RE: question about handicap parking

[Guest guest]

, I got a cane, but had to quit using it because of the arthritis & tendonitis in my hands & right elbow. Even using the electric carts is a challenge because I have to keep switching hands for the speed control, eventually using my fist or forearm. It's very frustrating. I saw a hand specialist last year about my left thumb joint & he mentioned surgery, but I didn't even consider it then. They had previously tried a steroid injection, but couldn't get into the joint, so I just went with a new brace, which helps quite a bit. But there are times I can't wear the brace & the pain really worsens quickly, so maybe I should revisit the idea of surgery. Apparently there is a high rate of success, so it might be worth it. Anybody have any experience with it? My thumb joint is just bone on bone now. I did look up the Synvisc, but it said it was only approved for knees. Oh, woe is me!

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

"How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these."

~ Washington Carver

To: Neurosarcoidosis From: bbwtabbie@...Date: Thu, 1 Nov 2007 07:43:46 +0000Subject: Re: question about handicap parking

Marla,

Do you use a cane? I know that I have to have mine with me when I leave my apartment, because I can't always stay upright without it. I also hold onto another person's arm if I am with someone and use the cane in my other hand to keep me more steady and upright. Ya do whatcha gotta do!

Hugs,

in UT

Rose that is perfect, let me know when you have them done, I will be the first to buy one! I know people must wonder about me, you know I can not stand in one place, I just can't, I fall to one side then the other, and it's not like I fall to the ground, my feet shift without telling my brain or maybe it's the other way around?? So I always look drunk, people will like grab my elbow and say are you OK, ya I'm fine I just can't stand or walk or sit or do anything for very long? Such is life? Marla

Peek-a-boo FREE Tricks Treats for You! Get 'em!

[Guest guest]

so far I have not fallen, not like I’m waiting too, I do have a

cane I should put it in the car. Most the time I walk ok, it’s just

if I’ve been sitting too long, then I have trouble making the legs work, at

home there is a wall or piece of furniture close enough, and when I’m out

it’s usually with someone, but I think after the other night I will put

the cane in the car. Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of

Sent: Thursday, November 01, 2007

12:44 AM

To: Neurosarcoidosis

Subject: Re:

question about handicap parking

Marla,

Do you use a cane? I know that I

have to have mine with me when I leave my apartment, because I can't always

stay upright without it. I also hold onto another person's arm if I am

with someone and use the cane in my other hand to keep me more steady and

upright. Ya do whatcha gotta do!

Hugs,

in UT

Rose that is perfect, let me know when you have them done, I will be

the first to buy one! I know people must wonder about me, you know I can

not stand in one place, I just can't, I fall to one side then the other,

and it's not like I fall to the ground, my feet shift without telling my

brain or maybe it's the other way around?? So I always look drunk, people

will like grab my elbow and say are you OK, ya I'm fine I just can't stand

or walk or sit or do anything for very long? Such is life? Marla

[Guest guest]

so far I have not fallen, not like I’m waiting too, I do have a

cane I should put it in the car. Most the time I walk ok, it’s just

if I’ve been sitting too long, then I have trouble making the legs work, at

home there is a wall or piece of furniture close enough, and when I’m out

it’s usually with someone, but I think after the other night I will put

the cane in the car. Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of

Sent: Thursday, November 01, 2007

12:44 AM

To: Neurosarcoidosis

Subject: Re:

question about handicap parking

Marla,

Do you use a cane? I know that I

have to have mine with me when I leave my apartment, because I can't always

stay upright without it. I also hold onto another person's arm if I am

with someone and use the cane in my other hand to keep me more steady and

upright. Ya do whatcha gotta do!

Hugs,

in UT

Rose that is perfect, let me know when you have them done, I will be

the first to buy one! I know people must wonder about me, you know I can

not stand in one place, I just can't, I fall to one side then the other,

and it's not like I fall to the ground, my feet shift without telling my

brain or maybe it's the other way around?? So I always look drunk, people

will like grab my elbow and say are you OK, ya I'm fine I just can't stand

or walk or sit or do anything for very long? Such is life? Marla

[Guest guest]

Yes Kat I

never mentioned the trying to flip pages, but I so have that problem and its so

very frustrating, I do it will doing Kay and I’m trying to turn the

pages and just cant do it, I am also having more trouble typing too. Thank goodness

for spell check.

I have

lately had trouble holding anything with any weight with my left hand. Sometimes

I drop it and as it goes down and I’m still trying hard to hold it, I’ve

been breaking the nails on my left hand, have broken all of them but my thumb weird

stuff, that I think is do to the decrease strength.

Today I am

going to my first O.T. appointment, has anyone ever tried OT and found it to be

helpful my husband said go and see, you never know! Marla

Marla Bramer

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of katskreations1@...

Sent: Wednesday, October 31, 2007

8:01 PM

To: Neurosarcoidosis

Subject: Re:

question about handicap parking

Marla,

I know what you mean. I feel like I

am drunk and wonder what people are thinking. Wondering if they are

thinking I am a secret drinker, and having to hold onto things. I think

the one thing that really gets me is when I don't gauge things right and hit my

arms on the walls and I wonder why the heck I did not see it. I don't

know if others have this but I have trouble with my fingers and not being able

to flip through papers at work or open things and get so frustrated. So

then I have to tell myself to stop, stop getting upset, breathe deeply and

start over and then it works.

Kat

See what's new at AOL.com and Make AOL Your

Homepage.

[Guest guest]

Yes Kat I

never mentioned the trying to flip pages, but I so have that problem and its so

very frustrating, I do it will doing Kay and I’m trying to turn the

pages and just cant do it, I am also having more trouble typing too. Thank goodness

for spell check.

I have

lately had trouble holding anything with any weight with my left hand. Sometimes

I drop it and as it goes down and I’m still trying hard to hold it, I’ve

been breaking the nails on my left hand, have broken all of them but my thumb weird

stuff, that I think is do to the decrease strength.

Today I am

going to my first O.T. appointment, has anyone ever tried OT and found it to be

helpful my husband said go and see, you never know! Marla

Marla Bramer

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of katskreations1@...

Sent: Wednesday, October 31, 2007

8:01 PM

To: Neurosarcoidosis

Subject: Re:

question about handicap parking

Marla,

I know what you mean. I feel like I

am drunk and wonder what people are thinking. Wondering if they are

thinking I am a secret drinker, and having to hold onto things. I think

the one thing that really gets me is when I don't gauge things right and hit my

arms on the walls and I wonder why the heck I did not see it. I don't

know if others have this but I have trouble with my fingers and not being able

to flip through papers at work or open things and get so frustrated. So

then I have to tell myself to stop, stop getting upset, breathe deeply and

start over and then it works.

Kat

See what's new at AOL.com and Make AOL Your

Homepage.

[Guest guest]

Hi Marla I'm starting to have trouble with buttons but mostly I wear tshirts & sweat shirts. I've been busy when I haven't been sleeping but thought I'd check in. Everything is approved and I'll get the keys to the handicapped apartment tomorrow! Yea! I'll be able to go outside without having to mess with steps! While you guys had custody of my doctors(LOL) I've been feeling the need of my missed treatments. Join our Sock Challenge for Orphans in Kazakhstan http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... __________________________________________________

[Guest guest]

Hi Marla I'm starting to have trouble with buttons but mostly I wear tshirts & sweat shirts. I've been busy when I haven't been sleeping but thought I'd check in. Everything is approved and I'll get the keys to the handicapped apartment tomorrow! Yea! I'll be able to go outside without having to mess with steps! While you guys had custody of my doctors(LOL) I've been feeling the need of my missed treatments. Join our Sock Challenge for Orphans in Kazakhstan http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... __________________________________________________

[Guest guest]

That’s

great news, a handicapped apartment, exciting for you and I’m so happy

for you.  I picked up my handicapped parking plaque yesterday, I got two, one

to carry with me and one for my car, I had time after my OT visit, which was

just more questions, anyway I got to Wal-Mart and wouldn’t you know no

close place parking so it was the first time I used it, and when I got out I wanted

to scream to everyone, “I HAVE NEUROSARCOIDOSIS” and unless you can

even spell it don’t say a word!  J  OK so there really wasn’t anyone looking at me I just felt that

way.  I told Joe later who lives in his computer world and doesn’t know

what is going on with the rest of the world, and he gave me that look and said

Mom do you really need this, and I said Joe you obviously don’t have a

clue what is happening to your mom, so I got down on the floor, and attempted

to lift my legs, the left barely comes up, the right sometimes ½ way and

sometimes a ¼ depending on the day, he freaked at for a minute and then said, “

how the heck can you walk”, which is my question too, but somehow I keep

going, slow and unsteady, but going.  Isn’t it funny how those we live

with don’t even think we are sick?  Wishing you all a great weekend,

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of

Sent: Thursday, November 01, 2007

10:23 PM

To: Neurosarcoidosis

Subject: RE:

question about handicap parking

Hi Marla

I'm

starting to have trouble with buttons but mostly I wear tshirts & sweat

shirts.

