Guest guest Posted January 1, 2005 Report Share Posted January 1, 2005 , That is great news about . What an honor! And Kira should very proud of herself for such a selfless act as "Sock it to Sadness". You should feel very proud of your kiddos. ruth mito mom to Mitch (9 1/2) and Lexi (6 1/2), both mito affected and my treasures Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2005 Report Share Posted January 2, 2005 What a neat privilege. The sock fundraiser sounds so great as well. I know my kids like the booties they receive at the hospital, but I think socks would be even better. See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into Mito using a photo collage of my girls at www.heartbeatsformito.org Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting... Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID, GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery, disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency... Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), & Marquis (2) (some with Mito symptoms) Re: Some exciting news > , > > That is great news about . What an honor! And Kira should very > proud > of herself for such a selfless act as " Sock it to Sadness " . You should > feel > very proud of your kiddos. > > ruth > mito mom to Mitch (9 1/2) and Lexi (6 1/2), both mito affected and my > treasures > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2005 Report Share Posted January 2, 2005 Congratulations on your good news! will have some fun times in this role, and it really puts a face and awareness of mito disorder in your community. Our son Collin will serve a second term as local MDA ambassador this year, and we have had a lot of awareness brought into this community of mito and also what MDA does and the ways they help families. How old is ? He and Collin may have a lot in common to share by pen pal. Thanks for sharing your good news! Joni > Hi guys, > > Just some fun quick news to share. was chosen to be the local MDA > ambassador for 2005. He is very excited and we are very proud of him. We > are hoping that through Mito will be spread to the general public just a > little more. > > As for Kira, she is really struggling still. I have been kept very busy > tending to her needs and trying to survive the holidays. I am truly grateful > that the holidays are over for sure! Kira did get to deliver her socks she > collected, over 750 pairs to the children's hospital Los Angeles, Loma ER > and 500 units and Redlands community hospital ER and Peds floor, all places > she has been a patient at several times in her life. This was her girl Scout > silver award project. She called it " Sock It To Sadness " She loves getting a > new pair of socks when she is in the hospital. She says it makes her feel > better. So she set up Sock it to Sadness and wanted to bring smiles to as many > sick kids as she can. Unfortunately she got sick in the middle of her > project, but her brother stepped up to the plate and continued the collection for > her. She will be doing another collection in the spring, and has a friend across > country who is interested in doing a Sock It to Sadness in her area. Her > little sister has Mito. > > Any ways just wanted to share some fun news and tell everyone Happy New Year. > I haven't been posting much due to Kira, but I am trying to read as much as > I can on and off. > > Oh did the books ever go out for Mito Memoirs does any one know and how is > Ann doing? > > Thanks, > O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2005 Report Share Posted January 2, 2005 Congratulations on your good news! will have some fun times in this role, and it really puts a face and awareness of mito disorder in your community. Our son Collin will serve a second term as local MDA ambassador this year, and we have had a lot of awareness brought into this community of mito and also what MDA does and the ways they help families. How old is ? He and Collin may have a lot in common to share by pen pal. Thanks for sharing your good news! Joni > Hi guys, > > Just some fun quick news to share. was chosen to be the local MDA > ambassador for 2005. He is very excited and we are very proud of him. We > are hoping that through Mito will be spread to the general public just a > little more. > > As for Kira, she is really struggling still. I have been kept very busy > tending to her needs and trying to survive the holidays. I am truly grateful > that the holidays are over for sure! Kira did get to deliver her socks she > collected, over 750 pairs to the children's hospital Los Angeles, Loma ER > and 500 units and Redlands community hospital ER and Peds floor, all places > she has been a patient at several times in her life. This was her girl Scout > silver award project. She called it " Sock It To Sadness " She loves getting a > new pair of socks when she is in the hospital. She says it makes her feel > better. So she set up Sock it to Sadness and wanted to bring smiles to as many > sick kids as she can. Unfortunately she got sick in the middle of her > project, but her brother stepped up to the plate and continued the collection for > her. She will be doing another collection in the spring, and has a friend across > country who is interested in doing a Sock It to Sadness in her area. Her > little sister has Mito. > > Any ways just wanted to share some fun news and tell everyone Happy New Year. > I haven't been posting much due to Kira, but I am trying to read as much as > I can on and off. > > Oh did the books ever go out for Mito Memoirs does any one know and how is > Ann doing? > > Thanks, > O Quote Link to comment Share on other sites More sharing options...
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