Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 Quick question, We have monitored s blood sugar very closely through his 'low spells' to see how it is reacting and what sorts of symptoms he gets, and to be honest it doesnt seem related to his tremors... he WILL be very shaky when his sugar is low, but there are many time he is very shaky when his sugar is well into normal limits... We are pretty concious of his diet (complex carbs, we do alot of peanut butter sandwitches too lol!) and he does snack constantly through the day and so far this keeps his sugar normal pretty good. BUT we do notice when he goes for a few days not eating well or often (for whatever reason, yesterday for example was a day at Grandmas, and they were Christmas baking, so he got alot of cookies and sugar), the next day or so he is WAY shakier... his sugar readings will all be normal, but he will still be very tremorous... Its also alot worse when hes tiered... Do you notice at all that the hypoglycemia symptoms occur after a day like that, even when the immidiate sugar readings are normal? I would assume it could throw the system for a loop over a few day period, but i dont really know... any thoughts? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 Quick question, We have monitored s blood sugar very closely through his 'low spells' to see how it is reacting and what sorts of symptoms he gets, and to be honest it doesnt seem related to his tremors... he WILL be very shaky when his sugar is low, but there are many time he is very shaky when his sugar is well into normal limits... We are pretty concious of his diet (complex carbs, we do alot of peanut butter sandwitches too lol!) and he does snack constantly through the day and so far this keeps his sugar normal pretty good. BUT we do notice when he goes for a few days not eating well or often (for whatever reason, yesterday for example was a day at Grandmas, and they were Christmas baking, so he got alot of cookies and sugar), the next day or so he is WAY shakier... his sugar readings will all be normal, but he will still be very tremorous... Its also alot worse when hes tiered... Do you notice at all that the hypoglycemia symptoms occur after a day like that, even when the immidiate sugar readings are normal? I would assume it could throw the system for a loop over a few day period, but i dont really know... any thoughts? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 Yes we do notice alot of the symptoms awile after she does indulge. The Christmas Cookies are really playing havoc to her, even though we are really limiting her. The last few days she has been really shaking and VERY crabby. As far as testing goes, I don't know about immediate levels because we don't test. Her doctors and I have agreed that it really is not necessary to keep pricking her. We have never had a normal level, even right after eating so we just treat the sypmtoms. After reading some of the other ideas, I hope that hypoglycemia is the cause and that we are not overlooking something else. She does usually stop the shaking after we can get some good carbs into her, so it probally is the culprit. I guess some of us moms should by stock in peanut butter, ha ha. For us it has really been a life saver. (Grace also loves those cheese crackers with peanut butter inside, they are perfect for the diaper bag!) Best wishes Claim your Space NOW! Have fun sharing blogs, photos and music lists online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 Yes we do notice alot of the symptoms awile after she does indulge. The Christmas Cookies are really playing havoc to her, even though we are really limiting her. The last few days she has been really shaking and VERY crabby. As far as testing goes, I don't know about immediate levels because we don't test. Her doctors and I have agreed that it really is not necessary to keep pricking her. We have never had a normal level, even right after eating so we just treat the sypmtoms. After reading some of the other ideas, I hope that hypoglycemia is the cause and that we are not overlooking something else. She does usually stop the shaking after we can get some good carbs into her, so it probally is the culprit. I guess some of us moms should by stock in peanut butter, ha ha. For us it has really been a life saver. (Grace also loves those cheese crackers with peanut butter inside, they are perfect for the diaper bag!) Best wishes Claim your Space NOW! Have fun sharing blogs, photos and music lists online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 yes weve just discovered loves peanuts as well... so there a common snack right now with crackers... lol! I doubt i would test nearly as much as I do, except he honestly doesnt mind it in the least... he actually laughs when the pen pricks his finger (wierd i know, but who ever said he was normal!) so its never any trouble to check his levels... I do find though, even when his sugar is normal and hes shaky, if i give him food, the tremors settle down... so im thinking it still plays a role in it regardless of what the actual numbers are... muddy waters. What other 'snack' foods do you use on a regular basis? were limited because cant have dairy... so any cheese like snacks are out (wich is unfortunate because he loooves cheese, and its a good source of protien) its hard to find healthy snacks that he can munch on regularily... any suggestions? thanks alot! its so nice to have other people who know what were experiencing, although i wish none of us dealt with it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 yes weve just discovered loves peanuts as well... so there a common snack right now with crackers... lol! I doubt i would test nearly as much as I do, except he honestly doesnt mind it in the least... he actually laughs when the pen pricks his finger (wierd i know, but who ever said he was normal!) so its never any trouble to check his levels... I do find though, even when his sugar is normal and hes shaky, if i give him food, the tremors settle down... so im thinking it still plays a role in it regardless of what the actual numbers are... muddy waters. What other 'snack' foods do you use on a regular basis? were limited because cant have dairy... so any cheese like snacks are out (wich is unfortunate because he loooves cheese, and its a good source of protien) its hard to find healthy snacks that he can munch on regularily... any suggestions? thanks alot! its so nice to have other people who know what were experiencing, although i wish none of us dealt with it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 Hi, I have 2 diabetic children so I have seen this before and will try to explain as best as I can. Everyone stores a