Re: Ehele's funeral-mentions God

[Guest guest]

Glad you could tell us that Geri. May be you could contact the Priest

and see if he has a copy of the euology. Trust me that pastors and

priests, don't always shoot from the hip. They need things written

down. My dad was a minister and we still have his many sermons and even

a few sermons from a funeral or two. I would love to see what was

written as that is exactly how I feel. I don't want people to feel

sorry for me. But look through the eyes of my child and how she loves

life and especially how her brothers love her and accept her for who she

is. Thanks for sharing and also for being able to go to the funeral for

that extra support.

Nerenhausen

mom to Leah

gazubich wrote:

>I attended 's funeral today. It was sad, but beautiful. I

>want to share with all of you a portion of the euology that the

>priest gave. I was sobbing through the whole thing. I will not be

>able to quote him word for word but here is the main point he made.

>He started off talking about how some of us must be wondering why

>God would make a child who was blind, in a wheelchair, in and out of

>the hospital and in the end having pain. Any why would God have a

>child die before her parents; that is not the way it is suppose to

>be. He went on to say that that is the human way of looking at

>things. But if we were to look at the situation from God's eye we

>would see that through , God's grace shinned on all of us.

> had an incredible belly laugh, she loved everyone

>unconditionally, and she taught her brother and those who cared for

>her compassion. He went on to say that we should not pitty ,

>, and for all they have suffered because they

>were truly blessed in that daily they witnessed God's grace. He put

>into words everything I have always felt about raising a child with

>a disability, but didn't quite know how to say it. It was beautiful

>and very touching. I am so thankful to witness God's grace through

>all of our children.

>

>Geri-Anne and Wyatt, Complex I

>

>

>

>

>

>

>Please contact mito-owner with any problems or questions.

>

[Guest guest]

Glad you could tell us that Geri. May be you could contact the Priest

and see if he has a copy of the euology. Trust me that pastors and

priests, don't always shoot from the hip. They need things written

down. My dad was a minister and we still have his many sermons and even

a few sermons from a funeral or two. I would love to see what was

written as that is exactly how I feel. I don't want people to feel

sorry for me. But look through the eyes of my child and how she loves

life and especially how her brothers love her and accept her for who she

is. Thanks for sharing and also for being able to go to the funeral for

that extra support.

Nerenhausen

mom to Leah

gazubich wrote:

>I attended 's funeral today. It was sad, but beautiful. I

>want to share with all of you a portion of the euology that the

>priest gave. I was sobbing through the whole thing. I will not be

>able to quote him word for word but here is the main point he made.

>He started off talking about how some of us must be wondering why

>God would make a child who was blind, in a wheelchair, in and out of

>the hospital and in the end having pain. Any why would God have a

>child die before her parents; that is not the way it is suppose to

>be. He went on to say that that is the human way of looking at

>things. But if we were to look at the situation from God's eye we

>would see that through , God's grace shinned on all of us.

> had an incredible belly laugh, she loved everyone

>unconditionally, and she taught her brother and those who cared for

>her compassion. He went on to say that we should not pitty ,

>, and for all they have suffered because they

>were truly blessed in that daily they witnessed God's grace. He put

>into words everything I have always felt about raising a child with

>a disability, but didn't quite know how to say it. It was beautiful

>and very touching. I am so thankful to witness God's grace through

>all of our children.

>

>Geri-Anne and Wyatt, Complex I

>

>

>

>

>

>

>Please contact mito-owner with any problems or questions.

>

[Guest guest]

Thanks for sharing this with us. It is nice to know you were able to

be there to comfort their family. It sounds like it was an amazing speech.

It is a wonderful perspective that we can share with others of what it is

like to care for our kids.

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Ehele's funeral-mentions God

>

>

> I attended 's funeral today. It was sad, but beautiful. I

> want to share with all of you a portion of the euology that the

> priest gave. I was sobbing through the whole thing. I will not be

> able to quote him word for word but here is the main point he made.

> He started off talking about how some of us must be wondering why

> God would make a child who was blind, in a wheelchair, in and out of

> the hospital and in the end having pain. Any why would God have a

> child die before her parents; that is not the way it is suppose to

> be. He went on to say that that is the human way of looking at

> things. But if we were to look at the situation from God's eye we

> would see that through , God's grace shinned on all of us.

> had an incredible belly laugh, she loved everyone

> unconditionally, and she taught her brother and those who cared for

> her compassion. He went on to say that we should not pitty ,

> , and for all they have suffered because they

> were truly blessed in that daily they witnessed God's grace. He put

> into words everything I have always felt about raising a child with

> a disability, but didn't quite know how to say it. It was beautiful

> and very touching. I am so thankful to witness God's grace through

> all of our children.

>

> Geri-Anne and Wyatt, Complex I

>

>

>

>

>

>

> Please contact mito-owner with any problems or questions.

>

[Guest guest]

Thanks for sharing this with us. It is nice to know you were able to

be there to comfort their family. It sounds like it was an amazing speech.

It is a wonderful perspective that we can share with others of what it is

like to care for our kids.

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Ehele's funeral-mentions God

>

>

> I attended 's funeral today. It was sad, but beautiful. I

> want to share with all of you a portion of the euology that the

> priest gave. I was sobbing through the whole thing. I will not be

> able to quote him word for word but here is the main point he made.

> He started off talking about how some of us must be wondering why

> God would make a child who was blind, in a wheelchair, in and out of

> the hospital and in the end having pain. Any why would God have a

> child die before her parents; that is not the way it is suppose to

> be. He went on to say that that is the human way of looking at

> things. But if we were to look at the situation from God's eye we

> would see that through , God's grace shinned on all of us.

> had an incredible belly laugh, she loved everyone

> unconditionally, and she taught her brother and those who cared for

> her compassion. He went on to say that we should not pitty ,

> , and for all they have suffered because they

> were truly blessed in that daily they witnessed God's grace. He put

> into words everything I have always felt about raising a child with

> a disability, but didn't quite know how to say it. It was beautiful

> and very touching. I am so thankful to witness God's grace through

> all of our children.

>

> Geri-Anne and Wyatt, Complex I

>

>

>

>

>

>

> Please contact mito-owner with any problems or questions.

>