Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Marla, sweetie, it's time. Probably past time. I don't know about Colorado, but my neuro just filled out a form from the BMV (I had to pick the form up myself) & I took it back, paid a small fee & got a placard. The first time he just wrote for one year, but when it was time to renew it, he wrote permanent disability. That time I got a licence plate & a placard; I keep the placard in my purse & use it when someone else takes me out to eat or whatever. I don't always park in handicap spots, especially if there is a regular spot pretty close. I figure someone else might need it more than I do. But it's awfully nice to have the plate or card on those bad days. And it's a must if I want to go places like the State Fair. Even though I took my scooter, if I hadn't been able to use the handicapped lot, I would have had to park across the street every time we went because it was so crowded. I'd have used up my batteries just getting into the Fairgrounds & back. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 "How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these." ~ Washington Carver To: neurosarcoidosis From: mebramer@...Date: Mon, 22 Oct 2007 20:57:43 -0700Subject: question about handicap parking OK, this may sound stupid, but when do you feel like it’s time to ask for a handicap parking sticker, if I have to park way out in the parking lot, then I’m lucky to get through the store, especially if it’s been a long day, then try to get back out to the car and put the food in the car, I had a couple of days, I just sat in the car and cried, I didn’t think I was going to make it home. My legs get so heavy now, I find myself dragging the left, and then get that SOB sensation, I just want to sit right there and cry! I called home one day and told my son to be ready to get the food out of the car (since he and his brother eat it all it’s the least he can do) but I drove in the garage and went straight to bed, slept a couple hours before I could even move. So do you all already have one, and is it hard to get? Thanks, Marla Windows Live Hotmail and Microsoft Office Outlook – together at last. Get it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Marla, I'm with Rose on this one. It is definitely past time for you to get one. My Neurosurgeon filled out the form for me (he actually had them at his office) and I just had to stick it in an envelope and mail it in. It didn't cost me anything at all. My doctor wrote it out as permanently disabled but asked me to only use it as long as I felt I needed it. I am no longer able to drive, so I leave mine in my mom's car (she is the one who usually drives me everywhere). If there is a close parking space available, we will park there instead of handicap...just as Rose does, but most times it proves to be invaluable. Especially for hospital/doctor visits that don't have valet parking available. Once I mailed the form in, it took only about a week before I received it back in the mail. Good Luck and Hugs! in UT >> > > OK, this may sound stupid, but when do you feel like it's time to ask for a> handicap parking sticker, if I have to park way out in the parking lot,> then I'm lucky to get through the store, especially if it's been a long day,> then try to get back out to the car and put the food in the car, I had a> couple of days, I just sat in the car and cried, I didn't think I was going> to make it home. My legs get so heavy now, I find myself dragging the left,> and then get that SOB sensation, I just want to sit right there and cry! > > I called home one day and told my son to be ready to get the food out of the> car (since he and his brother eat it all it's the least he can do) but I> drove in the garage and went straight to bed, slept a couple hours before I> could even move. So do you all already have one, and is it hard to get?> Thanks, Marla> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 -Marla, I had sarc for about 5 years (and it had damaged my lungs), before I asked my Doctor how I could get a handicap sign...........he responded with ""I wondered when you were going to ask for one.......you have needed it for at least 4 years!"" He immediately wrote out a paper (like a request) for me and I took it to the License Bureau and immediately got my sign......no problem. If I am feeling well and do not have a lot of shopping to do, then I do not use it.............because I know there are others out there who are worse off than me, but if I need it, I use it. Hope this helps........... Hugs, Darlene NS Co-Owner/Moderator ---- Original Message ----- From: Marla Bramer To: neurosarcoidosis Sent: Monday, October 22, 2007 10:57 PM Subject: question about handicap parking OK, this may sound stupid, but when do you feel like it’s time to ask for a handicap parking sticker, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 Marla, you should already have been offered one. Get the boys to stop at the DMV and get the application, and fill out your part-- you may even want to fill out the MD's part-- then