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It's all relative. If our kids needed some kind of brain surgery we'd figure

out a way to pay for it, kwim?

s.

Re: Re: Pricing Shoes

Date: Fri, 23 Sep 2005 05:40:46 -0500

Help me understand this...$300+ for purchasing shoes direct, which

does not give you an option of being billed to insurance, out of

pocket purchase? What has this world come to? I believe that cost,

although some of you seem to think, hey since it's not $600 or $1300

it's not that bad, is totally prohibitive for the majority of the

population. I don't know how many of you are six figure income

families, but where I live that is not the norm. I am just thankful my

daughter does just fine with the Markell's. I would hate for her to

need something that we cannot afford to get her. All of this pricing

information is getting me a bit upset. Sounds like people are taking

advantage of other people's medical misfortune.

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It's all relative. If our kids needed some kind of brain surgery we'd figure

out a way to pay for it, kwim?

s.

Re: Re: Pricing Shoes

Date: Fri, 23 Sep 2005 05:40:46 -0500

Help me understand this...$300+ for purchasing shoes direct, which

does not give you an option of being billed to insurance, out of

pocket purchase? What has this world come to? I believe that cost,

although some of you seem to think, hey since it's not $600 or $1300

it's not that bad, is totally prohibitive for the majority of the

population. I don't know how many of you are six figure income

families, but where I live that is not the norm. I am just thankful my

daughter does just fine with the Markell's. I would hate for her to

need something that we cannot afford to get her. All of this pricing

information is getting me a bit upset. Sounds like people are taking

advantage of other people's medical misfortune.

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Six figure income?!?! Hold it right there ... try low 5 figure, paying

child support, 5 person family, 2 mortgages, 2 car loans and medical bills

up the (ahem). Not to mention that 3 - 4 150-mile-one-way trips to Seattle

every couple months isnt exactly cheap either. You afford what is

necessary. And the last time I checked my bills from my (simple) gall

bladder surgery that only required one follow-up ever, $300 is a walk in the

freaking park.

Some of us dont have the luxury of having the CHOICE of the Markells. I

could send you pictures of exactly what the Markells do for my child's foot,

and I am not talking blisters here. You think Dr Ponseti would participate

in the swindling of money from desperate parents who have no other option??

Dr P has had a hand in the development of those shoes every step of the way,

and HE is the main prescriber of them. Each pair of those shoes is hand

crafted - not ran on an assembly line. The man has to make a profit or he

wont be able to continue making the shoes, and I do not begrudge him that

one bit. He doesnt have some nice office with hired billers to submit

claims to insurance. His WIFE is his secretary/biller/shipper. Sometimes

his kids answer the phone. Does that sound like someone rolling in the

dough he is raking in from us?

Maybe this reply is too sharp, but dont assume you know everything behind

the scenes just based on a price tag.

Angel

Caitlen 8/29/97

Arica 8/22/01

Kai 12/31/02

----Original Message Follows----

From: DZUHONE1@...

Reply-To: nosurgery4clubfoot

To: nosurgery4clubfoot

Subject: Re: Re: Pricing Shoes

Date: Fri, 23 Sep 2005 05:40:46 -0500

Help me understand this...$300+ for purchasing shoes direct, which

does not give you an option of being billed to insurance, out of

pocket purchase? What has this world come to? I believe that cost,

although some of you seem to think, hey since it's not $600 or $1300

it's not that bad, is totally prohibitive for the majority of the

population. I don't know how many of you are six figure income

families, but where I live that is not the norm. I am just thankful my

daughter does just fine with the Markell's. I would hate for her to

need something that we cannot afford to get her. All of this pricing

information is getting me a bit upset. Sounds like people are taking

advantage of other people's medical misfortune.

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Share on other sites

Six figure income?!?! Hold it right there ... try low 5 figure, paying

child support, 5 person family, 2 mortgages, 2 car loans and medical bills

up the (ahem). Not to mention that 3 - 4 150-mile-one-way trips to Seattle

every couple months isnt exactly cheap either. You afford what is

necessary. And the last time I checked my bills from my (simple) gall

bladder surgery that only required one follow-up ever, $300 is a walk in the

freaking park.

Some of us dont have the luxury of having the CHOICE of the Markells. I

could send you pictures of exactly what the Markells do for my child's foot,

and I am not talking blisters here. You think Dr Ponseti would participate

in the swindling of money from desperate parents who have no other option??

Dr P has had a hand in the development of those shoes every step of the way,

and HE is the main prescriber of them. Each pair of those shoes is hand

crafted - not ran on an assembly line. The man has to make a profit or he

wont be able to continue making the shoes, and I do not begrudge him that

one bit. He doesnt have some nice office with hired billers to submit

claims to insurance. His WIFE is his secretary/biller/shipper. Sometimes

his kids answer the phone. Does that sound like someone rolling in the

dough he is raking in from us?

Maybe this reply is too sharp, but dont assume you know everything behind

the scenes just based on a price tag.

Angel

Caitlen 8/29/97

Arica 8/22/01

Kai 12/31/02

----Original Message Follows----

From: DZUHONE1@...

Reply-To: nosurgery4clubfoot

To: nosurgery4clubfoot

Subject: Re: Re: Pricing Shoes

Date: Fri, 23 Sep 2005 05:40:46 -0500

Help me understand this...$300+ for purchasing shoes direct, which

does not give you an option of being billed to insurance, out of

pocket purchase? What has this world come to? I believe that cost,

although some of you seem to think, hey since it's not $600 or $1300

it's not that bad, is totally prohibitive for the majority of the

population. I don't know how many of you are six figure income

families, but where I live that is not the norm. I am just thankful my

daughter does just fine with the Markell's. I would hate for her to

need something that we cannot afford to get her. All of this pricing

information is getting me a bit upset. Sounds like people are taking

advantage of other people's medical misfortune.

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Angel,

I responded much the same way so I don't think it is too sharp. It is right on

the money. Thanks for chiming in to set the record straight along with me.

Chris

Re: Re: Pricing Shoes

Date: Fri, 23 Sep 2005 05:40:46 -0500

Help me understand this...$300+ for purchasing shoes direct, which

does not give you an option of being billed to insurance, out of

pocket purchase? What has this world come to? I believe that cost,

although some of you seem to think, hey since it's not $600 or $1300

it's not that bad, is totally prohibitive for the majority of the

population. I don't know how many of you are six figure income

families, but where I live that is not the norm. I am just thankful my

daughter does just fine with the Markell's. I would hate for her to

need something that we cannot afford to get her. All of this pricing

information is getting me a bit upset. Sounds like people are taking

advantage of other people's medical misfortune.

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Share on other sites

Angel,

I responded much the same way so I don't think it is too sharp. It is right on

the money. Thanks for chiming in to set the record straight along with me.

Chris

Re: Re: Pricing Shoes

Date: Fri, 23 Sep 2005 05:40:46 -0500

Help me understand this...$300+ for purchasing shoes direct, which

does not give you an option of being billed to insurance, out of

pocket purchase? What has this world come to? I believe that cost,

although some of you seem to think, hey since it's not $600 or $1300

it's not that bad, is totally prohibitive for the majority of the

population. I don't know how many of you are six figure income

families, but where I live that is not the norm. I am just thankful my

daughter does just fine with the Markell's. I would hate for her to

need something that we cannot afford to get her. All of this pricing

information is getting me a bit upset. Sounds like people are taking

advantage of other people's medical misfortune.

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Share on other sites

Donna, I just reread the message. I think maybe I would have interpreted it the

same way as before because of the way the paragraph was organized. I didn't

really pay much attention to the 6-figure comment. I just wanted you to know

's background, since you're in Markell's and have no reason to know it. I

just didn't want you or anyone else reading your post to think he was this bad

guy. Lastly, as I said before, there is a fund that pays for these shoes when

kids need them and can't afford them , and it's not that you can't file with

insurance for them, it's just that the claims are always rejected by the

insurance companies because they don't understand the necessity behind them. I'm

sorry if you thought I was pissy about it...

DZUHONE1@... wrote:I just have to respond again. I went back and reread

my original

email, and I truly believe those of you who felt the need to " set the

record straight " missed the whole point of the message and need to

reread it. It did not imply that anyone has a 6 figure income, it did

not imply that the shoes are wrongly priced, it did not imply that

or Dr. Ponseti are trying to take advantage of us. Re

read it with an open mind and you will hopefully stop being so harsh.

And yes, your reply's were harsh. I will forgive and forget and move

on now.

Donna

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Donna, I just reread the message. I think maybe I would have interpreted it the

same way as before because of the way the paragraph was organized. I didn't

really pay much attention to the 6-figure comment. I just wanted you to know

's background, since you're in Markell's and have no reason to know it. I

just didn't want you or anyone else reading your post to think he was this bad

guy. Lastly, as I said before, there is a fund that pays for these shoes when

kids need them and can't afford them , and it's not that you can't file with

insurance for them, it's just that the claims are always rejected by the

insurance companies because they don't understand the necessity behind them. I'm

sorry if you thought I was pissy about it...

DZUHONE1@... wrote:I just have to respond again. I went back and reread

my original

email, and I truly believe those of you who felt the need to " set the

record straight " missed the whole point of the message and need to

reread it. It did not imply that anyone has a 6 figure income, it did

not imply that the shoes are wrongly priced, it did not imply that

or Dr. Ponseti are trying to take advantage of us. Re

read it with an open mind and you will hopefully stop being so harsh.

And yes, your reply's were harsh. I will forgive and forget and move

on now.

Donna

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Oh, I doubt you're being sensored. My posts have been disappearing into

cyberspace lately too... only to appear on the bourd 3 hours later. Who knows?

Today my whole yahoo account is acting wonky.

DZUHONE1@... wrote:This is the last time I am going to attempt to defend

my position,

which I should not really have to do anyway, but I am tired of it.

Hear me out. If someone had a 6-figure income, the price of the

's would probably not present much of a hardship, unless they

are overextended financially, which is correctible. I'm glad to hear

I'm not the only one who is poor. However, that does make it near

impossible to purchase the 's. That is it, that is my point.

And, I do think it is a shame that some might have to be excluded

because of that. $300 is a lot of money last time I checked. $300 is

my food budget for my family of 6 for the entire month, so yes it

would have a huge impact on my budget. Why do I have to defend that

when you reply saying you are poor, too? Why do people feel the need

to " put me in my place " ? Instead of attacking me, doesn't anyone agree

that $300 is a lot to pay out of pocket for shoes?! I'm not asking if

you will do what it takes for your child, of course we all will, but

good grief, it is a lot of money. I'm not even saying it is an unfair

price. I was referring to $1000 or $1600 being an unfair price. I'm

simply saying, whether or not it is justified to charge $300, it is

still going to add incredible financial stress for some of us, and the

last thing we need to deal with right now is another stressor. Does

anyone have a supportive word, or should I just forget trying to find

support on this site? I have tried to be supportive and reply

positively to every parent that I could. My comments were not directed

at any other parent. I have said this in another email but it didn't

get sent through for some reason. Am I being censored? I don't know,

maybe that message will get to you eventually.

I have nothing but care and concern for all of you and your children,

so please stop trying to make me look like the bad guy. It is really

getting old.

Donna

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Oh, I doubt you're being sensored. My posts have been disappearing into

cyberspace lately too... only to appear on the bourd 3 hours later. Who knows?

Today my whole yahoo account is acting wonky.

DZUHONE1@... wrote:This is the last time I am going to attempt to defend

my position,

which I should not really have to do anyway, but I am tired of it.

Hear me out. If someone had a 6-figure income, the price of the

's would probably not present much of a hardship, unless they

are overextended financially, which is correctible. I'm glad to hear

I'm not the only one who is poor. However, that does make it near

impossible to purchase the 's. That is it, that is my point.

And, I do think it is a shame that some might have to be excluded

because of that. $300 is a lot of money last time I checked. $300 is

my food budget for my family of 6 for the entire month, so yes it

would have a huge impact on my budget. Why do I have to defend that

when you reply saying you are poor, too? Why do people feel the need

to " put me in my place " ? Instead of attacking me, doesn't anyone agree

that $300 is a lot to pay out of pocket for shoes?! I'm not asking if

you will do what it takes for your child, of course we all will, but

good grief, it is a lot of money. I'm not even saying it is an unfair

price. I was referring to $1000 or $1600 being an unfair price. I'm

simply saying, whether or not it is justified to charge $300, it is

still going to add incredible financial stress for some of us, and the

last thing we need to deal with right now is another stressor. Does

anyone have a supportive word, or should I just forget trying to find

support on this site? I have tried to be supportive and reply

positively to every parent that I could. My comments were not directed

at any other parent. I have said this in another email but it didn't

get sent through for some reason. Am I being censored? I don't know,

maybe that message will get to you eventually.

I have nothing but care and concern for all of you and your children,

so please stop trying to make me look like the bad guy. It is really

getting old.

Donna

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--- DZUHONE1@... wrote:

> This is the last time I am going to attempt to defend my position,

> which I should not really have to do anyway, but I am tired of it.

> Hear me out. If someone had a 6-figure income, the price of the

> 's would probably not present much of a hardship, unless they

> are overextended financially, which is correctible. I'm glad to hear

> I'm not the only one who is poor. However, that does make it near

> impossible to purchase the 's. That is it, that is my point.

> And, I do think it is a shame that some might have to be excluded

> because of that. $300 is a lot of money last time I checked. $300 is

> my food budget for my family of 6 for the entire month, so yes it

> would have a huge impact on my budget. Why do I have to defend that

> when you reply saying you are poor, too? Why do people feel the need

> to " put me in my place " ? Instead of attacking me, doesn't anyone agree

> that $300 is a lot to pay out of pocket for shoes?!

300 dollars is a lot of money for shoes, but these are more than shoes. They

are orthotics and they aren't put out by some assembly line in some third world

country and mass-produced.

My husband and I don't have a lot for money (we certainly don't make 6

figures), but I understand the " why " of the shoes costing 300 dollars. It

doesn't make it easier if I were to have to purchase them, obviously, but they

are going to cost that for a reason.

I also agree that personal attacks are not necessary. I think you have some

valid questions, and they just need to be answered.

>I'm not asking if

> you will do what it takes for your child, of course we all will, but

> good grief, it is a lot of money. I'm not even saying it is an unfair

> price. I was referring to $1000 or $1600 being an unfair price. I'm

> simply saying, whether or not it is justified to charge $300, it is

> still going to add incredible financial stress for some of us, and the

> last thing we need to deal with right now is another stressor. Does

> anyone have a supportive word, or should I just forget trying to find

> support on this site?

I'm really sorry you feel unsupported. It's just that in the scheme of things,

yes, 300 dollars is a lot of money, but if it's what's going to work, I'm going

to give it my best to make it work. Regardless, of whether I think it's a huge

pricetag or stressor. I imagine would love to give away his

shoes to the babies who need them, but if he did that he'd have to stop making

them because he wouldn't have the money to make more.

Unfortunately, when we have babies with birth defects stressors are pretty much

a given. We are facing having a baby with spina bifida and more stressors than

I could have imagined. I don't know what the future holds (baby is due

tomorrow), but I know it's not going to be easy. It sucks that there are

stressors like finances out there, but it is what it is. My husband's cousin

died at age four, and his mother told me she had bill collectors calling her

the day after he died. Talk about a freakin' stressor. She didn't need that

(and it was covered by insurance, but all their stupid paperwork, y'know, so

let's harrass the parent because, by golly, they don't have any problems).

Life sucks sometimes.

>I have tried to be supportive and reply

> positively to every parent that I could. My comments were not directed

> at any other parent. I have said this in another email but it didn't

> get sent through for some reason. Am I being censored? I don't know,

> maybe that message will get to you eventually.

Yahoo has been really whacky with getting posts through. I have been getting

posts so out of order it's not even funny. I don't think you're being

censored, you'll just have to wait for your message to come through!

> I have nothing but care and concern for all of you and your children,

> so please stop trying to make me look like the bad guy. It is really

> getting old.

Donna,

I'm sorry you feel you are being made to look the bad guy. I admit some of the

responses have been a bit sharper than I expected, but I think it comes from

passion rather than contempt. Some people are very, very passionate about the

results they've had with the shoes as opposed to the Markell (and

really the Markell aren't any cheaper. Try buying those direct, I'm sure!

Insurance may cover them, but insurance still costs money). I haven't had

experience with the shoes myself, but it sounds like they have

really helped some people's babies tremendously.

The Markell shoes worked great for us. We had absolutely no problems with

them. They aren't a lesser shoe, but they don't work for everyone. If they

work for you, it isn't a problem at all. If the shoes are needed that

300 dollars is going to matter, but it's also going to work out in the end.

Sometimes 300 dollars IS a sacrifice that has to be made.

I hope you stick around. :)

Joy

http://www.geocities.com/joybelle15/rosesclubfootpage.html

__________________________________

Yahoo! Mail - PC Magazine Editors' Choice 2005

http://mail.yahoo.com

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--- DZUHONE1@... wrote:

> This is the last time I am going to attempt to defend my position,

> which I should not really have to do anyway, but I am tired of it.

> Hear me out. If someone had a 6-figure income, the price of the

> 's would probably not present much of a hardship, unless they

> are overextended financially, which is correctible. I'm glad to hear

> I'm not the only one who is poor. However, that does make it near

> impossible to purchase the 's. That is it, that is my point.

> And, I do think it is a shame that some might have to be excluded

> because of that. $300 is a lot of money last time I checked. $300 is

> my food budget for my family of 6 for the entire month, so yes it

> would have a huge impact on my budget. Why do I have to defend that

> when you reply saying you are poor, too? Why do people feel the need

> to " put me in my place " ? Instead of attacking me, doesn't anyone agree

> that $300 is a lot to pay out of pocket for shoes?!

