponseti himself, and the Navy would provide

> travel.

> > >

> > >I asked about a Temporary TAD to Hawaii for treatment like Faith

> > >suggested and he said that the Navy, nor the command would pay

for

> > >that since it was the end of the fiscal year and everyone's out

of

> > >money. If I go the route with the referral, the Navy's medical

> > >program would cover the costs.

> > >

> > >My fear is that all this crap is going to take too long and I'll

> end

> > >up waiting the two months anyway before seeing someone qualified.

> > >

> > >Thanks to everyone that contacted me on the board and privately.

> > >Ya'll have helped me to keep a level head about it and not give

> into

> > >the stress of it all.

> > >

> > >

> > >Lori

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

,

I would consider it if we were still on summer break. The girls are

already going to miss alot of school when we make our PCS to

Hawaii. When we moved from San Diego to here, they'd missed so much

time that the school wanted to fail them. I cant risk taking them

out of school for that amt. of time.

Im still waiting to hear from the Dr, no phone call yet for the

referral. In the meantime, Im going to check out the Shriners

Hospital in New Orleans.

Elijah is finally napping for the first time today ( at 2 PM ). By

this time he's working on his second nap for the day. He's still

tolerating the shoes OFF the bar pretty well.

I know I mentioned that his last right boot was ripped from the

sole. Thats how hard he wriggles to get out of it. Has anyone else

had a boot come off the sole like that? It makes me wonder if its

not that he's relapsing so much as he's just fighting this bar (and

winning it seems).

Lori

> > > >Firstly, someone asked why going to Iowa wasnt an option

right

> > now.

> > > >My husband is deployed yet again, only for a month this time,

we

> > > >have 3 other kids and 2 of them just started the school year

> > today.

> > > >We have no family or close friends here to help out. And,

we're

> > > >supposed to be moving in 2 months.

> > > >

> > > >Someone suggested that maybe the boots were too big and

thinking

> > > >back, this 'did' start to happen when we got new shoes. I

still

> > > >have his old shoes but couldnt use his right one b/c he's all

but

> > > >ripped the boot off the sole, so I took the left boot and put

it

> > on

> > > >the right side of his bar. I put him down in the shoes last

> night

> > > >and he took them off twice. Once before 8PM and the second

time

> > was

> > > >a little before 2AM. He's supposed to be taking his morning

nap

> > now

> > > >with the shoes on and when I went to check on him screaming,

he

> > had

> > > >already pulled his foot out to the point where the heel was

at

> the

> > > >top of the shoe. I took it off and put it back on. Its not

that

> > > >he's unlacing the shoes.. he's pulling his feet out w/ them

still

> > > >strapped and laced.

> > > >

> > > >As for the military and my options:

> > > >

> > > >First, I warned my husband via email just how much of a fight

> this

> > > >is going to be. I called Tricare South this AM about finding

a

> > > >qualified provider, altho' I know there arent any in this

area.

> > They

> > > >sent me on a wild goose chase and after calling 5 people, I

gave

> > > >up. I told the benefits counselor that there arent any

qualified

> > > >providers in FL, AL, South GA, MS or LA. In order to receive

> care

> > > >in Hawaii, Id have to switch our benefits to Tricare West

> > first....

> > > >but I dont need to do that until I know we're really going

over

> > > >there.

> > > >

> > > >I called my husbands Master Chief and told him what was going

on

> > and

> > > >it took awhile to get him to understand just HOW imperative

it is

> > > >that Elijah be treated by a qualified person. He suggested

that

> I

> > > >call our PCM, family doctor, and ask for a referral first of

all.

> > > >Im waiting on them to return my call now. Master Chief said

that

> > > >they might fly me to Bethesda Naval Medical Center and I

> explained

> > > >that still didnt get me to a certified provider. I saw that

Dr

> > > >Herzenberg is also in land so I dont see why I couldnt

get a

> > > >referral to him. In fact, for that matter, I should be able

to

> > get

> > > >a referral to Dr Ponseti himself, and the Navy would provide

> > travel.

> > > >

> > > >I asked about a Temporary TAD to Hawaii for treatment like

Faith

> > > >suggested and he said that the Navy, nor the command would

pay

> for

> > > >that since it was the end of the fiscal year and everyone's

out

> of

> > > >money. If I go the route with the referral, the Navy's

medical

> > > >program would cover the costs.

> > > >

> > > >My fear is that all this crap is going to take too long and

I'll

> > end

> > > >up waiting the two months anyway before seeing someone

qualified.

> > > >

> > > >Thanks to everyone that contacted me on the board and

privately.

> > > >Ya'll have helped me to keep a level head about it and not

give

> > into

> > > >the stress of it all.

> > > >

> > > >

> > > >Lori

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

,

I would consider it if we were still on summer break. The girls are

already going to miss alot of school when we make our PCS to

Hawaii. When we moved from San Diego to here, they'd missed so much

time that the school wanted to fail them. I cant risk taking them

out of school for that amt. of time.

Im still waiting to hear from the Dr, no phone call yet for the

referral. In the meantime, Im going to check out the Shriners

Hospital in New Orleans.

Elijah is finally napping for the first time today ( at 2 PM ). By

this time he's working on his second nap for the day. He's still

tolerating the shoes OFF the bar pretty well.

I know I mentioned that his last right boot was ripped from the

sole. Thats how hard he wriggles to get out of it. Has anyone else

had a boot come off the sole like that? It makes me wonder if its

not that he's relapsing so much as he's just fighting this bar (and

winning it seems).

Lori

> > > >Firstly, someone asked why going to Iowa wasnt an option

right

> > now.

> > > >My husband is deployed yet again, only for a month this time,

we

> > > >have 3 other kids and 2 of them just started the school year

> > today.

> > > >We have no family or close friends here to help out. And,

we're

> > > >supposed to be moving in 2 months.