I've been

busy when I haven't been sleeping but thought I'd check in. Everything is

approved and I'll get the keys to the handicapped apartment tomorrow! Yea! I'll

be able to go outside without having to mess with steps! While you guys had

custody of my doctors(LOL) I've been feeling the need of my missed treatments.

Join

our Sock Challenge for Orphans in Kazakhstan

http://groups. yahoo.com/

group/Mittens_ for_Akkol/

grannylunatic (AT) yahoo (DOT) com

 __________________________________________________

[Guest guest]

it was the first time I used it, and when I got out I wanted to scream to everyone, “I HAVE NEUROSARCOIDOSIS†and unless you can even spell it don’t say a word! J OK so there really wasn’t anyone looking at me I just felt that way.

My heart goes out to you.

Love,

TracieSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Thanks

Tracie, I actually got though the day today without needing, I think Rose said

it, but I never noticed before how many handicapped parking spots there are, I do

remember thinking they were always empty, but today notice they were full, how

funny is that, It’s like when you want to become pregnant every women you see

is pregnant, J marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of tiodaat@...

Sent: Friday, November 02, 2007

3:20 PM

To: Neurosarcoidosis

Subject: Re:

question about handicap parking

In a message dated

11/2/2007 9:14:14 A.M. Pacific Daylight Time, mebramer (AT) gmail (DOT) com writes:

it was

the first time I used it, and when I got out I wanted to scream to everyone, “I

HAVE NEUROSARCOIDOSIS” and unless you can even spell it don’t say a word!

J OK so there really wasn’t anyone looking at

me I just felt that way.

My heart goes out to

you.

Love,

Tracie

See what's new at AOL.com and Make AOL Your

Homepage.

[Guest guest]

Thanks

Tracie, I actually got though the day today without needing, I think Rose said

it, but I never noticed before how many handicapped parking spots there are, I do

remember thinking they were always empty, but today notice they were full, how

funny is that, It’s like when you want to become pregnant every women you see

is pregnant, J marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of tiodaat@...

Sent: Friday, November 02, 2007

3:20 PM

To: Neurosarcoidosis

Subject: Re:

question about handicap parking

In a message dated

11/2/2007 9:14:14 A.M. Pacific Daylight Time, mebramer (AT) gmail (DOT) com writes:

it was

the first time I used it, and when I got out I wanted to scream to everyone, “I

HAVE NEUROSARCOIDOSIS” and unless you can even spell it don’t say a word!

J OK so there really wasn’t anyone looking at

me I just felt that way.

My heart goes out to

you.

Love,

Tracie

See what's new at AOL.com and Make AOL Your

Homepage.

[Guest guest]

Marla, at first I also felt defensive about the handicapped parking, but no one has ever said anything to me & I've never noticed anyone giving me dirty looks. I had the same fear about using the electric carts in stores, even though you don't have to provide any "proof" that you need one. Once I was already exhausted & my feet felt like little knives sticking in them, so I was determined that I would use the cart. But when I got in the store, there was only one cart & I thought "Maybe someone else will come in & need it worse than I do," so I didn't take it. By the time I was back to my car, I could hardly walk & was in tears. So now I use the cart when I need to, but just try to do my shopping quickly because I know that there are never enough carts, at least where I shop. Someone is usually waiting for one. The other thing I do if there are several carts available is notice if they are plugged in & plug in any that aren't. Some of the store staff are good about doing it, but others aren't. It's really frustrating to have the battery go dead halfway through shopping.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22Boo! Scare away worms, viruses and so much more! Try Windows Live OneCare! Try now!

[Guest guest]

Marla, at first I also felt defensive about the handicapped parking, but no one has ever said anything to me & I've never noticed anyone giving me dirty looks. I had the same fear about using the electric carts in stores, even though you don't have to provide any "proof" that you need one. Once I was already exhausted & my feet felt like little knives sticking in them, so I was determined that I would use the cart. But when I got in the store, there was only one cart & I thought "Maybe someone else will come in & need it worse than I do," so I didn't take it. By the time I was back to my car, I could hardly walk & was in tears. So now I use the cart when I need to, but just try to do my shopping quickly because I know that there are never enough carts, at least where I shop. Someone is usually waiting for one. The other thing I do if there are several carts available is notice if they are plugged in & plug in any that aren't. Some of the store staff are good about doing it, but others aren't. It's really frustrating to have the battery go dead halfway through shopping.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22Boo! Scare away worms, viruses and so much more! Try Windows Live OneCare! Try now!

