Guest guest Posted September 17, 2007 Report Share Posted September 17, 2007 I am absolutly miserable. I hurt so much that I want to cry but no tears come. I HATE THIS DISEASE. I'M SICK AND TIRED OF HURTING SO MUCH. MY PAIN IS CURRENTLY MORE THAN I CAN POSSIBLEY STAND. I hurt so much I am afraid to go to bed because each day when I wake up it is worse. I am in a flare that is giving me both muscle and bone pain. I am absolutely worn out from the pain. There is currently no relief. I wish that someone was here to talk to, this is really upsetting. I will see Dr. Baughman for the first time next week. When I woke up today I was hurting worse than I ever have. I am tired of feeling sick. If anyone that knows me walks up to me and tells me how great I look I think I will bite off their head. I just don't know how I will be tolerating this pain without wanting to hado anything to get some pain relief. Maybe they could knock me out or put me in an artificial coma. Becky I think I'm going or I am already crazy. I have had this crummy disease since 1971, and right now I don't have the strength to even pray. I am so miserable. I am take life one hour at a time. I just feel so fatigued and my whole body is screaming out in pain. I also bumped my legs with my walker so I now have three blisters that have broken on my legs. My leg tissue is so fragile from the MRSA that my skin breaks down if I just happen to bump my legs I will get a blister that brakes and can take weeks to heal e3ven with using the silver pads that I have left from my fall last summer. I made an appointment with the wound specialist for the 19th. I am so very tired, were is a coma when you need one. Someone just knock me out until this passes. Judy in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2007 Report Share Posted September 17, 2007 I am absolutly miserable. I hurt so much that I want to cry but no tears come. I HATE THIS DISEASE. I'M SICK AND TIRED OF HURTING SO MUCH. MY PAIN IS CURRENTLY MORE THAN I CAN POSSIBLEY STAND. I hurt so much I am afraid to go to bed because each day when I wake up it is worse. I am in a flare that is giving me both muscle and bone pain. I am absolutely worn out from the pain. There is currently no relief. I wish that someone was here to talk to, this is really upsetting. I will see Dr. Baughman for the first time next week. When I woke up today I was hurting worse than I ever have. I am tired of feeling sick. If anyone that knows me walks up to me and tells me how great I look I think I will bite off their head. I just don't know how I will be tolerating this pain without wanting to hado anything to get some pain relief. Maybe they could knock me out or put me in an artificial coma. Becky I think I'm going or I am already crazy. I have had this crummy disease since 1971, and right now I don't have the strength to even pray. I am so miserable. I am take life one hour at a time. I just feel so fatigued and my whole body is screaming out in pain. I also bumped my legs with my walker so I now have three blisters that have broken on my legs. My leg tissue is so fragile from the MRSA that my skin breaks down if I just happen to bump my legs I will get a blister that brakes and can take weeks to heal e3ven with using the silver pads that I have left from my fall last summer. I made an appointment with the wound specialist for the 19th. I am so very tired, were is a coma when you need one. Someone just knock me out until this passes. Judy in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Hang in there Judy. I wish there was more I could offer you than just words. I'd give ya a big hug if I was there. Know, too, that you are not alone...and you're not crazy, you're just human like the rest of us. I think I speak for many here when I say that we know what you are going through and how tough it can be just to get through the day. Honestly, there are days when I would sell my soul for 5 minutes of relief...and there are the darker times that I have gone to bed in so much pain that I prayed my eyes would close and never open again. But we get through these tough times. Despite all of it, somehow, somewhere we find the strength and courage to go on. Most of the time we go on not for ourselves but for those around us...for me, it is my teenage children. What would their world be like without me? That thought keeps me going, especially when I get to the point that I want to throw in the towel. Hopefully your flare will subside soon...and the doc (is this a new one?) will be able to provide some relief. You are in our thoughts and prayers... Peace, Tony > > I am absolutly miserable. I hurt so much that I want to cry but no > tears come. I HATE THIS DISEASE. I'M SICK AND TIRED OF HURTING SO MUCH. > MY PAIN IS CURRENTLY MORE THAN I CAN POSSIBLEY STAND. > > I hurt so much I am afraid to go to bed because each day when I wake up > it is worse. > > I am in a flare that is giving me both muscle and bone pain. I am > absolutely worn out from the pain. There is currently no relief. > > I wish that someone was here to talk to, this is really upsetting. I > will see Dr. Baughman for the first time next week. > > When I woke up today I was hurting worse than I ever have. I am tired > of feeling sick. If anyone that knows me walks up to me and tells me > how great I look I think I will bite off their head. > > I just don't know how I will be tolerating this pain