Re: Re: seizures help-Geri-Anne

December 22, 2004

Hey Geri-Anne! How is the Lamictal working for Wyatt? I'm feeling pretty

hopeless right now with the girls' seizures. We just can't get the eye

flutters under control and their recent EEG was pretty awful. When we were

seeing Dr. Ritter, that was the next med he was going to try. I might even

have it sitting in my cupboard now that I think about it. We just didn't

want to have them on 4 meds at once and didn't start it. Our new neuro is

weaning the Zonegran down so maybe we could start another after getting rid

of that one. We are throwing around the idea of putting the girls on a

modified Atkins diet after the first of the year. I consulted with our

neuro and he thought it would be worth a try. Not looking forward to taking

away all of the foods they really enjoy...

I hope Wyatt is doing well. Take care!

Kim

Re: seizures help

>

> Dawn, Wyatt was on Keppra for two years. He started to have

> breakthrough seizures and we switched to lamictal. Keppra is very

> safe,no side affects for Wyatt. Don't worry about the seizures

> changing or coming on strong, they may not. I know easier said then

> done. Hopefully when you get up to theraputic level you will see a

> stop in the seizures. Happy Holidays!

>

> Geri-Anne and Wyatt

>

> -- In Mito , " thefourofus03 " <thefourofus03@y...>

> wrote:

>>

>> My Molly has just been diagnosed with petit mal seizures and was

>> wondering if anyone has any advice for me. The weird part for us is

>> that Cohen said that these kinds of seizures are not the kind

>> normally indicative in mito-which means they are not related? Weird.

>>

>> She has been put on Keppra-anyone use this?

>>

>> Thanks, Dawn M

>

> Please contact mito-owner with any problems or questions.

>

December 22, 2004