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Re: Terri G...How was your appt?

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,

I didn't go; I decided to call instead. The NP at the Neuro's office

called me back and had me go on and add another 50mg of Imuran. That

puts me up to 200 mg per day. If I don't feel better in 3-5 days, I am

to call back.

I have been hoarse for 4 weeks or so and I have had Bell's and

trigeminal neuralgia going on my second day now. Hopefully, the Imuran

will help.

Thanks for thinking of me. I am kinda down - the trigeminal neuralgia

will do that to me. Plus the arthritis in my knees is really bothering

me too.

Terri G.

>

>

> Hey Terri G,

>

> How did your doctor appointment go yesterday? [Doctor]

> <http://www.smileycentral.com/?partner=ZSzeb001_ZSYYYYYYJJUS>

>

> in UT

>

>

>

>

>

>

>

<http://smiley.smileycentral.com/download/index.jhtml?partner=ZSzeb114_Z\

\

> SYYYYYYJJUS & utm_id=7922>

>

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,

I didn't go; I decided to call instead. The NP at the Neuro's office

called me back and had me go on and add another 50mg of Imuran. That

puts me up to 200 mg per day. If I don't feel better in 3-5 days, I am

to call back.

I have been hoarse for 4 weeks or so and I have had Bell's and

trigeminal neuralgia going on my second day now. Hopefully, the Imuran

will help.

Thanks for thinking of me. I am kinda down - the trigeminal neuralgia

will do that to me. Plus the arthritis in my knees is really bothering

me too.

Terri G.

>

>

> Hey Terri G,

>

> How did your doctor appointment go yesterday? [Doctor]

> <http://www.smileycentral.com/?partner=ZSzeb001_ZSYYYYYYJJUS>

>

> in UT

>

>

>

>

>

>

>

<http://smiley.smileycentral.com/download/index.jhtml?partner=ZSzeb114_Z\

\

> SYYYYYYJJUS & utm_id=7922>

>

Link to comment
Share on other sites

Terri, I know how painful trigeminal neuralgia is. It must be so hard to keep having to wait for something to work, then try something else. It's frustrating, but often that's the only way to find the right combination of drugs for you. What are you taking for the neuralgia? Is it effective?

Ramblin' Rose

Moderator

A merry heart is good medicine. Proverbs 17:22

"How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these."

~ Washington Carver

To: Neurosarcoidosis From: mosaicgirl1@...Date: Wed, 19 Sep 2007 15:53:14 +0000Subject: Re: Terri G...How was your appt?

,I didn't go; I decided to call instead. The NP at the Neuro's officecalled me back and had me go on and add another 50mg of Imuran. Thatputs me up to 200 mg per day. If I don't feel better in 3-5 days, I amto call back.I have been hoarse for 4 weeks or so and I have had Bell's andtrigeminal neuralgia going on my second day now. Hopefully, the Imuranwill help.Thanks for thinking of me. I am kinda down - the trigeminal neuralgiawill do that to me. Plus the arthritis in my knees is really botheringme too.Terri G.>>> Hey Terri G,>> How did your doctor appointment go yesterday? [Doctor]> <http://www.smileycentral.com/?partner=ZSzeb001_ZSYYYYYYJJUS>>> in UT>>>>>>><http://smiley.smileycentral.com/download/index.jhtml?partner=ZSzeb114_Z\\> SYYYYYYJJUS & utm_id=7922>> Kick back and relax with hot games and cool activities at the Messenger Café. Play now!

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Terri, I know how painful trigeminal neuralgia is. It must be so hard to keep having to wait for something to work, then try something else. It's frustrating, but often that's the only way to find the right combination of drugs for you. What are you taking for the neuralgia? Is it effective?

Ramblin' Rose

Moderator

A merry heart is good medicine. Proverbs 17:22

"How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these."

~ Washington Carver

To: Neurosarcoidosis From: mosaicgirl1@...Date: Wed, 19 Sep 2007 15:53:14 +0000Subject: Re: Terri G...How was your appt?

,I didn't go; I decided to call instead. The NP at the Neuro's officecalled me back and had me go on and add another 50mg of Imuran. Thatputs me up to 200 mg per day. If I don't feel better in 3-5 days, I amto call back.I have been hoarse for 4 weeks or so and I have had Bell's andtrigeminal neuralgia going on my second day now. Hopefully, the Imuranwill help.Thanks for thinking of me. I am kinda down - the trigeminal neuralgiawill do that to me. Plus the arthritis in my knees is really botheringme too.Terri G.>>> Hey Terri G,>> How did your doctor appointment go yesterday? [Doctor]> <http://www.smileycentral.com/?partner=ZSzeb001_ZSYYYYYYJJUS>>> in UT>>>>>>><http://smiley.smileycentral.com/download/index.jhtml?partner=ZSzeb114_Z\\> SYYYYYYJJUS & utm_id=7922>> Kick back and relax with hot games and cool activities at the Messenger Café. Play now!

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Rose,

I am using Lyrica but I have started recently and am titrating up

slowly. I am onlyat 75 mg q day right now. I am using Tylenol

Arthritis for pain; you can take 2 every 8 hours. I am less likely to

overdose myself when I take the extended release. I take them at 9am

and 5pm.

Thanks for asking; I hope this ends soon.

Terri G.

>>> Hey Terri

G,>> How did your doctor appointment go yesterday? [Doctor]>

<http://www.smileycentral.com/?partner=ZSzeb001_ZSYYYYYYJJUS>>> in

UT>>>>>>><http://smiley.smileycentral.com/download/index.jhtml?partner=Z\

Szeb114_Z\\> SYYYYYYJJUS & utm_id=7922>>

>

>

>

>

>

>

> _________________________________________________________________

> Kick back and relax with hot games and cool activities at the

Messenger Café.

> http://www.cafemessenger.com?ocid=TXT_TAGLM_SeptWLtagline

>

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Rose,

I am using Lyrica but I have started recently and am titrating up

slowly. I am onlyat 75 mg q day right now. I am using Tylenol

Arthritis for pain; you can take 2 every 8 hours. I am less likely to

overdose myself when I take the extended release. I take them at 9am

and 5pm.

Thanks for asking; I hope this ends soon.

Terri G.

>>> Hey Terri

G,>> How did your doctor appointment go yesterday? [Doctor]>

<http://www.smileycentral.com/?partner=ZSzeb001_ZSYYYYYYJJUS>>> in

UT>>>>>>><http://smiley.smileycentral.com/download/index.jhtml?partner=Z\

Szeb114_Z\\> SYYYYYYJJUS & utm_id=7922>>

>

>

>

>

>

>

> _________________________________________________________________

> Kick back and relax with hot games and cool activities at the

Messenger Café.

> http://www.cafemessenger.com?ocid=TXT_TAGLM_SeptWLtagline

>

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Share on other sites

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