Guest guest Posted October 15, 2005 Report Share Posted October 15, 2005 Hi there, I have made a folder for Hayden and uploaded some photos. As you can see from the 12th casts, his left foot is still quite sloped at the heel, much more than the right, even though the rotation appears to be 70 degrees. But when you see his feet after just a few weeks out of the casts, and supposedly in the shoes, you can see the left one already wanting to turn back in. Arrgh! I'm going to collect my thoughts and see if I can compose something coherent to Dr. Ponseti. I am not sure if the photos I have taken are good enough for him to see what's happening, though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2005 Report Share Posted October 15, 2005 Hi there, I have made a folder for Hayden and uploaded some photos. As you can see from the 12th casts, his left foot is still quite sloped at the heel, much more than the right, even though the rotation appears to be 70 degrees. But when you see his feet after just a few weeks out of the casts, and supposedly in the shoes, you can see the left one already wanting to turn back in. Arrgh! I'm going to collect my thoughts and see if I can compose something coherent to Dr. Ponseti. I am not sure if the photos I have taken are good enough for him to see what's happening, though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2005 Report Share Posted October 15, 2005 , First, I would say from the pictures that neither foot is fully corrected. You will want to check out this website if no one has pointed you to it yet. http://adifferentfoot.freeservers.com/ Hayden looks to me (and what a darling boy btw), like he has what is known as 'atypical' clubfoot. Dr. Ponseti and his group at the University of Iowa have really been making progress in treating this type of foot. I'm sure too that Dr. Pirani has this latest information. But this is just one more reason you want to go to a super experienced doc like Pirani or directly to Ponseti. The one thing I would like to tell you about is this theory that was presented at the clubfoot symposium I just attended. This was brought up by Dr. Fred Dietz at U of I, he has been having some new success with what is being termed as atypical feet by leaving them out of the casts and shoes and letting them relapse a bit. He thinks that the " atypical " foot is created, usually by slipping casts or possibly by errors in the manipulations and that by letting it lie fallow for a few weeks you may be able to sort of start over with a more " normal " clubfoot. Anyway, this is just a " theory " but I think just another reason you can tell your DH that you should just leave the shoes off until you can get in to see Pirani. HTH, > > Hi there, I have made a folder for Hayden and uploaded some photos. > As you can see from the 12th casts, his left foot is still quite > sloped at the heel, much more than the right, even though the rotation > appears to be 70 degrees. But when you see his feet after just a few > weeks out of the casts, and supposedly in the shoes, you can see the > left one already wanting to turn back in. Arrgh! > > I'm going to collect my thoughts and see if I can compose something > coherent to Dr. Ponseti. I am not sure if the photos I have taken are > good enough for him to see what's happening, though. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2005 Report Share Posted October 15, 2005 , First, I would say from the pictures that neither foot is fully corrected. You will want to check out this website if no one has pointed you to it yet. http://adifferentfoot.freeservers.com/ Hayden looks to me (and what a darling boy btw), like he has what is known as 'atypical' clubfoot. Dr. Ponseti and his group at the University of Iowa have really been making progress in treating this type of foot. I'm sure too that Dr. Pirani has this latest information. But this is just one more reason you want to go to a super experienced doc like Pirani or directly to Ponseti. The one thing I would like to tell you about is this theory that was presented at the clubfoot symposium I just attended. This was brought up by Dr. Fred Dietz at U of I, he has been having some new success with what is being termed as atypical feet by leaving them out of the casts and shoes and letting them relapse a bit. He thinks that the " atypical " foot is created, usually by slipping casts or possibly by errors in the manipulations and that by letting it lie fallow for a few weeks you may be able to sort of start over with a more " normal " clubfoot. Anyway, this is just a " theory " but I think just another reason you can tell your DH that you should just leave the shoes off until you can get in to see Pirani. HTH, > > Hi there, I have made a folder for Hayden and uploaded some photos. > As you can see from the 12th casts, his left foot is still quite > sloped at the heel, much more than the right, even though the rotation > appears to be 70 degrees. But when you see his feet after just a few > weeks out of the casts, and supposedly in the shoes, you can see the > left one already wanting to turn back in. Arrgh! > > I'm going to collect my thoughts and see if I can compose something > coherent to Dr. Ponseti. I am not sure if the photos I have taken are > good enough for him to see what's happening, though. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2005 Report Share Posted October 15, 2005 , I just wrote a big long email and for some reason my stupid internet connection failed. In short, I was asking if you could either post more pic or send me some more pics of the soles of his feet and side views (preferably the side of the big toes), and of the back of his feet and calves. If you could get me some clearer pics of his feet, I may be able to advise you better. I think he may have atypical feet, which are harder to treat... especially in ignorant hands. He certainly has the excess fat/ the short stubbiness that accompanies them, btu his big toes doesn't seem to stick out the way I've seen most of them do. What I'd be looking for is a horizontal crease in the middle of the soles of his feet, and and a thickness of the mid-foot. Also, can you tell/show me if he has extra creases in teh lower 1/3 of his calves (mostly right above the heel). Here is web site that explains better what I'm talking about:http://adifferentfoot.freeservers.com/. It explanes better what atypical feet are and why they are harder to treat. I would send Ponseti these photos too ASAP. He could probably tell you what was going on. wrote:Hi there, I have made a folder for Hayden and uploaded some photos. As you can see from the 12th casts, his left foot is still quite sloped at the heel, much more than the right, even though the rotation appears to be 70 degrees. But when you see his feet after just a few weeks out of the casts, and supposedly in the shoes, you can see the left one already wanting to turn back in. Arrgh! I'm going to collect my thoughts and see if I can compose something coherent to Dr. Ponseti. I am not sure if the photos I have taken are good enough for him to see what's happening, though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2005 Report Share Posted October 15, 2005 , I just wrote a big long email and for some reason my stupid internet connection failed. In short, I was asking if you could either post more pic or send me some more pics of the soles of his feet and side views (preferably the side of the big toes), and of the back of