Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 Hi- I don't know how north you are but if you can't find anyone up north Dr. King in southern CA (Tarzana, CA- San Valley) is great & certified. Good Luck, check Dr. Ponseti's list of certified Dr.'s Stacie dee15mom@... wrote: Anyone in northern California, and who do you recommend ? DeeDee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 Hi- I don't know how north you are but if you can't find anyone up north Dr. King in southern CA (Tarzana, CA- San Valley) is great & certified. Good Luck, check Dr. Ponseti's list of certified Dr.'s Stacie dee15mom@... wrote: Anyone in northern California, and who do you recommend ? DeeDee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 Hi, DeeDee: If you're near the SF Bay area, I highly recommend Dr. Colburn, who is with Kaiser Permanente and has offices in both Walnut Creek and Pleasanton. He is Ponseti certified -- in fact, when I first found out about my son's CF during my ultrasound, Dr. P emailed me with glowing remarks about Dr. Colburn. He's wonderful doctor who takes great care in his work and great interest in his patients (we get followup emails from him often). Don't be concerned about his Kaiser affiliation -- since he's the only Ponseti-certified doc in Northern Calif except one in Sacramento, he's convinced Kaiser to allow non- Kaiser patients. Unfortunately our Aenta insurance hasn't covered much of our visits, but I'd much rather pay out of pocket for a maestro than have insurance cover visits to someone who's not following the method to a T. Best way to reach him to initiate consultation/treatment is by email: .Colburn@.... Or call and find your way to his assistant (whose name I believe is lyn at x2471). Feel free to contact me offline if you have any questions! - Nicki Nicki Dugan Mama to Max (6/20/02) and Farley (6/21/05, LCF, P/M's 23/7) > Anyone in northern California, and who do you recommend ? > > > DeeDee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 Dee, Welcome to the group! There are a number of us in Northern CA, and a number of wonderful doctors as well! Where are you in CA? We are in verrry N CA, Arcata/Eureka area. We take our son, Jonah, now 2, to the Shriner's hospital in Sacramento. 2 doctors there are parcticing the Ponseti method with much success: Dr Lerman and Dr Boakes. Care at the Shriner's hospital is provided entirely free of charge including bars, shoes, xrays. Another wonderful doctor in the Bay Area is Dr Colburn at Kaiser in Walnut Creek. He has years of experience using the Ponseti method and has terrific results. He will see patients outside of the Kaiser HMO, you just have to work it out with your insurance company. I recently spoke over the phone with a doctor at Lucille B Packard Children's Hospital at Stanford, Dr Todd Lincoln, who has been using the Ponseti method for about a year. I have not talked to any of his patients though. Because I have seen their work first-hand (though not on my own child), I would caution you away from the doctors at both UCSF medical center and Oakland Children's who claim to be using the Ponseti method. They are in reality modifying it so dramatically that they are winding up with very poor results and doing surgery on quite a few of their patients. Here is some contact information: Colburn, D.P.M. The Permanente Medical Group 7601 Stoneridge Drive Pleasanton, CA 94588-2899 Tel: (leave a message with Clara Toms) Lerman, M.D. and Boakes, MD Shriners Hospitals for Children 2425 Stockton Blvd. Sacramento, CA 95817 Tel: For more information on the Ponseti method of clubfoot treatment: http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html Please let me know if there are any other questions I can answer. We wish you and yours all the best. Naomi The Family Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB 14/7) dee15mom@... wrote: Anyone in northern California, and who do you recommend ? DeeDee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 Thank you for your reply ! I am in Chico, 100 miles north of Sac. Actually I have had 2 of my kids at Shriners since they first opened in Sac. I have a son with spina bifida & an adopted daughter with SB. Dr Lerman actually did surgery on my daughter a couple of years ago, so I do know him. Naomi wrote: > Dee, > >Welcome to the group! >There are a number of us in Northern CA, and a number of wonderful doctors as well! > >Where are you in CA?nbsp; We are in verrry N