> > > >

> > > >Someone suggested that maybe the boots were too big and

thinking

> > > >back, this 'did' start to happen when we got new shoes. I

still

> > > >have his old shoes but couldnt use his right one b/c he's all

but

> > > >ripped the boot off the sole, so I took the left boot and put

it

> > on

> > > >the right side of his bar. I put him down in the shoes last

> night

> > > >and he took them off twice. Once before 8PM and the second

time

> > was

> > > >a little before 2AM. He's supposed to be taking his morning

nap

> > now

> > > >with the shoes on and when I went to check on him screaming,

he

> > had

> > > >already pulled his foot out to the point where the heel was

at

> the

> > > >top of the shoe. I took it off and put it back on. Its not

that

> > > >he's unlacing the shoes.. he's pulling his feet out w/ them

still

> > > >strapped and laced.

> > > >

> > > >As for the military and my options:

> > > >

> > > >First, I warned my husband via email just how much of a fight

> this

> > > >is going to be. I called Tricare South this AM about finding

a

> > > >qualified provider, altho' I know there arent any in this

area.

> > They

> > > >sent me on a wild goose chase and after calling 5 people, I

gave

> > > >up. I told the benefits counselor that there arent any

qualified

> > > >providers in FL, AL, South GA, MS or LA. In order to receive

> care

> > > >in Hawaii, Id have to switch our benefits to Tricare West

> > first....

> > > >but I dont need to do that until I know we're really going

over

> > > >there.

> > > >

> > > >I called my husbands Master Chief and told him what was going

on

> > and

> > > >it took awhile to get him to understand just HOW imperative

it is

> > > >that Elijah be treated by a qualified person. He suggested

that

> I

> > > >call our PCM, family doctor, and ask for a referral first of

all.

> > > >Im waiting on them to return my call now. Master Chief said

that

> > > >they might fly me to Bethesda Naval Medical Center and I

> explained

> > > >that still didnt get me to a certified provider. I saw that

Dr

> > > >Herzenberg is also in land so I dont see why I couldnt

get a

> > > >referral to him. In fact, for that matter, I should be able

to

> > get

> > > >a referral to Dr Ponseti himself, and the Navy would provide

> > travel.

> > > >

> > > >I asked about a Temporary TAD to Hawaii for treatment like

Faith

> > > >suggested and he said that the Navy, nor the command would

pay

> for

> > > >that since it was the end of the fiscal year and everyone's

out

> of

> > > >money. If I go the route with the referral, the Navy's

medical

> > > >program would cover the costs.

> > > >

> > > >My fear is that all this crap is going to take too long and

I'll

> > end

> > > >up waiting the two months anyway before seeing someone

qualified.

> > > >

> > > >Thanks to everyone that contacted me on the board and

privately.

> > > >Ya'll have helped me to keep a level head about it and not

give

> > into

> > > >the stress of it all.

> > > >

> > > >

> > > >Lori

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Ok, go back to speak with patient advocate. NOT TRICARE THEMSELVES! Also, with

tricare Prime you're going to have to find someone in-network. As far as I can

tell, the nearest group to you is Children's healthcare of Atl. Push to go

there. If all you can get is Bethesda, make sure that they are sending you to a

PEDIATRIC orthopedic surgeon, then when you get there, insist he or she uses the

Ponseti method to the letter. If you don't like what you see, insist that said

Dr. confer with Ponseti over the phone. If all else fails, there is always

TRicare Standard. You would have to leave him out of Prime for one year after

disenrollment, but like I said, with all of Gabe's various issues, I've only

spent approx 600 dollars this year on medical bills. Which isn't bad as many

specialists and surgeries as he's had. They will drag their feet, but if they

take too long, like I said, go up the chain. (But I would keep the Master

Sergeant informed ) Lastly, I forgot it was nearing to end of

the fiscal year. I'll tell you a secret though... they keep lots of $ on hand

till the absolute last minute in case of emergency. Then if no emergency comes

up, they spend it on furniture, copiers, and office supplies no one needs. Why?

If they don't spend it ALL their budget gets cut. Nice, huh? So, keep that in

mind too. Your commander is still an option if only because he can pull strings.

Unless, you are willing to sit on top of your child while he sleeps, I'd be a

constant thorn in the medical staffs' sideand if need be your First Sergeant.

Like, I said, they HAVE to do something. Did you get the pictures out to

Ponseti? Call me again if you need to, ok?

Lori wrote:Firstly, someone asked why going to Iowa wasnt

an option right now.

My husband is deployed yet again, only for a month this time, we

have 3 other kids and 2 of them just started the school year today.

We have no family or close friends here to help out. And, we're

supposed to be moving in 2 months.

Someone suggested that maybe the boots were too big and thinking

back, this 'did' start to happen when we got new shoes. I still

have his old shoes but couldnt use his right one b/c he's all but

ripped the boot off the sole, so I took the left boot and put it on

the right side of his bar. I put him down in the shoes last night

and he took them off twice. Once before 8PM and the second time was

a little before 2AM. He's supposed to be taking his morning nap now

with the shoes on and when I went to check on him screaming, he had

already pulled his foot out to the point where the heel was at the

top of the shoe. I took it off and put it back on. Its not that

he's unlacing the shoes.. he's pulling his feet out w/ them still

strapped and laced.

As for the military and my options:

First, I warned my husband via email just how much of a fight this

is going to be. I called Tricare South this AM about finding a

qualified provider, altho' I know there arent any in this area. They

sent me on a wild goose chase and after calling 5 people, I gave

up. I told the benefits counselor that there arent any qualified

providers in FL, AL, South GA, MS or LA. In order to receive care

in Hawaii, Id have to switch our benefits to Tricare West first....

but I dont need to do that until I know we're really going over

there.

I called my husbands Master Chief and told him what was going on and

it took awhile to get him to understand just HOW imperative it is

that Elijah be treated by a qualified person. He suggested that I

call our PCM, family doctor, and ask for a referral first of all.

Im waiting on them to return my call now. Master Chief said that

they might fly me to Bethesda Naval Medical Center and I explained

that still didnt get me to a certified provider. I saw that Dr

Herzenberg is also in land so I dont see why I couldnt get a

referral to him. In fact, for that matter, I should be able to get

a referral to Dr Ponseti himself, and the Navy would provide travel.

I asked about a Temporary TAD to Hawaii for treatment like Faith

suggested and he said that the Navy, nor the command would pay for

that since it was the end of the fiscal year and everyone's out of

money. If I go the route with the referral, the Navy's medical

program would cover the costs.