[Guest guest]

Way to go, ! I know it will take a lot of time & energy to get settled in. Of course, you're not going to overdo it, or anything. Right????? Unpack your teabags & a cup first, so that you can kick back for a break whenever you need it.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

"How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these."

~ Washington Carver

To: Neurosarcoidosis From: grannylunatic@...Date: Thu, 1 Nov 2007 22:22:56 -0700Subject: RE: question about handicap parking

Hi Marla

I'm starting to have trouble with buttons but mostly I wear tshirts & sweat shirts.

I've been busy when I haven't been sleeping but thought I'd check in. Everything is approved and I'll get the keys to the handicapped apartment tomorrow! Yea! I'll be able to go outside without having to mess with steps! While you guys had custody of my doctors(LOL) I've been feeling the need of my missed treatments. Join our Sock Challenge for Orphans in Kazakhstan http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic (AT) yahoo (DOT) com __________________________________________________

[Guest guest]

Marla,

My DMV would only let me have one! I am thinking though of going on

and getting the plates for the cars because I forget to move it or

take it with me.

Terri G.

>

> That's great news, a handicapped apartment, exciting for you and

I'm so

> happy for you. I picked up my handicapped parking plaque

yesterday, I got

> two, one to carry with me and one for my car, I had time after my

OT visit,

> which was just more questions, anyway I got to Wal-Mart and

wouldn't you

> know no close place parking so it was the first time I used it, and

when I

> got out I wanted to scream to everyone, " I HAVE NEUROSARCOIDOSIS "

and unless

> you can even spell it don't say a word! :-) OK so there really

wasn't

> anyone looking at me I just felt that way. I told Joe later who

lives in

> his computer world and doesn't know what is going on with the rest

of the

> world, and he gave me that look and said Mom do you really need

this, and I

> said Joe you obviously don't have a clue what is happening to your

mom, so I

> got down on the floor, and attempted to lift my legs, the left

barely comes

> up, the right sometimes ½ way and sometimes a ¼ depending on the

day, he

> freaked at for a minute and then said, " how the heck can you

walk " , which

> is my question too, but somehow I keep going, slow and unsteady,

but going.

> Isn't it funny how those we live with don't even think we are

sick? Wishing

> you all a great weekend, Marla

>

>

>

>

>

> _____

>

> From: Neurosarcoidosis

> [mailto:Neurosarcoidosis ] On Behalf Of

> Sent: Thursday, November 01, 2007 10:23 PM

> To: Neurosarcoidosis

> Subject: RE: question about handicap parking

>

>

>

> Hi Marla

>

> I'm starting to have trouble with buttons but mostly I wear tshirts

& sweat

> shirts.

>

> I've been busy when I haven't been sleeping but thought I'd check

in.

> Everything is approved and I'll get the keys to the handicapped

apartment

> tomorrow! Yea! I'll be able to go outside without having to mess

with steps!

> While you guys had custody of my doctors(LOL) I've been feeling the

need of

> my missed treatments.

>

>

>

> Join our Sock Challenge for Orphans in Kazakhstan

> http://groups. yahoo.com/ group/Mittens_ for_Akkol/

> <http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif>

>

> grannylunatic@...

>

> __________________________________________________

>

[Guest guest]

JUst take your original to anyplace with a color copier and make a copy, or if you have a printer and scanner at home scan your original then print it - problem solved!

Mine says not to photocopy it-- duplication is against the law. I know that when we went to Sacramento the City Police were really looking at us and my placard when we got into our truck. I think they figured that because I was carrying oxygen that maybe I qualified. She did "run" my placard-- to see if it was the same name on the license plate as on the placard. If they'd asked, I do carry the Registration paper in my wallet, so I can produce that and it has my name on it.

Take care

TracieSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

JUst take your original to anyplace with a color copier and make a copy, or if you have a printer and scanner at home scan your original then print it - problem solved!