CA, Arcata/Eureka area.nbsp; We take our son, Jonah, now 2, to the Shriner's hospital in Sacramento.nbsp; 2 doctors there are parcticing the Ponseti method with much success: Dr Lerman and Dr Boakes.nbsp; Care at the Shriner's hospital is provided entirely free of charge including bars, shoes, xrays. > >Another wonderful doctor in the Bay Area is Dr Colburn at Kaiser in Walnut Creek.nbsp; He has years of experience using the Ponseti method and has terrific results.nbsp; He will see patients outside of the Kaiser HMO, you just have to work it out with your insurance company. > >I recently spoke over the phone with a doctor at Lucille B Packard Children's Hospital at Stanford, Dr Todd Lincoln, who has been using the Ponseti method for about a year.nbsp; I have not talked to any of his patients though. > >Because I have seen their work first-hand (though not on my own child), I would caution you away from the doctors at both UCSF medical center and Oakland Children's who claim to be using the Ponseti method.nbsp; They are in reality modifying it so dramatically that they are winding up with very poor results and doing surgery on quite a few of their patients. > >Here is some contact information: > Colburn, D.P.M. >The Permanente Medical Group >7601 Stoneridge Drive >Pleasanton, CA 94588-2899 >Tel: (leave a message with Clara Toms) > > Lerman, M.D. and Boakes, MD >Shriners Hospitals for Children >2425 Stockton Blvd. >Sacramento, CA 95817 >Tel: > > >For more information on the Ponseti method of clubfoot treatment: >http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html > >Please let me know if there are any other questions I can answer.nbsp; We wish you and yours all the best. > >Naomi >The Family > Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB 14/7) > >dee15mom@... wrote: >Anyone in northern California, and who do you recommend ? > > >DeeDee > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 Thank you for your reply ! I am in Chico, 100 miles north of Sac. Actually I have had 2 of my kids at Shriners since they first opened in Sac. I have a son with spina bifida & an adopted daughter with SB. Dr Lerman actually did surgery on my daughter a couple of years ago, so I do know him. Naomi wrote: > Dee, > >Welcome to the group! >There are a number of us in Northern CA, and a number of wonderful doctors as well! > >Where are you in CA?nbsp; We are in verrry N CA, Arcata/Eureka area.nbsp; We take our son, Jonah, now 2, to the Shriner's hospital in Sacramento.nbsp; 2 doctors there are parcticing the Ponseti method with much success: Dr Lerman and Dr Boakes.nbsp; Care at the Shriner's hospital is provided entirely free of charge including bars, shoes, xrays. > >Another wonderful doctor in the Bay Area is Dr Colburn at Kaiser in Walnut Creek.nbsp; He has years of experience using the Ponseti method and has terrific results.nbsp; He will see patients outside of the Kaiser HMO, you just have to work it out with your insurance company. > >I recently spoke over the phone with a doctor at Lucille B Packard Children's Hospital at Stanford, Dr Todd Lincoln, who has been using the Ponseti method for about a year.nbsp; I have not talked to any of his patients though. > >Because I have seen their work first-hand (though not on my own child), I would caution you away from the doctors at both UCSF medical center and Oakland Children's who claim to be using the Ponseti method.nbsp; They are in reality modifying it so dramatically that they are winding up with very poor results and doing surgery on quite a few of their patients. > >Here is some contact information: > Colburn, D.P.M. >The Permanente Medical Group >7601 Stoneridge Drive >Pleasanton, CA 94588-2899 >Tel: (leave a message with Clara Toms) > > Lerman, M.D. and Boakes, MD >Shriners Hospitals for Children >2425 Stockton Blvd. >Sacramento, CA 95817 >Tel: > > >For more information on the Ponseti method of clubfoot treatment: >http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html > >Please let me know if there are any other questions I can answer.nbsp; We wish you and yours all the best. > >Naomi >The Family > Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB 14/7) > >dee15mom@... wrote: >Anyone in northern California, and who do you recommend ? > > >DeeDee > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 We are in Chico. I am thinking we will probably have the baby followed at Shriner's in Sacramento. Should we make contact with them before the