Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 I am so glad to meet you all. Reading the messages have been inspiring to me. I wish I could wave a magic wand and take it all away from everyone who has this terrible and rare desease but I can't. I can however keep you all in my prayers and heart. I had all but given up on God, crying " why me? " . I feel I am a good person. I was a CNA for 20 years, a girl scout leader for 5years and a voleenter in the community, so " why me? " . My husband looked at me one day and said' " why not you? " wow did that hit. Yeah I haven't done anything special except to be the best person I can. I hope I have achieved that. I am no different than anyone else. I hurt, I cry, I pity myself. But with the help of my two wonderful children and spouses, and their 4 children, my sisters,mother and of course Jim, I will make the best of a rotton situation. I am sure you all are doing the same. It is nice to know I am not alone but I wish I was alone in this desease. I dream of a cure and I pray for us all. Thanks for allowing me to ramble. I really need all of you. *smiles* And a big happy birthday to the two, I am old I cant remember their names cuz all this is so new. I will get better. Please tell me more about the sox drive and the faith room. Wishing the best to all Jackie from Wisconsin and loving it. lOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 I am so glad to meet you all. Reading the messages have been inspiring to me. I wish I could wave a magic wand and take it all away from everyone who has this terrible and rare desease but I can't. I can however keep you all in my prayers and heart. I had all but given up on God, crying " why me? " . I feel I am a good person. I was a CNA for 20 years, a girl scout leader for 5years and a voleenter in the community, so " why me? " . My husband looked at me one day and said' " why not you? " wow did that hit. Yeah I haven't done anything special except to be the best person I can. I hope I have achieved that. I am no different than anyone else. I hurt, I cry, I pity myself. But with the help of my two wonderful children and spouses, and their 4 children, my sisters,mother and of course Jim, I will make the best of a rotton situation. I am sure you all are doing the same. It is nice to know I am not alone but I wish I was alone in this desease. I dream of a cure and I pray for us all. Thanks for allowing me to ramble. I really need all of you. *smiles* And a big happy birthday to the two, I am old I cant remember their names cuz all this is so new. I will get better. Please tell me more about the sox drive and the faith room. Wishing the best to all Jackie from Wisconsin and loving it. lOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Hi Jackie,Go to the bottom of the page and click on the faith chat. It will take you to a log-in place. Since you haven't been there before, you will need to create a log-in. It has been so long ago that I did this I can't remember what I did other than that, but it was easy-I do remember that. The faith chats are on Sundays from 4-5pm (EST) but I will meet you there anytime I possibly can if you will just let me know. I would love to talk/share with you. Blessings,Beckymydynasty40 wrote: I am so glad to meet you all. Reading the messages have been inspiring to me. I wish I could wave a magic wand and take it all away from everyone who has this terrible and rare desease but I can't. I can however keep you all in my prayers and heart. I had all but given up on God, crying "why me?". I feel I am a good person. I was a CNA for 20 years, a girl scout leader for 5years and a voleenter in the community, so "why me?". My husband looked at me one day and said' "why not you?" wow did that hit. Yeah I haven't done anything special except to be the best person I can. I hope I have achieved that. I am no different than anyone else. I hurt, I cry, I pity myself. But with the help of my two wonderful children and spouses, and their 4 children, my sisters,mother and of course Jim, I will make the best of a rotton situation. I am sure you all are doing the same. It is nice to know I am not alone but I wish I was alone in this desease. I dream of a cure and I pray for us all. Thanks for allowing me to ramble. I really need all of you. *smiles* And a big happy birthday to the two, I am old I cant remember their names cuz all this is so new. I will get better. Please tell me more about the sox drive and the faith room. Wishing the best to all Jackie from Wisconsin and loving it. lOL Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Hi Jackie,Go to the bottom of the page and click on the faith chat. It will take you to a log-in place. Since you haven't been there before, you will need to create a log-in. It has been so long ago that I did this I can't remember what I did other than that, but it was easy-I do remember that. The faith chats are on Sundays from 4-5pm (EST) but I will meet you there anytime I possibly can if you will just let me know. I would love to talk/share with you. Blessings,Beckymydynasty40 wrote: I am so glad to meet you all. Reading the messages have been inspiring to me. I wish I could wave a magic wand and take it all away from everyone who has this terrible and rare desease but I can't. I can however keep you all in my prayers and heart. I had all but given up on God, crying "why me?". I feel I am a good person. I was a CNA for 20 years, a girl scout leader for 5years and a voleenter in the community, so "why me?". My husband looked at me one day and said' "why not you?" wow did that hit. Yeah I haven't done anything special except to be the best person I can. I hope I have achieved that. I am no different than anyone else. I hurt, I cry, I pity myself. But with the help of my two wonderful children and spouses, and their 4 children, my sisters,mother and of course Jim, I will make the best of a rotton situation. I am sure you all are doing the same. It is nice to know I am not alone but I wish I was alone in this desease. I dream of a cure and I pray for us all. Thanks for allowing me to ramble. I really need all of you. *smiles* And a big happy birthday to the two, I am old I cant remember their names cuz all this is so new. I will get better. Please tell me more about the sox drive and the faith room. Wishing the best to all Jackie from Wisconsin and loving it. lOL Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2008 Report Share Posted July 14, 2008 When I could afford the nearest gym with a pool, the warm water afap (Athritis Foundation Aquatherapy Program) classes were great for me. They do slow exercises in a warm pool. They are easy and makes you feel relaxed afterwood. I recommend it highly. I miss it. It gets you out of the house, too. Debbie T. Co-Moderator Subject: Re: To To: Neurosarcoidosis Date: Sunday, July 13, 2008, 6:01 PM May I ask what Dr is prescribing the medication orthopedic or rheumatologist and what medications are they using. What medications has anyone found effected for the joints especially the ankles? How about aqua therapy? Thanks out of Lurking What about any of the over the counter lubricants? In a message dated 7/12/2008 1:30:57 P.M. Central Daylight Time, chapmac206 (AT) yahoo (DOT) com writes: I dont think I have a joint left that isnt in pain on a daily basis.they have me on several different pain meds and nothing makes the paingo away altogether Get the scoop on last night's hottest shows and the live music scene in your area - Check out TourTracker. com! Quote Link to comment Share on other sites More sharing options...
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