Guest guest Posted December 2, 2007 Report Share Posted December 2, 2007 It's ok. There are no mandatory requirements that you be there-- so don't sweat it. BTW- I can't get in-- and the link you gave the group didn't work. I tried the one that is at the bottom of our emails-- and that wouldn't let me in either. Rose had called 4 hrs ago- we were gone, and said she got there and it was full of porn-- so not sure what is going on. Hmmm, back to square one...Check out AOL Money Finance's list of the hottest products and top money wasters of 2007. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2007 Report Share Posted December 2, 2007 It's ok. There are no mandatory requirements that you be there-- so don't sweat it. BTW- I can't get in-- and the link you gave the group didn't work. I tried the one that is at the bottom of our emails-- and that wouldn't let me in either. Rose had called 4 hrs ago- we were gone, and said she got there and it was full of porn-- so not sure what is going on. Hmmm, back to square one...Check out AOL Money Finance's list of the hottest products and top money wasters of 2007. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2007 Report Share Posted December 2, 2007 Okey doke, I'm officially a dope, its 2 and 1/2 hours late for the chat room and I just remembered.. if any of you went and didn't see anyone, I'm really sorry.. but let me know if the link I sent got you to the chat room or not.. I'll do better next time.. I'll try and promise.. Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2007 Report Share Posted December 2, 2007 Okey doke, I'm officially a dope, its 2 and 1/2 hours late for the chat room and I just remembered.. if any of you went and didn't see anyone, I'm really sorry.. but let me know if the link I sent got you to the chat room or not.. I'll do better next time.. I'll try and promise.. Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2007 Report Share Posted December 2, 2007 OH my gosh, I just sent this email to Joe, I tried to get in with the link and ran into a log in problem, and was just too tired, had to got take a nap, and it was a good nap. I will bring this to Joe’s attention and have him check it out; I’m sorry I missed the chat but then again sounds like there wasn’t one. I hope we are not back at the beginning again. I saw my Neuro on Thursday, (did I already mention this?) he said the progression will continue without the proper drugs, we sent the appeal letter out on Friday and then they have “30 more days of my life in their hands”, he told that OT will help me compensate, and I should stick with it, still ify on the PT, I start speech this week, he said just see how that goes but believes the OT should be continued OK. He said I won’t get back what I have already lost to this stupid disease (my words), I just don’t know what else to do if they don’t come through with the meds. I am having trouble on stairs now, can’t stand in one place, difficult to get up when sitting, etc.. Didn’t even do anything but web orders with my Kay, no different so might as well work my business, just need to pace myself, that’s my husbands new term for me, he says every morning when he leaves for work, “now Pace yourself” I’ve tried sitting in my comfy chair with my warm blanket all day and became a crazed women, said I was too tired to fix dinnerJ Got to love it too! I don’t know what I would do without all of you, you’re my sanity in this crazy world of Sarcoidosis. If I don’t get this medication I’ve decided that I will write Bill O’Riley and Hannity, maybe they can bring the insurance companies to their knee’s… YES.. Love to all, Marla(just short of losing her legs and her mind) J Marla Bramer Independent Beauty Consultant Kay cosmetics mbramer@... www.marykay.com From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of tiodaat@... Sent: Sunday, December 02, 2007 3:53 PM To: Neurosarcoidosis Subject: Re: OK, I'm a dope It's ok. There are no mandatory requirements that you be there-- so don't sweat it. BTW- I can't get in-- and the link you gave the group didn't work. I tried the one that is at the bottom of our emails-- and that wouldn't let me in either. Rose had called 4 hrs ago- we were gone, and said she got there and it was full of porn-- so not sure what is going on. Hmmm, back to square one... Check out AOL Money Finance's list of the hottest products and top money wasters of 2007. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2007 Report Share Posted December 2, 2007 OH my gosh, I just sent this email to Joe, I tried to get in with the link and ran into a log in problem, and was just too tired, had to got take a nap, and it was a good nap. I will bring this to Joe’s attention and have him check it out; I’m sorry I missed the chat but then again sounds like there wasn’t one. I hope we are not back at the beginning again. I saw my Neuro on Thursday, (did I already mention this?) he said the progression will continue without the proper drugs, we sent the appeal letter out on Friday and then they have “30 more days of my life in their hands”, he told that OT will help me compensate, and I should stick with it, still ify on the PT, I start speech this week, he said just see how that goes but believes the OT should be continued OK. He said I won’t get back what I have already lost to this stupid disease (my words), I just don’t know what else to do if they don’t come through with the meds. I am having trouble on stairs now, can’t stand in one place, difficult to get up when sitting, etc.. Didn’t even do anything but web orders with my Kay, no different so might as well work my business, just need to pace myself, that’s my husbands new term for me, he says every morning when he leaves for work, “now Pace yourself” I’ve tried sitting in my comfy chair with my warm blanket all day and became a crazed women, said I was too tired to fix dinnerJ Got to love it too! I don’t know what I would do without all of you, you’re my sanity in this crazy world of Sarcoidosis. If I don’t get this medication I’ve decided that I will write Bill O’Riley and Hannity, maybe they can bring the insurance companies to their knee’s… YES.. Love to all, Marla(just short of losing her legs and her mind) J Marla Bramer Independent Beauty Consultant Kay cosmetics mbramer@... www.marykay.com From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of tiodaat@... Sent: Sunday, December 02, 2007 3:53 PM To: Neurosarcoidosis Subject: Re: OK, I'm a dope It's ok. There are no mandatory requirements that you be there-- so don't sweat it. BTW- I can't get in-- and the link you gave the group didn't work. I tried the one that is at the bottom of our emails-- and that wouldn't let me in either. Rose had called 4 hrs ago- we were gone, and said she got there and it was full of porn-- so not sure what is going on. Hmmm, back to square one... Check out AOL Money Finance's list of the hottest products and top money wasters of 2007. Quote Link to comment Share on other sites More sharing options...
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