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Re: Hello From Iowa! Part 2

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Well we have cancelled our flight home Sunday and our staying

indeffiantly at this point. I keep telling my self over and over " we

are doing the right thing deal with life and results of us staying

when we get home be a good mom now and don't worry about anything but

him " . I honestyly know deep down we are doing the right thing though

and I'm so glad we came. If you go to our website under Collin's

Foot Story at http://www.geocities.com/chele323232 under the March

2005 post it says what Dr. Herzenberg wanted to do to Collin and

shows a sample photo of the external fixator taylor spatial frame.

We came here for a second opinion and our so happy we did Dr. Ponseti

does not think he needs that at all!!!!!!

He put Collin in a long leg cast today and Collin looks up at me

during the visit and says mom I love this doctor. It brought tears

to my eyes because I do too! We go back on Wedesday for another cast

and will find out a better estimate how long we will be in Iowa for.

He is going to schedule a tibia transfer so he will have a surgery

while we are out here but we are ok with that. He will go into casts

afterwards too not sure how many yet, I'll know more Wednesday. We

will continue to stay at the Mc House everyone is very

nice. If anyone knows anything about the tibia transfer I would love

for you to e-mail me. I'm not going to be able to keep up on the

boards while I'm here but I will check e-mail when ever I can our e-

mail is chele323232@...

We were very excited today to have lunch with Tabitha & and

talk to on the phone it was so nice to have someone to talk

to. My husband is going to talk to his work Monday about the family

leave act to see if he can come to Iowa for Collin's surgery and my

little brother may drive up and visit one weekend. Also my biggest

tip for all of you coming is pack some warm cloths!!! It's chilly at

night and in the morning and when we looked at the weather online it

said like 90's during the day but a cold front has come through so

dummy I am packed all shorts! So our family is going to put toghter

some cloths to send to us hopefully tommorow if not we are just going

to hit the local stores. Talk to you soon and thanks again for all

of the support on getting here!

Michele

Michele

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...

OMG, wow... I'm in tears here. That is really such great news. And

yes... you are doing the best thing for him so hold your head high

and don't worry about all the rest right now. It'll come together in

the end... just like this did. You're one amazing mama and your son

will thank you for all you did for him. That's all that

matters... I hope your dh can come out to be with you for the

surgery. If you have time, let us know more about the surgery, what,

why, the expected results, etc. You know I'm not

questioning... just curious to learn about it!

If there's anything we can do for you while you're there, please let

us know. If we can send you anything to make the stay more

comfortable, I'm sure we can get it together amongst us. Just let us

know what it is that you need. Tunes maybe? lol! Let me know what

you like and I may be able to make you a few CD's or something. I

don't know... I just want to give you a hug or something and can't,

I'm searching for something to do for you lol!

Big hugs to you and Collin, I'll be waiting with baited breath to

hear more of your adventures in Iowa! You know, will be there

on Monday for 's appointment. I think she's staying at the

RMH too. I talked to her on the phone last weekend, she's

lovely. How cool for both of you to be there at the same time!

OK - time for me to run. Dh took the kids fishing in the rain (yes,

the rain is back here in Oregon) and I'm getting to go out with my

cousin and see naked men again. Whoohoo! (maybe you and can

find naked men in Iowa?? LOL!)

Kori

At 05:11 PM 9/16/2005, you wrote:

>Well we have cancelled our flight home Sunday and our staying

>indeffiantly at this point. I keep telling my self over and over " we

>are doing the right thing deal with life and results of us staying

>when we get home be a good mom now and don't worry about anything but

>him " . I honestyly know deep down we are doing the right thing though

>and I'm so glad we came. If you go to our website under Collin's

>Foot Story at http://www.geocities.com/chele323232 under the March

>2005 post it says what Dr. Herzenberg wanted to do to Collin and

>shows a sample photo of the external fixator taylor spatial frame.

>We came here for a second opinion and our so happy we did Dr. Ponseti

>does not think he needs that at all!!!!!!

>

> He put Collin in a long leg cast today and Collin looks up at me

>during the visit and says mom I love this doctor. It brought tears

>to my eyes because I do too! We go back on Wedesday for another cast

>and will find out a better estimate how long we will be in Iowa for.

>He is going to schedule a tibia transfer so he will have a surgery

>while we are out here but we are ok with that. He will go into casts

>afterwards too not sure how many yet, I'll know more Wednesday. We

>will continue to stay at the Mc House everyone is very

>nice. If anyone knows anything about the tibia transfer I would love

>for you to e-mail me. I'm not going to be able to keep up on the

>boards while I'm here but I will check e-mail when ever I can our e-

>mail is chele323232@...

>

>We were very excited today to have lunch with Tabitha & and

>talk to on the phone it was so nice to have someone to talk

>to. My husband is going to talk to his work Monday about the family

>leave act to see if he can come to Iowa for Collin's surgery and my

>little brother may drive up and visit one weekend. Also my biggest

>tip for all of you coming is pack some warm cloths!!! It's chilly at

>night and in the morning and when we looked at the weather online it

>said like 90's during the day but a cold front has come through so

>dummy I am packed all shorts! So our family is going to put toghter

>some cloths to send to us hopefully tommorow if not we are just going

>to hit the local stores. Talk to you soon and thanks again for all

>of the support on getting here!

>

>Michele

>

>

>Michele

>

>

>

>

>

>

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Michele,

I am so happy for you! Sounds like you had a rough day for sure, but

I guess it was already worthwhile just finally meeting Dr. Ponseti.

It just makes your heart melt that Collin said he loves Dr. P -- how

amazing is that?

I can't wait to hear more about everything, keep us posted!!

> Well we have cancelled our flight home Sunday and our staying

> indeffiantly at this point. I keep telling my self over and

over " we

> are doing the right thing deal with life and results of us staying

> when we get home be a good mom now and don't worry about anything

but

> him " . I honestyly know deep down we are doing the right thing

though

> and I'm so glad we came. If you go to our website under Collin's

> Foot Story at http://www.geocities.com/chele323232 under the March

> 2005 post it says what Dr. Herzenberg wanted to do to Collin and

> shows a sample photo of the external fixator taylor spatial frame.

> We came here for a second opinion and our so happy we did Dr.

Ponseti

> does not think he needs that at all!!!!!!

>

> He put Collin in a long leg cast today and Collin looks up at me

> during the visit and says mom I love this doctor. It brought tears

> to my eyes because I do too! We go back on Wedesday for another

cast

> and will find out a better estimate how long we will be in Iowa

for.

> He is going to schedule a tibia transfer so he will have a surgery

> while we are out here but we are ok with that. He will go into

casts

> afterwards too not sure how many yet, I'll know more Wednesday. We

> will continue to stay at the Mc House everyone is very

> nice. If anyone knows anything about the tibia transfer I would

love

> for you to e-mail me. I'm not going to be able to keep up on the

> boards while I'm here but I will check e-mail when ever I can our e-

> mail is chele323232@y...

>

> We were very excited today to have lunch with Tabitha & and

> talk to on the phone it was so nice to have someone to talk

> to. My husband is going to talk to his work Monday about the

family

> leave act to see if he can come to Iowa for Collin's surgery and my

> little brother may drive up and visit one weekend. Also my biggest

> tip for all of you coming is pack some warm cloths!!! It's chilly

at

> night and in the morning and when we looked at the weather online

it

> said like 90's during the day but a cold front has come through so

> dummy I am packed all shorts! So our family is going to put

toghter

> some cloths to send to us hopefully tommorow if not we are just

going

> to hit the local stores. Talk to you soon and thanks again for all

> of the support on getting here!

>

> Michele

>

>

> Michele

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Michele,

I am so glad that you finally made it. It just goes

to prove that the mommy instinct that you had about

all of this was right. I will pray that everything

goes well for Collin.

Jenni

--- wrote:

> Michele,

> I am so happy for you! Sounds like you had a rough

> day for sure, but

> I guess it was already worthwhile just finally

> meeting Dr. Ponseti.

> It just makes your heart melt that Collin said he

> loves Dr. P -- how

> amazing is that?

> I can't wait to hear more about everything, keep us

> posted!!

>

>

>

>

>

> > Well we have cancelled our flight home Sunday and

> our staying

> > indeffiantly at this point. I keep telling my

> self over and

> over " we

> > are doing the right thing deal with life and

> results of us staying

> > when we get home be a good mom now and don't worry

> about anything

> but

> > him " . I honestyly know deep down we are doing the

> right thing

> though

> > and I'm so glad we came. If you go to our website

> under Collin's

> > Foot Story at http://www.geocities.com/chele323232

> under the March

> > 2005 post it says what Dr. Herzenberg wanted to do

> to Collin and

> > shows a sample photo of the external fixator

> taylor spatial frame.

> > We came here for a second opinion and our so happy

> we did Dr.

> Ponseti

> > does not think he needs that at all!!!!!!

> >

> > He put Collin in a long leg cast today and

> Collin looks up at me

> > during the visit and says mom I love this doctor.

> It brought tears

> > to my eyes because I do too! We go back on

> Wedesday for another

> cast

> > and will find out a better estimate how long we

> will be in Iowa

> for.