My fear is that all this crap is going to take too long and I'll end

up waiting the two months anyway before seeing someone qualified.

Thanks to everyone that contacted me on the board and privately.

Ya'll have helped me to keep a level head about it and not give into

the stress of it all.

Lori

[Guest guest]

Ok, go back to speak with patient advocate. NOT TRICARE THEMSELVES! Also, with

tricare Prime you're going to have to find someone in-network. As far as I can

tell, the nearest group to you is Children's healthcare of Atl. Push to go

there. If all you can get is Bethesda, make sure that they are sending you to a

PEDIATRIC orthopedic surgeon, then when you get there, insist he or she uses the

Ponseti method to the letter. If you don't like what you see, insist that said

Dr. confer with Ponseti over the phone. If all else fails, there is always

TRicare Standard. You would have to leave him out of Prime for one year after

disenrollment, but like I said, with all of Gabe's various issues, I've only

spent approx 600 dollars this year on medical bills. Which isn't bad as many

specialists and surgeries as he's had. They will drag their feet, but if they

take too long, like I said, go up the chain. (But I would keep the Master

Sergeant informed ) Lastly, I forgot it was nearing to end of

the fiscal year. I'll tell you a secret though... they keep lots of $ on hand

till the absolute last minute in case of emergency. Then if no emergency comes

up, they spend it on furniture, copiers, and office supplies no one needs. Why?

If they don't spend it ALL their budget gets cut. Nice, huh? So, keep that in

mind too. Your commander is still an option if only because he can pull strings.

Unless, you are willing to sit on top of your child while he sleeps, I'd be a

constant thorn in the medical staffs' sideand if need be your First Sergeant.

Like, I said, they HAVE to do something. Did you get the pictures out to

Ponseti? Call me again if you need to, ok?

Lori wrote:Firstly, someone asked why going to Iowa wasnt

an option right now.

My husband is deployed yet again, only for a month this time, we

have 3 other kids and 2 of them just started the school year today.

We have no family or close friends here to help out. And, we're

supposed to be moving in 2 months.

Someone suggested that maybe the boots were too big and thinking

back, this 'did' start to happen when we got new shoes. I still

have his old shoes but couldnt use his right one b/c he's all but

ripped the boot off the sole, so I took the left boot and put it on

the right side of his bar. I put him down in the shoes last night

and he took them off twice. Once before 8PM and the second time was

a little before 2AM. He's supposed to be taking his morning nap now

with the shoes on and when I went to check on him screaming, he had

already pulled his foot out to the point where the heel was at the

top of the shoe. I took it off and put it back on. Its not that

he's unlacing the shoes.. he's pulling his feet out w/ them still

strapped and laced.

As for the military and my options:

First, I warned my husband via email just how much of a fight this

is going to be. I called Tricare South this AM about finding a

qualified provider, altho' I know there arent any in this area. They

sent me on a wild goose chase and after calling 5 people, I gave

up. I told the benefits counselor that there arent any qualified

providers in FL, AL, South GA, MS or LA. In order to receive care

in Hawaii, Id have to switch our benefits to Tricare West first....

but I dont need to do that until I know we're really going over

there.

I called my husbands Master Chief and told him what was going on and

it took awhile to get him to understand just HOW imperative it is

that Elijah be treated by a qualified person. He suggested that I

call our PCM, family doctor, and ask for a referral first of all.

Im waiting on them to return my call now. Master Chief said that

they might fly me to Bethesda Naval Medical Center and I explained

that still didnt get me to a certified provider. I saw that Dr

Herzenberg is also in land so I dont see why I couldnt get a

referral to him. In fact, for that matter, I should be able to get

a referral to Dr Ponseti himself, and the Navy would provide travel.

I asked about a Temporary TAD to Hawaii for treatment like Faith

suggested and he said that the Navy, nor the command would pay for

that since it was the end of the fiscal year and everyone's out of

money. If I go the route with the referral, the Navy's medical

program would cover the costs.

My fear is that all this crap is going to take too long and I'll end

up waiting the two months anyway before seeing someone qualified.

Thanks to everyone that contacted me on the board and privately.

Ya'll have helped me to keep a level head about it and not give into

the stress of it all.

Lori

[Guest guest]

Hey, what about the crease I told you about? Does he have it or is it getting

deeper?If so then it's definitely a cavus deformity recurrence.

Lori and Elijah wrote: He's doing okay w/ the shoes on.

He's pulling at the strings trying

to get them off but theyre double tied so he's not having any luck

w/ that yet. I double checked the bar width last night and its

perfect. The more I check and recheck, Im thinking relapse as well.

Lori

> >Firstly, someone asked why going to Iowa wasnt an option right

now.

> >My husband is deployed yet again, only for a month this time, we

> >have 3 other kids and 2 of them just started the school year

today.

> >We have no family or close friends here to help out. And, we're

> >supposed to be moving in 2 months.

> >

> >Someone suggested that maybe the boots were too big and thinking

> >back, this 'did' start to happen when we got new shoes. I still

> >have his old shoes but couldnt use his right one b/c he's all but

> >ripped the boot off the sole, so I took the left boot and put it

on

> >the right side of his bar. I put him down in the shoes last night

> >and he took them off twice. Once before 8PM and the second time

was

> >a little before 2AM. He's supposed to be taking his morning nap

now

> >with the shoes on and when I went to check on him screaming, he

had

> >already pulled his foot out to the point where the heel was at the

> >top of the shoe. I took it off and put it back on. Its not that

> >he's unlacing the shoes.. he's pulling his feet out w/ them still

> >strapped and laced.

> >

> >As for the military and my options:

> >

> >First, I warned my husband via email just how much of a fight this

> >is going to be. I called Tricare South this AM about finding a

> >qualified provider, altho' I know there arent any in this area.

They

> >sent me on a wild goose chase and after calling 5 people, I gave

> >up. I told the benefits counselor that there arent any qualified

> >providers in FL, AL, South GA, MS or LA. In order to receive care

> >in Hawaii, Id have to switch our benefits to Tricare West

first....

> >but I dont need to do that until I know we're really going over

> >there.