his feet and calves. If you could get me some clearer pics of his feet, I may be able to advise you better. I think he may have atypical feet, which are harder to treat... especially in ignorant hands. He certainly has the excess fat/ the short stubbiness that accompanies them, btu his big toes doesn't seem to stick out the way I've seen most of them do. What I'd be looking for is a horizontal crease in the middle of the soles of his feet, and and a thickness of the mid-foot. Also, can you tell/show me if he has extra creases in teh lower 1/3 of his calves (mostly right above the heel). Here is web site that explains better what I'm talking about:http://adifferentfoot.freeservers.com/. It explanes better what atypical feet are and why they are harder to treat. I would send Ponseti these photos too ASAP. He could probably tell you what was going on. wrote:Hi there, I have made a folder for Hayden and uploaded some photos. As you can see from the 12th casts, his left foot is still quite sloped at the heel, much more than the right, even though the rotation appears to be 70 degrees. But when you see his feet after just a few weeks out of the casts, and supposedly in the shoes, you can see the left one already wanting to turn back in. Arrgh! I'm going to collect my thoughts and see if I can compose something coherent to Dr. Ponseti. I am not sure if the photos I have taken are good enough for him to see what's happening, though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 Thanks for the link - I will definitely look at it. It's so funny that you brought this up because one of the things that I forgot to mention was that his casts slipped many, many times and had to be redone (which means technically he's really had more than 12 casts, but some of them were done in the same week). Thanks for this information! --- wrote: --------------------------------- , First, I would say from the pictures that neither foot is fully corrected. You will want to check out this website if no one has pointed you to it yet. http://adifferentfoot.freeservers.com/ Hayden looks to me (and what a darling boy btw), like he has what is known as 'atypical' clubfoot. Dr. Ponseti and his group at the University of Iowa have really been making progress in treating this type of foot. I'm sure too that Dr. Pirani has this latest information. But this is just one more reason you want to go to a super experienced doc like Pirani or directly to Ponseti. The one thing I would like to tell you about is this theory that was presented at the clubfoot symposium I just attended. This was brought up by Dr. Fred Dietz at U of I, he has been having some new success with what is being termed as atypical feet by leaving them out of the casts and shoes and letting them relapse a bit. He thinks that the " atypical " foot is created, usually by slipping casts or possibly by errors in the manipulations and that by letting it lie fallow for a few weeks you may be able to sort of start over with a more " normal " clubfoot. Anyway, this is just a " theory " but I think just another reason you can tell your DH that you should just leave the shoes off until you can get in to see Pirani. HTH, > > Hi there, I have made a folder for Hayden and uploaded some photos. > As you can see from the 12th casts, his left foot is still quite > sloped at the heel, much more than the right, even though the rotation > appears to be 70 degrees. But when you see his feet after just a few > weeks out of the casts, and supposedly in the shoes, you can see the > left one already wanting to turn back in. Arrgh! > > I'm going to collect my thoughts and see if I can compose something > coherent to Dr. Ponseti. I am not sure if the photos I have taken are > good enough for him to see what's happening, though. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 Thanks for the link - I will definitely look at it. It's so funny that you brought this up because one of the things that I forgot to mention was that his casts slipped many, many times and had to be redone (which means technically he's really had more than 12 casts, but some of them were done in the same week). Thanks for this information! --- wrote: --------------------------------- , First, I would say from the pictures that neither foot is fully corrected. You will want to check out this website if no one has pointed you to it yet. http://adifferentfoot.freeservers.com/ Hayden looks to me (and what a darling boy btw), like he has what is known as 'atypical' clubfoot. Dr. Ponseti and his group at the University of Iowa have really been making progress in treating this type of foot. I'm sure too that Dr. Pirani has this latest information. But this is just one more reason you want to go to a super experienced doc like Pirani or directly to Ponseti. The one thing I would like to tell you about is this theory that was presented at the clubfoot symposium I just attended. This was brought up by Dr. Fred Dietz at U of I, he has been having some new success with what is being termed as atypical feet by leaving them out of the casts and shoes and letting them relapse a bit. He thinks that the " atypical " foot is created, usually by slipping casts or possibly by errors in the manipulations and that by letting it lie fallow for a few weeks you may be able to sort of start over with a more " normal " clubfoot. Anyway, this is just a " theory " but I think just another reason you can tell your DH that you should just leave the shoes off until you can get in to see Pirani. HTH, > > Hi there, I have made a folder for Hayden and uploaded some photos. > As you can see from the 12th casts, his left foot is still quite > sloped at the heel, much more than the right, even though the rotation > appears to be 70 degrees. But when you see his feet after just a few > weeks out of the casts, and supposedly in the shoes, you can see the > left one already wanting to turn back in. Arrgh! > > I'm going to collect my thoughts and see if I can compose something > coherent to Dr. Ponseti. I am not sure if the photos I have taken are > good enough for him to see what's happening, though. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 Oh, I HATE when that happens (losing long emails)! I have added two more photos of the bottoms of Hayden's feet, but will try to get the others you suggested and upload them too. I can tell you that on the website you suggested, his feet look EXACTLY like the photo of the little guy's (Kai's) feet. He has skin folds on the outer edge of each foot, short stubby feet (they're MAYBE a size one?), short stubby big toes. I will point out out that hubby's feet aren't big either and that my three year old daughter's feet were very, very small as well (still are, she's three next month and wears a size 5 shoe), so some of the sizing is genetic it would seem (almost glad for the kids because my older daughter and I both have CLODHOPPERS!) I'll try and get those photos! --- faith slattery wrote: --------------------------------- , I just wrote a big long email and for some reason my stupid internet connection failed. In short, I was asking if you could either post more pic or send me some more pics of the soles of his feet and side views (preferably the side of the big toes), and of the back of his feet and calves. If you could get me some clearer pics of his feet, I may be able to advise you better. I think he may have atypical feet, which are harder to treat... especially in ignorant hands. He certainly