Re: Question about sedation/meds

[Guest guest]

Ann, Glad to see you are back=) I hope you and are both feeling better!

Chelsea has had 2 EEG's. One 5 yrs ago, which dx'd her with epilepsy, and one this past summer, ordered by her new neuro. She was not sedated for either, rather I was given instructions to make sure she was sleep deprived by either putting her to bed late, getting her up early, or keeping her up all nite, so she would sleep thru at least part of the test. Her first EEG, she did sleep for, and it showed she had myclonic jerks in her sleep (which stopped with meds and have not come back). She did not sleep for this last one, she was being weaned off phenobarb and her sleep patterns were pretty unpredictable. But they still got what they needed. Chelsea, unfortunalty has a very abnormal EEG.

I would ask if this is a better option for Will, as drugs can effect brainwaves and could possibly supress spiking that may be going on (tendencies for the neurons to misfire, which cause sharp peaks and valleys on the EEG). HTH

e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito)

[Guest guest]

Ann, Glad to see you are back=) I hope you and are both feeling better!

Chelsea has had 2 EEG's. One 5 yrs ago, which dx'd her with epilepsy, and one this past summer, ordered by her new neuro. She was not sedated for either, rather I was given instructions to make sure she was sleep deprived by either putting her to bed late, getting her up early, or keeping her up all nite, so she would sleep thru at least part of the test. Her first EEG, she did sleep for, and it showed she had myclonic jerks in her sleep (which stopped with meds and have not come back). She did not sleep for this last one, she was being weaned off phenobarb and her sleep patterns were pretty unpredictable. But they still got what they needed. Chelsea, unfortunalty has a very abnormal EEG.

I would ask if this is a better option for Will, as drugs can effect brainwaves and could possibly supress spiking that may be going on (tendencies for the neurons to misfire, which cause sharp peaks and valleys on the EEG). HTH

e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito)