Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 Hi- I'm here because my son Jack was recently diagonosed with mitochondrial disease. We are fortunate to live in the Boston area and have Dr. Mark Korson following his case. We went down to Atlanta to see Dr. Shoffner in May and received the diagnosis in August. Jack will be three in January. I guess my question would be how does this work??? Probably a silly question. I have been looking for others to talk to. I went to a support group recently, but the closest one is over an hour away. I would love any information or support. I am trying to come up with different ways of fundraising for mitochodrial research and/or families affected by it. I am a stay at home mom, and Jack is currently stable, so I want to do what I can to help advocate for him. Thanks.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 Hi- I'm here because my son Jack was recently diagonosed with mitochondrial disease. We are fortunate to live in the Boston area and have Dr. Mark Korson following his case. We went down to Atlanta to see Dr. Shoffner in May and received the diagnosis in August. Jack will be three in January. I guess my question would be how does this work??? Probably a silly question. I have been looking for others to talk to. I went to a support group recently, but the closest one is over an hour away. I would love any information or support. I am trying to come up with different ways of fundraising for mitochodrial research and/or families affected by it. I am a stay at home mom, and Jack is currently stable, so I want to do what I can to help advocate for him. Thanks.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2004 Report Share Posted December 6, 2004 welcome to the group! We live in Memphis but treked up to Boston b/c Dr Korson rocks! You are in good hands! I am happy to talk with you offlist if you are intereseted. You can read more about our family by clicking the 'meet my family' page on either website in my signature. Sorry you have a reason to join the group but they are great help! deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 3 with very very mild Cerebral Palsy. www.LifeofLoveProject.orgwww.debwells.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2004 Report Share Posted December 6, 2004 welcome to the group! We live in Memphis but treked up to Boston b/c Dr Korson rocks! You are in good hands! I am happy to talk with you offlist if you are intereseted. You can read more about our family by clicking the 'meet my family' page on either website in my signature. Sorry you have a reason to join the group but they are great help! deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 3 with very very mild Cerebral Palsy. www.LifeofLoveProject.orgwww.debwells.com Quote Link to comment Share on other sites More sharing options...
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