Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 This group is my best and most realistic source of actual information and support i have. We hit a bump in the road, but we've patched it and this group will be better and stronger for it!!! Love to all, and know that we will continue on being here with information, support and zaniness!! (Crazyness with a Z) Sincerely, Tracie NS Co-owner/moderatorSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 This group is my best and most realistic source of actual information and support i have. We hit a bump in the road, but we've patched it and this group will be better and stronger for it!!! Love to all, and know that we will continue on being here with information, support and zaniness!! (Crazyness with a Z) Sincerely, Tracie NS Co-owner/moderatorSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Ken We'll all be praying for your surgeries and for you. Like all families, except maybe some of the 50's tv show families, we have blow ups every now and again. But we can almost always kiss & make up! Here's to the group!Join our Sock Challenge for Orphans in Kazakhstan - 265 pairs needed by 9/15/07 http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Got a little couch potato? Check out fun summer activities for kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Ken, I'm sorry about the death in your family. Are you doing okay with it? As far as the list, hopefully by now you have read more messages & know that we have worked it out/are working it out. Sometimes when you have two or more really stressed people, the emotions override the reasoning process & ka-boom! Luckily, we have a bond that is stronger than super glue that draws us back together. I think sometimes when we disagree about an issue, we just have to be willing to give each other a little more space & a little more grace. When are you going for the muscle biopsy? Is this procedure done under local? Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 "How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these." ~ Washington Carver To: Neurosarcoidosis From: ostrichlegs_2000@...Date: Sat, 15 Sep 2007 01:44:39 +0000Subject: what happened???? i've been away this week for a death in my family and i am just now sitting down reviewing the emails. What Happened???? This group is my best and most realistic source of actual information and support i have. i can see now that we all have been through many and some more than others, but WE know its there. I wanted to tell you all that i am now going for surgery for several biopsies of muscle and nerves which this new neurologist believes firmly that i fall into the 5-10% of muscle sarcoid. this has been my biggest problem with my health, i have a full right leg brace, my hands and arms are contracted inward, my strength is rapidly weakening, moreso in the past 2-3 weeks and i cannot do the things i used to at all. i think of all of us every day and pray for our pains, and losses. i will let you know what the results of the biopsies are and where, it will be great for him to find the sarc in the muscles just for the point of they found what is causing these severe problems i'm having, but detramental in that i have a positive for sarcoid in the muscles which is even slimmer than having sarcoid in the first place.thanks so much to all who have shared their story, they have brought me great support and the attitude to continue on searching for the truth of the disease.thanks again and keep sharing with each other!!!!!!!love and god blessken Make your little one a shining star! Shine on! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Ken, I am very sorry to hear about the death in your family. If having this disease isn't enough, then someone you love is gone. It really stinks. I will be keeping you in my thoughts and prayers regarding your upcoming biopsies and please do let me know what happens. Terri G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Ken, I am very sorry to hear about the death in your family. If having this disease isn't enough, then someone you love is gone. It really stinks. I will be keeping you in my thoughts and prayers regarding your upcoming biopsies and please do let me know what happens. Terri G. Quote Link to comment Share on other sites More sharing options...
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