without wanting to > hado anything to get some pain relief. Maybe they could knock me out or > put me in an artificial coma. Becky I think I'm going or I am already > crazy. I have had this crummy disease since 1971, and right now I don't > have the strength to even pray. I am so miserable. > > I am take life one hour at a time. I just feel so fatigued and my whole > body is screaming out in pain. > > I also bumped my legs with my walker so I now have three blisters that > have broken on my legs. My leg tissue is so fragile from the MRSA that > my skin breaks down if I just happen to bump my legs I will get a > blister that brakes and can take weeks to heal e3ven with using the > silver pads that I have left from my fall last summer. I made an > appointment with the wound specialist for the 19th. > > I am so very tired, were is a coma when you need one. Someone just > knock me out until this passes. > > Judy in PA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Hang in there Judy. I wish there was more I could offer you than just words. I'd give ya a big hug if I was there. Know, too, that you are not alone...and you're not crazy, you're just human like the rest of us. I think I speak for many here when I say that we know what you are going through and how tough it can be just to get through the day. Honestly, there are days when I would sell my soul for 5 minutes of relief...and there are the darker times that I have gone to bed in so much pain that I prayed my eyes would close and never open again. But we get through these tough times. Despite all of it, somehow, somewhere we find the strength and courage to go on. Most of the time we go on not for ourselves but for those around us...for me, it is my teenage children. What would their world be like without me? That thought keeps me going, especially when I get to the point that I want to throw in the towel. Hopefully your flare will subside soon...and the doc (is this a new one?) will be able to provide some relief. You are in our thoughts and prayers... Peace, Tony > > I am absolutly miserable. I hurt so much that I want to cry but no > tears come. I HATE THIS DISEASE. I'M SICK AND TIRED OF HURTING SO MUCH. > MY PAIN IS CURRENTLY MORE THAN I CAN POSSIBLEY STAND. > > I hurt so much I am afraid to go to bed because each day when I wake up > it is worse. > > I am in a flare that is giving me both muscle and bone pain. I am > absolutely worn out from the pain. There is currently no relief. > > I wish that someone was here to talk to, this is really upsetting. I > will see Dr. Baughman for the first time next week. > > When I woke up today I was hurting worse than I ever have. I am tired > of feeling sick. If anyone that knows me walks up to me and tells me > how great I look I think I will bite off their head. > > I just don't know how I will be tolerating this pain without wanting to > hado anything to get some pain relief. Maybe they could knock me out or > put me in an artificial coma. Becky I think I'm going or I am already > crazy. I have had this crummy disease since 1971, and right now I don't > have the strength to even pray. I am so miserable. > > I am take life one hour at a time. I just feel so fatigued and my whole > body is screaming out in pain. > > I also bumped my legs with my walker so I now have three blisters that > have broken on my legs. My leg tissue is so fragile from the MRSA that > my skin breaks down if I just happen to bump my legs I will get a > blister that brakes and can take weeks to heal e3ven with using the > silver pads that I have left from my fall last summer. I made an > appointment with the wound specialist for the 19th. > > I am so very tired, were is a coma when you need one. Someone just > knock me out until this passes. > > Judy in PA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Judy, I am so sorry that you are having such a rotten time right now. I do know and understand your pain and your mindset right now. I've been there...often. But hang in there. I know you are anxious to see Dr. Baughman and that your son is, too. That stress may be adding to the stress you already have. Try to do relaxing things for now. Maybe have someone give you a light massage or listen to the most relaxing music you have. Do the least amount you can until this visit is done and over. I am praying that Dr. Baughman will help you tremendously and be an answer to prayer for you, but if he isn't...please don't lose hope. Many people here will tell you to keep looking for help but to take time to rest, too. Also in the mean time, drink plenty of fluids, take your msm, I also take St. 