> > He is going to schedule a tibia transfer so he

> will have a surgery

> > while we are out here but we are ok with that. He

> will go into

> casts

> > afterwards too not sure how many yet, I'll know

> more Wednesday. We

> > will continue to stay at the Mc House

> everyone is very

> > nice. If anyone knows anything about the tibia

> transfer I would

> love

> > for you to e-mail me. I'm not going to be able to

> keep up on the

> > boards while I'm here but I will check e-mail when

> ever I can our e-

> > mail is chele323232@y...

> >

> > We were very excited today to have lunch with

> Tabitha & and

> > talk to on the phone it was so nice to have

> someone to talk

> > to. My husband is going to talk to his work

> Monday about the

> family

> > leave act to see if he can come to Iowa for

> Collin's surgery and my

> > little brother may drive up and visit one weekend.

> Also my biggest

> > tip for all of you coming is pack some warm

> cloths!!! It's chilly

> at

> > night and in the morning and when we looked at the

> weather online

> it

> > said like 90's during the day but a cold front has

> come through so

> > dummy I am packed all shorts! So our family is

> going to put

> toghter

> > some cloths to send to us hopefully tommorow if

> not we are just

> going

> > to hit the local stores. Talk to you soon and

> thanks again for all

> > of the support on getting here!

> >

> > Michele

> >

> >

> > Michele

>

>

>

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

__________________________________

Yahoo! Mail - PC Magazine Editors' Choice 2005

http://mail.yahoo.com

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-

I am so happy for collin and your family. It sounds like you are in

good hands. Please know that you are in our thoughts and prayers and

if you need anything-send a shout out to the group!

Take care,

Kathleen

mom to 8/28/04 bcf fab 14/7

> Well we have cancelled our flight home Sunday and our staying

> indeffiantly at this point. I keep telling my self over and

over " we

> are doing the right thing deal with life and results of us staying

> when we get home be a good mom now and don't worry about anything

but

> him " . I honestyly know deep down we are doing the right thing

though

> and I'm so glad we came. If you go to our website under Collin's

> Foot Story at http://www.geocities.com/chele323232 under the March

> 2005 post it says what Dr. Herzenberg wanted to do to Collin and

> shows a sample photo of the external fixator taylor spatial

frame.

> We came here for a second opinion and our so happy we did Dr.

Ponseti

> does not think he needs that at all!!!!!!

>

> He put Collin in a long leg cast today and Collin looks up at me

> during the visit and says mom I love this doctor. It brought

tears

> to my eyes because I do too! We go back on Wedesday for another

cast

> and will find out a better estimate how long we will be in Iowa

for.

> He is going to schedule a tibia transfer so he will have a surgery

> while we are out here but we are ok with that. He will go into

casts

> afterwards too not sure how many yet, I'll know more Wednesday.

We

> will continue to stay at the Mc House everyone is

very

> nice. If anyone knows anything about the tibia transfer I would

love

> for you to e-mail me. I'm not going to be able to keep up on the

> boards while I'm here but I will check e-mail when ever I can our

e-

> mail is chele323232@y...

>

> We were very excited today to have lunch with Tabitha & and

> talk to on the phone it was so nice to have someone to talk

> to. My husband is going to talk to his work Monday about the

family

> leave act to see if he can come to Iowa for Collin's surgery and

my

> little brother may drive up and visit one weekend. Also my

biggest

> tip for all of you coming is pack some warm cloths!!! It's chilly

at

> night and in the morning and when we looked at the weather online

it

> said like 90's during the day but a cold front has come through so

> dummy I am packed all shorts! So our family is going to put

toghter

> some cloths to send to us hopefully tommorow if not we are just

going

> to hit the local stores. Talk to you soon and thanks again for

all

> of the support on getting here!

>

> Michele

>

>

> Michele

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I am so happy for collin and your family. It sounds like you are in

good hands. Please know that you are in our thoughts and prayers and

if you need anything-send a shout out to the group!

Take care,

Kathleen

mom to 8/28/04 bcf fab 14/7

> Well we have cancelled our flight home Sunday and our staying

> indeffiantly at this point. I keep telling my self over and

over " we

> are doing the right thing deal with life and results of us staying

> when we get home be a good mom now and don't worry about anything

but

> him " . I honestyly know deep down we are doing the right thing

though

> and I'm so glad we came. If you go to our website under Collin's

> Foot Story at http://www.geocities.com/chele323232 under the March

> 2005 post it says what Dr. Herzenberg wanted to do to Collin and

> shows a sample photo of the external fixator taylor spatial

frame.

> We came here for a second opinion and our so happy we did Dr.

Ponseti

> does not think he needs that at all!!!!!!

>

> He put Collin in a long leg cast today and Collin looks up at me

> during the visit and says mom I love this doctor. It brought

tears

> to my eyes because I do too! We go back on Wedesday for another

cast

> and will find out a better estimate how long we will be in Iowa

for.

> He is going to schedule a tibia transfer so he will have a surgery

> while we are out here but we are ok with that. He will go into

casts

> afterwards too not sure how many yet, I'll know more Wednesday.

We

> will continue to stay at the Mc House everyone is

very

> nice. If anyone knows anything about the tibia transfer I would

love

> for you to e-mail me. I'm not going to be able to keep up on the

> boards while I'm here but I will check e-mail when ever I can our

e-

> mail is chele323232@y...

>

> We were very excited today to have lunch with Tabitha & and

> talk to on the phone it was so nice to have someone to talk

> to. My husband is going to talk to his work Monday about the

family

> leave act to see if he can come to Iowa for Collin's surgery and

my

> little brother may drive up and visit one weekend. Also my

biggest

> tip for all of you coming is pack some warm cloths!!! It's chilly

at

> night and in the morning and when we looked at the weather online

it

> said like 90's during the day but a cold front has come through so

> dummy I am packed all shorts! So our family is going to put

toghter

> some cloths to send to us hopefully tommorow if not we are just

going

> to hit the local stores. Talk to you soon and thanks again for

all

> of the support on getting here!

>

> Michele

>

>

> Michele

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Thanks everyone for the warm wishes and support. We just e-mailed my

husband our " demand list " LOL!! Now that we will be here longer he

is going to mail us a few more things to get by. Collin is watching

teenage mutant ninja turtles and relaxing. He already won't let me

touch his wheel chair he just wants to do it himself....my poor toes

and heel he keeps getting me, he may just be doing it for fun I'm not

sure yet. He had a rough night last night being the first night in

casts in over a year but is much better so far today. The biggest

thing we are dealing with now is the whole bathroom thing. He is

potty trained but can't really stand, etc.... It's a whole learning

process, I made him wear a pull up to bed last night so he was pretty

mad at me, but I'm so afraid if he has an accident then we will ruin

the cast, etc. He won't do it during the day he insists on his

underwear, so I'm having my husband go buy some in the next size up

today to make things easier on me. Everyone at the RMH is very

nice. We may try to wonder out today to a grocery store to pick up a

few things, its nuts though the refrigerator is packed with

everyone's stuff so I don't even think there is room in there for us

to buy anything. I'll have to talk to the people here first to see

if they have a back up spot we could use. If anyone has any info on

tibia transfers or tendon tranfers please e-mail it to us at

chele323232@... Thanks again and we will talk to you soon!!!

Michele

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Thanks everyone for the warm wishes and support. We just e-mailed my

husband our " demand list " LOL!! Now that we will be here longer he

is going to mail us a few more things to get by. Collin is watching

teenage mutant ninja turtles and relaxing. He already won't let me

touch his wheel chair he just wants to do it himself....my poor toes

and heel he keeps getting me, he may just be doing it for fun I'm not

sure yet. He had a rough night last night being the first night in

casts in over a year but is much better so far today. The biggest

thing we are dealing with now is the whole bathroom thing. He is

potty trained but can't really stand, etc.... It's a whole learning

process, I made him wear a pull up to bed last night so he was pretty

mad at me, but I'm so afraid if he has an accident then we will ruin

the cast, etc. He won't do it during the day he insists on his

underwear, so I'm having my husband go buy some in the next size up

today to make things easier on me. Everyone at the RMH is very

nice. We may try to wonder out today to a grocery store to pick up a

few things, its nuts though the refrigerator is packed with

everyone's stuff so I don't even think there is room in there for us

to buy anything. I'll have to talk to the people here first to see

if they have a back up spot we could use. If anyone has any info on

tibia transfers or tendon tranfers please e-mail it to us at

chele323232@... Thanks again and we will talk to you soon!!!

Michele

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Wow Michele.

What a trip to get there!!!

I bet you are soooooo glad you went. Did you ask Dr. Ponseti the

difference in opinions between him and Dr.H? Because Dr.H is very well

respected, I wonder why he thought the external frame was necessary. Also,

it may be that Dr. H isn't necessarily wrong, but just has a different way

to get to the final result. The frame is pretty invasive though if it can

be avoided. Whew!!! Good thing you went to the pro. You know, no matter

how great a doctor is, it never hurts to get another opinion.

Good luck and keep us posted!!!

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

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Michele,

I'm so glad you had a better time with Angel Flights this time. They

have been so wonderful to us.

From all the posts I've read in the past it sounds like seeing Dr.

Ponseti for a second opinion is always the right thing to do! Good

luck with the surgery and keep us posted.

and 11/10/03 bilateral cf dbb 14/7

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