Re: Ponseti/ Brace at pm only **brace protocol**

[Guest guest]

Hi Stacie,

I am curious, how long in total did he wear the shoes 23/7? I thought

that the protocol for Ponseti trained doctor's was to prescribe 23/7

brace wear for 3 months unless the foot was atypical or otherwise a

challenge to treat.

& Grace

> Wow- Our Dr. (Ponseti approved) had our son wear his shoes 23/hrs

until he could pull himself up to a stand w/ the shoes on... that was

at about 9 months old. I would check on that w/ Ponseti.

> Good Luck!

> Stacie

[Guest guest]

Hi Stacie,

I am curious, how long in total did he wear the shoes 23/7? I thought

that the protocol for Ponseti trained doctor's was to prescribe 23/7

brace wear for 3 months unless the foot was atypical or otherwise a

challenge to treat.

& Grace

> Wow- Our Dr. (Ponseti approved) had our son wear his shoes 23/hrs

until he could pull himself up to a stand w/ the shoes on... that was

at about 9 months old. I would check on that w/ Ponseti.

> Good Luck!

> Stacie

[Guest guest]

Hey -

Our Dr., Dr. King in CA, had him in the shoes 23/7 until Jordan could

stand. Dr. King called Jordan's foot " Classic Clubfoot " (right unilateral w/

great flexibility). Jordan wore the shoes 23/7 from 3 months old until 9 months

old (he had 5 corrective casts, the tenotamy and a post-surgical cast for 3 wks,

then into the shoes). At nine months old he then told us to put the shoes on

him at bedtime and naps, if possible. There just have been no real

opportunities for him to wear the shoes any longer than that (not that is was

prescribed) he's just sooo active and has no coordination w/ them on. I have

written to Dr. Ponseti regarding the terms of Dr. King's treatment as well as

recently sent Dr. Ponseti pictures of Jordan's feet for confirmation and this

was the reply-

September 9, 2005

The pictures show the foot is well corrected. The bending inward of the toes is

very common in treated clubfeet and corrects in a year or two. It is very

important that he continue to wear the brace at night and naptime until he is at

least three and preferably four years old.

I.V. Ponseti, M.D.

So I feel pretty confident in Dr. King's treatment- have you had another

experience? Should I be looking for something else or trying something else?

I'm thinking that maybe Dr. King had Jordan wear the shoes 23/7 longer becasue

he pulled himself up to a stand later? not sure.

Thanks,

Stacie

wrote:

Hi Stacie,

I am curious, how long in total did he wear the shoes 23/7? I thought

that the protocol for Ponseti trained doctor's was to prescribe 23/7

brace wear for 3 months unless the foot was atypical or otherwise a

challenge to treat.

& Grace

> Wow- Our Dr. (Ponseti approved) had our son wear his shoes 23/hrs

until he could pull himself up to a stand w/ the shoes on... that was

at about 9 months old. I would check on that w/ Ponseti.

> Good Luck!

> Stacie

[Guest guest]

Hi Stacey,

Our daughter also has right unilateral. Glad that Jordan's foot looks

so good! Everything about Jordan's treatment sounds right except

usually the 23/7 wear is for 3 months give or take a bit (Grace was

no where near pulling up when her hours were reduced - she was 4.5

mos). Not a biggie, you have already gotten past that and I am sure

that longer is better than a shorter time at 23/7.

You must have been sooo happy when his time was reduced!! 6 months is

a long time at 23/7! Jordan will get really good at pulling up,

crawling and cruising in his shoes!! Even if he dosen't have them on

a lot when he is up he will probably be doing it in his crib.

Have you guys joined the CFpics site? Would love to see a pic of him

and his little right foot!

tc

& Grace

> Hi Stacie,

>

> I am curious, how long in total did he wear the shoes 23/7? I

thought

> that the protocol for Ponseti trained doctor's was to prescribe

23/7

> brace wear for 3 months unless the foot was atypical or otherwise a

> challenge to treat.

>

> & Grace

>

>

> > Wow- Our Dr. (Ponseti approved) had our son wear his shoes 23/hrs

> until he could pull himself up to a stand w/ the shoes on... that

was

> at about 9 months old. I would check on that w/ Ponseti.

> > Good Luck!

> > Stacie

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[Guest guest]

Hi Stacey,

Our daughter also has right unilateral. Glad that Jordan's foot looks

so good! Everything about Jordan's treatment sounds right except

usually the 23/7 wear is for 3 months give or take a bit (Grace was

no where near pulling up when her hours were reduced - she was 4.5

mos). Not a biggie, you have already gotten past that and I am sure

that longer is better than a shorter time at 23/7.

You must have been sooo happy when his time was reduced!! 6 months is

a long time at 23/7! Jordan will get really good at pulling up,

crawling and cruising in his shoes!! Even if he dosen't have them on

a lot when he is up he will probably be doing it in his crib.

Have you guys joined the CFpics site? Would love to see a pic of him

and his little right foot!

tc

& Grace

> Hi Stacie,

>

> I am curious, how long in total did he wear the shoes 23/7? I

thought

> that the protocol for Ponseti trained doctor's was to prescribe

23/7

> brace wear for 3 months unless the foot was atypical or otherwise a

> challenge to treat.

>

> & Grace

>

>

> > Wow- Our Dr. (Ponseti approved) had our son wear his shoes 23/hrs

> until he could pull himself up to a stand w/ the shoes on... that

was

> at about 9 months old. I would check on that w/ Ponseti.

> > Good Luck!

> > Stacie

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