Re:Twana- Hydration issue (What do YOU do?)

[Guest guest]

Thanks for the info. What I actually did was use the Pedialite

through the viral attack and actually haven't given it to her over the past

4 days, but wondered if it was something you guys use regularly and how

much. I couldn't afford to use it constantly, thus the question about

insurance coverage. But if it is not recommended for longer use, it is good

to know that.

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Re: Hydration issue (What do YOU do?)

>

>

> Darla,

> We give Billy extra water during the day. Usually he gets 3 boluses

> of water of 6 oz. We stop his tube feeding for the time he gets the

> bolus.

> The Pedialite bottle has a notation on it that it is not for extended

> use. Don't know why. There might be a lot of salt in it that could

> be causing a rebound effect? Did the nutritionist prescribe it?

> Usually they are big on " free water " . I can't believe how much they

> think a person should be drinking.

> Twana

>

>

> We have noticed Pedialite added to her tube feedings help as well as

> pushing liquids during the day

>

>

>

>

>

>

> Please contact mito-owner with any problems or questions.

>

[Guest guest]

Thanks for the info. What I actually did was use the Pedialite

through the viral attack and actually haven't given it to her over the past

4 days, but wondered if it was something you guys use regularly and how

much. I couldn't afford to use it constantly, thus the question about

insurance coverage. But if it is not recommended for longer use, it is good

to know that.

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Re: Hydration issue (What do YOU do?)

>

>

> Darla,

> We give Billy extra water during the day. Usually he gets 3 boluses

> of water of 6 oz. We stop his tube feeding for the time he gets the

> bolus.

> The Pedialite bottle has a notation on it that it is not for extended

> use. Don't know why. There might be a lot of salt in it that could

> be causing a rebound effect? Did the nutritionist prescribe it?

> Usually they are big on " free water " . I can't believe how much they

> think a person should be drinking.

> Twana

>

>

> We have noticed Pedialite added to her tube feedings help as well as

> pushing liquids during the day

>

>

>

>

>

>

> Please contact mito-owner with any problems or questions.

>