Mine says not to photocopy it-- duplication is against the law. I know that when we went to Sacramento the City Police were really looking at us and my placard when we got into our truck. I think they figured that because I was carrying oxygen that maybe I qualified. She did "run" my placard-- to see if it was the same name on the license plate as on the placard. If they'd asked, I do carry the Registration paper in my wallet, so I can produce that and it has my name on it.

Take care

TracieSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

JUst take your original to anyplace with a color copier and make a copy, or if you have a printer and scanner at home scan your original then print it - problem solved!mosaicgirl1 wrote: Marla,My DMV would only let me have one! I am thinking though of going on and getting the plates for the cars because I forget to move it or take it with me.Terri G.>> That's great news, a handicapped apartment, exciting for you and I'm so> happy for you. I picked up my handicapped parking plaque yesterday, I got> two, one to carry with me and one for my car, I had time after my OT visit,> which was just more questions, anyway I got to Wal-Mart and wouldn't you> know no close place parking so it was the first time I used it, and when I> got out I wanted to scream to everyone, "I HAVE NEUROSARCOIDOSIS" and unless> you can even spell it don't say a word! :-) OK so there really wasn't> anyone looking at me I just felt that way. I told Joe later who lives in> his computer world and doesn't know what is going on with the rest of the> world, and he gave me that look and said Mom do you really need this, and I> said Joe you obviously don't have a clue what is happening to your mom, so I> got down on

the floor, and attempted to lift my legs, the left barely comes> up, the right sometimes ½ way and sometimes a ¼ depending on the day, he> freaked at for a minute and then said, " how the heck can you walk", which> is my question too, but somehow I keep going, slow and unsteady, but going.> Isn't it funny how those we live with don't even think we are sick? Wishing> you all a great weekend, Marla> > > > > > _____ > > From: Neurosarcoidosis > [mailto:Neurosarcoidosis ] On Behalf Of > Sent: Thursday, November 01, 2007 10:23 PM> To: Neurosarcoidosis > Subject: RE:

question about handicap parking> > > > Hi Marla> > I'm starting to have trouble with buttons but mostly I wear tshirts & sweat> shirts.> > I've been busy when I haven't been sleeping but thought I'd check in.> Everything is approved and I'll get the keys to the handicapped apartment> tomorrow! Yea! I'll be able to go outside without having to mess with steps!> While you guys had custody of my doctors(LOL) I've been feeling the need of> my missed treatments. > > > > Join our Sock Challenge for Orphans in Kazakhstan > http://groups. yahoo.com/ group/Mittens_ for_Akkol/ > <http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif> > > grannylunatic@...> >

__________________________________________________>

[Guest guest]

JUst take your original to anyplace with a color copier and make a copy, or if you have a printer and scanner at home scan your original then print it - problem solved!mosaicgirl1 wrote: Marla,My DMV would only let me have one! I am thinking though of going on and getting the plates for the cars because I forget to move it or take it with me.Terri G.>> That's great news, a handicapped apartment, exciting for you and I'm so> happy for you. I picked up my handicapped parking plaque yesterday, I got> two, one to carry with me and one for my car, I had time after my OT visit,> which was just more questions, anyway I got to Wal-Mart and wouldn't you> know no close place parking so it was the first time I used it, and when I> got out I wanted to scream to everyone, "I HAVE NEUROSARCOIDOSIS" and unless> you can even spell it don't say a word! :-) OK so there really wasn't> anyone looking at me I just felt that way. I told Joe later who lives in> his computer world and doesn't know what is going on with the rest of the> world, and he gave me that look and said Mom do you really need this, and I> said Joe you obviously don't have a clue what is happening to your mom, so I> got down on

the floor, and attempted to lift my legs, the left barely comes> up, the right sometimes ½ way and sometimes a ¼ depending on the day, he> freaked at for a minute and then said, " how the heck can you walk", which> is my question too, but somehow I keep going, slow and unsteady, but going.> Isn't it funny how those we live with don't even think we are sick? Wishing> you all a great weekend, Marla> > > > > > _____ > > From: Neurosarcoidosis > [mailto:Neurosarcoidosis ] On Behalf Of > Sent: Thursday, November 01, 2007 10:23 PM> To: Neurosarcoidosis > Subject: RE:

question about handicap parking> > > > Hi Marla> > I'm starting to have trouble with buttons but mostly I wear tshirts & sweat> shirts.> > I've been busy when I haven't been sleeping but thought I'd check in.> Everything is approved and I'll get the keys to the handicapped apartment> tomorrow! Yea! I'll be able to go outside without having to mess with steps!> While you guys had custody of my doctors(LOL) I've been feeling the need of> my missed treatments. > > > > Join our Sock Challenge for Orphans in Kazakhstan > http://groups. yahoo.com/ group/Mittens_ for_Akkol/ > <http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif> > > grannylunatic@...> >