> >

> >I called my husbands Master Chief and told him what was going on

and

> >it took awhile to get him to understand just HOW imperative it is

> >that Elijah be treated by a qualified person. He suggested that I

> >call our PCM, family doctor, and ask for a referral first of all.

> >Im waiting on them to return my call now. Master Chief said that

> >they might fly me to Bethesda Naval Medical Center and I explained

> >that still didnt get me to a certified provider. I saw that Dr

> >Herzenberg is also in land so I dont see why I couldnt get a

> >referral to him. In fact, for that matter, I should be able to

get

> >a referral to Dr Ponseti himself, and the Navy would provide

travel.

> >

> >I asked about a Temporary TAD to Hawaii for treatment like Faith

> >suggested and he said that the Navy, nor the command would pay for

> >that since it was the end of the fiscal year and everyone's out of

> >money. If I go the route with the referral, the Navy's medical

> >program would cover the costs.

> >

> >My fear is that all this crap is going to take too long and I'll

end

> >up waiting the two months anyway before seeing someone qualified.

> >

> >Thanks to everyone that contacted me on the board and privately.

> >Ya'll have helped me to keep a level head about it and not give

into

> >the stress of it all.

> >

> >

> >Lori

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hey, what about the crease I told you about? Does he have it or is it getting

deeper?If so then it's definitely a cavus deformity recurrence.

Lori and Elijah wrote: He's doing okay w/ the shoes on.

He's pulling at the strings trying

to get them off but theyre double tied so he's not having any luck

w/ that yet. I double checked the bar width last night and its

perfect. The more I check and recheck, Im thinking relapse as well.

Lori

> >Firstly, someone asked why going to Iowa wasnt an option right

now.

> >My husband is deployed yet again, only for a month this time, we

> >have 3 other kids and 2 of them just started the school year

today.

> >We have no family or close friends here to help out. And, we're

> >supposed to be moving in 2 months.

> >

> >Someone suggested that maybe the boots were too big and thinking

> >back, this 'did' start to happen when we got new shoes. I still

> >have his old shoes but couldnt use his right one b/c he's all but

> >ripped the boot off the sole, so I took the left boot and put it

on

> >the right side of his bar. I put him down in the shoes last night

> >and he took them off twice. Once before 8PM and the second time

was

> >a little before 2AM. He's supposed to be taking his morning nap

now

> >with the shoes on and when I went to check on him screaming, he

had

> >already pulled his foot out to the point where the heel was at the

> >top of the shoe. I took it off and put it back on. Its not that

> >he's unlacing the shoes.. he's pulling his feet out w/ them still

> >strapped and laced.

> >

> >As for the military and my options:

> >

> >First, I warned my husband via email just how much of a fight this

> >is going to be. I called Tricare South this AM about finding a

> >qualified provider, altho' I know there arent any in this area.

They

> >sent me on a wild goose chase and after calling 5 people, I gave

> >up. I told the benefits counselor that there arent any qualified

> >providers in FL, AL, South GA, MS or LA. In order to receive care

> >in Hawaii, Id have to switch our benefits to Tricare West

first....

> >but I dont need to do that until I know we're really going over

> >there.

> >

> >I called my husbands Master Chief and told him what was going on

and

> >it took awhile to get him to understand just HOW imperative it is

> >that Elijah be treated by a qualified person. He suggested that I

> >call our PCM, family doctor, and ask for a referral first of all.

> >Im waiting on them to return my call now. Master Chief said that

> >they might fly me to Bethesda Naval Medical Center and I explained

> >that still didnt get me to a certified provider. I saw that Dr

> >Herzenberg is also in land so I dont see why I couldnt get a

> >referral to him. In fact, for that matter, I should be able to

get

> >a referral to Dr Ponseti himself, and the Navy would provide

travel.

> >

> >I asked about a Temporary TAD to Hawaii for treatment like Faith

> >suggested and he said that the Navy, nor the command would pay for

> >that since it was the end of the fiscal year and everyone's out of

> >money. If I go the route with the referral, the Navy's medical

> >program would cover the costs.

> >

> >My fear is that all this crap is going to take too long and I'll

end

> >up waiting the two months anyway before seeing someone qualified.

> >

> >Thanks to everyone that contacted me on the board and privately.

> >Ya'll have helped me to keep a level head about it and not give

into

> >the stress of it all.

> >

> >

> >Lori

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

By the way, there are two Mcdonald houses in Atlanta. If all else fails

and you get a referral (by the way, with Tricare Prime you don't need a referral

to a specific provider, just get a referral to get civilian care for congental

clubfoot). If you can afford the gas to get there and back, that would be your

only expence. This might actually be your fastest route to care. I would

approach the medivac office at the hospital with this proposal. They love it

when they don't have to do the footwork. Tell them that all they would have to

pay for is fule and per diem for you and your kids (and escort if they'll

autorize it).

Lori,

i read your post about all the difficulties .. and the roadblocks and

administrative hoops to jump through. I agree that it might take

months to get it resolved, which is such a shame..

I know this might sound hard to imagine doing, but would you

consider just hopping in the car with all your kids and driving to

Iowa or St. Louis? You can stay in the RMH .. talk to Dr. Ponseti's

or Dr. Dobbs' office about the insurance/payment issues, and see what

they say.. you might be surprised that they can work it out..

just a thought..

> > >Firstly, someone asked why going to Iowa wasnt an option right

> now.

> > >My husband is deployed yet again, only for a month this time, we

> > >have 3 other kids and 2 of them just started the school year

> today.

> > >We have no family or close friends here to help out. And, we're

> > >supposed to be moving in 2 months.

> > >

> > >Someone suggested that maybe the boots were too big and thinking

> > >back, this 'did' start to happen when we got new shoes. I still

> > >have his old shoes but couldnt use his right one b/c he's all but

> > >ripped the boot off the sole, so I took the left boot and put it

> on

> > >the right side of his bar. I put him down in the shoes last

night

> > >and he took them off twice. Once before 8PM and the second time

> was

> > >a little before 2AM. He's supposed to be taking his morning nap

> now

> > >with the shoes on and when I went to check on him screaming, he

> had

> > >already pulled his foot out to the point where the heel was at

the

> > >top of the shoe. I took it off and put it back on. Its not that

> > >he's unlacing the shoes.. he's pulling his feet out w/ them still

> > >strapped and laced.

