Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 I can't figure out if it's my fibro or my sarc. I know that sarc can hurt, and there are days that my spleen will hurt and my liver will hurt, but what about the muscles in my legs. I can usually tell if its my fibro, but there are days that my muscles will just ache and hurt really bad. Is that the sarc? Lynne, I'd drop the fibro when you talk to your MD's. That one too many MD's still want to deny-- they figure you're a woman, it's hypochondria time. The combination of both is common-- and honestly, after having dealt with both diagnoses for the last 27 years--- I know now that what they blew off as FM was indeed the systemic sarcoidosis. You don't need to be "diagnosed" with sarc in your legs-- it is a SYSTEMIC inflammatory autoimmune disease. That means it can show up anywhere. Lungs and muscles are easy places to get biopsies from-- so that is one thing docs like to do. One thing with sarc is that our muscles "harden". I've had massage therapists tell me massaging my back is like trying to massage a fire hydrant. My muscles around my rib cage are rocks. THis makes it so that they don't clear the toxins that hang in the muscles and lymphs. This puts pressure on the nerves-- and there you have pain. My leg muscles are also significantly involved, and if I end up with my blood sugar even in the "high normal"-- I'm in pain. It is by trial and error that I discovered the MSM and sugar and hydration helps. Taking control of those issues has made me so much more comfortable-- and then to add my routine of guided meditations, breathing and simple-- basic exercise (to my ability- and that's not much)-- Ive found that I can function better now that I was prior to these breakthru's. I can't stress enough how important it is for us to get the vitamins and minerals we need-- Magnesium, Mangenese, Vit C, B Vitamins-- it has to be in balance, or our body starts hording- and then we end up in pain and trouble. Some of you think that adding calcium is a bad idea-- but ask your docs, and they will tell you that with our history of steroid use (prednisone) our bodies are deplete. Calcium is hugely a factor in pain. Without it, you will be having muscle spasms galore. I share this with you because it has been so very effective for me. I really believe that the reason I ended up with gallstones and kidney stones is that my body was so deprived, it figured it had to store up for the starvation time-- so put that calcium anywhere. NOw that I've got it back in balance, my kidney stones are gone, and I'm not developing new ones. Sincerely, Tracie NS Co-owner/moderator See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 I can't figure out if it's my fibro or my sarc. I know that sarc can hurt, and there are days that my spleen will hurt and my liver will hurt, but what about the muscles in my legs. I can usually tell if its my fibro, but there are days that my muscles will just ache and hurt really bad. Is that the sarc? Lynne, I'd drop the fibro when you talk to your MD's. That one too many MD's still want to deny-- they figure you're a woman, it's hypochondria time. The combination of both is common-- and honestly, after having dealt with both diagnoses for the last 27 years--- I know now that what they blew off as FM was indeed the systemic sarcoidosis. You don't need to be "diagnosed" with sarc in your legs-- it is a SYSTEMIC inflammatory autoimmune disease. That means it can show up anywhere. Lungs and muscles are easy places to get biopsies from-- so that is one thing docs like to do. One thing with sarc is that our muscles "harden". I've had massage therapists tell me massaging my back is like trying to massage a fire hydrant. My muscles around my rib cage are rocks. THis makes it so that they don't clear the toxins that hang in the muscles and lymphs. This puts pressure on the nerves-- and there you have pain. My leg muscles are also significantly involved, and if I end up with my blood sugar even in the "high normal"-- I'm in pain. It is by trial and error that I discovered the MSM and sugar and hydration helps. Taking control of those issues has made me so much more comfortable-- and then to add my routine of guided meditations, breathing and simple-- basic exercise (to my ability- and that's not much)-- Ive found that I can function better now that I was prior to these breakthru's. I can't stress enough how important it is for us to get the vitamins and minerals we need-- Magnesium, Mangenese, Vit C, B Vitamins-- it has to be in balance, or our body starts hording- and then we end up in pain and trouble. Some of you think that adding calcium is a bad idea-- but ask your docs, and they will tell you that with our history of steroid use (prednisone) our bodies are deplete. Calcium is hugely a factor in pain. Without it, you will be having muscle spasms galore. I share this with you because it has been so very effective for me. I really believe that the reason I ended up with gallstones and kidney stones is that my body was so deprived, it figured it had to store up for the starvation time-- so put that calcium anywhere. NOw that I've got it back in balance, my kidney stones are gone, and I'm not developing new ones. Sincerely, Tracie NS Co-owner/moderator See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.