Guest guest Posted December 1, 2007 Report Share Posted December 1, 2007 Rose thanks for sharing this, it really gave me a lift, as had a no so good week. Saw the Neuro, said not much we can do to stop your legs from getting weaker, except the drugs, yesterday My husband Jim sent the appeal letter to the insurance company along with all the tests I had to do to prove I didn’t have any of the things they said I couldn’t have the drug for, my husband said legally they cannot come back with more reason, but that doesn’t mean they will OK it either, for those of you who pray, prayer would be most welcomed. I am trying OT and speech therapy for the brain things? He still thinks that PT wouldn’t help but if I want to try I could, my husband said he will just buy me some more equipment for our exercise room, whatever! Will write more later, love each and every one of you, and pray for painful, energy filled days! Marl a Marla Bramer Independent Beauty Consultant Kay cosmetics mbramer@... www.marykay.com From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Friday, November 30, 2007 3:35 PM To: Neurosarcoidosis Subject: Christian content This is an excerpt from a friend's blog; I thought that many of us could relate to her experience, physically & spiritually. Monday, October 01, 2007 What's Your Problem? I have not written on this blog since January. I can't say why except for busy-ness. Some have emailed me to say, " I haven't seen any blogs from you recently. " I guess that means someone reads them... But I've been thinking I need to get better at the technological stuff...the RSS feeds and all that stuff. So, I'll try to get back on the old BLOG! I just read back through some of my writings --- about the loss of my mother, and they still make me weep! Grief is so persistent. I had some normal tests and procedures early in the year---that 57 yr. old people have. There were a few problems, but nothing major. In the summer we took a big trip, flying to San , and helping Phil and Carolyn move to Princeton, NJ. We had a small, short " family reunion " in land, and then spent 10 days in Indiana with Sharon and Casey. I didn't feel well after the 3-day drive. I blamed it on having caught a cold, not eating right, and many other things. I had a low-grade fever off and on for many weeks, even after returning home. At a church workcamp at the Tulalip Reservation in sville, WA, I found myself so tired, short of breath, and weak, that I thought I probably should see my doctor. October/November are the months of my checkups anyway. When I went in on a Thursday, they took 4 vials of blood for testing. The next day the doctor called...just as I was packed and ready to head out for a women's retreat. " You going somewhere? " " I was planning to--got my bags packed. " " I think you should reconsider...I've ordered a pint of iron and 2 pints of blood and they are waiting for you at the hospital. " I was suddenly off the hook. I wasn't tired and winded simply because I am out of shape and overweight...I was SICK! After the iron transfusion (4-1/2 hour job!), I began to feel better...by midnight I had received all the blood and went home. I really began to feel " normal " ---whatever that is---by Tuesday. Tests haven't proved conclusive, but the theory is that the slow, imperceptible bleeding was from many months of taking Aleve for arthritis pain and swelling in my hands. As I look back on the last 6 or 7 months, I realize that I have felt bad for so long, but have kept pushing myself. I blamed it on my work, my struggles with family issues, difficult relationship struggles. I have been unkind, unhappy, and crabby for a long time. Some people think I'm just crabby anyway, I'm sure! I know now, I WAS SICK! Of course there are a zillion spiritual applications and lessons from my experience. And I keep thinking of them in these days following. My doctor's email said, " I guess once again we've proved: 'there is LIFE in the blood.' " I also think about how the sickness of sin and neglect of our relationship with God, saps our spiritual vitality. (Oh my---that's alliteration!) But it does---it begins slowly, imperceptibly, to drain our spiritual tanks. We skip God's words to us one or two days and figure we've already blown it---why bother? Then we pray in a pinch, and God doesn't seem to answer, and again---why bother? We no longer want to go to church or hear any Christian music or put up with other imperfect Christians. We quit thinking about the power available to believers through the BLOOD of JESUS CHRIST, and we begin to waste away. What we need is a blood transfusion---we need refreshment from the Spirit of God, a reminder of the price Jesus paid for us---His precious blood, when He died on the cross to pay for our sins. It takes some action on our parts...although my doctor had the lab techs available to ascertain the problem, the blood and iron ready to pump into me...I still had to make a move---and go get tested, and then submit to receiving the blood offered to me. God doesn't force us to draw close to Him either. He just invites, calls, and loves! What do we have to lose? Just our tired, washed up, wrung out lives and spirits! God bless as YOU choose LIFE! Pastor K Love to all of you! Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 Get the power of Windows + Web with the new Windows Live. Power up! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2007 Report Share Posted December 1, 2007 Rose thanks for sharing this, it really gave me a lift, as had a no so good week. Saw the Neuro, said not much we can do to stop your legs from getting weaker, except the drugs, yesterday My husband Jim sent the appeal letter to the insurance company along with all the tests I had to do to prove I didn’t have any of the things they said I couldn’t have the drug for, my husband said legally they cannot come back with more reason, but that doesn’t mean they will OK it either, for those of you who pray, prayer would be most welcomed. I am trying OT and speech therapy for the brain things? He still thinks that PT wouldn’t help but if I want to try I could, my husband said he will just buy me some more equipment for our exercise room, whatever! Will write more later, love each and every one of you, and pray for painful, energy filled days! Marl a Marla Bramer Independent Beauty Consultant Kay cosmetics mbramer@... www.marykay.com From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Friday, November 30, 2007 3:35 PM To: Neurosarcoidosis Subject: Christian content This is an excerpt from a friend's blog; I thought that many of us could relate to her experience, physically & spiritually. Monday, October 01, 2007 What's Your Problem? I have not written on this blog since January. I can't say why except for busy-ness. Some have emailed me to say, " I haven't seen any blogs from you recently. " I guess that means someone reads them... But I've been thinking I need to get better at the technological stuff...the RSS feeds and all that stuff. So, I'll try to get back on the old BLOG! I just read back through some of my writings --- about the loss of my mother, and they still make me weep! Grief is so persistent. I had some normal tests and procedures early in the year---that 57 yr. old people have. There were a few problems, but nothing major. In the summer we took a big trip, flying to San , and helping Phil and Carolyn move to Princeton, NJ. We had a small, short " family reunion " in land, and then spent 10 days in Indiana with Sharon and Casey. I didn't feel well after the 3-day drive. I blamed it on having caught a cold, not eating right, and many other things. I had a low-grade fever off and on for many weeks, even after returning home. At a church workcamp at the Tulalip Reservation in sville, WA, I found myself so tired, short of breath, and weak, that I thought I probably should see my doctor. October/November are the months of my checkups anyway. When I went in on a Thursday, they took 4 vials of blood for testing. The next day the doctor called...just as I was packed and ready to head out for a women's retreat. " You going somewhere? " " I was planning to--got my bags packed. " " I think you should reconsider...I've ordered a pint of iron and 2 pints of blood and they are waiting for you at the hospital. " I was suddenly off the hook. I wasn't tired and winded simply because I am out of shape and overweight...I was SICK! After the iron transfusion (4-1/2 hour job!), I began to feel better...by midnight I had received all the blood and went home. I really began to feel " normal " ---whatever that is---by Tuesday. Tests haven't proved conclusive, but the theory is that the slow, imperceptible bleeding was from many months of taking Aleve for arthritis pain and swelling in my hands. As I look back on the last 6 or 7 months, I realize that I have felt bad for so long, but have kept pushing myself. I blamed it on my work, my struggles with family issues, difficult relationship struggles. I have been unkind, unhappy, and crabby for a long time. Some people think I'm just crabby anyway, I'm sure! I know now, I WAS SICK! Of course there are a zillion spiritual applications and lessons from my experience. And I keep thinking of them in these days following. My doctor's email said, " I guess once again we've proved: 'there is LIFE in the blood.' " I also think about how the sickness of sin and neglect of our relationship with God, saps our spiritual vitality. (Oh my---that's alliteration!) But it does---it begins slowly, imperceptibly, to drain our spiritual tanks. We skip God's words to us one or two days and figure we've already blown it---why bother? Then we pray in a pinch, and God doesn't seem to answer, and again---why bother? We no longer want to go to church or hear any Christian music or put up with other imperfect Christians. We quit thinking about the power available to believers through the BLOOD of JESUS CHRIST, and we begin to waste away. What we need is a blood transfusion---we need refreshment from the Spirit of God, a reminder of the price Jesus paid for us---His precious blood, when He died on the cross to pay for our sins. It takes some action on our parts...although my doctor had the lab techs available to ascertain the problem, the blood and iron ready to pump into me...I still had to make a move---and go get tested, and then submit to receiving the blood offered to me. God doesn't force us to draw close to Him either. He just invites, calls, and loves! What do we have to lose? Just our tired, washed up, wrung out lives and spirits! God bless as YOU choose LIFE! Pastor K Love to all of you! Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 Get the power of Windows + Web with the new Windows Live. Power up! Quote Link to comment Share on other sites More sharing options...
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