Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Jackie, Not sure where you live but it appears you live somewhere in Wisconsin. I live in a suburb of Milwaukee and go to the Regional Neurological Center at St. Lukes. I had optic neuritis in my left eye before Christmas and then the neurosarc really hit. I had slight taps on my shoulder for months but was not listening as I am a type A and I am independent, own my own home and was trying to work tons of hours at work and renovating my house too. It has been 9 months but I am still on solumedrol IVs monthly and am finally down to 12 mg of oral prednisone and trying to lower to 11. I was on 60 mg for 2 months. I also had to go on insulin because of the prednisone and nexium for my stomach. I am currently seeing a life transformation coach and have been doing a lot better this month with her help. My doctors are amazed and they also believe in spiritual healing to help make someone better with MS, NS or any other neurological problem. I have cried a lot because I have been so independent doing everything here in my own home outside and in and working a high stress job and then you get hit with this and can't walk right, talk right etc. But, then I am trying to see that others have it far worse than I and I have made a lot of progress in the last 9 months. I am so thankful to have found this support group as well. KatSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Jackie, Not sure where you live but it appears you live somewhere in Wisconsin. I live in a suburb of Milwaukee and go to the Regional Neurological Center at St. Lukes. I had optic neuritis in my left eye before Christmas and then the neurosarc really hit. I had slight taps on my shoulder for months but was not listening as I am a type A and I am independent, own my own home and was trying to work tons of hours at work and renovating my house too. It has been 9 months but I am still on solumedrol IVs monthly and am finally down to 12 mg of oral prednisone and trying to lower to 11. I was on 60 mg for 2 months. I also had to go on insulin because of the prednisone and nexium for my stomach. I am currently seeing a life transformation coach and have been doing a lot better this month with her help. My doctors are amazed and they also believe in spiritual healing to help make someone better with MS, NS or any other neurological problem. I have cried a lot because I have been so independent doing everything here in my own home outside and in and working a high stress job and then you get hit with this and can't walk right, talk right etc. But, then I am trying to see that others have it far worse than I and I have made a lot of progress in the last 9 months. I am so thankful to have found this support group as well. KatSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Jackie, Not sure where you live but it appears you live somewhere in Wisconsin. I live in a suburb of Milwaukee and go to the Regional Neurological Center at St. Lukes. I had optic neuritis in my left eye before Christmas and then the neurosarc really hit. I had slight taps on my shoulder for months but was not listening as I am a type A and I am independent, own my own home and was trying to work tons of hours at work and renovating my house too. It has been 9 months but I am still on solumedrol IVs monthly and am finally down to 12 mg of oral prednisone and trying to lower to 11. I was on 60 mg for 2 months. I also had to go on insulin because of the prednisone and nexium for my stomach. I am currently seeing a life transformation coach and have been doing a lot better this month with her help. My doctors are amazed and they also believe in spiritual healing to help make someone better with MS, NS or any other neurological problem. I have cried a lot because I have been so independent doing everything here in my own home outside and in and working a high stress job and then you get hit with this and can't walk right, talk right etc. But, then I am trying to see that others have it far worse than I and I have made a lot of progress in the last 9 months. I am so thankful to have found this support group as well. KatSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Jackie, Not sure where you live but it appears you live somewhere in Wisconsin. I live in a suburb of Milwaukee and go to the Regional Neurological Center at St. Lukes. I had optic neuritis in my left eye before Christmas and then the neurosarc really hit. I had slight taps on my shoulder for months but was not listening as I am a type A and I am independent, own my own home and was trying to work tons of hours at work and renovating my house too. It has been 9 months but I am still on solumedrol IVs monthly and am finally down to 12 mg of oral prednisone and trying to lower to 11. I was on 60 mg for 2 months. I also had to go on insulin because of the prednisone and nexium for my stomach. I am currently seeing a life transformation coach and have been doing a lot better this month with her help. My doctors are amazed and they also believe in spiritual healing to help make someone better with MS, NS or any other neurological problem. I have cried a lot because I have been so independent doing everything here in my own home outside and in and working a high stress job and then you get hit with this and can't walk right, talk right etc. But, then I am trying to see that others have it far worse than I and I have made a lot of progress in the last 9 months. I am so thankful to have found this support group as well. KatSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Hi