> > >

> > >As for the military and my options:

> > >

> > >First, I warned my husband via email just how much of a fight

this

> > >is going to be. I called Tricare South this AM about finding a

> > >qualified provider, altho' I know there arent any in this area.

> They

> > >sent me on a wild goose chase and after calling 5 people, I gave

> > >up. I told the benefits counselor that there arent any qualified

> > >providers in FL, AL, South GA, MS or LA. In order to receive

care

> > >in Hawaii, Id have to switch our benefits to Tricare West

> first....

> > >but I dont need to do that until I know we're really going over

> > >there.

> > >

> > >I called my husbands Master Chief and told him what was going on

> and

> > >it took awhile to get him to understand just HOW imperative it is

> > >that Elijah be treated by a qualified person. He suggested that

I

> > >call our PCM, family doctor, and ask for a referral first of all.

> > >Im waiting on them to return my call now. Master Chief said that

> > >they might fly me to Bethesda Naval Medical Center and I

explained

> > >that still didnt get me to a certified provider. I saw that Dr

> > >Herzenberg is also in land so I dont see why I couldnt get a

> > >referral to him. In fact, for that matter, I should be able to

> get

> > >a referral to Dr Ponseti himself, and the Navy would provide

> travel.

> > >

> > >I asked about a Temporary TAD to Hawaii for treatment like Faith

> > >suggested and he said that the Navy, nor the command would pay

for

> > >that since it was the end of the fiscal year and everyone's out

of

> > >money. If I go the route with the referral, the Navy's medical

> > >program would cover the costs.

> > >

> > >My fear is that all this crap is going to take too long and I'll

> end

> > >up waiting the two months anyway before seeing someone qualified.

> > >

> > >Thanks to everyone that contacted me on the board and privately.

> > >Ya'll have helped me to keep a level head about it and not give

> into

> > >the stress of it all.

> > >

> > >

> > >Lori

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

By the way, there are two Mcdonald houses in Atlanta. If all else fails

and you get a referral (by the way, with Tricare Prime you don't need a referral

to a specific provider, just get a referral to get civilian care for congental

clubfoot). If you can afford the gas to get there and back, that would be your

only expence. This might actually be your fastest route to care. I would

approach the medivac office at the hospital with this proposal. They love it

when they don't have to do the footwork. Tell them that all they would have to

pay for is fule and per diem for you and your kids (and escort if they'll

autorize it).

Lori,

i read your post about all the difficulties .. and the roadblocks and

administrative hoops to jump through. I agree that it might take

months to get it resolved, which is such a shame..

I know this might sound hard to imagine doing, but would you

consider just hopping in the car with all your kids and driving to

Iowa or St. Louis? You can stay in the RMH .. talk to Dr. Ponseti's

or Dr. Dobbs' office about the insurance/payment issues, and see what

they say.. you might be surprised that they can work it out..

just a thought..

> > >Firstly, someone asked why going to Iowa wasnt an option right

> now.

> > >My husband is deployed yet again, only for a month this time, we

> > >have 3 other kids and 2 of them just started the school year

> today.

> > >We have no family or close friends here to help out. And, we're

> > >supposed to be moving in 2 months.

> > >

> > >Someone suggested that maybe the boots were too big and thinking

> > >back, this 'did' start to happen when we got new shoes. I still

> > >have his old shoes but couldnt use his right one b/c he's all but

> > >ripped the boot off the sole, so I took the left boot and put it

> on

> > >the right side of his bar. I put him down in the shoes last

night

> > >and he took them off twice. Once before 8PM and the second time

> was

> > >a little before 2AM. He's supposed to be taking his morning nap

> now

> > >with the shoes on and when I went to check on him screaming, he

> had

> > >already pulled his foot out to the point where the heel was at

the

> > >top of the shoe. I took it off and put it back on. Its not that

> > >he's unlacing the shoes.. he's pulling his feet out w/ them still

> > >strapped and laced.

> > >

> > >As for the military and my options:

> > >

> > >First, I warned my husband via email just how much of a fight

this

> > >is going to be. I called Tricare South this AM about finding a

> > >qualified provider, altho' I know there arent any in this area.

> They

> > >sent me on a wild goose chase and after calling 5 people, I gave

> > >up. I told the benefits counselor that there arent any qualified

> > >providers in FL, AL, South GA, MS or LA. In order to receive

care

> > >in Hawaii, Id have to switch our benefits to Tricare West

> first....

> > >but I dont need to do that until I know we're really going over

> > >there.

> > >

> > >I called my husbands Master Chief and told him what was going on

> and

> > >it took awhile to get him to understand just HOW imperative it is

> > >that Elijah be treated by a qualified person. He suggested that

I

> > >call our PCM, family doctor, and ask for a referral first of all.

> > >Im waiting on them to return my call now. Master Chief said that

> > >they might fly me to Bethesda Naval Medical Center and I

explained

> > >that still didnt get me to a certified provider. I saw that Dr

> > >Herzenberg is also in land so I dont see why I couldnt get a

> > >referral to him. In fact, for that matter, I should be able to

> get

> > >a referral to Dr Ponseti himself, and the Navy would provide

> travel.

> > >

> > >I asked about a Temporary TAD to Hawaii for treatment like Faith

> > >suggested and he said that the Navy, nor the command would pay

for

> > >that since it was the end of the fiscal year and everyone's out

of

> > >money. If I go the route with the referral, the Navy's medical

> > >program would cover the costs.

> > >

> > >My fear is that all this crap is going to take too long and I'll

> end

> > >up waiting the two months anyway before seeing someone qualified.

> > >

> > >Thanks to everyone that contacted me on the board and privately.

> > >Ya'll have helped me to keep a level head about it and not give

> into

> > >the stress of it all.

> > >

> > >

> > >Lori

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

The five hour drive to Atl would probably be more beneficial than going to N.O.

All you need is that referal. Also, they have 48-72 hours to call you back

usually.

Lori and Elijah wrote:,

I would consider it if we were still on summer break. The girls are

already going to miss alot of school when we make our PCS to

Hawaii. When we moved from San Diego to here, they'd missed so much

time that the school wanted to fail them. I cant risk taking them

out of school for that amt. of time.