__________________________________________________>

[Guest guest]

I know what you all mean. I was once working in an office building before I got my disability and I had already had my handicap decal. We had a parking garage and I would park in the handcap parking space because usually it would be free to use at work since not many people were handicapped there. I also parked there because it was right in front of the elevator and half of the time I couldn't remember what floor I parked on if I didn't park in the handicap spot. One day I came back to my car and there was a note on my car door saying "You do not appear to be handicapped so why are parking in this space?" I was so outdone that someone would actually write me a note saying that when that didn't even know what I had been going through. The bad thing about it is that they didn't know me and they didn't leave their name on the note so I could respond. As you all know, most of us don't look like anything is wrong so most people don't think that we are sick. Many think that I can do things like they can and they start to think that I am not trying to do anything. I even have some family members that don't realize the extent of the condition. They don't realize how tired I get just from standing for long periods of time or walking into the store and they were with me during some of the worse times like memory loss, extremely bad headaches,backaches, dizziness etc. But just because you look fine doesn't mean that you are. I wish I could do the things I used to. This started in my prime at 25 just when I was enjoying things the most and then it seems all of a sudden things changed. I was tired, in pain and uncomfortable from the weight gain from prednisone. I used to be 130lbs and balloon 205lbs on prednisone and

currently down to 160lbs. My body doesn't seem like my own. And the worse thing is when people you know come up to you and say wow you got big as if I sat around eating myself to death or I did it to myself. Some people have no tact. But I keep going on and think I have come a long way. I still have flare up and am still on prednisone so I don't think I will 130lbs anytime soon. __________________________________________________

[Guest guest]

I know what you all mean. I was once working in an office building before I got my disability and I had already had my handicap decal. We had a parking garage and I would park in the handcap parking space because usually it would be free to use at work since not many people were handicapped there. I also parked there because it was right in front of the elevator and half of the time I couldn't remember what floor I parked on if I didn't park in the handicap spot. One day I came back to my car and there was a note on my car door saying "You do not appear to be handicapped so why are parking in this space?" I was so outdone that someone would actually write me a note saying that when that didn't even know what I had been going through. The bad thing about it is that they didn't know me and they didn't leave their name on the note so I could respond. As you all know, most of us don't look like anything is wrong so most people don't think that we are sick. Many think that I can do things like they can and they start to think that I am not trying to do anything. I even have some family members that don't realize the extent of the condition. They don't realize how tired I get just from standing for long periods of time or walking into the store and they were with me during some of the worse times like memory loss, extremely bad headaches,backaches, dizziness etc. But just because you look fine doesn't mean that you are. I wish I could do the things I used to. This started in my prime at 25 just when I was enjoying things the most and then it seems all of a sudden things changed. I was tired, in pain and uncomfortable from the weight gain from prednisone. I used to be 130lbs and balloon 205lbs on prednisone and

currently down to 160lbs. My body doesn't seem like my own. And the worse thing is when people you know come up to you and say wow you got big as if I sat around eating myself to death or I did it to myself. Some people have no tact. But I keep going on and think I have come a long way. I still have flare up and am still on prednisone so I don't think I will 130lbs anytime soon. __________________________________________________

[Guest guest]

Claude, I don't know where you live, but in Indiana that's against the law. It's pretty easy to spot a copy, and at the minimum you lose your placard/plate; you could be fined also.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: eightundr@...Date: Sat, 3 Nov 2007 14:26:05 -0700Subject: Re: Re: question about handicap parking

JUst take your original to anyplace with a color copier and make a copy, or if you have a printer and scanner at home scan your original then print it - problem solved!mosaicgirl1 <mosaicgirl1 (AT) yahoo (DOT) com> wrote:

Marla,My DMV would only let me have one! I am thinking though of going on and getting the plates for the cars because I forget to move it or take it with me.Terri G.>> That's great news, a handicapped apartment, exciting for you and I'm so> happy for you. I picked up my handicapped parking plaque yesterday, I got> two, one to carry with me and one for my car, I had time after my OT visit,> which was just more questions, anyway I got to Wal-Mart and wouldn't you> know no close place parking so it was the first time I used it, and when I> got out I wanted to scream to everyone, "I HAVE NEUROSARCOIDOSIS" and unless> you can even spell it don't say a word! :-) OK so there really wasn't> anyone looking at me I just felt that way. I told Joe later who lives in> his computer world and doesn't know what is going on with the rest of the> world, and he gave me that look and said Mom do you really need this, and I> said Joe you obviously don't have a clue what is happening to your mom, so I> got down on the floor, and attempted to lift my legs, the left barely comes> up, the right sometimes ½ way and sometimes a ¼ depending on the day, he> freaked at for a minute and then said, " how the heck can you walk", which> is my question too, but somehow I keep going, slow and unsteady, but going.> Isn't it funny how those we live with don't even think we are sick? Wishing> you all a great weekend, Marla> > > > > > _____ > > From: Neurosarcoidosis > [mailto:Neurosarcoidosis ] On Behalf Of > Sent: Thursday, November 01, 2007 10:23 PM> To: Neurosarcoidosis > Subject: RE: question about handicap parking> > > > Hi Marla> > I'm starting to have trouble with buttons but mostly I wear tshirts & sweat> shirts.> > I've been busy when I haven't been sleeping but thought I'd check in.> Everything is approved and I'll get the keys to the handicapped apartment> tomorrow! Yea! I'll be able to go outside without having to mess with steps!> While you guys had custody of my doctors(LOL) I've been feeling the need of> my missed treatments. > > > > Join our Sock Challenge for Orphans in Kazakhstan > http://groups. yahoo.com/ group/Mittens_ for_Akkol/ > <http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif> > > grannylunatic@...> > __________________________________________________>

[Guest guest]

Claude, I don't know where you live, but in Indiana that's against the law. It's pretty easy to spot a copy, and at the minimum you lose your placard/plate; you could be fined also.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: eightundr@...Date: Sat, 3 Nov 2007 14:26:05 -0700Subject: Re: Re: question about handicap parking

JUst take your original to anyplace with a color copier and make a copy, or if you have a printer and scanner at home scan your original then print it - problem solved!mosaicgirl1 <mosaicgirl1 (AT) yahoo (DOT) com> wrote:

Marla,My DMV would only let me have one! I am thinking though of going on and getting the plates for the cars because I forget to move it or take it with me.Terri G.>> That's great news, a handicapped apartment, exciting for you and I'm so> happy for you. I picked up my handicapped parking plaque yesterday, I got> two, one to carry with me and one for my car, I had time after my OT visit,> which was just more questions, anyway I got to Wal-Mart and wouldn't you> know no close place parking so it was the first time I used it, and when I> got out I wanted to scream to everyone, "I HAVE NEUROSARCOIDOSIS" and unless> you can even spell it don't say a word! :-) OK so there really wasn't> anyone looking at me I just felt that way. I told Joe later who lives in> his computer world and doesn't know what is going on with the rest of the> world, and he gave me that look and said Mom do you really need this, and I> said Joe you obviously don't have a clue what is happening to your mom, so I> got down on the floor, and attempted to lift my legs, the left barely comes> up, the right sometimes ½ way and sometimes a ¼ depending on the day, he> freaked at for a minute and then said, " how the heck can you walk", which> is my question too, but somehow I keep going, slow and unsteady, but going.> Isn't it funny how those we live with don't even think we are sick? Wishing> you all a great weekend, Marla> > > > > > _____ > > From: Neurosarcoidosis > [mailto:Neurosarcoidosis ] On Behalf Of > Sent: Thursday, November 01, 2007 10:23 PM> To: Neurosarcoidosis > Subject: RE: question about handicap parking> > > > Hi Marla> > I'm starting to have trouble with buttons but mostly I wear tshirts & sweat> shirts.> > I've been busy when I haven't been sleeping but thought I'd check in.> Everything is approved and I'll get the keys to the handicapped apartment> tomorrow! Yea! I'll be able to go outside without having to mess with steps!> While you guys had custody of my doctors(LOL) I've been feeling the need of> my missed treatments. > > > > Join our Sock Challenge for Orphans in Kazakhstan > http://groups. yahoo.com/ group/Mittens_ for_Akkol/ > <http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif> > > grannylunatic@...> > __________________________________________________>

[Guest guest]