reserve supply of sugar in their liver. When your blood sugar goes too low, your liver will dump the reserves into the blood stream as a survival method. The shaking is part of the adrenalin like rush that your body uses to get your blood sugar raised to a safe level. Your body is reacting to the fluctuating blood sugar levels. Sometimes your blood sugar will be normal while you are shaking because your blood sugar is on its way down or up and just the rapidly changing levels can cause symptoms. Feeding them helps them to rebuild the stores in the liver and stabilize. A lot of sweets can actually lower the blood sugar if they then produce too much insulin and end up getting too low and using up the storage. It is quite a balancing act!!! I hope this makes sense!! > > so though, even when his sugar is normal and hes shaky, if i > give him food, the tremors settle down... so im thinking it still > plays a role in it regardless of what the actual numbers are... > > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 Hi, I have 2 diabetic children so I have seen this before and will try to explain as best as I can. Everyone stores a reserve supply of sugar in their liver. When your blood sugar goes too low, your liver will dump the reserves into the blood stream as a survival method. The shaking is part of the adrenalin like rush that your body uses to get your blood sugar raised to a safe level. Your body is reacting to the fluctuating blood sugar levels. Sometimes your blood sugar will be normal while you are shaking because your blood sugar is on its way down or up and just the rapidly changing levels can cause symptoms. Feeding them helps them to rebuild the stores in the liver and stabilize. A lot of sweets can actually lower the blood sugar if they then produce too much insulin and end up getting too low and using up the storage. It is quite a balancing act!!! I hope this makes sense!! > > so though, even when his sugar is normal and hes shaky, if i > give him food, the tremors settle down... so im thinking it still > plays a role in it regardless of what the actual numbers are... > > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 Great explanation, thanks. I was told why this happened but I never understood how before. Thanks for the clarification Find the music you love with MSN Music – tracks are just 99c! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 Great explanation, thanks. I was told why this happened but I never understood how before. Thanks for the clarification Find the music you love with MSN Music – tracks are just 99c! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2004 Report Share Posted December 22, 2004 yes thank you!! I have always suspected that he shows symptoms when his sugar levels are in the process of changing quickly, but never had it clarified... that would explain why he still gets symptoms, even when his levels are normal on the monitor... thanks again! Keely > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2004 Report Share Posted December 22, 2004 yes thank you!! I have always suspected that he shows symptoms when his sugar levels are in the process of changing quickly, but never had it clarified... that would explain why he still gets symptoms, even when his levels are normal on the monitor... thanks again! Keely > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2004 Report Share Posted December 23, 2004 What other 'snack' foods do you use on a regular basis? were limited because cant have dairy... so any cheese like snacks are out (wich is unfortunate because he loooves cheese, and its a good source of protien) its hard to find healthy snacks that he can munch on regularily... Have you ever tried soy cheese? It tastes different, but an adequate substitute. Also, tofu is pretty tasteless and is high in protein. e, Chelsea' s mom, Atypical Rett Syndrome (FKA nonspecific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2004 Report Share Posted December 23, 2004 What other 'snack' foods do you use on a regular basis? were limited because cant have dairy... so any cheese like snacks are out (wich is unfortunate because he loooves cheese, and its a good source of protien) its hard to find healthy snacks that he can munch on regularily... Have you ever tried soy cheese? It tastes different, but an adequate substitute. Also, tofu is pretty tasteless and is high in protein. e, Chelsea' s mom, Atypical Rett Syndrome (FKA nonspecific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2004 Report Share Posted December 24, 2004 Also, you can purchase rice cheese. I did that for my second son when he was having problems with getting so much milk in his diet as a toddler. Just go in the health food section of your grocery store and you should see a variety of cheeses. Would even cheese made from goat's milk be too hard? Just a thought. Nerenhausen mom to Leah jayvelde@... wrote: In a message dated 12/19/2004 6:30:51 P.M. Eastern Standard Time, tig_ger51@... writes: What other 'snack' foods do you use on a regular basis? were limited because cant have dairy... so any cheese like snacks are out (wich is unfortunate because he loooves cheese, and its a good source of protien) its hard to find healthy snacks that he can munch on regularily... Have you ever tried soy cheese? It tastes different, but an adequate substitute. Also, tofu is pretty tasteless and is high in protein. e, Chelsea' s mom, Atypical Rett Syndrome (FKA nonspecific mito) Please contact mito-owner with any problems or questions. This message scanned for viruses by CoreComm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2004 Report Share Posted December 24, 2004 Also, you can purchase rice cheese. I did that for my second son when he was having problems with getting so much milk in his diet as a toddler. Just go in the health food section of your grocery store and you should see a variety of cheeses. Would even cheese made from goat's milk be too hard? Just a thought. Nerenhausen mom to Leah jayvelde@... wrote: In a message dated 12/19/2004 6:30:51 P.M. Eastern Standard Time, tig_ger51@... writes: What other 'snack' foods do you use on a regular basis? were limited because cant have dairy... so any cheese like snacks are out (wich is unfortunate because he loooves cheese, and its a good source of protien) its hard to find healthy snacks that he can munch on regularily... Have you ever tried soy cheese? It tastes different, but an adequate substitute. Also, tofu is pretty tasteless and is high in protein. e, Chelsea' s mom, Atypical Rett Syndrome (FKA nonspecific mito) Please contact mito-owner with any problems or questions. This message scanned for viruses by CoreComm Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.