Im still waiting to hear from the Dr, no phone call yet for the

referral. In the meantime, Im going to check out the Shriners

Hospital in New Orleans.

Elijah is finally napping for the first time today ( at 2 PM ). By

this time he's working on his second nap for the day. He's still

tolerating the shoes OFF the bar pretty well.

I know I mentioned that his last right boot was ripped from the

sole. Thats how hard he wriggles to get out of it. Has anyone else

had a boot come off the sole like that? It makes me wonder if its

not that he's relapsing so much as he's just fighting this bar (and

winning it seems).

Lori

> > > >Firstly, someone asked why going to Iowa wasnt an option

right

> > now.

> > > >My husband is deployed yet again, only for a month this time,

we

> > > >have 3 other kids and 2 of them just started the school year

> > today.

> > > >We have no family or close friends here to help out. And,

we're

> > > >supposed to be moving in 2 months.

> > > >

> > > >Someone suggested that maybe the boots were too big and

thinking

> > > >back, this 'did' start to happen when we got new shoes. I

still

> > > >have his old shoes but couldnt use his right one b/c he's all

but

> > > >ripped the boot off the sole, so I took the left boot and put

it

> > on

> > > >the right side of his bar. I put him down in the shoes last

> night

> > > >and he took them off twice. Once before 8PM and the second

time

> > was

> > > >a little before 2AM. He's supposed to be taking his morning

nap

> > now

> > > >with the shoes on and when I went to check on him screaming,

he

> > had

> > > >already pulled his foot out to the point where the heel was

at

> the

> > > >top of the shoe. I took it off and put it back on. Its not

that

> > > >he's unlacing the shoes.. he's pulling his feet out w/ them

still

> > > >strapped and laced.

> > > >

> > > >As for the military and my options:

> > > >

> > > >First, I warned my husband via email just how much of a fight

> this

> > > >is going to be. I called Tricare South this AM about finding

a

> > > >qualified provider, altho' I know there arent any in this

area.

> > They

> > > >sent me on a wild goose chase and after calling 5 people, I

gave

> > > >up. I told the benefits counselor that there arent any

qualified

> > > >providers in FL, AL, South GA, MS or LA. In order to receive

> care

> > > >in Hawaii, Id have to switch our benefits to Tricare West

> > first....

> > > >but I dont need to do that until I know we're really going

over

> > > >there.

> > > >

> > > >I called my husbands Master Chief and told him what was going

on

> > and

> > > >it took awhile to get him to understand just HOW imperative

it is

> > > >that Elijah be treated by a qualified person. He suggested

that

> I

> > > >call our PCM, family doctor, and ask for a referral first of

all.

> > > >Im waiting on them to return my call now. Master Chief said

that

> > > >they might fly me to Bethesda Naval Medical Center and I

> explained

> > > >that still didnt get me to a certified provider. I saw that

Dr

> > > >Herzenberg is also in land so I dont see why I couldnt

get a

> > > >referral to him. In fact, for that matter, I should be able

to

> > get

> > > >a referral to Dr Ponseti himself, and the Navy would provide

> > travel.

> > > >

> > > >I asked about a Temporary TAD to Hawaii for treatment like

Faith

> > > >suggested and he said that the Navy, nor the command would

pay

> for

> > > >that since it was the end of the fiscal year and everyone's

out

> of

> > > >money. If I go the route with the referral, the Navy's

medical

> > > >program would cover the costs.

> > > >

> > > >My fear is that all this crap is going to take too long and

I'll

> > end

> > > >up waiting the two months anyway before seeing someone

qualified.

> > > >

> > > >Thanks to everyone that contacted me on the board and

privately.

> > > >Ya'll have helped me to keep a level head about it and not

give

> > into

> > > >the stress of it all.

> > > >

> > > >

> > > >Lori

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

The five hour drive to Atl would probably be more beneficial than going to N.O.

All you need is that referal. Also, they have 48-72 hours to call you back

usually.

Lori and Elijah wrote:,

I would consider it if we were still on summer break. The girls are

already going to miss alot of school when we make our PCS to

Hawaii. When we moved from San Diego to here, they'd missed so much

time that the school wanted to fail them. I cant risk taking them

out of school for that amt. of time.

Im still waiting to hear from the Dr, no phone call yet for the

referral. In the meantime, Im going to check out the Shriners

Hospital in New Orleans.

Elijah is finally napping for the first time today ( at 2 PM ). By

this time he's working on his second nap for the day. He's still

tolerating the shoes OFF the bar pretty well.

I know I mentioned that his last right boot was ripped from the

sole. Thats how hard he wriggles to get out of it. Has anyone else

had a boot come off the sole like that? It makes me wonder if its

not that he's relapsing so much as he's just fighting this bar (and

winning it seems).

Lori

> > > >Firstly, someone asked why going to Iowa wasnt an option

right

> > now.

> > > >My husband is deployed yet again, only for a month this time,

we

> > > >have 3 other kids and 2 of them just started the school year

> > today.

> > > >We have no family or close friends here to help out. And,

we're

> > > >supposed to be moving in 2 months.

> > > >

> > > >Someone suggested that maybe the boots were too big and

thinking

> > > >back, this 'did' start to happen when we got new shoes. I

still

> > > >have his old shoes but couldnt use his right one b/c he's all

but

> > > >ripped the boot off the sole, so I took the left boot and put

it

> > on

> > > >the right side of his bar. I put him down in the shoes last

> night

> > > >and he took them off twice. Once before 8PM and the second

time

> > was

> > > >a little before 2AM. He's supposed to be taking his morning

nap

> > now

> > > >with the shoes on and when I went to check on him screaming,

he

> > had

> > > >already pulled his foot out to the point where the heel was

at

> the

> > > >top of the shoe. I took it off and put it back on. Its not

that

> > > >he's unlacing the shoes.. he's pulling his feet out w/ them

still

> > > >strapped and laced.

> > > >

> > > >As for the military and my options:

> > > >

> > > >First, I warned my husband via email just how much of a fight

> this

> > > >is going to be. I called Tricare South this AM about finding

a

> > > >qualified provider, altho' I know there arent any in this

area.