I can agree with the handicap placard. I use it too and I feel like everyone is staring at me. I can actually see the elder generation staring like I shouldn't park there because I am younger. I would be very, very upset if I got the note that you did, Shauna. My family , even my mother , can't seem to understand the fact of the symptoms I have. I agree with you there too. They make me feel very uncomfortable when they ask me about daily events, like when I am going back to work, etc. ( I am on disability) Last spring , my cousin, actually asked me to go for a walk on the beach when it was still cold out. And if anyone is from the coastline, you know how hard it is to walk for a long time through the heavy sand. I have to bring my inhaler! Debbie Co-ModeratorShauna Glaspie wrote: I know what you all mean. I was once working in an office building before I got my disability and I had already had my handicap decal. We had a parking garage and I would park in the handcap parking space because usually it would be free to use at work since not many people were handicapped there. I also parked there because it was right in front of the elevator and half of the time I couldn't

remember what floor I parked on if I didn't park in the handicap spot. One day I came back to my car and there was a note on my car door saying "You do not appear to be handicapped so why are parking in this space?" I was so outdone that someone would actually write me a note saying that when that didn't even know what I had been going through. The bad thing about it is that they didn't know me and they didn't leave their name on the note so I could respond. As you all know, most of us don't look like anything is wrong so most people don't think that we are sick. Many think that I can do things like they can and they start to think that I am not trying to do anything. I even have some family members that don't realize the extent of the condition. They don't realize how tired I get just from standing for long periods of time or walking into the

store and they were with me during some of the worse times like memory loss, extremely bad headaches,backaches, dizziness etc. But just because you look fine doesn't mean that you are. I wish I could do the things I used to. This started in my prime at 25 just when I was enjoying things the most and then it seems all of a sudden things changed. I was tired, in pain and uncomfortable from the weight gain from prednisone. I used to be 130lbs and balloon 205lbs on prednisone and currently down to 160lbs. My body doesn't seem like my own. And the worse thing is when people you know come up to you and say wow you got big as if I sat around eating myself to death or I did it to myself. Some people have no tact. But I keep going on and think I have come a long way. I still have flare up and am still on prednisone so I don't think I will 130lbs anytime soon. __________________________________________________

[Guest guest]

At times I sway and lose my footing too. My husband ends up catching me and pulling me up straight. He says "What's the matter with you??!!, like I do it on purpose. When he's not around , I end up catching my own footing and do look like I'm drunk. It's kind of embarrasing when you are in public! DebbieMarla Bramer wrote: Rose that is perfect, let me know when you have them done, I will be the

first to buy one! I know people must wonder about me, you know I can not stand in one place, I just can’t, I fall to one side then the other, and it’s not like I fall to the ground, my feet shift without telling my brain or maybe it’s the other way around?? So I always look drunk, people will like grab my elbow and say are you OK, ya I’m fine I just can’t stand or walk or sit or do anything for very long? Such is life? Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Monday, October 29, 2007 12:29 AMTo: neurosarcoidosis Subject: RE: question about handicap parking Marla, I really need to get going on my t-shirt (maybe hats & visors, too?) design: "I'm not drunk---I just have Neurosarcoidosis!" Great conversation starter. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 "How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these." ~ Washington Carver To: Neurosarcoidosis From: mebramer (AT) gmail (DOT) comDate: Sun, 28 Oct 2007 19:20:50 -0700Subject:

RE: question about handicap parking Thanks Rose, after the other night at the Hockey game I will be glad I have it, in fact I don’t think I will go to another hockey game until I get it, as my husband had to drag me to the car, I’m sure everyone just thought I was a drunk J. Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Saturday, October 27, 2007 11:01

PMTo: neurosarcoidosis Subject: RE: question about handicap parking Marla, that's what we do in Indiana; I would assume the same out there. You might want to call first, just to make sure you have everything you need. I'm so glad you did it. As everyone has said, there may be times you don't need to use it, but like a poster I once saw on giving blood said: Blood is like a parachute: you may never need it, but it had

better be there when you do! This is a little less dramatic, but the same principle. Ramblin' RoseModerator A merry heart is good medicine. Proverbs

17:22 To: Neurosarcoidosis From: mebramer (AT) gmail (DOT) comDate: Sat, 27 Oct 2007 16:19:05 -0700Subject: RE: question about handicap parking Help yourself to FREE treats served up daily at the Messenger Café. Stop by today! Boo! Scare away worms, viruses and so much more! Try Windows Live OneCare! Try now! Debbie T.Co-Moderator __________________________________________________