RE: Re: Y at the top of 'butt crack' or bottom of spine

August 15, 2005

that is so good to hear that all is well with your little one too!! It is so

strange to hear how many of our kids have the same kind of thing ( from this

support group anyways) and when I had shown different 'medical people' some of

them would say that they never saw that before but it didn't look like a

concern.... it must be pretty common to have some sort of a mark on the lower

spine when you have a clubfoot.... I was pretty frustrated when the

neonatoligist didn't even bring it to our attention... we know she was checked

out because of the concern during pregnancy so I tried not to totally freak out

when I found it but it was just one more thing to worry about but she has come

so far that I am not 'to' concerned anymore... she is holding herself up when

proped against the couch for several minutes at a time... she doesn't pull up

there yet but she will stay there and tries to move around while doing that...

she is still unsteady but it is getting better each and every day...

Thanks for your input!!

Lori and Elijah wrote:

,

We noticed Elijah's " Y " right away, or rather his Dr did. It looked

pretty normal to me but then I didnt know anything about SB. All

our other children walked between 11 and 13 months. Elijah was just

a little late at 14 months.

One thing I noticed about Elijah was that he stood a little early at

7 months and just took his time. Our other babies (3 of them) would

take steps and risk falling. So their first steps were taken one or

two at a time. Elijah was more cautious, walked later but his first

steps were about 7-8 and he would go longer distances quicker than

the others did. Does that make sense?

I think Elijah being a little later than the rest was a confidence

thing rather than having to do with his leg strength b/c before he

could walk, he was (and still is) climbing over, under and through

EVERYTHING.

Does Avery pull up on things and stand for extended periods?

Lori

Mom to

13

Nova 9

Ethan almost 3

and Elijah 16 months RCF atypical DBB nights only

August 15, 2005

--- fabegirls wrote:

> Ava doesn't have a Y but she does have the dimple. Our first Ortho's

> never even examined her. When we saw Dr. Ponseti he examined her from

> head to toes. She had a deep dimple and thick hairy patch. He of course

> said it was nothing to worry about but when we came home I had my

> pediatrician write for an MRI. All is well. Worried for nothing! He did

> say that it was very common for CF babies to have sometype of dimple,

> hairy patch etc. Why I don't know?

It is interesting, isn't it?!

> I did meet a family when I was out in Iowa who's son did have spina

> bifida occulta. Evidently the base of the spinal cord becomes tethered

> and can cause some problems. I do know he had his fixed and he is about

> 18mnths now. He walks but not real steady yet.

I have a good friend whose son was diagnosed with sbo recently. He was over a

year, though, before it was diagnosed! His previous pediatrician just shrugged

his sacral dimple off as no big deal (I saw it and thought it was because it

was deeper than Rose's), but it turned out that it was sbo after they went to a

new family doctor. Most sacral dimples, hairy patches, y's don't signify

anything. They are just there. My friend's son will be two in September, and

he's been walking for awhile.

Joy

http://www.geocities.com/joybelle15/rosesclubfootpage.html

__________________________________________________

August 16, 2005

had a little hairy patch at the base of his spine when he was

born. I didn't give it a second thought until Dr Ponseti treated him at 10

weeks. By this time it had gone, but he asked if had had one and when

we said 'yes', he felt his spine and said it was OK. Maybe it's a potential

warning of a problem, but not always a sign that it is there? I'd assume

that it's the spina bifida occulta that he was checking for, but he didn't

say. I think I read somewhere a while ago that apart from Clubfoot, Dr

Ponseti's other research was on spinal defects, and spina bifida, but I'm

not sure about that.

's butt crack (for want of a better term, I have no idea what we'd call

it in South Africa!) looks pretty normal to me...

Moss

STEPS CHARITY

www.steps.org.za

Re: Re: " Y " at the top of 'butt crack' or

bottom of spine