Dr. Dobbs genetic research

[Guest guest]

Just a reminder to people about Dr. Dobbs genetic study. He is

getting very close to finding this gene but he just needs more

participants in the study. Especially people with multiple affected

family members. He had a lot of good preliminary contacts with people

from the group but not very many people have followed through with

actually getting their blood drawn and sending it to him. If any of

you guys have made inital contact with him but are missing information

that you need to get this done, please let me know. You can email me

directly at jagrindon@... Also, please, anyone who is new, or

who wants more information about this, please contact me.

I would also like to get some feedback from anyone who has actually

been in touch with him, like if you have received sufficient

information, if they are keeping in contact with you and if you have

actually been able to participate etc.

thanks,

allison

[Guest guest]

Just a reminder to people about Dr. Dobbs genetic study. He is

getting very close to finding this gene but he just needs more

participants in the study. Especially people with multiple affected

family members. He had a lot of good preliminary contacts with people

from the group but not very many people have followed through with

actually getting their blood drawn and sending it to him. If any of

you guys have made inital contact with him but are missing information

that you need to get this done, please let me know. You can email me

directly at jagrindon@... Also, please, anyone who is new, or

who wants more information about this, please contact me.

I would also like to get some feedback from anyone who has actually

been in touch with him, like if you have received sufficient

information, if they are keeping in contact with you and if you have

actually been able to participate etc.

thanks,

allison

[Guest guest]

I had said I'd be more than happy to help out, but never heard back

from anybody. Let me know what I need to do - and we'll for sure do

it. FYI - Zach is the only known person in either family to be born

with clubfoot.

Holly

Zachary 7/27/02

Right C/F

Treated by Dr. Ponseti

DBB Nights Only

> Just a reminder to people about Dr. Dobbs genetic study. He is

> getting very close to finding this gene but he just needs more

> participants in the study. Especially people with multiple

affected

> family members. He had a lot of good preliminary contacts with

people

> from the group but not very many people have followed through with

> actually getting their blood drawn and sending it to him. If any

of

> you guys have made inital contact with him but are missing

information

> that you need to get this done, please let me know. You can email

me

> directly at jagrindon@y... Also, please, anyone who is new, or

> who wants more information about this, please contact me.

>

> I would also like to get some feedback from anyone who has actually

> been in touch with him, like if you have received sufficient

> information, if they are keeping in contact with you and if you

have

> actually been able to participate etc.

>

> thanks,

> allison

[Guest guest]

I had said I'd be more than happy to help out, but never heard back

from anybody. Let me know what I need to do - and we'll for sure do

it. FYI - Zach is the only known person in either family to be born

with clubfoot.

Holly

Zachary 7/27/02

Right C/F

Treated by Dr. Ponseti

DBB Nights Only

> Just a reminder to people about Dr. Dobbs genetic study. He is

> getting very close to finding this gene but he just needs more

> participants in the study. Especially people with multiple

affected

> family members. He had a lot of good preliminary contacts with

people

> from the group but not very many people have followed through with

> actually getting their blood drawn and sending it to him. If any

of

> you guys have made inital contact with him but are missing

information

> that you need to get this done, please let me know. You can email

me

> directly at jagrindon@y... Also, please, anyone who is new, or

> who wants more information about this, please contact me.

>

> I would also like to get some feedback from anyone who has actually

> been in touch with him, like if you have received sufficient

> information, if they are keeping in contact with you and if you

have

> actually been able to participate etc.

>

> thanks,

> allison

[Guest guest]

Holly,

Thanks for the feedback, right now he is solely needing families with

2 or more affected members. They are getting so close to pinpointing

the gene, it is really more and more important to get families with

multiple instances to participate. I do appreciate your interest and

I'm sure Dr. Dobbs does as well, I am sorry that no one got back with you.

It is interesting to note that in a lot of cases when people start

doing a little digging, they find that there is an uncle or cousin or

someone else who also had clubfoot but for some reason it was just not

common knowledge in the family; or even that the person's family never

had a definite diagnosis. These are the cases that could lead to this

breakthrough! So...if anyone has any inclination to start talking to

family members, calling hospitals, etc. to find out if that one cousin

who " used to wear those little turned out shoes on a bar " actually had

clubfoot -- please do, Dr. Dobbs would really be appreciative.

Thanks,

> > Just a reminder to people about Dr. Dobbs genetic study. He is

> > getting very close to finding this gene but he just needs more

> > participants in the study. Especially people with multiple

> affected

> > family members. He had a lot of good preliminary contacts with

> people

> > from the group but not very many people have followed through with

> > actually getting their blood drawn and sending it to him. If any

> of

> > you guys have made inital contact with him but are missing

> information

> > that you need to get this done, please let me know. You can email

> me

> > directly at jagrindon@y... Also, please, anyone who is new, or

> > who wants more information about this, please contact me.

> >

> > I would also like to get some feedback from anyone who has actually

> > been in touch with him, like if you have received sufficient

> > information, if they are keeping in contact with you and if you

> have

> > actually been able to participate etc.

> >

> > thanks,

> > allison

[Guest guest]

Holly,

Thanks for the feedback, right now he is solely needing families with

2 or more affected members. They are getting so close to pinpointing

the gene, it is really more and more important to get families with

multiple instances to participate. I do appreciate your interest and

I'm sure Dr. Dobbs does as well, I am sorry that no one got back with you.

It is interesting to note that in a lot of cases when people start

doing a little digging, they find that there is an uncle or cousin or

someone else who also had clubfoot but for some reason it was just not

common knowledge in the family; or even that the person's family never

had a definite diagnosis. These are the cases that could lead to this

breakthrough! So...if anyone has any inclination to start talking to

family members, calling hospitals, etc. to find out if that one cousin

who " used to wear those little turned out shoes on a bar " actually had

clubfoot -- please do, Dr. Dobbs would really be appreciative.

Thanks,

> > Just a reminder to people about Dr. Dobbs genetic study. He is

> > getting very close to finding this gene but he just needs more

> > participants in the study. Especially people with multiple

> affected

> > family members. He had a lot of good preliminary contacts with

> people

> > from the group but not very many people have followed through with

> > actually getting their blood drawn and sending it to him. If any

> of

> > you guys have made inital contact with him but are missing

> information

> > that you need to get this done, please let me know. You can email

> me

> > directly at jagrindon@y... Also, please, anyone who is new, or

> > who wants more information about this, please contact me.

> >

> > I would also like to get some feedback from anyone who has actually

> > been in touch with him, like if you have received sufficient

> > information, if they are keeping in contact with you and if you

> have

> > actually been able to participate etc.

> >

> > thanks,

> > allison