300 dollars is a lot of money for shoes, but these are more than shoes. They

are orthotics and they aren't put out by some assembly line in some third world

country and mass-produced.

My husband and I don't have a lot for money (we certainly don't make 6

figures), but I understand the " why " of the shoes costing 300 dollars. It

doesn't make it easier if I were to have to purchase them, obviously, but they

are going to cost that for a reason.

I also agree that personal attacks are not necessary. I think you have some

valid questions, and they just need to be answered.

>I'm not asking if

> you will do what it takes for your child, of course we all will, but

> good grief, it is a lot of money. I'm not even saying it is an unfair

> price. I was referring to $1000 or $1600 being an unfair price. I'm

> simply saying, whether or not it is justified to charge $300, it is

> still going to add incredible financial stress for some of us, and the

> last thing we need to deal with right now is another stressor. Does

> anyone have a supportive word, or should I just forget trying to find

> support on this site?

I'm really sorry you feel unsupported. It's just that in the scheme of things,

yes, 300 dollars is a lot of money, but if it's what's going to work, I'm going

to give it my best to make it work. Regardless, of whether I think it's a huge

pricetag or stressor. I imagine would love to give away his

shoes to the babies who need them, but if he did that he'd have to stop making

them because he wouldn't have the money to make more.

Unfortunately, when we have babies with birth defects stressors are pretty much

a given. We are facing having a baby with spina bifida and more stressors than

I could have imagined. I don't know what the future holds (baby is due

tomorrow), but I know it's not going to be easy. It sucks that there are

stressors like finances out there, but it is what it is. My husband's cousin

died at age four, and his mother told me she had bill collectors calling her

the day after he died. Talk about a freakin' stressor. She didn't need that

(and it was covered by insurance, but all their stupid paperwork, y'know, so

let's harrass the parent because, by golly, they don't have any problems).

Life sucks sometimes.

>I have tried to be supportive and reply

> positively to every parent that I could. My comments were not directed

> at any other parent. I have said this in another email but it didn't

> get sent through for some reason. Am I being censored? I don't know,

> maybe that message will get to you eventually.

Yahoo has been really whacky with getting posts through. I have been getting

posts so out of order it's not even funny. I don't think you're being

censored, you'll just have to wait for your message to come through!

> I have nothing but care and concern for all of you and your children,

> so please stop trying to make me look like the bad guy. It is really

> getting old.

Donna,

I'm sorry you feel you are being made to look the bad guy. I admit some of the

responses have been a bit sharper than I expected, but I think it comes from

passion rather than contempt. Some people are very, very passionate about the

results they've had with the shoes as opposed to the Markell (and

really the Markell aren't any cheaper. Try buying those direct, I'm sure!

Insurance may cover them, but insurance still costs money). I haven't had

experience with the shoes myself, but it sounds like they have

really helped some people's babies tremendously.

The Markell shoes worked great for us. We had absolutely no problems with

them. They aren't a lesser shoe, but they don't work for everyone. If they

work for you, it isn't a problem at all. If the shoes are needed that

300 dollars is going to matter, but it's also going to work out in the end.

Sometimes 300 dollars IS a sacrifice that has to be made.

I hope you stick around. :)

Joy

http://www.geocities.com/joybelle15/rosesclubfootpage.html

__________________________________

Yahoo! Mail - PC Magazine Editors' Choice 2005

http://mail.yahoo.com

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--- faith slattery wrote:

> Oh, I doubt you're being sensored. My posts have been disappearing into

> cyberspace lately too... only to appear on the bourd 3 hours later. Who

> knows? Today my whole yahoo account is acting wonky.

And my messages and all the rest have been sooooo out of order in my mailbox.

Kinda strange to read 'em. Yahoo glitch!

Joy

http://www.geocities.com/joybelle15/rosesclubfootpage.html

__________________________________

Yahoo! Mail - PC Magazine Editors' Choice 2005

http://mail.yahoo.com

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Share on other sites

--- faith slattery wrote:

> Oh, I doubt you're being sensored. My posts have been disappearing into

> cyberspace lately too... only to appear on the bourd 3 hours later. Who

> knows? Today my whole yahoo account is acting wonky.

And my messages and all the rest have been sooooo out of order in my mailbox.

Kinda strange to read 'em. Yahoo glitch!

Joy

http://www.geocities.com/joybelle15/rosesclubfootpage.html

__________________________________

Yahoo! Mail - PC Magazine Editors' Choice 2005

http://mail.yahoo.com

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