Re: Re: adapting from Naa Koshie

[Guest guest]

Naa, Koshie, When I remember things I have to do, appointments, things I gotta replenish, phone calls I gotta make, etc. I have a little black book that I carry around constantly . I call it "my bible". If I ever lost it, I would be a mess! So I can completely understand you there. I also have a medicine box with the different times and days to take my pills! Otherwise , forget it, I would be lost there too! It's a good idea to have your husband trained, mine, at times, still relys on me for that stuff! You are smart! Debbie T. Co-Moderatormosaicgirl1 wrote: Naa Koshie,I do something similar. I bought a dry erase board and put it up on thedoor in the kitchen. I write down things as I think of them. Myhusband is also

responsible for putting things on there as he sees themgetting low. He uses a lot of sugar - I never add it to anything - andI have no way of knowing unless he writes it down. At first he wasagainst it wondering why I couldn't automatically just check it but somedays I can't even remember my name. But now I have him trained and itworks pretty well.The idea of the special chair with the eye covers sounds wonderful. What a great guy.Terri G. I was thinking about the fatiguething & all the ways we devise to deal with it. Then this morning when Iput my (plastic) glass of juice into a coffee mug (to lessen the chanceof knocking it over), I thought

of all the other ways we learn to adapt.I know that I have come up with lots of innovative ideas, which wouldprobably not make me rich if I tried to market them (except maybe theICE BRA R). Maybe we could all contribute our ideas & I'll try toorganize them into a list that new, and old, members could use. Eventhough my adaptations are necessary & helpful, sometimes I still resentthe fact that I have to do it at all. Anyone else want to join theproject?>>> Ramblin' Rose> Moderator>> A merry heart is good medicine. Proverbs 17:22>>>>>> ---------------------------------> Gear up for Halo® 3 and get a $25 Best Buy gift card. It's ourway of saying thanks for using Windows Live™. Get it now!>>>>> "How far you go in life depends on your being tender with the young,compassionate with the aged, sympathetic with the

striving, and tolerantof the weak and the strong. Because someday in life you will have beenall of these.">> ~ Washington Carver>~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- FAITH CHAT: SUNDAY 4PM-5PM EASTERN TIME CHATROOM LINK: http://www.emxpc.net/chat/index.php Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Naa, Koshie, When I remember things I have to do, appointments, things I gotta replenish, phone calls I gotta make, etc. I have a little black book that I carry around constantly . I call it "my bible". If I ever lost it, I would be a mess! So I can completely understand you there. I also have a medicine box with the different times and days to take my pills! Otherwise , forget it, I would be lost there too! It's a good idea to have your husband trained, mine, at times, still relys on me for that stuff! You are smart! Debbie T. Co-Moderatormosaicgirl1 wrote: Naa Koshie,I do something similar. I bought a dry erase board and put it up on thedoor in the kitchen. I write down things as I think of them. Myhusband is also

responsible for putting things on there as he sees themgetting low. He uses a lot of sugar - I never add it to anything - andI have no way of knowing unless he writes it down. At first he wasagainst it wondering why I couldn't automatically just check it but somedays I can't even remember my name. But now I have him trained and itworks pretty well.The idea of the special chair with the eye covers sounds wonderful. What a great guy.Terri G. I was thinking about the fatiguething & all the ways we devise to deal with it. Then this morning when Iput my (plastic) glass of juice into a coffee mug (to lessen the chanceof knocking it over), I thought

of all the other ways we learn to adapt.I know that I have come up with lots of innovative ideas, which wouldprobably not make me rich if I tried to market them (except maybe theICE BRA R). Maybe we could all contribute our ideas & I'll try toorganize them into a list that new, and old, members could use. Eventhough my adaptations are necessary & helpful, sometimes I still resentthe fact that I have to do it at all. Anyone else want to join theproject?>>> Ramblin' Rose> Moderator>> A merry heart is good medicine. Proverbs 17:22>>>>>> ---------------------------------> Gear up for Halo® 3 and get a $25 Best Buy gift card. It's ourway of saying thanks for using Windows Live™. Get it now!>>>>> "How far you go in life depends on your being tender with the young,compassionate with the aged, sympathetic with the

striving, and tolerantof the weak and the strong. Because someday in life you will have beenall of these.">> ~ Washington Carver>~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- FAITH CHAT: SUNDAY 4PM-5PM EASTERN TIME CHATROOM LINK: http://www.emxpc.net/chat/index.php Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database