> > They

> > > >sent me on a wild goose chase and after calling 5 people, I

gave

> > > >up. I told the benefits counselor that there arent any

qualified

> > > >providers in FL, AL, South GA, MS or LA. In order to receive

> care

> > > >in Hawaii, Id have to switch our benefits to Tricare West

> > first....

> > > >but I dont need to do that until I know we're really going

over

> > > >there.

> > > >

> > > >I called my husbands Master Chief and told him what was going

on

> > and

> > > >it took awhile to get him to understand just HOW imperative

it is

> > > >that Elijah be treated by a qualified person. He suggested

that

> I

> > > >call our PCM, family doctor, and ask for a referral first of

all.

> > > >Im waiting on them to return my call now. Master Chief said

that

> > > >they might fly me to Bethesda Naval Medical Center and I

> explained

> > > >that still didnt get me to a certified provider. I saw that

Dr

> > > >Herzenberg is also in land so I dont see why I couldnt

get a

> > > >referral to him. In fact, for that matter, I should be able

to

> > get

> > > >a referral to Dr Ponseti himself, and the Navy would provide

> > travel.

> > > >

> > > >I asked about a Temporary TAD to Hawaii for treatment like

Faith

> > > >suggested and he said that the Navy, nor the command would

pay

> for

> > > >that since it was the end of the fiscal year and everyone's

out

> of

> > > >money. If I go the route with the referral, the Navy's

medical

> > > >program would cover the costs.

> > > >

> > > >My fear is that all this crap is going to take too long and

I'll

> > end

> > > >up waiting the two months anyway before seeing someone

qualified.

> > > >

> > > >Thanks to everyone that contacted me on the board and

privately.

> > > >Ya'll have helped me to keep a level head about it and not

give

> > into

> > > >the stress of it all.

> > > >

> > > >

> > > >Lori

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hi there,

I would like to add that Dr. sy treated my daughter,

and she is doing wonderfully. He is a Ponseti-qualified

orthopedist, and he was so great with Addison. I would highly

recommend him if you did decide to go to Atlanta.

> > > >Firstly, someone asked why going to Iowa wasnt an option

right

> > now.

> > > >My husband is deployed yet again, only for a month this time,

we

> > > >have 3 other kids and 2 of them just started the school year

> > today.

> > > >We have no family or close friends here to help out. And,

we're

> > > >supposed to be moving in 2 months.

> > > >

> > > >Someone suggested that maybe the boots were too big and

thinking

> > > >back, this 'did' start to happen when we got new shoes. I

still

> > > >have his old shoes but couldnt use his right one b/c he's all

but

> > > >ripped the boot off the sole, so I took the left boot and put

it

> > on

> > > >the right side of his bar. I put him down in the shoes last

> night

> > > >and he took them off twice. Once before 8PM and the second

time

> > was

> > > >a little before 2AM. He's supposed to be taking his morning

nap

> > now

> > > >with the shoes on and when I went to check on him screaming,

he

> > had

> > > >already pulled his foot out to the point where the heel was

at

> the

> > > >top of the shoe. I took it off and put it back on. Its not

that

> > > >he's unlacing the shoes.. he's pulling his feet out w/ them

still

> > > >strapped and laced.

> > > >

> > > >As for the military and my options:

> > > >

> > > >First, I warned my husband via email just how much of a fight

> this

> > > >is going to be. I called Tricare South this AM about finding

a

> > > >qualified provider, altho' I know there arent any in this

area.

> > They

> > > >sent me on a wild goose chase and after calling 5 people, I

gave

> > > >up. I told the benefits counselor that there arent any

qualified

> > > >providers in FL, AL, South GA, MS or LA. In order to receive

> care

> > > >in Hawaii, Id have to switch our benefits to Tricare West

> > first....

> > > >but I dont need to do that until I know we're really going

over

> > > >there.

> > > >

> > > >I called my husbands Master Chief and told him what was going

on

> > and

> > > >it took awhile to get him to understand just HOW imperative

it is

> > > >that Elijah be treated by a qualified person. He suggested

that

> I

> > > >call our PCM, family doctor, and ask for a referral first of

all.

> > > >Im waiting on them to return my call now. Master Chief said

that

> > > >they might fly me to Bethesda Naval Medical Center and I

> explained

> > > >that still didnt get me to a certified provider. I saw that

Dr

> > > >Herzenberg is also in land so I dont see why I couldnt

get a

> > > >referral to him. In fact, for that matter, I should be able

to

> > get

> > > >a referral to Dr Ponseti himself, and the Navy would provide

> > travel.

> > > >

> > > >I asked about a Temporary TAD to Hawaii for treatment like

Faith

> > > >suggested and he said that the Navy, nor the command would

pay

> for

> > > >that since it was the end of the fiscal year and everyone's

out

> of

> > > >money. If I go the route with the referral, the Navy's

medical

> > > >program would cover the costs.

> > > >

> > > >My fear is that all this crap is going to take too long and

I'll

> > end

> > > >up waiting the two months anyway before seeing someone

qualified.

> > > >

> > > >Thanks to everyone that contacted me on the board and

privately.

> > > >Ya'll have helped me to keep a level head about it and not

give

> > into

> > > >the stress of it all.

> > > >

> > > >

> > > >Lori

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hi there,

I would like to add that Dr. sy treated my daughter,

and she is doing wonderfully. He is a Ponseti-qualified

orthopedist, and he was so great with Addison. I would highly

recommend him if you did decide to go to Atlanta.

> > > >Firstly, someone asked why going to Iowa wasnt an option

right

> > now.

> > > >My husband is deployed yet again, only for a month this time,

we

> > > >have 3 other kids and 2 of them just started the school year

> > today.

> > > >We have no family or close friends here to help out. And,

we're

> > > >supposed to be moving in 2 months.

> > > >

> > > >Someone suggested that maybe the boots were too big and

thinking

> > > >back, this 'did' start to happen when we got new shoes. I

still

> > > >have his old shoes but couldnt use his right one b/c he's all

but

> > > >ripped the boot off the sole, so I took the left boot and put

it

> > on

> > > >the right side of his bar. I put him down in the shoes last

> night

> > > >and he took them off twice. Once before 8PM and the second

time

> > was

> > > >a little before 2AM. He's supposed to be taking his morning

nap

> > now

> > > >with the shoes on and when I went to check on him screaming,

he

> > had

> > > >already pulled his foot out to the point where the heel was

at

> the

> > > >top of the shoe. I took it off and put it back on. Its not

that

> > > >he's unlacing the shoes.. he's pulling his feet out w/ them

still

> > > >strapped and laced.

