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I had someone actually

ask why I thought I should be able to use the placard-- and I had just finished

with my Remicade infusion. I looked at them, said hey, if you want my illness,

you can have my parking placard. The look that came back was brutal-- so

I added, you know, I just finished a 3hr chemo infusion, and I'd love to puke

on your shoes. Would that prove to you that I need the placard?

They didn't know what to say-- and I went in and got my groceries and then

home-- where I don't have to put up with those that don't have a clue.    

 

I love this, so very

true, like I said in another email, I don’t look sick, nor do I want to

look sick, people at church come up and say, “well you must be feeling

good, cuz you look so good”  I smile whatever, if they watched me they

would see it, how my husbands has to pull me up out of the seat to stand, as my

legs are not working, and knelling well just forget it I might as well crawl

out, but again my husband helps.  I went to a Kay function, as I am still

running my business, slow but still going.  Anyway we had to do a lot of up and

down in the seats, that’s a major killer, so my wonderful MK friends know

and they grab my arms and pull me up! Hold on to me when I walk, I can’t

even just stand anymore without losing my balance, I was talking with an MK

friend after our meeting the other night out in the parking lot, and after a

few sways, she just took hold of my arm and continued the conversation no big

deal.  And I do wish that no one had to help me, that I could still do nursing,

but I work with what God gave me. Mb

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of jackie

Sent: Wednesday, October 24, 2007

7:56 PM

To: Neurosarcoidosis

Subject: Re: [sPAM]Re:

[sPAM] Re:FW: question about handicap parking

I have read But you don't look sick and I am sorry if

I offended you. You are right of course there are those who at the time

may be in a kind of remission or something like that. However I have seen

those who don't need the card. Yes they are using grannies card, who died

3 months ago, or their sisters card who isn't with them at the time. It

is true that I don't know all these people but I have seen the abuse of the

system with people I am familiar with. They just laugh like it is a big

game. I am sorry if I sound tainted I am. I would give anything not

to have to need one of those so I get a bit obsessed. If I was out of

line I am sorry but I still have a lot of anger in me because of the things I

can not do anymore. I still get in the " why me " and " it's

not fair " way of thinking and need a good kick in the back side.

Thank you for shaking me up.

Jackie

[sPAM]Re:

[sPAM] Re:FW: question about handicap parking

In a message dated

10/23/2007 9:17:59 P.M. Pacific Daylight Time, shadowme (AT) mchsi (DOT) com writes:

I said I am really dismayed at the abuse

of the privilege of having the card.

Jackie,

YOu are doing the same

thing that so many people do to those that have the card. Now, granted,

sometimes someone will be using Grannies card-- but most often not.

I don't look at all

like I should need one. Now that I'm not on oxygen 24/7-- you don't see

any outward signs that I'm disabled. Yeah, I walk like my back is so

stiff I'm in pain-- but other than that-- I LOOK FINE!!

I had someone actually

ask why I thought I should be able to use the placard-- and I had just finished

with my Remicade infusion. I looked at them, said hey, if you want my illness,

you can have my parking placard. The look that came back was brutal-- so

I added, you know, I just finished a 3hr chemo infusion, and I'd love to puke

on your shoes. Would that prove to you that I need the placard?

They didn't know what to say-- and I went in and got my groceries and then

home-- where I don't have to put up with those that don't have a clue.

Not everyone looks

sick-- and they may need the placard.

Do read " But YOU

DON'T LOOK SICK " IT'S A REAL LESSON ON LIFE.

Take care,

Tracie

NS Co-owner/moderator

See what's new at AOL.com and Make AOL Your

Homepage.

Link to comment
Share on other sites

I had someone actually

ask why I thought I should be able to use the placard-- and I had just finished

with my Remicade infusion. I looked at them, said hey, if you want my illness,

you can have my parking placard. The look that came back was brutal-- so

I added, you know, I just finished a 3hr chemo infusion, and I'd love to puke

on your shoes. Would that prove to you that I need the placard?

They didn't know what to say-- and I went in and got my groceries and then

home-- where I don't have to put up with those that don't have a clue.    

 

I love this, so very

true, like I said in another email, I don’t look sick, nor do I want to

look sick, people at church come up and say, “well you must be feeling

good, cuz you look so good”  I smile whatever, if they watched me they

would see it, how my husbands has to pull me up out of the seat to stand, as my

legs are not working, and knelling well just forget it I might as well crawl

out, but again my husband helps.  I went to a Kay function, as I am still

running my business, slow but still going.  Anyway we had to do a lot of up and

down in the seats, that’s a major killer, so my wonderful MK friends know

and they grab my arms and pull me up! Hold on to me when I walk, I can’t

even just stand anymore without losing my balance, I was talking with an MK

friend after our meeting the other night out in the parking lot, and after a

few sways, she just took hold of my arm and continued the conversation no big

deal.  And I do wish that no one had to help me, that I could still do nursing,

but I work with what God gave me. Mb

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of jackie

Sent: Wednesday, October 24, 2007

7:56 PM

To: Neurosarcoidosis

Subject: Re: [sPAM]Re:

[sPAM] Re:FW: question about handicap parking

I have read But you don't look sick and I am sorry if

I offended you. You are right of course there are those who at the time

may be in a kind of remission or something like that. However I have seen

those who don't need the card. Yes they are using grannies card, who died

3 months ago, or their sisters card who isn't with them at the time. It

is true that I don't know all these people but I have seen the abuse of the

system with people I am familiar with. They just laugh like it is a big

game. I am sorry if I sound tainted I am. I would give anything not

to have to need one of those so I get a bit obsessed. If I was out of

line I am sorry but I still have a lot of anger in me because of the things I

can not do anymore. I still get in the " why me " and " it's

not fair " way of thinking and need a good kick in the back side.

Thank you for shaking me up.

Jackie

[sPAM]Re:

[sPAM] Re:FW: question about handicap parking

In a message dated

10/23/2007 9:17:59 P.M. Pacific Daylight Time, shadowme (AT) mchsi (DOT) com writes:

I said I am really dismayed at the abuse

of the privilege of having the card.

Jackie,

YOu are doing the same

thing that so many people do to those that have the card. Now, granted,

sometimes someone will be using Grannies card-- but most often not.

I don't look at all

like I should need one. Now that I'm not on oxygen 24/7-- you don't see

any outward signs that I'm disabled. Yeah, I walk like my back is so

stiff I'm in pain-- but other than that-- I LOOK FINE!!

I had someone actually

ask why I thought I should be able to use the placard-- and I had just finished

with my Remicade infusion. I looked at them, said hey, if you want my illness,

you can have my parking placard. The look that came back was brutal-- so

I added, you know, I just finished a 3hr chemo infusion, and I'd love to puke

on your shoes. Would that prove to you that I need the placard?

They didn't know what to say-- and I went in and got my groceries and then

home-- where I don't have to put up with those that don't have a clue.

Not everyone looks

sick-- and they may need the placard.

Do read " But YOU

DON'T LOOK SICK " IT'S A REAL LESSON ON LIFE.

Take care,

Tracie

NS Co-owner/moderator

See what's new at AOL.com and Make AOL Your

Homepage.

Link to comment
Share on other sites

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