's wort which helps me a lot. But if you are already on antidepressants you can't take that. It's the supplement that really lifts me out of many of my bad bad funks. Don't they give you anything for pain?...I take tramadol and a muscle relaxant and I have something for break-through pain, too. I can also take Tylenol on top of all of that. So I also must take milk thistle to cleanse my liver of all those toxins. I get a little loopy, sometimes, from all of that, but it's better than living with an intolerable amount of pain. You should not have to put up with that. Can you call your doc and tell him what's going on?... Even an over-the-counter pain med is better than nothing at all. You have a right to have your pain addressed. Even though you're not up to praying. and I know how that is ,too, we'll be lifting you up in prayer to feel better soon. prayers and soft hugs S. "rjbasso@..." wrote: I am absolutly miserable. I hurt so much that I want to cry but no tears come. I HATE THIS DISEASE. I'M SICK AND TIRED OF HURTING SO MUCH. MY PAIN IS CURRENTLY MORE THAN I CAN POSSIBLEY STAND.I hurt so much I am afraid to go to bed because each day when I wake up it is worse. I am in a flare that is giving me both muscle and bone pain. I am absolutely worn out from the pain. There is currently no relief. I wish that someone was here to talk to, this is really upsetting. I will see Dr. Baughman for the first time next week. When I woke up today I was hurting worse than I ever have. I am tired of feeling sick. If anyone that knows me walks up to me and tells me how great I look I think I will bite off their head.I just don't know how I will be tolerating this pain without wanting to hado anything to get some pain relief. Maybe they could knock me out or put me in an artificial coma. Becky I think I'm going or I am already crazy. I have had this crummy disease since 1971, and right now I don't have the strength to even pray. I am so miserable.I am take life one hour at a time. I just feel so fatigued and my whole body is screaming out in pain.I also bumped my legs with my walker so I now have three blisters that have broken on my legs. My leg tissue is so fragile from the MRSA that my skin breaks down if I just happen to bump my legs I will get a blister that brakes and can take weeks to heal e3ven with using the silver pads that I have left from my fall last summer. I made an appointment with the wound specialist for the 19th. I am so very tired, were is a coma when you need one. Someone just knock me out until this passes.Judy in PA Shape Yahoo! in your own image. Join our Network Research Panel today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Judy, I am so sorry that you are having such a rotten time right now. I do know and understand your pain and your mindset right now. I've been there...often. But hang in there. I know you are anxious to see Dr. Baughman and that your son is, too. That stress may be adding to the stress you already have. Try to do relaxing things for now. Maybe have someone give you a light massage or listen to the most relaxing music you have. Do the least amount you can until this visit is done and over. I am praying that Dr. Baughman will help you tremendously and be an answer to prayer for you, but if he isn't...please don't lose hope. Many people here will tell you to keep looking for help but to take time to rest, too. Also in the mean time, drink plenty of fluids, take your msm, I also take St. 's wort which helps me a lot. But if you are already on antidepressants you can't take that. It's the supplement that really lifts me out of many of my bad bad funks. Don't they give you anything for pain?...I take tramadol and a muscle relaxant and I have something for break-through pain, too. I can also take Tylenol on top of all of that. So I also must take milk thistle to cleanse my liver of all those toxins. I get a little loopy, sometimes, from all of that, but it's better than living with an intolerable amount of pain. You should not have to put up with that. Can you call your doc and tell him what's going on?... Even an over-the-counter pain med is better than nothing at all. You have a right to have your pain addressed. Even though you're not up to praying. and I know how that is ,too, we'll be lifting you up in prayer to feel better soon. prayers and soft hugs S. "rjbasso@..." wrote: I am absolutly miserable. I hurt so much that I want to cry but no tears come. I HATE THIS DISEASE. I'M SICK AND TIRED OF HURTING SO MUCH. MY PAIN IS CURRENTLY MORE THAN I CAN POSSIBLEY STAND.I hurt so much I am afraid to go to bed because each day when I wake up it is worse. I am in a flare that is giving me both muscle and bone pain. I am absolutely worn out from the pain. There is currently no relief. I wish that someone was here to talk to, this is really upsetting. I will see Dr. Baughman for the first time next week. When I woke up today I was hurting worse than I ever have. I am tired of feeling sick. If anyone that knows me walks up to me and tells me how great I look I think I will bite off their head.I just don't know how I will be tolerating this pain without wanting to hado anything to get some pain relief. Maybe they could knock me out or put me in an artificial coma. Becky I think I'm going or I am already crazy. I have had this crummy disease since 1971, and right now I don't have the strength to even pray. I am so miserable.I am take life one hour at a time. I just feel so fatigued and my whole body is screaming out in pain.I also bumped my legs with my walker so I now have three blisters that have broken on my legs. My leg tissue is so fragile from the MRSA that my skin breaks down if I just happen to bump my legs I will get a blister that brakes and can take weeks to heal e3ven with using the silver pads that I have left from my fall last summer. I made an appointment with the wound specialist for the 19th. I am so very tired, were is a coma when you need one. Someone just knock me out until this passes.Judy in PA Shape Yahoo! in your own image. Join our Network Research Panel today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Judy, I can so identify with the pain you are in. I know that