> > > >

> > > >As for the military and my options:

> > > >

> > > >First, I warned my husband via email just how much of a fight

> this

> > > >is going to be. I called Tricare South this AM about finding

a

> > > >qualified provider, altho' I know there arent any in this

area.

> > They

> > > >sent me on a wild goose chase and after calling 5 people, I

gave

> > > >up. I told the benefits counselor that there arent any

qualified

> > > >providers in FL, AL, South GA, MS or LA. In order to receive

> care

> > > >in Hawaii, Id have to switch our benefits to Tricare West

> > first....

> > > >but I dont need to do that until I know we're really going

over

> > > >there.

> > > >

> > > >I called my husbands Master Chief and told him what was going

on

> > and

> > > >it took awhile to get him to understand just HOW imperative

it is

> > > >that Elijah be treated by a qualified person. He suggested

that

> I

> > > >call our PCM, family doctor, and ask for a referral first of

all.

> > > >Im waiting on them to return my call now. Master Chief said

that

> > > >they might fly me to Bethesda Naval Medical Center and I

> explained

> > > >that still didnt get me to a certified provider. I saw that

Dr

> > > >Herzenberg is also in land so I dont see why I couldnt

get a

> > > >referral to him. In fact, for that matter, I should be able

to

> > get

> > > >a referral to Dr Ponseti himself, and the Navy would provide

> > travel.

> > > >

> > > >I asked about a Temporary TAD to Hawaii for treatment like

Faith

> > > >suggested and he said that the Navy, nor the command would

pay

> for

> > > >that since it was the end of the fiscal year and everyone's

out

> of

> > > >money. If I go the route with the referral, the Navy's

medical

> > > >program would cover the costs.

> > > >

> > > >My fear is that all this crap is going to take too long and

I'll

> > end

> > > >up waiting the two months anyway before seeing someone

qualified.

> > > >

> > > >Thanks to everyone that contacted me on the board and

privately.

> > > >Ya'll have helped me to keep a level head about it and not

give

> > into

> > > >the stress of it all.

> > > >

> > > >

> > > >Lori

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Ha! ... Fule? Wow! Guess I won't get any jobs as a secretary... I mean fuel.

Dr. sy is the one I mentioned yesterday, only he gave me no warm

fuzzies. I may have just seen him on bad days? He is the best in that group

though. People come from around the world to see him. Maybe he just didn't like

me.

hltrachta wrote:Hi there,

I would like to add that Dr. sy treated my daughter,

and she is doing wonderfully. He is a Ponseti-qualified

orthopedist, and he was so great with Addison. I would highly

recommend him if you did decide to go to Atlanta.

> > > >Firstly, someone asked why going to Iowa wasnt an option

right

> > now.

> > > >My husband is deployed yet again, only for a month this time,

we

> > > >have 3 other kids and 2 of them just started the school year

> > today.

> > > >We have no family or close friends here to help out. And,

we're

> > > >supposed to be moving in 2 months.

> > > >

> > > >Someone suggested that maybe the boots were too big and

thinking

> > > >back, this 'did' start to happen when we got new shoes. I

still

> > > >have his old shoes but couldnt use his right one b/c he's all

but

> > > >ripped the boot off the sole, so I took the left boot and put

it

> > on

> > > >the right side of his bar. I put him down in the shoes last

> night

> > > >and he took them off twice. Once before 8PM and the second

time

> > was

> > > >a little before 2AM. He's supposed to be taking his morning

nap

> > now

> > > >with the shoes on and when I went to check on him screaming,

he

> > had

> > > >already pulled his foot out to the point where the heel was

at

> the

> > > >top of the shoe. I took it off and put it back on. Its not

that

> > > >he's unlacing the shoes.. he's pulling his feet out w/ them

still

> > > >strapped and laced.

> > > >

> > > >As for the military and my options:

> > > >

> > > >First, I warned my husband via email just how much of a fight

> this

> > > >is going to be. I called Tricare South this AM about finding

a

> > > >qualified provider, altho' I know there arent any in this

area.

> > They

> > > >sent me on a wild goose chase and after calling 5 people, I

gave

> > > >up. I told the benefits counselor that there arent any

qualified

> > > >providers in FL, AL, South GA, MS or LA. In order to receive

> care

> > > >in Hawaii, Id have to switch our benefits to Tricare West

> > first....

> > > >but I dont need to do that until I know we're really going

over

> > > >there.

> > > >

> > > >I called my husbands Master Chief and told him what was going

on

> > and

> > > >it took awhile to get him to understand just HOW imperative

it is

> > > >that Elijah be treated by a qualified person. He suggested

that

> I

> > > >call our PCM, family doctor, and ask for a referral first of

all.

> > > >Im waiting on them to return my call now. Master Chief said

that

> > > >they might fly me to Bethesda Naval Medical Center and I

> explained

> > > >that still didnt get me to a certified provider. I saw that

Dr

> > > >Herzenberg is also in land so I dont see why I couldnt

get a

> > > >referral to him. In fact, for that matter, I should be able

to

> > get

> > > >a referral to Dr Ponseti himself, and the Navy would provide

> > travel.

> > > >

> > > >I asked about a Temporary TAD to Hawaii for treatment like

Faith

> > > >suggested and he said that the Navy, nor the command would

pay

> for

> > > >that since it was the end of the fiscal year and everyone's

out

> of

> > > >money. If I go the route with the referral, the Navy's

medical

> > > >program would cover the costs.

> > > >

> > > >My fear is that all this crap is going to take too long and

I'll

> > end

> > > >up waiting the two months anyway before seeing someone

qualified.

> > > >

> > > >Thanks to everyone that contacted me on the board and

privately.

> > > >Ya'll have helped me to keep a level head about it and not

give

> > into

> > > >the stress of it all.

> > > >

> > > >

> > > >Lori

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >