Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 Welcome to the group! This is a great place for info! Where are you located? How old is your child? Do you know what type of mito they might have? deb...mom to three great kids and wife to one amazing guy!http://www.lifeofloveproject.org/http://www.debwells.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 Welcome to the group! This is a great place for info! Where are you located? How old is your child? Do you know what type of mito they might have? deb...mom to three great kids and wife to one amazing guy!http://www.lifeofloveproject.org/http://www.debwells.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 Hi! Our 3 year old twins are patients of Dr. Whiteman at the Mayo Clinic in Rochester, MN. He is very knowledgeable in mitochondrial disorders. Is this who you are supposed to see? If not, push for him. How was your son's mitochondrial disorder diagnosed? Have you already had a muscle biopsy? When you get a chance, tell us a little about your son. Kim - Mom to and Lindsey (3) Partial Complex I just finding out > > > > we just found out that our son has a mitochondrail disorder. We > hopefully are heading to the Mayo clinic. I was just wondering if > there is any advice on what to expect and what I need to push for. > I'm gun shy about Doctors since we haven't had any really good > ones. Just trying to help my son the best I can and just wanted to > see if anyone had some advice. Thanks > > > > > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 Hi! Our 3 year old twins are patients of Dr. Whiteman at the Mayo Clinic in Rochester, MN. He is very knowledgeable in mitochondrial disorders. Is this who you are supposed to see? If not, push for him. How was your son's mitochondrial disorder diagnosed? Have you already had a muscle biopsy? When you get a chance, tell us a little about your son. Kim - Mom to and Lindsey (3) Partial Complex I just finding out > > > > we just found out that our son has a mitochondrail disorder. We > hopefully are heading to the Mayo clinic. I was just wondering if > there is any advice on what to expect and what I need to push for. > I'm gun shy about Doctors since we haven't had any really good > ones. Just trying to help my son the best I can and just wanted to > see if anyone had some advice. Thanks > > > > > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
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