all he has to do is sign it! It's not hard to get one, you just go back to the DMV with the application, and in Calif (we pay $6.00 one time) they give you the one that hangs on the rear view mirror. Or we can pay $20 a year and get the permanent license plate. I opt for the cheap one so that I can use it in my car or when I'm in our truck. Now-- as far as you having to sit in the car, or work up the energy to get into the store, too worn out to do what you came to do-- been there, done that... My dear friend, ask for what you need-- and DO NOT beat yourself up overneeding to get the sticker- it is a godsend!! Love to you, Tracie See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 Hi Darlene, Thanks, yes I’ve been thinking about it, but have been afraid that he would say, you don’t need it, well today I had to get poked and prodded with test that will hopefully enable me to get Humeria,(not sure I’m spelling that right) so while I was getting my flu shot and TB test, I asked the Med. Assistant, if she would ask the Doctor if I could get one, and I started out with, do you know my history, and she said No, so then I went on to say, have you ever read the book, “but you look so good” and she said No, so at that point I just asked her to ask the doctor. Because I am the type of person that will not leave the home without make up,(because if I got in an accident they would take one look at me and say, she’s a goner, and move on) J, So I felt strange asking her, guess I’ll just wait and see what my doctor says. Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Darlene Arney Sent: Tuesday, October 23, 2007 4:20 AM To: Neurosarcoidosis Subject: Re: question about handicap parking -Marla, I had sarc for about 5 years (and it had damaged my lungs), before I asked my Doctor how I could get a handicap sign...........he responded with " " I wondered when you were going to ask for one.......you have needed it for at least 4 years! " " He immediately wrote out a paper (like a request) for me and I took it to the License Bureau and immediately got my sign......no problem. If I am feeling well and do not have a lot of shopping to do, then I do not use it.............because I know there are others out there who are worse off than me, but if I need it, I use it. Hope this helps........... Hugs, Darlene NS Co-Owner/Moderator ---- Original Message ----- From: Marla Bramer To: neurosarcoidosis Sent: Monday, October 22, 2007 10:57 PM Subject: question about handicap parking OK, this may sound stupid, but when do you feel like it’s time to ask for a handicap parking sticker, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 Hi Darlene, Thanks, yes I’ve been thinking about it, but have been afraid that he would say, you don’t need it, well today I had to get poked and prodded with test that will hopefully enable me to get Humeria,(not sure I’m spelling that right) so while I was getting my flu shot and TB test, I asked the Med. Assistant, if she would ask the Doctor if I could get one, and I started out with, do you know my history, and she said No, so then I went on to say, have you ever read the book, “but you look so good” and she said No, so at that point I just asked her to ask the doctor. Because I am the type of person that will not leave the home without make up,(because if I got in an accident they would take one look at me and say, she’s a goner, and move on) J, So I felt strange asking her, guess I’ll just wait and see what my doctor says. Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Darlene Arney Sent: Tuesday, October 23, 2007 4:20 AM To: Neurosarcoidosis Subject: Re: question about handicap parking -Marla, I had sarc for about 5 years (and it had damaged my lungs), before I asked my Doctor how I could get a handicap sign...........he responded with " " I wondered when you were going to ask for one.......you have needed it for at least 4 years! " " He immediately wrote out a paper (like a request) for me and I took it to the License Bureau and immediately got my sign......no problem. If I am feeling well and do not have a lot of shopping to do, then I do not use it.............because I know there are others out there who are worse off than me, but if I need it, I use it. Hope this helps........... Hugs, Darlene NS Co-Owner/Moderator ---- Original Message ----- From: Marla Bramer To: neurosarcoidosis Sent: Monday, October 22, 2007 10:57 PM Subject: question about handicap parking OK, this may sound stupid, but when do you feel like it’s time to ask for a handicap parking sticker, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2007 Report Share Posted October 27, 2007 , My doctors office called yesterday and said my doctor signed the handicap parking, she said he signed the permanent one, so I never have to renew it, and I was worried he would say something, but after last night there is no doubt I need one, I went to a hockey game with my husband, didn’t get up a lot, and at the end I could not move my left leg at all, my right one was pretty weak too, so my husband had to drag me out of there, I’m sure people were thinking I was a drunk, and it hurts when you force it at that pace! So today I feel like hell, been sleeping a lot, tomorrow will be a better day! Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Sent: Monday, October 22, 2007 10:53 PM To: Neurosarcoidosis Subject: Re: question about handicap parking Marla, I'm with Rose on this one. It is definitely past time for you to get one. My Neurosurgeon filled out the form for me (he actually had them at his office) and I just had to stick it in an envelope and mail it in. It didn't cost me anything at all. My doctor wrote it out as permanently disabled but asked me to only use it as long as I felt I needed it. I am no longer able to drive, so I leave mine in my mom's car (she is the one who usually drives me everywhere). If there is a close parking space available, we will park there instead of handicap...just as Rose does, but most times it proves to be invaluable. Especially for hospital/doctor visits that don't have valet parking available. Once I mailed the form in, it took only about a week before I received it back in the mail. Good Luck and Hugs! in UT > > > > OK, this may sound stupid, but when do you feel like it's time to ask for a > handicap parking sticker, if I have to park way out in the parking lot, > then I'm lucky to get through the store, especially if it's been a long day, > then try to get back out to the car and put the food in the car, I had a > couple of days, I just sat in the car and cried, I didn't think I was going > to make it home. My legs get so heavy now, I find myself dragging the left, > and then get that SOB sensation, I just want to sit right there and cry! > > I called home one day and told my son to be ready to get the food out of the > car (since he and his brother eat it all it's the least he can do) but I > drove in the garage and went straight to bed, slept a couple hours before I > could even move. So do you all already have one, and is it hard to get? > Thanks, Marla > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2007 Report Share Posted October 27, 2007 Rose, my doctor did sign mine for permanent, the M.A. said she put it in the mail, I guess I then take it to the DMV? From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Monday, October 22, 2007 10:17 PM To: neurosarcoidosis Subject: RE: question about handicap parking Marla, sweetie, it's time. Probably past time. I don't know about Colorado, but my neuro just filled out a form from the BMV (I had to pick the form up myself) & I took it back, paid a small fee & got a placard. The first time he just wrote for one year, but when it was time to renew it, he wrote permanent disability. That time I got a licence plate & a placard; I keep the placard in my purse & use it when someone else takes me out to eat or whatever. I don't always park in handicap spots, especially if there is a regular spot pretty close. I figure someone else might need it more than I do. But it's awfully nice to have the plate or card on those bad days. And it's a must if I want to go places like the State Fair. Even though I took my scooter, if I hadn't been able to use the handicapped lot, I would have had to park across the street every time we went because it was so crowded. I'd have used up my batteries just getting into the Fairgrounds & back. Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 " How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these. " ~ Washington Carver To: neurosarcoidosis From: mebramer (AT) gmail (DOT) com Date: Mon, 22 Oct 2007 20:57:43 -0700 Subject: question about handicap parking OK, this may sound stupid, but when do you feel like it’s time to ask for a handicap parking sticker, if I have to park way out in the parking lot, then I’m lucky to get through the store, especially if it’s been a long day, then try to get back out to the car and put the food in the car, I had a couple of days, I just sat in the car and cried, I didn’t think I was going to make it home. My legs get so heavy now, I find myself dragging the left, and then get that SOB sensation, I just want to sit right there and cry! I called home one day and told my son to be ready to get the food out of the car (since he and his brother eat it all it’s the least he can do) but I drove in the garage and went straight to bed, slept a couple hours before I could even move. So do you all already have one, and is it hard to get? Thanks, Marla Windows Live Hotmail and Microsoft Office Outlook – together at last. Get it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2007 Report Share Posted October 27, 2007 Marla, I knew your doc wouldn't give you a hard time. I'm glad he filled out the permanent one. Don't be afraid to use it...it can definitely be a lifesaver. It sounds like it would have been a great benefit for you to have last night. I hope you feel better soon...in the mean time, take it easy on yourself! Hugs! in UT >> , > > My doctors office called yesterday and said my doctor signed the handicap> parking, she said he signed the permanent one, so I never have to renew it,> and I was worried he would say something, but after last night there is no> doubt I need one, I went to a hockey game with my husband, didn't get up a> lot, and at the end I could not move my left leg at all, my right one was> pretty weak too, so my husband had to drag me out of there, I'm sure people> were thinking I was a drunk, and it hurts when you force it at that pace!> So today I feel like hell, been sleeping a lot, tomorrow will be a better> day! > > Marla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 Marla, that's what we do in Indiana; I would assume the same out there. You might want to call first, just to make sure you have everything you need. I'm so glad you did it. As everyone has said, there may be times you don't need to use it, but like a poster I once saw on giving blood said: Blood is like a parachute: you may never need it, but it had better be there when you do! This is a little less dramatic, but the same principle. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: mebramer@...Date: Sat, 27 Oct 2007 16:19:05 -0700Subject: RE: question about handicap parking Help yourself to FREE treats served up daily at the Messenger Café. Stop by today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 went to a hockey game with my husband, didn’t get up a lot, and at the end I could not move my left leg at all, my right one was pretty weak too, so my husband had to drag me out of there, Marla, Next time this happens, have that hubby of yours go get a wheelchair from the courtesy desk. They have to have them by law. My heart goes out to you-- I know how difficult it is to keep coming face to face with the changes that happen. Hugs, Tracie NS Co-owner/moderatorSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 went to a hockey game with my husband, didn’t get up a lot, and at the end I could not move my left leg at all, my right one was pretty weak too, so my husband had to drag me out of there, Marla, Next time this happens, have that hubby of yours go get a wheelchair from the courtesy desk. They have to have them by law. My heart goes out to you-- I know how difficult it is to keep coming face to face with the changes that happen. Hugs, Tracie NS Co-owner/moderatorSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 Thanks Rose, after the other night at the Hockey game I will be glad I have it, in fact I don’t think I will go to another hockey game until I get it, as my husband had to drag me to the car, I’m sure everyone just thought I was a drunk J. Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Saturday, October 27, 2007 11:01 PM To: neurosarcoidosis Subject: RE: question about handicap parking Marla, that's what we do in Indiana; I would assume the same out there. You might want to call first, just to make sure you have everything you need. I'm so glad you did it. As everyone has said, there may be times you don't need to use it, but like a poster I once saw on giving blood said: Blood is like a parachute: you may never need it, but it had better be there when you do! This is a little less dramatic, but the same principle. Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: mebramer (AT) gmail (DOT) com Date: Sat, 27 Oct 2007 16:19:05 -0700 Subject: RE: question about handicap parking Help yourself to FREE treats served up daily at the Messenger Café. Stop by today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 Thanks Rose, after the other night at the Hockey game I will be glad I have it, in fact I don’t think I will go to another hockey game until I get it, as my husband had to drag me to the car, I’m sure everyone just thought I was a drunk J. Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Saturday, October 27, 2007 11:01 PM To: neurosarcoidosis Subject: RE: question about handicap parking Marla, that's what we do in Indiana; I would assume the same out there. You might want to call first, just to make sure you have everything you need. I'm so glad you did it. As everyone has said, there may be times you don't need to use it, but like a poster I once saw on giving blood said: Blood is like a parachute: you may never need it, but it had better be there when you do! This is a little less dramatic, but the same principle. Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: mebramer (AT) gmail (DOT) com Date: Sat, 27 Oct 2007 16:19:05 -0700 Subject: RE: question about handicap parking Help yourself to FREE treats served up daily at the Messenger Café. Stop by today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 You know Tracie I did not even think of a wheelchair, funny how that is, like the times I get lost and don’t remember I have a cell phone in my purse? Next time I will do that, and I don’t think I will be going again until I get the handicap parking, it was a long drag out to the car, by that time it just plain hurt! I find my balance is really off, and that with a really weak left leg, I look like a drunk, one day at a time, I keep telling myself now and it helps. Tracie I hope life gives back to