Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Dear , I am so sorry and send my condolencesfor the loss of your precious child. It is the hardest thing in the world to watch our children suffer. She is no longer suffering with mito. I pray that you find comfort and peace in this most difficult time in your life. May her grace shine and her memory live forever. Blessings and prayers, Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 lauren hi everyone, i have sad news lauren died november 30th her GI shut down (the g-tube and j-tube and by mouth wouldn't work) and with her having many more bad days than good we made a very hard decision and decided not to go with tpn lauren's quality of life this past year had decreased and suffering increased too much. we worked with childrens hospital's home care/hospice which i highly recommend they helped us with numerous things, one of which was on the last few days to keep lauren comfortable in closing i haven't posted too much on this site, however, i visit it daily and it has helped me tremenously-not only with learning things but also knowing families that also have a unique medically fragile child. i welcome any comments that might help my family thru this and i also welcome contact from anyone that thinks i can maybe help them thank you lisa ehele Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 please know that you and your family are in my thoughts and prayers. bethany mom to brennan 7, palmer & anna grace (leighs) 5 > > hi everyone, i have sad news lauren died november 30th her > GI shut down (the g-tube and j-tube and by mouth wouldn't work) and > with her having many more bad days than good we made a very hard > decision and decided not to go with tpn lauren's quality of life > this past year had decreased and suffering increased too much. we > worked with childrens hospital's home care/hospice which i highly > recommend they helped us with numerous things, one of which was on > the last few days to keep lauren comfortable in closing i haven't > posted too much on this site, however, i visit it daily and it has > helped me tremenously-not only with learning things but also knowing > families that also have a unique medically fragile child. i welcome > any comments that might help my family thru this and i also welcome > contact from anyone that thinks i can maybe help them thank you > lisa ehele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 please know that you and your family are in my thoughts and prayers. bethany mom to brennan 7, palmer & anna grace (leighs) 5 > > hi everyone, i have sad news lauren died november 30th her > GI shut down (the g-tube and j-tube and by mouth wouldn't work) and > with her having many more bad days than good we made a very hard > decision and decided not to go with tpn lauren's quality of life > this past year had decreased and suffering increased too much. we > worked with childrens hospital's home care/hospice which i highly > recommend they helped us with numerous things, one of which was on > the last few days to keep lauren comfortable in closing i haven't > posted too much on this site, however, i visit it daily and it has > helped me tremenously-not only with learning things but also knowing > families that also have a unique medically fragile child. i welcome > any comments that might help my family thru this and i also welcome > contact from anyone that thinks i can maybe help them thank you > lisa ehele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 please know that you and your family are in my thoughts and prayers. bethany mom to brennan 7, palmer & anna grace (leighs) 5 > > hi everyone, i have sad news lauren died november 30th her > GI shut down (the g-tube and j-tube and by mouth wouldn't work) and > with her having many more bad days than good we made a very hard > decision and decided not to go with tpn lauren's quality of life > this past year had decreased and suffering increased too much. we > worked with childrens hospital's home care/hospice which i highly > recommend they helped us with numerous things, one of which was on > the last few days to keep lauren comfortable in closing i haven't > posted too much on this site, however, i visit it daily and it has > helped me tremenously-not only with learning things but also knowing > families that also have a unique medically fragile child. i welcome > any comments that might help my family thru this and i also welcome > contact from anyone that thinks i can maybe help them thank you > lisa ehele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 please know that you and your family are in my thoughts and prayers. bethany mom to brennan 7, palmer & anna grace (leighs) 5 > > hi everyone, i have sad news lauren died november 30th her > GI shut down (the g-tube and j-tube and by mouth wouldn't work) and > with her having many more bad days than good we made a very hard > decision and decided not to go with tpn lauren's quality of life > this past year had decreased and suffering increased too much. we > worked with childrens hospital's home care/hospice which i highly > recommend they helped us with numerous things, one of which was on > the last few days to keep lauren comfortable in closing i haven't > posted too much on this site, however, i visit it daily and it has > helped me tremenously-not only with learning things but also knowing > families that also have a unique medically fragile child. i welcome > any comments that might help my family thru this and i also welcome > contact from anyone that thinks i can maybe help them thank you > lisa ehele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 , My thoughts and prayers are with , you and your family. You are very Brave. Kerry mother to Abigail (optic atrophy, possible mito) and Bridgeteheles wrote: hi everyone, i have sad news lauren died november 30th her GI shut down (the g-tube and j-tube and by mouth wouldn't work) and with her having many more bad days than good we made a very hard decision and decided not to go with tpn lauren's quality of life this past year had decreased and suffering increased too much. we worked with childrens hospital's home care/hospice which i highly recommend they helped us with numerous things, one of which was on the last few days to keep lauren comfortable in closing i haven't posted too much on this site, however, i visit it daily and it has helped me tremenously-not only with learning things but also knowing families that also have a unique medically fragile child. i welcome any comments that might help my family thru this and i also welcome contact from anyone that thinks i can maybe help them thank you lisa ehelePlease contact mito-owner with any problems or questions. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 , My thoughts and prayers are with , you and your family. You are very Brave. Kerry mother to Abigail (optic atrophy, possible mito) and Bridgeteheles wrote: hi everyone, i have sad news lauren died november 30th her GI shut down (the g-tube and j-tube and by mouth wouldn't work) and with her having many more bad days than good we made a very hard decision and decided not to go with tpn lauren's quality of life this past year had decreased and suffering increased too much. we worked with childrens hospital's home care/hospice which i highly recommend they helped us with numerous things, one of which was on the last few days to keep lauren comfortable in closing i haven't posted too much on this site, however, i visit it daily and it has helped me tremenously-not only with learning things but also knowing families that also have a unique medically fragile child. i welcome any comments that might help my family thru this and i also welcome contact from anyone that thinks i can maybe help them thank you lisa ehelePlease contact mito-owner with any problems or questions. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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