sometimes it would be easier to give up, but I know that there is a way out. If you aren't already taking some calcium/magnesium supplement-- please do so. Your poor body is having to leach the calcium from your bones and that is a huge part of your pain. Also-- increase your MSM tablets. What your body can't assimilate gets passed out via your urine. FLUIDS-- I know you guys get tired of me harping on this-- but we suffer so very much when any of our blood levels is out of sync. You've got to get that myelin sheath that surrounds your muscles and joints to be able to work-- it is what massages the synovial fluids to remove the toxins from your muscles. It happens with hydration. If you are the very tinest amount dehydrated- your electrolytes are out of sync. Your body thinks that you are going to deprive it of fluids-- so it grabs what you give it and it deposits it in your hands and feet, ankles, knees by swelling. This swelling is putting additional pressure on your joints and ligaments and nerves and you are in pain. Gatorade will help to balance the electrolytes. It is higher in sugar than you want, but it is a place to start. Bananas, mixed in with apple juice or fruit smoothies can help replace potassium --and if you have problems with yeast --which I'm sure you do because of the antibiotics -- this too is adding insult to injury. So use yoghurt with live cultures as part of the smoothie. I can only imagine the hassle with your skin being so very susceptible to every scratch-- your poor lymphnodes have to be so toxic. As you increase your Vitamins and minerals that are going into your body, you will start to flush the toxins out of your system. You can add extra Vit C-- (Ester C) to your smoothie, and this will help get some of that cleared out. I will tell you, as you start to detoxify your system, you feel really nasty for a short while-- but man does it make a difference in the long run. Go slowly, so that you don't put yourself into toxic overload. The Milk Thistle capsules and tea really help so that the gunk isn't sitting in your liver. I also recommend that you walk yourself thru a guided meditation-- get someone to get you a tape, or cd-- so that you can let yourself focus on your breathing-- and renew even the air in your lungs and bloodstream. Your body has to have oxygen to heal-- so if your breathing is compromised-- that too is part of the whole cycle. Know that we are here, and that you can reach out to us. If one of us is online, you can always shoot an email at us, or instant message-- and we'll meet you in the chatroom. Take care, TracieSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Judy, I can so identify with the pain you are in. I know that sometimes it would be easier to give up, but I know that there is a way out. If you aren't already taking some calcium/magnesium supplement-- please do so. Your poor body is having to leach the calcium from your bones and that is a huge part of your pain. Also-- increase your MSM tablets. What your body can't assimilate gets passed out via your urine. FLUIDS-- I know you guys get tired of me harping on this-- but we suffer so very much when any of our blood levels is out of sync. You've got to get that myelin sheath that surrounds your muscles and joints to be able to work-- it is what massages the synovial fluids to remove the toxins from your muscles. It happens with hydration. If you are the very tinest amount dehydrated- your electrolytes are out of sync. Your body thinks that you are going to deprive it of fluids-- so it grabs what you give it and it deposits it in your hands and feet, ankles, knees by swelling. This swelling is putting additional pressure on your joints and ligaments and nerves and you are in pain. Gatorade will help to balance the electrolytes. It is higher in sugar than you want, but it is a place to start. Bananas, mixed in with apple juice or fruit smoothies can help replace potassium --and if you have problems with yeast --which I'm sure you do because of the antibiotics -- this too is adding insult to injury. So use yoghurt with live cultures as part of the smoothie. I can only imagine the hassle with your skin being so very susceptible to every scratch-- your poor lymphnodes have to be so toxic. As you increase your Vitamins and minerals that are going into your body, you will start to flush the toxins out of your system. You can add extra Vit C-- (Ester C) to your smoothie, and this will help get some of that cleared out. I will tell you, as you start to detoxify your system, you feel really nasty for a short while-- but man does it make a difference in the long run. Go slowly, so that you don't put yourself into toxic overload. The Milk Thistle capsules and tea really help so that the gunk isn't sitting in your liver. I also recommend that you walk yourself thru a guided meditation-- get someone to get you a tape, or cd-- so that you can let yourself focus on your breathing-- and renew even the air in your lungs and bloodstream. Your body has to have oxygen to heal-- so if your breathing is compromised-- that too is part of the whole cycle. Know that we are here, and that you can reach out to us. If one of us is online, you can always shoot an email at us, or instant message-- and we'll meet you in the chatroom. Take care, TracieSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
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