you all the wonderful things you have given life. Blessings my friend, Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of tiodaat@... Sent: Sunday, October 28, 2007 5:44 PM To: Neurosarcoidosis Subject: Re: Re: question about handicap parking In a message dated 10/27/2007 3:17:06 P.M. Pacific Daylight Time, mebramer (AT) gmail (DOT) com writes: went to a hockey game with my husband, didn’t get up a lot, and at the end I could not move my left leg at all, my right one was pretty weak too, so my husband had to drag me out of there, Marla, Next time this happens, have that hubby of yours go get a wheelchair from the courtesy desk. They have to have them by law. My heart goes out to you-- I know how difficult it is to keep coming face to face with the changes that happen. Hugs, Tracie NS Co-owner/moderator See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 You know Tracie I did not even think of a wheelchair, funny how that is, like the times I get lost and don’t remember I have a cell phone in my purse? Next time I will do that, and I don’t think I will be going again until I get the handicap parking, it was a long drag out to the car, by that time it just plain hurt! I find my balance is really off, and that with a really weak left leg, I look like a drunk, one day at a time, I keep telling myself now and it helps. Tracie I hope life gives back to you all the wonderful things you have given life. Blessings my friend, Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of tiodaat@... Sent: Sunday, October 28, 2007 5:44 PM To: Neurosarcoidosis Subject: Re: Re: question about handicap parking In a message dated 10/27/2007 3:17:06 P.M. Pacific Daylight Time, mebramer (AT) gmail (DOT) com writes: went to a hockey game with my husband, didn’t get up a lot, and at the end I could not move my left leg at all, my right one was pretty weak too, so my husband had to drag me out of there, Marla, Next time this happens, have that hubby of yours go get a wheelchair from the courtesy desk. They have to have them by law. My heart goes out to you-- I know how difficult it is to keep coming face to face with the changes that happen. Hugs, Tracie NS Co-owner/moderator See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 Marla, I really need to get going on my t-shirt (maybe hats & visors, too?) design: "I'm not drunk---I just have Neurosarcoidosis!" Great conversation starter. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 "How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these." ~ Washington Carver To: Neurosarcoidosis From: mebramer@...Date: Sun, 28 Oct 2007 19:20:50 -0700Subject: RE: question about handicap parking Thanks Rose, after the other night at the Hockey game I will be glad I have it, in fact I don’t think I will go to another hockey game until I get it, as my husband had to drag me to the car, I’m sure everyone just thought I was a drunk J. Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Saturday, October 27, 2007 11:01 PMTo: neurosarcoidosis Subject: RE: question about handicap parking Marla, that's what we do in Indiana; I would assume the same out there. You might want to call first, just to make sure you have everything you need. I'm so glad you did it. As everyone has said, there may be times you don't need to use it, but like a poster I once saw on giving blood said: Blood is like a parachute: you may never need it, but it had better be there when you do! This is a little less dramatic, but the same principle. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: mebramer (AT) gmail (DOT) comDate: Sat, 27 Oct 2007 16:19:05 -0700Subject: RE: question about handicap parking Help yourself to FREE treats served up daily at the Messenger Café. Stop by today! Boo! Scare away worms, viruses and so much more! Try Windows Live OneCare! Try now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 Marla, I really need to get going on my t-shirt (maybe hats & visors, too?) design: "I'm not drunk---I just have Neurosarcoidosis!" Great conversation starter. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 "How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these." ~ Washington Carver To: Neurosarcoidosis From: mebramer@...Date: Sun, 28 Oct 2007 19:20:50 -0700Subject: RE: question about handicap parking Thanks Rose, after the other night at the Hockey game I will be glad I have it, in fact I don’t think I will go to another hockey game until I get it, as my husband had to drag me to the car, I’m sure everyone just thought I was a drunk J. Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Saturday, October 27, 2007 11:01 PMTo: neurosarcoidosis Subject: RE: question about handicap parking Marla, that's what we do in Indiana; I would assume the same out there. You might want to call first, just to make sure you have everything you need. I'm so glad you did it. As everyone has said, there may be times you don't need to use it, but like a poster I once saw on giving blood said: Blood is like a parachute: you may never need it, but it had better be there when you do! This is a little less dramatic, but the same principle. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: mebramer (AT) gmail (DOT) comDate: Sat, 27 Oct 2007 16:19:05 -0700Subject: RE: question about handicap parking Help yourself to FREE treats served up daily at the Messenger Café. Stop by today! Boo! Scare away worms, viruses and so much more! Try Windows Live OneCare! Try now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 Marla, I know what you mean. I feel like I am drunk and wonder what people are thinking. Wondering if they are thinking I am a secret drinker, and having to hold onto things. I think the one thing that really gets me is when I don't gauge things right and hit my arms on the walls and I wonder why the heck I did not see it. I don't know if others have this but I have trouble with my fingers and not being able to flip through papers at work or open things and get so frustrated. So then I have to tell myself to stop, stop getting upset, breathe deeply and start over and then it works. KatSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 Marla, I know what you mean. I feel like I am drunk and wonder what people are thinking. Wondering if they are thinking I am a secret drinker, and having to hold onto things. I think the one thing that really gets me is when I don't gauge things right and hit my arms on the walls and I wonder why the heck I did not see it. I don't know if others have this but I have trouble with my fingers and not being able to flip through papers at work or open things and get so frustrated. So then I have to tell myself to stop, stop getting upset, breathe deeply and start over and then it works. KatSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 Rose that is perfect, let me know when you have them done, I will be the first to buy one! I know people must wonder about me, you know I can not stand in one place, I just can’t, I fall to one side then the other, and it’s not like I fall to the ground, my feet shift without telling my brain or maybe it’s the other way around?? So I always look drunk, people will like grab my elbow and say are you OK, ya I’m fine I just can’t stand or walk or sit or do anything for very long? Such is life? Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Monday, October 29, 2007 12:29 AM To: neurosarcoidosis Subject: RE: question about handicap parking Marla, I really need to get going on my t-shirt (maybe hats & visors, too?) design: " I'm not drunk---I just have Neurosarcoidosis! " Great conversation starter. Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 " How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these. " ~ Washington Carver To: Neurosarcoidosis From: mebramer (AT) gmail (DOT) com Date: Sun, 28 Oct 2007 19:20:50 -0700 Subject: RE: question about handicap parking Thanks Rose, after the other night at the Hockey game I will be glad I have it, in fact I don’t think I will go to another hockey game until I get it, as my husband had to drag me to the car, I’m sure everyone just thought I was a drunk J. Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Saturday, October 27, 2007 11:01 PM To: neurosarcoidosis Subject: RE: question about handicap parking Marla, that's what we do in Indiana; I would assume the same out there. You might want to call first, just to make sure you have everything you need. I'm so glad you did it. As everyone has said, there may be times you don't need to use it, but like a poster I once saw on giving blood said: Blood is like a parachute: you may never need it, but it had better be there when you do! This is a little less dramatic, but the same principle. Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: mebramer (AT) gmail (DOT) com Date: Sat, 27 Oct 2007 16:19:05 -0700 Subject: RE: question about handicap parking Help yourself to FREE treats served up daily at the Messenger Café. Stop by today! Boo! Scare away worms, viruses and so much more! Try Windows Live OneCare! Try now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 Rose that is perfect, let me know when you have them done, I will be the first to buy one! I know people must wonder about me, you know I can not stand in one place, I just can’t, I fall to one side then the other, and it’s not like I fall to the ground, my feet shift without telling my brain or maybe it’s the other way around?? So I always look drunk, people will like grab my elbow and say are you OK, ya I’m fine I just can’t stand or walk or sit or do anything for very long? Such is life? Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Monday, October 29, 2007 12:29 AM To: neurosarcoidosis Subject: RE: question about handicap parking Marla, I really need to get going on my t-shirt (maybe hats & visors, too?) design: " I'm not drunk---I just have Neurosarcoidosis! " Great conversation starter. Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 " How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these. " ~ Washington Carver To: Neurosarcoidosis From: mebramer (AT) gmail (DOT) com Date: Sun, 28 Oct 2007 19:20:50 -0700 Subject: RE: question about handicap parking Thanks Rose, after the other night at the Hockey game I will be glad I have it, in fact I don’t think I will go to another hockey game until I get it, as my husband had to drag me to the car, I’m sure everyone just thought I was a drunk J. Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Saturday, October 27, 2007 11:01 PM To: neurosarcoidosis Subject: RE: question about handicap parking Marla, that's what we do in Indiana; I would assume the same out there. You might want to call first, just to make sure you have everything you need. I'm so glad you did it. As everyone has said, there may be times you don't need to use it, but like a poster I once saw on giving blood said: Blood is like a parachute: you may never need it, but it had better be there when you do! This is a little less dramatic, but the same principle. Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: mebramer (AT) gmail (DOT) com Date: Sat, 27 Oct 2007 16:19:05 -0700 Subject: RE: question about handicap parking Help yourself to FREE treats served up daily at the Messenger Café. Stop by today! Boo! Scare away worms, viruses and so much more! Try Windows Live OneCare! Try now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 Marla, Do you use a cane? I know that I have to have mine with me when I leave my apartment, because I can't always stay upright without it. I also hold onto another person's arm if I am with someone and use the cane in my other hand to keep me more steady and upright. Ya do whatcha gotta do! Hugs, in UT Rose that is perfect, let me know when you have them done, I will be the first to buy one! I know people must wonder about me, you know I can not stand in one place, I just can't, I fall to one side then the other, and it's not like I fall to the ground, my feet shift without telling my brain or maybe it's the other way around?? So I always look drunk, people will like grab my elbow and say are you OK, ya I'm fine I just can't stand or walk or sit or do anything for very long? Such is life? Marla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 Marla, Do you use a cane? I know that I have to have mine with me when I leave my apartment, because I can't always stay upright without it. I also hold onto another person's arm if I am with someone and use the cane in my other hand to keep me more steady and upright. Ya do whatcha gotta do! Hugs, in UT Rose that is perfect, let me know when you have them done, I will be the first to buy one! I know people must wonder about me, you know I can not stand in one place, I just can't, I fall to one side then the other, and it's not like I fall to the ground, my feet shift without telling my brain or maybe it's the other way around?? So I always look drunk, people will like grab my elbow and say are you OK, ya I'm fine I just can't stand or walk or sit or do anything for very long? Such is life? Marla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 , I got a cane, but had to quit using it because of the arthritis & tendonitis in my hands & right elbow. Even using the electric carts is a challenge because I have to keep switching hands for the speed control, eventually using my fist or forearm. It's very frustrating. I saw a hand specialist last year about my left thumb joint & he mentioned surgery, but I didn't even consider it then. They had previously tried a steroid injection, but couldn't get into the joint, so I just went with a new brace, which helps quite a bit. But there are times I can't wear the brace & the pain really worsens quickly, so maybe I should revisit the idea of surgery. Apparently there is a high rate of success, so it might be worth it. Anybody have any experience with it? My thumb joint is just bone on bone now. I did look up the Synvisc, but it said it was only approved for knees. Oh, woe is me! Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 "How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these." ~ Washington Carver To: Neurosarcoidosis From: bbwtabbie@...Date: Thu, 1 Nov 2007 07:43:46 +0000Subject: Re: question about handicap parking Marla, Do you use a cane? I know that I have to have mine with me when I leave my apartment, because I can't always stay upright without it. I also hold onto another person's arm if I am with someone and use the cane in my other hand to keep me more steady and upright. Ya do whatcha gotta do! Hugs, in UT Rose that is perfect, let me know when you have them done, I will be the first to buy one! I know people must wonder about me, you know I can not stand in one place, I just can't, I fall to one side then the other, and it's not like I fall to the ground, my feet shift without telling my brain or maybe it's the other way around?? So I always look drunk, people will like grab my elbow and say are you OK, ya I'm fine I just can't stand or walk or sit or do anything for very long? Such is life? Marla Peek-a-boo FREE Tricks Treats for You! Get 'em! Quote Link to comment Share on other sites More sharing options...
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