I am Jackie and I have neurosardc. I was inflicted 20 months ago. As you all know it was real hell. My right side has limited mobility and is almost all the time tingling. It has affected both legs and everything from the waist down. Also facial muscles. The other day I found out I must of had a flare up. My right eye is blurry. The MRI shows that the optical nerve is abnormal. We don't know yet if I will get the sight back or even if it is a flare up. I just keep praying. When I first got NS we didn't think I would live. I spent 30 days in University of Wisconsin Hospital. Then another 8 months in a nursing home. I am at home now with the help of a very good man. I am doing better but still feel a little sorry for myself. I can walk around the house with a walker and take care of myself physically but as all of us I had to give up a lot. I used to ride motorcycle and now I can't even drive. As an independent person it hits hard. " I cried because I had no shoes until I saw the man who had no feet." My father used to say that when I was little and I can't help but remember it. How true Huh? Any way I am looking to talk to someone who is going through the same, if not close, feelings as I am. I need a kick in the butt sometimes to stop the pity party. Maybe talking to others who are going through the same thing will help. Anyone out there care to lend a hand, an ear and some advice. Please talk to me. And thank you all. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Hi I am Jackie and I have neurosardc. I was inflicted 20 months ago. As you all know it was real hell. My right side has limited mobility and is almost all the time tingling. It has affected both legs and everything from the waist down. Also facial muscles. The other day I found out I must of had a flare up. My right eye is blurry. The MRI shows that the optical nerve is abnormal. We don't know yet if I will get the sight back or even if it is a flare up. I just keep praying. When I first got NS we didn't think I would live. I spent 30 days in University of Wisconsin Hospital. Then another 8 months in a nursing home. I am at home now with the help of a very good man. I am doing better but still feel a little sorry for myself. I can walk around the house with a walker and take care of myself physically but as all of us I had to give up a lot. I used to ride motorcycle and now I can't even drive. As an independent person it hits hard. " I cried because I had no shoes until I saw the man who had no feet." My father used to say that when I was little and I can't help but remember it. How true Huh? Any way I am looking to talk to someone who is going through the same, if not close, feelings as I am. I need a kick in the butt sometimes to stop the pity party. Maybe talking to others who are going through the same thing will help. Anyone out there care to lend a hand, an ear and some advice. Please talk to me. And thank you all. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Jackie Welcome! I don't know if I've read your posts yet but I do know how you feel. After many objections to the idea I am now thrilled at the thought of moving into the senior/handicapped apartments not very far from here. I have sarc in the spine & bulging disks and I also use a walker. The building here has steps and I can't get out to walk and build up my strength. I also can't even take my own trash out. The new apartment has a ramp and they have a small grocery store cart you can put your garbage in and take to the dumpster! The little things that make you feel more independent are sometimes the most amazing. I'm also knitting for an orphanage in Khazakstan with my knitting group. I'm not able to adopt a child but I can put some warm wool socks on their feet. I didn't mind giving up riding on the back of the ex bf's motorcycle much but I sure hate not being able to ride roller coasters.......I sure remember the wind in my hair on the way down the hill! Join our Sock Challenge for Orphans in Kazakhstan - 265 pairs needed by 9/15/07 http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Jackie Welcome! I don't know if I've read your posts yet but I do know how you feel. After many objections to the idea I am now thrilled at the thought of moving into the senior/handicapped apartments not very far from here. I have sarc in the spine & bulging disks and I also use a walker. The building here has steps and I can't get out to walk and build up my strength. I also can't even take my own trash out. The new apartment has a ramp and they have a small grocery store cart you can put your garbage in and take to the dumpster! The little things that make you feel more independent are sometimes the most amazing. I'm also knitting for an orphanage in Khazakstan with my knitting group. I'm not able to adopt a child but I can put some warm wool socks on their feet. I didn't mind giving up riding on the back of the ex bf's motorcycle much but I sure hate not being able to ride roller coasters.......I sure remember the wind in my hair on the way down the hill! Join our Sock Challenge for Orphans in Kazakhstan - 265 pairs needed by 9/15/07 http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Jackie Welcome! I don't know if I've read your posts yet but I do know how you feel. After many objections to the idea I am now thrilled at the thought of moving into the senior/handicapped apartments not very far from here. I have sarc in the spine & bulging disks and I also use a walker. The building here has steps and I can't get out to walk and build up my strength. I also can't even take my own trash out. The new apartment has a ramp and they have a small grocery store cart you can put your garbage in and take to the dumpster! The little things that make you feel more independent are sometimes the most amazing. I'm also knitting for an orphanage in Khazakstan with my knitting group. I'm not able to adopt a child but I can put some warm wool socks on their feet. I didn't mind giving up riding on the back of the ex bf's motorcycle much but I sure hate not being able to ride roller coasters.......I sure remember the wind in my hair on the way down the hill! Join our Sock Challenge for Orphans in Kazakhstan - 265 pairs needed by 9/15/07 http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Jackie Welcome! I don't know if I've read your posts yet but I do know how you feel. After many objections to the idea I am now thrilled at the thought of moving into the senior/handicapped apartments not very far from here. I have sarc in the spine & bulging disks and I also use a walker. The building here has steps and I can't get out to walk and build up my strength. I also can't even take my own trash out. The new apartment has a ramp and they have a small grocery store cart you can put your garbage in and take to the dumpster! The little things that make you feel more independent are sometimes the most amazing. I'm also knitting for an orphanage in Khazakstan with my knitting group. I'm not able to adopt a child but I can put some warm wool socks on their feet. I didn't mind giving up riding on the back of the ex bf's motorcycle much but I sure hate not being able to ride roller coasters.......I sure remember the wind in my hair on the way down the hill! Join our Sock Challenge for Orphans in Kazakhstan - 265 pairs needed by 9/15/07 http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Jackie I forgot to mention that 3 weeks after moving into this apartment my shunt failed and I had surgery again to replace it followed by 4 weeks in a rehab hospital. The steps weren't a problem before I moved in but after the surgery my 52(now 53) year old body didn't bounce back like it did in 1997 when I got the first shunt. My sarc is in the brain & spine only so far.Join our Sock Challenge for Orphans in Kazakhstan - 265 pairs needed by 9/15/07 http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Jackie I forgot to mention that 3 weeks after moving into this apartment my shunt failed and I had surgery again to replace it followed by 4 weeks in a rehab hospital. The steps weren't a problem before I moved in but after the surgery my 52(now 53) year old body didn't bounce back like it did in 1997 when I got the first shunt. My sarc is in the brain & spine only so far.Join our Sock Challenge for Orphans in Kazakhstan - 265 pairs needed by 9/15/07 http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Jackie I forgot to mention that 3 weeks after moving into this apartment my shunt failed and I had surgery again to replace it followed by 4 weeks in a rehab hospital. The steps weren't a problem before I moved in but after the surgery my 52(now 53) year old body didn't bounce back like it did in 1997 when I got the first shunt. My sarc is in the brain & spine only so far.Join our Sock Challenge for Orphans in Kazakhstan - 265 pairs needed by 9/15/07 http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Jackie I forgot to mention that 3 weeks after moving into this apartment my shunt failed and I had surgery again to replace it followed by 4 weeks in a rehab hospital. The steps weren't a problem before I moved in but after the surgery my 52(now 53) year old body didn't bounce back like it did in 1997 when I got the first shunt. My sarc is in the brain & spine only so far.Join our Sock Challenge for Orphans in Kazakhstan - 265 pairs needed by 9/15/07 http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Welcome Jackie. I am glad to meet you yet sorry it has to be this way. I have systemic sarcoidosis (cardiac included with an AICD) and am currently having a flare that is affecting my eyes. I remember my mother saying that phrase when I was small. It brought back a lot of memories. You will be in my thoughts and prayers.Blessings,Beckyjackie wrote: Hi I am Jackie and I have neurosardc. I was inflicted 20 months ago. As you all know it was real hell. My right side has limited mobility and is almost all the time tingling. It has affected both legs and everything from the waist down. Also facial muscles. The other day I found out I must of had a flare up. My right eye is blurry. The MRI shows that the optical nerve is abnormal. We don't know yet if I will get the sight back or even if it is a flare up. I just keep praying. When I first got NS we didn't think I would live. I spent 30 days in University of Wisconsin Hospital. Then another 8 months in a nursing home. I am at home now with the help of a very good man. I am doing better but still feel a little sorry for myself. I can walk around the house with a walker and take care of myself physically but as all of us I had to give up a lot. I used to ride motorcycle and now I can't even drive. As an independent person it hits hard. " I cried because I had no shoes until I saw the man who had no feet." My father used to say that when I was little and I can't help but remember it. How true Huh? Any way I am looking to talk to someone who is going through the same, if not close, feelings as I am. I need a kick in the butt sometimes to stop the pity party. Maybe talking to others who are going through the same thing will help. Anyone out there care to lend a hand, an ear and some advice. Please talk to me. And thank you all. Jackie Be a better Globetrotter. Get better travel answers from someone who knows.Yahoo! Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Welcome Jackie. I am glad to meet you yet sorry it has to be this way. I have systemic sarcoidosis (cardiac included with an AICD) and am currently having a flare that is affecting my eyes. I remember my mother saying that phrase when I was small. It brought back a lot of memories. You will be in my thoughts and prayers.Blessings,Beckyjackie wrote: Hi I am Jackie and I have neurosardc. I was inflicted 20 months ago. As you all know it was real hell. My right side has limited mobility and is almost all the time tingling. It has affected both legs and everything from the waist down. Also facial muscles. The other day I found out I must of had a flare up. My right eye is blurry. The MRI shows that the optical nerve is abnormal. We don't know yet if I will get the sight back or even if it is a flare up. I just keep praying. When I first got NS we didn't think I would live. I spent 30 days in University of Wisconsin Hospital. Then another 8 months in a nursing home. I am at home now with the help of a very good man. I am doing better but still feel a little sorry for myself. I can walk around the house with a walker and take care of myself physically but as all of us I had to give up a lot. I used to ride motorcycle and now I can't even drive. As an independent person it hits hard. " I cried because I had no shoes until I saw the man who had no feet." My father used to say that when I was little and I can't help but remember it. How true Huh? Any way I am looking to talk to someone who is going through the same, if not close, feelings as I am. I need a kick in the butt sometimes to stop the pity party. Maybe talking to others who are going through the same thing will help. Anyone out there care to lend a hand, an ear and some advice. Please talk to me. And thank you all. Jackie Be a better Globetrotter. Get better travel answers from someone who knows.Yahoo! Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Jackie, I think you will find everyone here feels the way you do at one time or another. My pity party about my self independence lasted a very long time. But now, I embrace the fact that I am alive each and everyday and able to see my family and enjoy the things I used to take for granted. Please vent here anytime and ask any questions. The owner/moderators are very wonderful, intelligent people. We will laugh with you, cry with you, vent with you, etc. You name it someone here has been through it. Keep fighting the disease every day and when you get tired of it just let us know. We are there for you. Terri G. > > Hi I am Jackie and I have neurosardc. I was inflicted 20 months ago. As you all know it was real hell. My right side has limited mobility and is almost all the time tingling. It has affected both legs and everything from the waist down. Also facial muscles. The other day I found out I must of had a flare up. My right eye is blurry. The MRI shows that the optical nerve is abnormal. We don't know yet if I will get the sight back or even if it is a flare up. I just keep praying. When I first got NS we didn't think I would live. I spent 30 days in University of Wisconsin Hospital. Then another 8 months in a nursing home. I am at home now with the help of a very good man. I am doing better but still feel a little sorry for myself. I can walk around the house with a walker and take care of myself physically but as all of us I had to give up a lot. I used to ride motorcycle and now I can't even drive. As an independent person it hits hard. " I cried because I had no shoes until I saw the man who had no feet. " My father used to say that when I was little and I can't help but remember it. How true Huh? > Any way I am looking to talk to someone who is going through the same, if not close, feelings as I am. I need a kick in the butt sometimes to stop the pity party. Maybe talking to others who are going through the same thing will help. > Anyone out there care to lend a hand, an ear and some advice. Please talk to me. > And thank you all. > Jackie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Jackie, I think you will find everyone here feels the way you do at one time or another. My pity party about my self independence lasted a very long time. But now, I embrace the fact that I am alive each and everyday and able to see my family and enjoy the things I used to take for granted. Please vent here anytime and ask any questions. The owner/moderators are very wonderful, intelligent people. We will laugh with you, cry with you, vent with you, etc. You name it someone here has been through it. Keep fighting the disease every day and when you get tired of it just let us know. We are there for you. Terri G. > > Hi I am Jackie and I have neurosardc. I was inflicted 20 months ago. As you all know it was real hell. My right side has limited mobility and is almost all the time tingling. It has affected both legs and everything from the waist down. Also facial muscles. The other day I found out I must of had a flare up. My right eye is blurry. The MRI shows that the optical nerve is abnormal. We don't know yet if I will get the sight back or even if it is a flare up. I just keep praying. When I first got NS we didn't think I would live. I spent 30 days in University of Wisconsin Hospital. Then another 8 months in a nursing home. I am at home now with the help of a very good man. I am doing better but still feel a little sorry for myself. I can walk around the house with a walker and take care of myself physically but as all of us I had to give up a lot. I used to ride motorcycle and now I can't even drive. As an independent person it hits hard. " I cried because I had no shoes until I saw the man who had no feet. " My father used to say that when I was little and I can't help but remember it. How true Huh? > Any way I am looking to talk to someone who is going through the same, if not close, feelings as I am. I need a kick in the butt sometimes to stop the pity party. Maybe talking to others who are going through the same thing will help. > Anyone out there care to lend a hand, an ear and some advice. Please talk to me. > And thank you all. > Jackie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2007 Report Share Posted September 17, 2007 Hi, Jackie. This is just a brief welcome note; I'll write more later. As others have said, we are glad that you have found us, although it's a crying shame that it's because you are sick. I'll write tomorrow (Monday). We also have a chat room, which is open 24/7. We're a little sporadic on regular chat times right now, due to illness & other issues, but members can meet in the chat room any time. Let me know if you'd like to talk with me and/or others some time. Later! Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 "How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these." ~ Washington Carver To: Neurosarcoidosis From: shadowme@...Date: Sat, 15 Sep 2007 17:28:54 -0700Subject: Hey I am new. Hi I am Jackie and I have neurosardc. I was inflicted 20 months ago. As you all know it was real hell. My right side has limited mobility and is almost all the time tingling. It has affected both legs and everything from the waist down. Also facial muscles. The other day I found out I must of had a flare up. My right eye is blurry. The MRI shows that the optical nerve is abnormal. We don't know yet if I will get the sight back or even if it is a flare up. I just keep praying. When I first got NS we didn't think I would live. I spent 30 days in University of Wisconsin Hospital. Then another 8 months in a nursing home. I am at home now with the help of a very good man. I am doing better but still feel a little sorry for myself. I can walk around the house with a walker and take care of myself physically but as all of us I had to give up a lot. I used to ride motorcycle and now I can't even drive. As an independent person it hits hard. " I cried because I had no shoes until I saw the man who had no feet." My father used to say that when I was little and I can't help but remember it. How true Huh? Any way I am looking to talk to someone who is going through the same, if not close, feelings as I am. I need a kick in the butt sometimes to stop the pity party. Maybe talking to others who are going through the same thing will help. Anyone out there care to lend a hand, an ear and some advice. Please talk to me. And thank you all. Jackie Can you find the hidden words? Take a break and play Seekadoo! Play now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2007 Report Share Posted September 17, 2007 Hi, Jackie. This is just a brief welcome note; I'll write more later. As others have said, we are glad that you have found us, although it's a crying shame that it's because you are sick. I'll write tomorrow (Monday). We also have a chat room, which is open 24/7. We're a little sporadic on regular chat times right now, due to illness & other issues, but members can meet in the chat room any time. Let me know if you'd like to talk with me and/or others some time. Later! Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 "How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these." ~ Washington Carver To: Neurosarcoidosis From: shadowme@...Date: Sat, 15 Sep 2007 17:28:54 -0700Subject: Hey I am new. Hi I am Jackie and I have neurosardc. I was inflicted 20 months ago. As you all know it was real hell. My right side has limited mobility and is almost all the time tingling. It has affected both legs and everything from the waist down. Also facial muscles. The other day I found out I must of had a flare up. My right eye is blurry. The MRI shows that the optical nerve is abnormal. We don't know yet if I will get the sight back or even if it is a flare up. I just keep praying. When I first got NS we didn't think I would live. I spent 30 days in University of Wisconsin Hospital. Then another 8 months in a nursing home. I am at home now with the help of a very good man. I am doing better but still feel a little sorry for myself. I can walk around the house with a walker and take care of myself physically but as all of us I had to give up a lot. I used to ride motorcycle and now I can't even drive. As an independent person it hits hard. " I cried because I had no shoes until I saw the man who had no feet." My father used to say that when I was little and I can't help but remember it. How true Huh? Any way I am looking to talk to someone who is going through the same, if not close, feelings as I am. I need a kick in the butt sometimes to stop the pity party. Maybe talking to others who are going through the same thing will help. Anyone out there care to lend a hand, an ear and some advice. Please talk to me. And thank you all. Jackie Can you find the hidden words? Take a break and play Seekadoo! Play now! Quote Link to comment Share on other sites More sharing options...
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