baby is born ? " TheNickster " wrote: > Hi, DeeDee: > >If you're near the SF Bay area, I highly recommend Dr. >Colburn, who is with Kaiser Permanente and has offices in both Walnut >Creek and Pleasanton. He is Ponseti certified -- in fact, when I first >found out about my son's CF during my ultrasound, Dr. P emailed me >with glowing remarks about Dr. Colburn. He's wonderful doctor who takes >great care in his work and great interest in his patients (we get >followup emails from him often). Don't be concerned about his Kaiser >affiliation -- since he's the only Ponseti-certified doc in Northern >Calif except one in Sacramento, he's convinced Kaiser to allow non- >Kaiser patients. Unfortunately our Aenta insurance hasn't covered much >of our visits, but I'd much rather pay out of pocket for a maestro than >have insurance cover visits to someone who's not following the method >to a T. > >Best way to reach him to initiate consultation/treatment is by email: >.Colburn@.... Or call and find your way to his >assistant (whose name I believe is lyn at x2471). > >Feel free to contact me offline if you have any questions! > >- Nicki >Nicki Dugan >Mama to Max (6/20/02) and Farley (6/21/05, LCF, P/M's 23/7) > > > >gt; Anyone in northern California, and who do you recommend ? >gt; >gt; >gt; DeeDee > > > Â > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 We are in Chico. I am thinking we will probably have the baby followed at Shriner's in Sacramento. Should we make contact with them before the baby is born ? " TheNickster " wrote: > Hi, DeeDee: > >If you're near the SF Bay area, I highly recommend Dr. >Colburn, who is with Kaiser Permanente and has offices in both Walnut >Creek and Pleasanton. He is Ponseti certified -- in fact, when I first >found out about my son's CF during my ultrasound, Dr. P emailed me >with glowing remarks about Dr. Colburn. He's wonderful doctor who takes >great care in his work and great interest in his patients (we get >followup emails from him often). Don't be concerned about his Kaiser >affiliation -- since he's the only Ponseti-certified doc in Northern >Calif except one in Sacramento, he's convinced Kaiser to allow non- >Kaiser patients. Unfortunately our Aenta insurance hasn't covered much >of our visits, but I'd much rather pay out of pocket for a maestro than >have insurance cover visits to someone who's not following the method >to a T. > >Best way to reach him to initiate consultation/treatment is by email: >.Colburn@.... Or call and find your way to his >assistant (whose name I believe is lyn at x2471). > >Feel free to contact me offline if you have any questions! > >- Nicki >Nicki Dugan >Mama to Max (6/20/02) and Farley (6/21/05, LCF, P/M's 23/7) > > > >gt; Anyone in northern California, and who do you recommend ? >gt; >gt; >gt; DeeDee > > > Â > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 Thanks ! Stacie Rich wrote: > Hi- >I don't know how north you are but if you can't find anyone up north Dr. King in southern CA (Tarzana, CA- San Valley) is great amp; certified. >Good Luck, check Dr. Ponseti's list of certified Dr.'s >Stacie > >dee15mom@... wrote: >Anyone in northern California, and who do you recommend ? > > >DeeDee > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 Thanks ! Stacie Rich wrote: > Hi- >I don't know how north you are but if you can't find anyone up north Dr. King in southern CA (Tarzana, CA- San Valley) is great amp; certified. >Good Luck, check Dr. Ponseti's list of certified Dr.'s >Stacie > >dee15mom@... wrote: >Anyone in northern California, and who do you recommend ? > > >DeeDee > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2005 Report Share Posted September 23, 2005 Hi Dee, My son was diagnosed as soon as he was born and we were immediately sent to Kogan at Children's Hospital in Oakland. I don't know about the other doctors at Children's Hospital, but I can say that Dr. Kogan has followed the Ponsetti method up to this point ( is about to turn 2). However, I believe she is sloppy on issues outside of the immediate medical task (casting and snipping the tendon). She gave me zero support, info., etc. when she prescribed the shoes for , and the next 6-8 weeks were the hardest for him. That is probably why patients have such trouble at Children's--the focus is just all wrong. We have stuck with her but are also seeing Dr. Colburn to confirm that is progessing as he should. I agree with the others that Dr. Colburn has been terrific. Had we known of him when was born we very likely would have just gone to him. His level of support with the pesky practical matters that are so critical (getting those shoes on properly) is just wonderful. ly, if his opinion differs from Kogan's, it is Colburn I will listen to. I live in the east bay. If you want to contact me directly, please feel free to do so. Beth sugarmag3000@... dee15mom@... wrote: Anyone in northern California, and who do you recommend ? DeeDee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2005 Report Share Posted September 23, 2005 Hi Dee, My son was diagnosed as soon as he was born and we were immediately sent to Kogan at Children's Hospital in Oakland. I don't know about the other doctors at Children's Hospital, but I can say that Dr. Kogan has followed the Ponsetti method up to this point ( is about to turn 2). However, I believe she is sloppy on issues outside of the immediate medical task (casting and snipping the tendon). She gave me zero support, info., etc. when she prescribed the shoes for , and the next 6-8 weeks were the hardest for him. That is probably why patients have such trouble at Children's--the focus is just all wrong. We have stuck with her but are also seeing Dr. Colburn to confirm that is progessing as he should. I agree with the others that Dr. Colburn has been terrific. Had we known of him when was born we very likely would have just gone to him. His level of support with the pesky practical matters that are so critical (getting those shoes on properly) is just wonderful. ly, if his opinion differs from Kogan's, it is Colburn I will listen to. I live in the east bay. If you want to contact me directly, please feel free to do so. Beth sugarmag3000@... dee15mom@... wrote: Anyone in northern California, and who do you recommend ? DeeDee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2005 Report Share Posted September 23, 2005 Hi Dee- I wanted to piggy back what Naomi replied to you about doctors in Ponseti method. Currently my daughter is seeing Dr. Lerman in Sacramento. She is hopefully on her last pair of casts and then we may go into the DBB next week--I have to wait and see what her little feet look like. We are hopefully trying to avoid the tenetomy, but am open to the fact that she may have it as well. I'll keep you posted. I wanted to let you know if you have any questions--to please contact me since I am going thru the process right now. Naomi has been great to me in educating me and seeing some cute feet in person (Jonah;0)) So I know this support group has been good to me-I want to give back.... You are definitely in the right place. Krishna Naomi wrote: Dee, Welcome to the group! There are a number of us in Northern CA, and a number of wonderful doctors as well! Where are you in CA? We are in verrry N CA, Arcata/Eureka area. We take our son, Jonah, now 2, to the Shriner's hospital in Sacramento. 2 doctors there are parcticing the Ponseti method with much success: Dr Lerman and Dr Boakes. Care at the Shriner's hospital is provided entirely free of charge including bars, shoes, xrays. Another wonderful doctor in the Bay Area is Dr Colburn at Kaiser in Walnut Creek. He has years of experience using the Ponseti method and has terrific results. He will see patients outside of the Kaiser HMO, you just have to work it out with your insurance company. I recently spoke over the phone with a doctor at Lucille B Packard Children's Hospital at Stanford, Dr Todd Lincoln, who has been using the Ponseti method for about a year. I have not talked to any of his patients though. Because I have seen their work first-hand (though not on my own child), I would caution you away from the doctors at both UCSF medical center and Oakland Children's who claim to be using the Ponseti method. They are in reality modifying it so dramatically that they are winding up with very poor results and doing surgery on quite a few of their patients. Here is some contact information: Colburn, D.P.M. The Permanente Medical Group 7601 Stoneridge Drive Pleasanton, CA 94588-2899 Tel: (leave a message with Clara Toms) Lerman, M.D. and Boakes, MD Shriners Hospitals for Children 2425 Stockton Blvd. Sacramento, CA 95817 Tel: For more information on the Ponseti method of clubfoot treatment: http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html Please let me know if there are any other questions I can answer. We wish you and yours all the best. Naomi The Family Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB 14/7) dee15mom@... wrote: Anyone in northern California, and who do you recommend ? DeeDee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2005 Report Share Posted September 23, 2005 Thank you Krishna ! I am sure once our little one arrives, we will have lots of questions. My daughter in law is still having a hard time with the info. I feel so bad for her, and not sure what to do or say to make it easier on her. She still has high hopes of the ultrasound being wrong. I am really glad to hear Shriner's & Dr Lerman will be able to provide her care. I have total respect for both. DeeDee Krishna Cauntay wrote: > Hi Dee- >I wanted to piggy back what Naomi replied to you about doctors in Ponseti method.nbsp; Currently my daughter is seeing Dr. Lerman in Sacramento.nbsp; She is hopefully on her last pair of casts and then we may go into the DBB next week--I have to wait and see what her little feet look like.nbsp; We are hopefully trying to avoid the tenetomy, but am open to the fact that she may have it as well.nbsp; I'll keep you posted.nbsp; I wanted to let you know if you have any questions--to please contact me since I am going thru the process right now.nbsp; Naomi has been great to me in educating me and seeing some cute feet in person (Jonah;0))nbsp; So I know this support group has been good to me-I want to give back....nbsp; You are definitely in the right place.nbsp; >Krishna > >Naomi lt;powellbugs@...; wrote: >Dee, > >Welcome to the group! >There are a number of us in Northern CA, and a number of wonderful doctors as well! > >Where are you in CA?nbsp; We are in verrry N CA, Arcata/Eureka area.nbsp; We take our son, Jonah, now 2, to the Shriner's hospital in Sacramento.nbsp; 2 doctors there are parcticing the Ponseti method with much success: Dr Lerman and Dr Boakes.nbsp; Care at the Shriner's hospital is provided entirely free of charge including bars, shoes, xrays. > >Another wonderful doctor in the Bay Area is Dr Colburn at Kaiser in Walnut Creek.nbsp; He has years of experience using the Ponseti method and has terrific results.nbsp; He will see patients outside of the Kaiser HMO, you just have to work it out with your insurance company. > >I recently spoke over the phone with a doctor at Lucille B Packard Children's Hospital at Stanford, Dr Todd Lincoln, who has been using the Ponseti method for about a year.nbsp; I have not talked to any of his patients though. > >Because I have seen their work first-hand (though not on my own child), I would caution you away from the doctors at both UCSF medical center and Oakland Children's who claim to be using the Ponseti method.nbsp; They are in reality modifying it so dramatically that they are winding up with very poor results and doing surgery on quite a few of their patients. > >Here is some contact information: > Colburn, D.P.M. >The Permanente Medical Group >7601 Stoneridge Drive >Pleasanton, CA 94588-2899 >Tel: (leave a message with Clara Toms) > > Lerman, M.D. and Boakes, MD >Shriners Hospitals for Children >2425 Stockton Blvd. >Sacramento, CA 95817 >Tel: > > >For more information on the Ponseti method of clubfoot treatment: >http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html > >Please let me know if there are any other questions I can answer.nbsp; We wish you and yours all the best. > >Naomi >The Family > Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB 14/7) > >dee15mom@... wrote: >Anyone in northern California, and who do you recommend ? > > >DeeDee > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2005 Report Share Posted September 23, 2005 Thank you Krishna ! I am sure once our little one arrives, we will have lots of questions. My daughter in law is still having a hard time with the info. I feel so bad for her, and not sure what to do or say to make it easier on her. She still has high hopes of the ultrasound being wrong. I am really glad to hear Shriner's & Dr Lerman will be able to provide her care. I have total respect for both. DeeDee Krishna Cauntay wrote: > Hi Dee- >I wanted to piggy back what Naomi replied to you about doctors in Ponseti method.nbsp; Currently my daughter is seeing Dr. Lerman in Sacramento.nbsp; She is hopefully on her last pair of casts and then we may go into the DBB next week--I have to wait and see what her little feet look like.nbsp; We are hopefully trying to avoid the tenetomy, but am open to the fact that she may have it as well.nbsp; I'll keep you posted.nbsp; I wanted to let you know if you have any questions--to please contact me since I am going thru the process right now.nbsp; Naomi has been great to me in educating me and seeing some cute feet in person (Jonah;0))nbsp; So I know this support group has been good to me-I want to give back....nbsp; You are definitely in the right place.nbsp; >Krishna > >Naomi lt;powellbugs@...; wrote: >Dee, > >Welcome to the group! >There are a number of us in Northern CA, and a number of wonderful doctors as well! > >Where are you in CA?nbsp; We are in verrry N CA, Arcata/Eureka area.nbsp; We take our son, Jonah, now 2, to the Shriner's hospital in Sacramento.nbsp; 2 doctors there are parcticing the Ponseti method with much success: Dr Lerman and Dr Boakes.nbsp; Care at the Shriner's hospital is provided entirely free of charge including bars, shoes, xrays. > >Another wonderful doctor in the Bay Area is Dr Colburn at Kaiser in Walnut Creek.nbsp; He has years of experience using the Ponseti method and has terrific results.nbsp; He will see patients outside of the Kaiser HMO, you just have to work it out with your insurance company. > >I recently spoke over the phone with a doctor at Lucille B Packard Children's Hospital at Stanford, Dr Todd Lincoln, who has been using the Ponseti method for about a year.nbsp; I have not talked to any of his patients though. > >Because I have seen their work first-hand (though not on my own child), I would caution you away from the doctors at both UCSF medical center and Oakland Children's who claim to be using the Ponseti method.nbsp; They are in reality modifying it so dramatically that they are winding up with very poor results and doing surgery on quite a few of their patients. > >Here is some contact information: > Colburn, D.P.M. >The Permanente Medical Group >7601 Stoneridge Drive >Pleasanton, CA 94588-2899 >Tel: (leave a message with Clara Toms) > > Lerman, M.D. and Boakes, MD >Shriners Hospitals for Children >2425 Stockton Blvd. >Sacramento, CA 95817 >Tel: > > >For more information on the Ponseti method of clubfoot treatment: >http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html > >Please let me know if there are any other questions I can answer.nbsp; We wish you and yours all the best. > >Naomi >The Family > Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB 14/7) > >dee15mom@... wrote: >Anyone in northern California, and who do you recommend ? > > >DeeDee > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2005 Report Share Posted September 26, 2005 Thanks Beth ! At this point, I think we will probably be seen at Shriner's in Sac. DeeDee Beth Mintz wrote: > Hi Dee, >My son was diagnosed as soon as he was born and we were immediately sent to Kogan at Children's Hospital in Oakland.nbsp; I don't know about the other doctors at Children's Hospital, but I can say that Dr. Kogan has followed the Ponsetti method up to this point ( is about to turn 2).nbsp; However, I believe she is sloppy on issues outside of the immediate medical task (casting and snipping the tendon).nbsp; She gave me zero support, info., etc. when she prescribed the shoes for , and the next 6-8 weeks were the hardest for him.nbsp; That is probably why patients have such trouble at Children's--the focus is just all wrong.nbsp; We have stuck with her but are also seeing Dr. Colburn to confirm that is progessing as he should.nbsp; I agree with the others that Dr. Colburn has been terrific.nbsp; Had we known of him when was born we very likely would have just gone to him.nbsp; His level of support with the pesky practical matters that are so critical (getting those >shoes on properly) is just wonderful.nbsp; ly, if his opinion differs from Kogan's, it is Colburn I will listen to. > >I live in the east bay.nbsp; If you want to contact me directly, please feel free to do so. > >Beth >sugarmag3000@... >dee15mom@... wrote: >Anyone in northern California, and who do you recommend ? > > >DeeDee > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2005 Report Share Posted September 26, 2005 Thanks Beth ! At this point, I think we will probably be seen at Shriner's in Sac. DeeDee Beth Mintz wrote: > Hi Dee, >My son was diagnosed as soon as he was born and we were immediately sent to Kogan at Children's Hospital in Oakland.nbsp; I don't know about the other doctors at Children's Hospital, but I can say that Dr. Kogan has followed the Ponsetti method up to this point ( is about to turn 2).nbsp; However, I believe she is sloppy on issues outside of the immediate medical task (casting and snipping the tendon).nbsp; She gave me zero support, info., etc. when she prescribed the shoes for , and the next 6-8 weeks were the hardest for him.nbsp; That is probably why patients have such trouble at Children's--the focus is just all wrong.nbsp; We have stuck with her but are also seeing Dr. Colburn to confirm that is progessing as he should.nbsp; I agree with the others that Dr. Colburn has been terrific.nbsp; Had we known of him when was born we very likely would have just gone to him.nbsp; His level of support with the pesky practical matters that are so critical (getting those >shoes on properly) is just wonderful.nbsp; ly, if his opinion differs from Kogan's, it is Colburn I will listen to. > >I live in the east bay.nbsp; If you want to contact me directly, please feel free to do so. > >Beth >sugarmag3000@... >dee15mom@... wrote: >Anyone in northern California, and who do you recommend ? > > >DeeDee > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 Hi Dee- I know I'm jumping in this late, but I second vote Dr. Colburn in Pleasanton. We live in San Diego and drive 8 hours to see him. Dr. Ponseti's wife told me Dr. Colburn is the best on the west coast. My son is 3 1/2 now, so we only visit him once a year now. Every mom is overwhelmed with the diagonsis at first. We didn't even know my son had a left club foot until he was born. He is our second born and it was a complete SHOCK! The most comforting thing someone (my aunt) told me at the time was, thank god your son was born with all his parts some just need a little adjusting. It is sooooo true. CF is really nothing compared to all the other things a child could be born with our without. No one would ever know he was born with a CF now. Urge your daughter in law to join this group. She will be comforted by so many stories. > Anyone in northern California, and who do you recommend ? > > > DeeDee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 Hi Dee- I know I'm jumping in this late, but I second vote Dr. Colburn in Pleasanton. We live in San Diego and drive 8 hours to see him. Dr. Ponseti's wife told me Dr. Colburn is the best on the west coast. My son is 3 1/2 now, so we only visit him once a year now. Every mom is overwhelmed with the diagonsis at first. We didn't even know my son had a left club foot until he was born. He is our second born and it was a complete SHOCK! The most comforting thing someone (my aunt) told me at the time was, thank god your son was born with all his parts some just need a little adjusting. It is sooooo true. CF is really nothing compared to all the other things a child could be born with our without. No one would ever know he was born with a CF now. Urge your daughter in law to join this group. She will be comforted by so many stories. > Anyone in northern California, and who do you recommend ? > > > DeeDee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 I did tell her about the group, but she doesn't have internet anymore. I also told her CF was not that big of a deal, but it is to her. I think once the baby gets here and she knows what she is dealing with, she will be better about it all. I have a son with spina bifida, and he is in a wheelchair. Compared to his medical,cf is nothing. At first that is what my son said, but now he just keeps thinking they are wrong. I certainly pray they are wrong to, but I also want the kids prepared. I have shared a lot of info with my daughter in law, and she feels at this point, she wants to see the doctor at Shriner's in Sac. She has been there on many occassions with my other 2 kids, so she kinda knows what they are like. I talked to our peds doc yesterday. He said he is not very confident in the ultrasound, but says he will certainly send us whereever we need to go, and get all the info he can for us. He has been my peds doc for 26 years, and we have a great relationship. He said he has not even seen a case of cf in many years, so is not up to the latest on it, but he will be getting info for us. I shared some of what I have learned here with him. I trust he will take the right way once the baby is born and does in fact have cf. DeeDee " jwray11 " wrote: > Hi Dee- > >I know I'm jumping in this late, but I second vote Dr. Colburn in >Pleasanton. We live in San Diego and drive 8 hours to see him.nbsp; Dr. >Ponseti's wife told me Dr. Colburn is the best on the west coast.nbsp; My >son is 3 1/2 now, so we only visit him once a year now. > >Every mom is overwhelmed with the diagonsis at first. We didn't even >know my son had a left club foot until he was born. He is our second >born and it was a complete SHOCK!nbsp; The most comforting thing someone >(my aunt) told me at the time was, thank god your son was born with all >his parts some just need a little adjusting.nbsp; It is sooooo true. CF is >really nothing compared to all the other things a child could be born >with our without.nbsp; No one would ever know he was born with a CF now. > >Urge your daughter in law to join this group. She will be comforted by >so many stories. > > > > >gt; Anyone in northern California, and who do you recommend ? >gt; >gt; >gt; DeeDee > > > Â > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 I did tell her about the group, but she doesn't have internet anymore. I also told her CF was not that big of a deal, but it is to her. I think once the baby gets here and she knows what she is dealing with, she will be better about it all. I have a son with spina bifida, and he is in a wheelchair. Compared to his medical,cf is nothing. At first that is what my son said, but now he just keeps thinking they are wrong. I certainly pray they are wrong to, but I also want the kids prepared. I have shared a lot of info with my daughter in law, and she feels at this point, she wants to see the doctor at Shriner's in Sac. She has been there on many occassions with my other 2 kids, so she kinda knows what they are like. I talked to our peds doc yesterday. He said he is not very confident in the ultrasound, but says he will certainly send us whereever we need to go, and get all the info he can for us. He has been my peds doc for 26 years, and we have a great relationship. He said he has not even seen a case of cf in many years, so is not up to the latest on it, but he will be getting info for us. I shared some of what I have learned here with him. I trust he will take the right way once the baby is born and does in fact have cf. DeeDee " jwray11 " wrote: > Hi Dee- > >I know I'm jumping in this late, but I second vote Dr. Colburn in >Pleasanton. We live in San Diego and drive 8 hours to see him.nbsp; Dr. >Ponseti's wife told me Dr. Colburn is the best on the west coast.nbsp; My >son is 3 1/2 now, so we only visit him once a year now. > >Every mom is overwhelmed with the diagonsis at first. We didn't even >know my son had a left club foot until he was born. He is our second >born and it was a complete SHOCK!nbsp; The most comforting thing someone >(my aunt) told me at the time was, thank god your son was born with all >his parts some just need a little adjusting.nbsp; It is sooooo true. CF is >really nothing compared to all the other things a child could be born >with our without.nbsp; No one would ever know he was born with a CF now. > >Urge your daughter in law to join this group. She will be comforted by >so many stories. > > > > >gt; Anyone in northern California, and who do you recommend ? >gt; >gt; >gt; DeeDee > > > Â > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 My mom's first was also born with spinal bifida, unfortunately, she did not survive. I have often wondered if this somehow genetically contributided to our having a daughter with cf?? Wish her the best of luck and keep us posted! & Grace > >gt; Anyone in northern California, and who do you recommend ? > >gt; > >gt; > >gt; DeeDee > > > > > > Â > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 My mom's first was also born with spinal bifida, unfortunately, she did not survive. I have often wondered if this somehow genetically contributided to our having a daughter with cf?? Wish her the best of luck and keep us posted! & Grace > >gt; Anyone in northern California, and who do you recommend ? > >gt; > >gt; > >gt; DeeDee > > > > > > Â > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 I will do that, thank you ! DeeDee " " wrote: > My mom's first was also born with spinal bifida, unfortunately, she >did not survive. I have often wondered if this somehow genetically >contributided to our having a daughter with cf?? > >Wish her the best of luck and keep us posted! > > amp; Grace > > >gt; gt;gt; Anyone in northern California, and who do you recommend ? >gt; gt;gt; >gt; gt;gt; >gt; gt;gt; DeeDee >gt; gt; >gt; gt; >gt; gt; Â >gt; gt; >gt; gt; Quote Link to comment Share on other sites More sharing options...
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