has the excess fat/ the short stubbiness that accompanies them, btu his big toes doesn't seem to stick out the way I've seen most of them do. What I'd be looking for is a horizontal crease in the middle of the soles of his feet, and and a thickness of the mid-foot. Also, can you tell/show me if he has extra creases in teh lower 1/3 of his calves (mostly right above the heel). Here is web site that explains better what I'm talking about:http://adifferentfoot.freeservers.com/. It explanes better what atypical feet are and why they are harder to treat. I would send Ponseti these photos too ASAP. He could probably tell you what was going on. wrote:Hi there, I have made a folder for Hayden and uploaded some photos. As you can see from the 12th casts, his left foot is still quite sloped at the heel, much more than the right, even though the rotation appears to be 70 degrees. But when you see his feet after just a few weeks out of the casts, and supposedly in the shoes, you can see the left one already wanting to turn back in. Arrgh! I'm going to collect my thoughts and see if I can compose something coherent to Dr. Ponseti. I am not sure if the photos I have taken are good enough for him to see what's happening, though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 Oh, I HATE when that happens (losing long emails)! I have added two more photos of the bottoms of Hayden's feet, but will try to get the others you suggested and upload them too. I can tell you that on the website you suggested, his feet look EXACTLY like the photo of the little guy's (Kai's) feet. He has skin folds on the outer edge of each foot, short stubby feet (they're MAYBE a size one?), short stubby big toes. I will point out out that hubby's feet aren't big either and that my three year old daughter's feet were very, very small as well (still are, she's three next month and wears a size 5 shoe), so some of the sizing is genetic it would seem (almost glad for the kids because my older daughter and I both have CLODHOPPERS!) I'll try and get those photos! --- faith slattery wrote: --------------------------------- , I just wrote a big long email and for some reason my stupid internet connection failed. In short, I was asking if you could either post more pic or send me some more pics of the soles of his feet and side views (preferably the side of the big toes), and of the back of his feet and calves. If you could get me some clearer pics of his feet, I may be able to advise you better. I think he may have atypical feet, which are harder to treat... especially in ignorant hands. He certainly has the excess fat/ the short stubbiness that accompanies them, btu his big toes doesn't seem to stick out the way I've seen most of them do. What I'd be looking for is a horizontal crease in the middle of the soles of his feet, and and a thickness of the mid-foot. Also, can you tell/show me if he has extra creases in teh lower 1/3 of his calves (mostly right above the heel). Here is web site that explains better what I'm talking about:http://adifferentfoot.freeservers.com/. It explanes better what atypical feet are and why they are harder to treat. I would send Ponseti these photos too ASAP. He could probably tell you what was going on. wrote:Hi there, I have made a folder for Hayden and uploaded some photos. As you can see from the 12th casts, his left foot is still quite sloped at the heel, much more than the right, even though the rotation appears to be 70 degrees. But when you see his feet after just a few weeks out of the casts, and supposedly in the shoes, you can see the left one already wanting to turn back in. Arrgh! I'm going to collect my thoughts and see if I can compose something coherent to Dr. Ponseti. I am not sure if the photos I have taken are good enough for him to see what's happening, though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 , You can do a literature search on this website: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?DB=pubmed search words clubfoot, Ponseti, anything you can think of. You will find abstract of studies that clearly show that the Ponsete technique works. If you want to you can just send me an email privately and I will email you my document with abstracts. //Corina Re: Re: Photos Uploaded Thanks for the link - I will definitely look at it. It's so funny that you brought this up because one of the things that I forgot to mention was that his casts slipped many, many times and had to be redone (which means technically he's really had more than 12 casts, but some of them were done in the same week). Thanks for this information! --- wrote: --------------------------------- , First, I would say from the pictures that neither foot is fully corrected. You will want to check out this website if no one has pointed you to it yet. http://adifferentfoot.freeservers.com/ Hayden looks to me (and what a darling boy btw), like he has what is known as 'atypical' clubfoot. Dr. Ponseti and his group at the University of Iowa have really been making progress in treating this type of foot. I'm sure too that Dr. Pirani has this latest information. But this is just one more reason you want to go to a super experienced doc like Pirani or directly to Ponseti. The one thing I would like to tell you about is this theory that was presented at the clubfoot symposium I just attended. This was brought up by Dr. Fred Dietz at U of I, he has been having some new success with what is being termed as atypical feet by leaving them out of the casts and shoes and letting them relapse a bit. He thinks that the " atypical " foot is created, usually by slipping casts or possibly by errors in the manipulations and that by letting it lie fallow for a few weeks you may be able to sort of start over with a more " normal " clubfoot. Anyway, this is just a " theory " but I think just another reason you can tell your DH that you should just leave the shoes off until you can get in to see Pirani. HTH, > > Hi there, I have made a folder for Hayden and uploaded some photos. > As you can see from the 12th casts, his left foot is still quite > sloped at the heel, much more than the right, even though the rotation > appears to be 70 degrees. But when you see his feet after just a few > weeks out of the casts, and supposedly in the shoes, you can see the > left one already wanting to turn back in. Arrgh! > > I'm going to collect my thoughts and see if I can compose something > coherent to Dr. Ponseti. I am not sure if the photos I have taken are > good enough for him to see what's happening, though. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 , You can do a literature search on this website: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?DB=pubmed search words clubfoot, Ponseti, anything you can think of. You will find abstract of studies that clearly show that the Ponsete technique works. If you want to you can just send me an email privately and I will email you my document with abstracts. //Corina Re: Re: Photos Uploaded Thanks for the link - I will definitely look at it. It's so funny that you brought this up because one of the things that I forgot to mention was that his casts slipped many, many times and had to be redone (which means technically he's really had more than 12 casts, but some of them were done in the same week). Thanks for this information! --- wrote: --------------------------------- , First, I would say from the pictures that neither foot is fully corrected. You will want to check out this website if no one has pointed you to it yet. http://adifferentfoot.freeservers.com/ Hayden looks to me (and what a darling boy btw), like he has what is known as 'atypical' clubfoot. Dr. Ponseti and his group at the University of Iowa have really been making progress in treating this type of foot. I'm sure too that Dr. Pirani has this latest information. But this is just one more reason you want to go to a super experienced doc like Pirani or directly to Ponseti. The one thing I would like to tell you about is this theory that was presented at the clubfoot symposium I just attended. This was brought up by Dr. Fred Dietz at U of I, he has been having some new success with what is being termed as atypical feet by leaving them out of the casts and shoes and letting them relapse a bit. He thinks that the " atypical " foot is created, usually by slipping casts or possibly by errors in the manipulations and that by letting it lie fallow for a few weeks you may be able to sort of start over with a more " normal " clubfoot. Anyway, this is just a " theory " but I think just another reason you can tell your DH that you should just leave the shoes off until you can get in to see Pirani. HTH, > > Hi there, I have made a folder for Hayden and uploaded some photos. > As you can see from the 12th casts, his left foot is still quite > sloped at the heel, much more than the right, even though the rotation > appears to be 70 degrees. But when you see his feet after just a few > weeks out of the casts, and supposedly in the shoes, you can see the > left one already wanting to turn back in. Arrgh! > > I'm going to collect my thoughts and see if I can compose something > coherent to Dr. Ponseti. I am not sure if the photos I have taken are > good enough for him to see what's happening, though. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 they look VERY much like Kai's feet. That's what my first thought was when I viewed the pics - plantaris (I am getting more comfortable saying that out loud as I learn to recognize the signs). I didn't have time to write to you last night but I would not put shoes on those feet no way no how, they're so far NOT corrected it isn't funny. Why anyone... especially a doctor would think those feet were corrected is beyond me and it scares me to think that you'll EVER see that doctor again. I'd get these feet to Dr. Pirani or Ponseti with a quickness. I'd divorce my dh if I needed to even... I don't care how much I love him, when it comes to the children... they come first. He can go jump in a lake for all I care. Those feet need some very experienced hands, as soon as possible. Personally I'm drawn toward the idea of trying to let atypical feet relapse before starting casting again. If it's true that these feet are *made* rather than born this way... yes, it makes perfect sense to start over again from the beginning and try NOT to do that again. MAybe you just need to get your dh on the PHONE with Dr. Ponseti. I bet he'd change his mind with a quickness. Send Dr. P the photos and don't put the shoes back on. There's no way in hell that those feet could wear shoes... why try? Hugs, Kori At 06:58 AM 10/16/2005, you wrote: >Oh, I HATE when that happens (losing long emails)! > >I have added two more photos of the bottoms of >Hayden's feet, but will try to get the others you >suggested and upload them too. > >I can tell you that on the website you suggested, his >feet look EXACTLY like the photo of the little guy's >(Kai's) feet. He has skin folds on the outer edge of >each foot, short stubby feet (they're MAYBE a size >one?), short stubby big toes. I will point out out >that hubby's feet aren't big either and that my three >year old daughter's feet were very, very small as well >(still are, she's three next month and wears a size 5 >shoe), so some of the sizing is genetic it would seem >(almost glad for the kids because my older daughter >and I both have CLODHOPPERS!) > >I'll try and get those photos! > >--- faith slattery wrote: > > >--------------------------------- >, I just wrote a big long email and for some >reason my stupid internet connection failed. In short, >I was asking if you could either post more pic or send >me some more pics of the soles of his feet and side >views (preferably the side of the big toes), and of >the back of his feet and calves. If you could get me >some clearer pics of his feet, I may be able to advise >you better. I think he may have atypical feet, which >are harder to treat... especially in ignorant hands. >He certainly has the excess fat/ the short stubbiness >that accompanies them, btu his big toes doesn't seem >to stick out the way I've seen most of them do. What >I'd be looking for is a horizontal crease in the >middle of the soles of his feet, and and a thickness >of the mid-foot. Also, can you tell/show me if he has >extra creases in teh lower 1/3 of his calves (mostly >right above the heel). Here is web site that explains >better what I'm talking >about:http://adifferentfoot.freeservers.com/. It >explanes better what > atypical feet are and why they are harder to treat. I >would send Ponseti these photos too ASAP. He could >probably tell you what was going on. > > wrote:Hi there, I have >made a folder for Hayden and uploaded some photos. >As you can see from the 12th casts, his left foot is >still quite >sloped at the heel, much more than the right, even >though the rotation >appears to be 70 degrees. But when you see his feet >after just a few >weeks out of the casts, and supposedly in the shoes, >you can see the >left one already wanting to turn back in. Arrgh! > >I'm going to collect my thoughts and see if I can >compose something >coherent to Dr. Ponseti. I am not sure if the photos >I have taken are >good enough for him to see what's happening, though. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 they look VERY much like Kai's feet. That's what my first thought was when I viewed the pics - plantaris (I am getting more comfortable saying that out loud as I learn to recognize the signs). I didn't have time to write to you last night but I would not put shoes on those feet no way no how, they're so far NOT corrected it isn't funny. Why anyone... especially a doctor would think those feet were corrected is beyond me and it scares me to think that you'll EVER see that doctor again. I'd get these feet to Dr. Pirani or Ponseti with a quickness. I'd divorce my dh if I needed to even... I don't care how much I love him, when it comes to the children... they come first. He can go jump in a lake for all I care. Those feet need some very experienced hands, as soon as possible. Personally I'm drawn toward the idea of trying to let atypical feet relapse before starting casting again. If it's true that these feet are *made* rather than born this way... yes, it makes perfect sense to start over again from the beginning and try NOT to do that again. MAybe you just need to get your dh on the PHONE with Dr. Ponseti. I bet he'd change his mind with a quickness. Send Dr. P the photos and don't put the shoes back on. There's no way in hell that those feet could wear shoes... why try? Hugs, Kori At 06:58 AM 10/16/2005, you wrote: >Oh, I HATE when that happens (losing long emails)! > >I have added two more photos of the bottoms of >Hayden's feet, but will try to get the others you >suggested and upload them too. > >I can tell you that on the website you suggested, his >feet look EXACTLY like the photo of the little guy's >(Kai's) feet. He has skin folds on the outer edge of >each foot, short stubby feet (they're MAYBE a size >one?), short stubby big toes. I will point out out >that hubby's feet aren't big either and that my three >year old daughter's feet were very, very small as well >(still are, she's three next month and wears a size 5 >shoe), so some of the sizing is genetic it would seem >(almost glad for the kids because my older daughter >and I both have CLODHOPPERS!) > >I'll try and get those photos! > >--- faith slattery wrote: > > >--------------------------------- >, I just wrote a big long email and for some >reason my stupid internet connection failed. In short, >I was asking if you could either post more pic or send >me some more pics of the soles of his feet and side >views (preferably the side of the big toes), and of >the back of his feet and calves. If you could get me >some clearer pics of his feet, I may be able to advise >you better. I think he may have atypical feet, which >are harder to treat... especially in ignorant hands. >He certainly has the excess fat/ the short stubbiness >that accompanies them, btu his big toes doesn't seem >to stick out the way I've seen most of them do. What >I'd be looking for is a horizontal crease in the >middle of the soles of his feet, and and a thickness >of the mid-foot. Also, can you tell/show me if he has >extra creases in teh lower 1/3 of his calves (mostly >right above the heel). Here is web site that explains >better what I'm talking >about:http://adifferentfoot.freeservers.com/. It >explanes better what > atypical feet are and why they are harder to treat. I >would send Ponseti these photos too ASAP. He could >probably tell you what was going on. > > wrote:Hi there, I have >made a folder for Hayden and uploaded some photos. >As you can see from the 12th casts, his left foot is >still quite >sloped at the heel, much more than the right, even >though the rotation >appears to be 70 degrees. But when you see his feet >after just a few >weeks out of the casts, and supposedly in the shoes, >you can see the >left one already wanting to turn back in. Arrgh! > >I'm going to collect my thoughts and see if I can >compose something >coherent to Dr. Ponseti. I am not sure if the photos >I have taken are >good enough for him to see what's happening, though. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 , I am Kai's mother. I can tell you that all my children have small feet for their ages as well, but they are kind of small children LOL Kai's clubfoot has always been exceptionally shorter than the other - by 3/4 " or more - except for two times in his life. The first was after Dr Ponseti casted him, and the second is right now. He just came out of another set of two casts and his foot is within 1/2 inch of his normal foot. So, you see there are small feet, and then there are giesha feet ... Anyway, something that is pretty consistent in atypical clubfoot is an extremely short achilles. I know that Dr Alvarez has had some great success with Botox, but it seems she has forgotten to screen children for suitability. If Hayden's achilles is anything like Kai's was, no amount of stretching - even while paralyzed - is going to make it normal length. Dr Mosca told us once that some achilles tendons kind of gently drop when cut, and some snap. Kai's was one that snapped ... and his heel dropped from roughly the position of Hayden's to normal in moments. See, the difference in the photos you posted and those of Kai's foot is that Kai was actually standing with his heel on the floor. But right before the tenotomy his foot looked just like Hayden's. Dr Pirani has all the necessary experience and skill to help Hayden. We have even approached him about seeing Kai even tho we are American, and he has eagerly agreed if this last casting doesnt stay. Slipping in casts in extremely detrimental to the foot and can do alot of damage. If the casts are not staying on, there is a reason, and it needs to be addressed. Good luck, Angel Hi there, I have > made a folder for Hayden and uploaded some photos. > As you can see from the 12th casts, his left foot is > still quite > sloped at the heel, much more than the right, even > though the rotation > appears to be 70 degrees. But when you see his feet > after just a few > weeks out of the casts, and supposedly in the shoes, > you can see the > left one already wanting to turn back in. Arrgh! > > I'm going to collect my thoughts and see if I can > compose something > coherent to Dr. Ponseti. I am not sure if the photos > I have taken are > good enough for him to see what's happening, though. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 , I am Kai's mother. I can tell you that all my children have small feet for their ages as well, but they are kind of small children LOL Kai's clubfoot has always been exceptionally shorter than the other - by 3/4 " or more - except for two times in his life. The first was after Dr Ponseti casted him, and the second is right now. He just came out of another set of two casts and his foot is within 1/2 inch of his normal foot. So, you see there are small feet, and then there are giesha feet ... Anyway, something that is pretty consistent in atypical clubfoot is an extremely short achilles. I know that Dr Alvarez has had some great success with Botox, but it seems she has forgotten to screen children for suitability. If Hayden's achilles is anything like Kai's was, no amount of stretching - even while paralyzed - is going to make it normal length. Dr Mosca told us once that some achilles tendons kind of gently drop when cut, and some snap. Kai's was one that snapped ... and his heel dropped from roughly the position of Hayden's to normal in moments. See, the difference in the photos you posted and those of Kai's foot is that Kai was actually standing with his heel on the floor. But right before the tenotomy his foot looked just like Hayden's. Dr Pirani has all the necessary experience and skill to help Hayden. We have even approached him about seeing Kai even tho we are American, and he has eagerly agreed if this last casting doesnt stay. Slipping in casts in extremely detrimental to the foot and can do alot of damage. If the casts are not staying on, there is a reason, and it needs to be addressed. Good luck, Angel Hi there, I have > made a folder for Hayden and uploaded some photos. > As you can see from the 12th casts, his left foot is > still quite > sloped at the heel, much more than the right, even > though the rotation > appears to be 70 degrees. But when you see his feet > after just a few > weeks out of the casts, and supposedly in the shoes, > you can see the > left one already wanting to turn back in. Arrgh! > > I'm going to collect my thoughts and see if I can > compose something > coherent to Dr. Ponseti. I am not sure if the photos > I have taken are > good enough for him to see what's happening, though. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 Now that you've posted those last pictures, I'd definitely say he's atypical. You just need to get him to someone experienced right away! It's important that they feet not be handled by someone who doesn't know what they are doing -- they can cause more damage than good.Then after having done damage.. they want to do surgery! In the right hands, your son has a good chance of have no, if very minimal, surgery ( alot of us atypical parents are faced withthe possiblility of the ATT) . Your son's feet and the treatment of them are something he'll have to live withthe rest of his life... Proper correction is absolutely the best gift you can give him! Hi there, I have > > made a folder for Hayden and uploaded some photos. > > As you can see from the 12th casts, his left foot is > > still quite > > sloped at the heel, much more than the right, even > > though the rotation > > appears to be 70 degrees. But when you see his feet > > after just a few > > weeks out of the casts, and supposedly in the shoes, > > you can see the > > left one already wanting to turn back in. Arrgh! > > > > I'm going to collect my thoughts and see if I can > > compose something > > coherent to Dr. Ponseti. I am not sure if the photos > > I have taken are > > good enough for him to see what's happening, though. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 Now that you've posted those last pictures, I'd definitely say he's atypical. You just need to get him to someone experienced right away! It's important that they feet not be handled by someone who doesn't know what they are doing -- they can cause more damage than good.Then after having done damage.. they want to do surgery! In the right hands, your son has a good chance of have no, if very minimal, surgery ( alot of us atypical parents are faced withthe possiblility of the ATT) . Your son's feet and the treatment of them are something he'll have to live withthe rest of his life... Proper correction is absolutely the best gift you can give him! Hi there, I have > > made a folder for Hayden and uploaded some photos. > > As you can see from the 12th casts, his left foot is > > still quite > > sloped at the heel, much more than the right, even > > though the rotation > > appears to be 70 degrees. But when you see his feet > > after just a few > > weeks out of the casts, and supposedly in the shoes, > > you can see the > > left one already wanting to turn back in. Arrgh! > > > > I'm going to collect my thoughts and see if I can > > compose something > > coherent to Dr. Ponseti. I am not sure if the photos > > I have taken are > > good enough for him to see what's happening, though. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 Geisha feet...heehee! I took ink prints of Hayden's feet the other day and they are as wide as they are long! I had a good chuckle over how cute they were! Basically what I have been doing is taking the shoes off as soon as Hayden begins to fuss (and I notice they are slipping). Then I just massage his feet and stretch them a little and put the shoes back on when I feel like it. My husband and I are going to take him to the ortho place on Monday to ask what more can be done. Well, HE is - this is my concession to him agreeing to let Hayden see Dr. Pirani. We kind of " had it out " last night and I think what a lot of his resistance boils down to is that he might be embarrassed and feel he is losing face in the eyes of Dr. A if we change. Ridiculous. As if she will even care - she has plenty of clients. The description of the tendon is interesting - when I am doing the stretches on Hayden's feet, his left tendon in particular feels very taut and almost rope-like or as hard as a bone when I do the dorsi-flexion. It would see to me that since Dr. A has been using the Botox for five years and probably treating clubfoot for longer than that, that she would know about the detriments of slipping casts and also about atypical clubfoot. This is why I want to see Dr. Pirani so much. I'm going to go and get the referral this week and then see him on the 25th. Kind of did it backwards (thanks to )), but there you go. I think what angers me the most about this situation is that we were not offered options in the beginning. We were referred immediately to the Children's Hospital because it is joined to the Women's Hospital where Hayden was born. No one said " go home and get used to the idea and do some research and make a decision because there is Option A and Option B, etc. " We were given the choice of casting him at two days or waiting a week, but the assumption was there that we were returning to Children's for the treatment at any rate. I am so mad that I didn't take a moment to think about it and explore the options, but it was all such a blur and so overwhelming. When I was told I had to have another c-section after my other birth, I researched for two years and guess what? No c-section. Thank goodness that it isn't too late and he is still very little and his feet will get fixed. Ijust want to start enjoying his infancy and relax a little bit. --- angelmommy23 wrote: --------------------------------- , I am Kai's mother. I can tell you that all my children have small feet for their ages as well, but they are kind of small children LOL Kai's clubfoot has always been exceptionally shorter than the other - by 3/4 " or more - except for two times in his life. The first was after Dr Ponseti casted him, and the second is right now. He just came out of another set of two casts and his foot is within 1/2 inch of his normal foot. So, you see there are small feet, and then there are giesha feet ... Anyway, something that is pretty consistent in atypical clubfoot is an extremely short achilles. I know that Dr Alvarez has had some great success with Botox, but it seems she has forgotten to screen children for suitability. If Hayden's achilles is anything like Kai's was, no amount of stretching - even while paralyzed - is going to make it normal length. Dr Mosca told us once that some achilles tendons kind of gently drop when cut, and some snap. Kai's was one that snapped ... and his heel dropped from roughly the position of Hayden's to normal in moments. See, the difference in the photos you posted and those of Kai's foot is that Kai was actually standing with his heel on the floor. But right before the tenotomy his foot looked just like Hayden's. Dr Pirani has all the necessary experience and skill to help Hayden. We have even approached him about seeing Kai even tho we are American, and he has eagerly agreed if this last casting doesnt stay. Slipping in casts in extremely detrimental to the foot and can do alot of damage. If the casts are not staying on, there is a reason, and it needs to be addressed. Good luck, Angel Hi there, I have > made a folder for Hayden and uploaded some photos. > As you can see from the 12th casts, his left foot is > still quite > sloped at the heel, much more than the right, even > though the rotation > appears to be 70 degrees. But when you see his feet > after just a few > weeks out of the casts, and supposedly in the shoes, > you can see the > left one already wanting to turn back in. Arrgh! > > I'm going to collect my thoughts and see if I can > compose something > coherent to Dr. Ponseti. I am not sure if the photos > I have taken are > good enough for him to see what's happening, though. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 Geisha feet...heehee! I took ink prints of Hayden's feet the other day and they are as wide as they are long! I had a good chuckle over how cute they were! Basically what I have been doing is taking the shoes off as soon as Hayden begins to fuss (and I notice they are slipping). Then I just massage his feet and stretch them a little and put the shoes back on when I feel like it. My husband and I are going to take him to the ortho place on Monday to ask what more can be done. Well, HE is - this is my concession to him agreeing to let Hayden see Dr. Pirani. We kind of " had it out " last night and I think what a lot of his resistance boils down to is that he might be embarrassed and feel he is losing face in the eyes of Dr. A if we change. Ridiculous. As if she will even care - she has plenty of clients. The description of the tendon is interesting - when I am doing the stretches on Hayden's feet, his left tendon in particular feels very taut and almost rope-like or as hard as a bone when I do the dorsi-flexion. It would see to me that since Dr. A has been using the Botox for five years and probably treating clubfoot for longer than that, that she would know about the detriments of slipping casts and also about atypical clubfoot. This is why I want to see Dr. Pirani so much. I'm going to go and get the referral this week and then see him on the 25th. Kind of did it backwards (thanks to )), but there you go. I think what angers me the most about this situation is that we were not offered options in the beginning. We were referred immediately to the Children's Hospital because it is joined to the Women's Hospital where Hayden was born. No one said " go home and get used to the idea and do some research and make a decision because there is Option A and Option B, etc. " We were given the choice of casting him at two days or waiting a week, but the assumption was there that we were returning to Children's for the treatment at any rate. I am so mad that I didn't take a moment to think about it and explore the options, but it was all such a blur and so overwhelming. When I was told I had to have another c-section after my other birth, I researched for two years and guess what? No c-section. Thank goodness that it isn't too late and he is still very little and his feet will get fixed. Ijust want to start enjoying his infancy and relax a little bit. --- angelmommy23 wrote: --------------------------------- , I am Kai's mother. I can tell you that all my children have small feet for their ages as well, but they are kind of small children LOL Kai's clubfoot has always been exceptionally shorter than the other - by 3/4 " or more - except for two times in his life. The first was after Dr Ponseti casted him, and the second is right now. He just came out of another set of two casts and his foot is within 1/2 inch of his normal foot. So, you see there are small feet, and then there are giesha feet ... Anyway, something that is pretty consistent in atypical clubfoot is an extremely short achilles. I know that Dr Alvarez has had some great success with Botox, but it seems she has forgotten to screen children for suitability. If Hayden's achilles is anything like Kai's was, no amount of stretching - even while paralyzed - is going to make it normal length. Dr Mosca told us once that some achilles tendons kind of gently drop when cut, and some snap. Kai's was one that snapped ... and his heel dropped from roughly the position of Hayden's to normal in moments. See, the difference in the photos you posted and those of Kai's foot is that Kai was actually standing with his heel on the floor. But right before the tenotomy his foot looked just like Hayden's. Dr Pirani has all the necessary experience and skill to help Hayden. We have even approached him about seeing Kai even tho we are American, and he has eagerly agreed if this last casting doesnt stay. Slipping in casts in extremely detrimental to the foot and can do alot of damage. If the casts are not staying on, there is a reason, and it needs to be addressed. Good luck, Angel Hi there, I have > made a folder for Hayden and uploaded some photos. > As you can see from the 12th casts, his left foot is > still quite > sloped at the heel, much more than the right, even > though the rotation > appears to be 70 degrees. But when you see his feet > after just a few > weeks out of the casts, and supposedly in the shoes, > you can see the > left one already wanting to turn back in. Arrgh! > > I'm going to collect my thoughts and see if I can > compose something > coherent to Dr. Ponseti. I am not sure if the photos > I have taken are > good enough for him to see what's happening, though. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 I was hoping you would get the humor in that lol It is funny with all the treatment being geared towards " perfect feet " how very adorable a non-perfect foot is! Something for your husband to think about - and maybe it will make him feel better about going to Dr Pirani - is that a good doctor, in any specialty, will not be threatened or offended by their patients seeking a second opinion, especially if things are not going quite as planned. A good doctor will, in fact, encourage their patients to get a second opinion. Doctors are human, just like the rest of us, and sometime they miss something. A second opinion should be an opportunity to learn. When we decided to take Kai to Dr Ponseti, I was afraid that Dr Mosca would feel slighted. Instead, he gave us his blessing and only asked that he be the first to see Kai's foot after the last cast was removed. I corresponded with him from Iowa, telling him the things that Dr Ponseti told us. Dr Mosca was indeed the first to see Kai's foot after the cast was removed, and he stood there in front of another doctor who he was training and thanked me, yes, THANKED ME, for bringing him knowledge. From that time, he has always listened to my husband and I with an open mind and interest, and more than once and taken our ideas and suggestions and applied them to Kai's treatment. If Dr Alvarez is a good as she should be - and I understand that she really is a Ponseti doctor who is only trying to further the non- surgical aspect of treatment - then she should be happy for you to seek out a second opinion with Dr Pirani, whom she SHOULD have the highest respect for, and she should be eager to hear his thoughts on your son's condition. If she is offended by the sittuation, then she has a god complex and you really should run far from her. Dr Alvarez has let this sittuation with Hayden go too long. It is sometimes hard for a doctor to admit that they have run into something new to them, and that is unfortunate; but how graciously she deals with this fact from here out is the real teller about her. Best wishes, Angel > > Geisha feet...heehee! I took ink prints of Hayden's > feet the other day and they are as wide as they are > long! I had a good chuckle over how cute they were! > > Basically what I have been doing is taking the shoes > off as soon as Hayden begins to fuss (and I notice > they are slipping). Then I just massage his feet and > stretch them a little and put the shoes back on when I > feel like it. My husband and I are going to take him > to the ortho place on Monday to ask what more can be > done. Well, HE is - this is my concession to him > agreeing to let Hayden see Dr. Pirani. We kind of > " had it out " last night and I think what a lot of his > resistance boils down to is that he might be > embarrassed and feel he is losing face in the eyes of > Dr. A if we change. Ridiculous. As if she will even > care - she has plenty of clients. > > The description of the tendon is interesting - when I > am doing the stretches on Hayden's feet, his left > tendon in particular feels very taut and almost > rope-like or as hard as a bone when I do the > dorsi-flexion. > > It would see to me that since Dr. A has been using the > Botox for five years and probably treating clubfoot > for longer than that, that she would know about the > detriments of slipping casts and also about atypical > clubfoot. This is why I want to see Dr. Pirani so > much. I'm going to go and get the referral this week > and then see him on the 25th. Kind of did it > backwards (thanks to )), but there you go. > > I think what angers me the most about this situation > is that we were not offered options in the beginning. > We were referred immediately to the Children's > Hospital because it is joined to the Women's Hospital > where Hayden was born. No one said " go home and get > used to the idea and do some research and make a > decision because there is Option A and Option B, etc. " > We were given the choice of casting him at two days > or waiting a week, but the assumption was there that > we were returning to Children's for the treatment at > any rate. I am so mad that I didn't take a moment to > think about it and explore the options, but it was all > such a blur and so overwhelming. When I was told I > had to have another c-section after my other birth, I > researched for two years and guess what? No > c-section. > > Thank goodness that it isn't too late and he is still > very little and his feet will get fixed. Ijust want > to start enjoying his infancy and relax a little bit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 I was hoping you would get the humor in that lol It is funny with all the treatment being geared towards " perfect feet " how very adorable a non-perfect foot is! Something for your husband to think about - and maybe it will make him feel better about going to Dr Pirani - is that a good doctor, in any specialty, will not be threatened or offended by their patients seeking a second opinion, especially if things are not going quite as planned. A good doctor will, in fact, encourage their patients to get a second opinion. Doctors are human, just like the rest of us, and sometime they miss something. A second opinion should be an opportunity to learn. When we decided to take Kai to Dr Ponseti, I was afraid that Dr Mosca would feel slighted. Instead, he gave us his blessing and only asked that he be the first to see Kai's foot after the last cast was removed. I corresponded with him from Iowa, telling him the things that Dr Ponseti told us. Dr Mosca was indeed the first to see Kai's foot after the cast was removed, and he stood there in front of another doctor who he was training and thanked me, yes, THANKED ME, for bringing him knowledge. From that time, he has always listened to my husband and I with an open mind and interest, and more than once and taken our ideas and suggestions and applied them to Kai's treatment. If Dr Alvarez is a good as she should be - and I understand that she really is a Ponseti doctor who is only trying to further the non- surgical aspect of treatment - then she should be happy for you to seek out a second opinion with Dr Pirani, whom she SHOULD have the highest respect for, and she should be eager to hear his thoughts on your son's condition. If she is offended by the sittuation, then she has a god complex and you really should run far from her. Dr Alvarez has let this sittuation with Hayden go too long. It is sometimes hard for a doctor to admit that they have run into something new to them, and that is unfortunate; but how graciously she deals with this fact from here out is the real teller about her. Best wishes, Angel > > Geisha feet...heehee! I took ink prints of Hayden's > feet the other day and they are as wide as they are > long! I had a good chuckle over how cute they were! > > Basically what I have been doing is taking the shoes > off as soon as Hayden begins to fuss (and I notice > they are slipping). Then I just massage his feet and > stretch them a little and put the shoes back on when I > feel like it. My husband and I are going to take him > to the ortho place on Monday to ask what more can be > done. Well, HE is - this is my concession to him > agreeing to let Hayden see Dr. Pirani. We kind of > " had it out " last night and I think what a lot of his > resistance boils down to is that he might be > embarrassed and feel he is losing face in the eyes of > Dr. A if we change. Ridiculous. As if she will even > care - she has plenty of clients. > > The description of the tendon is interesting - when I > am doing the stretches on Hayden's feet, his left > tendon in particular feels very taut and almost > rope-like or as hard as a bone when I do the > dorsi-flexion. > > It would see to me that since Dr. A has been using the > Botox for five years and probably treating clubfoot > for longer than that, that she would know about the > detriments of slipping casts and also about atypical > clubfoot. This is why I want to see Dr. Pirani so > much. I'm going to go and get the referral this week > and then see him on the 25th. Kind of did it > backwards (thanks to )), but there you go. > > I think what angers me the most about this situation > is that we were not offered options in the beginning. > We were referred immediately to the Children's > Hospital because it is joined to the Women's Hospital > where Hayden was born. No one said " go home and get > used to the idea and do some research and make a > decision because there is Option A and Option B, etc. " > We were given the choice of casting him at two days > or waiting a week, but the assumption was there that > we were returning to Children's for the treatment at > any rate. I am so mad that I didn't take a moment to > think about it and explore the options, but it was all > such a blur and so overwhelming. When I was told I > had to have another c-section after my other birth, I > researched for two years and guess what? No > c-section. > > Thank goodness that it isn't too late and he is still > very little and his feet will get fixed. Ijust want > to start enjoying his infancy and relax a little bit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 Good. I'm glad you're going to someone else. One thing you should keep in mind is atypical feet don't usually work with Markell's. I've only heard of two cases now in the year and a half I've been active on the board where the Makell's actually worked with these feet. i would look into shoes with a Poneti brace before Hayden gets ready to go into shoes again. Most of us got to the point you are at now... Markell shoes... crying... screaming.. blisters... before we found out about our kids atypical feet. The shoes are hand-made for each child. They work with the chubby/short feet and the limited dorsiflextion. They also help to correct the cavus deformity.... often more than casting does. I'd still contact Ponseti and send him these pictures. I'm sure he'll tell you the same. I don't have the 's new info right on hand, but if you want it I can send you the info and the pamphlet that comes with the shoes. Cohen wrote: Geisha feet...heehee! I took ink prints of Hayden's feet the other day and they are as wide as they are long! I had a good chuckle over how cute they were! Basically what I have been doing is taking the shoes off as soon as Hayden begins to fuss (and I notice they are slipping). Then I just massage his feet and stretch them a little and put the shoes back on when I feel like it. My husband and I are going to take him to the ortho place on Monday to ask what more can be done. Well, HE is - this is my concession to him agreeing to let Hayden see Dr. Pirani. We kind of " had it out " last night and I think what a lot of his resistance boils down to is that he might be embarrassed and feel he is losing face in the eyes of Dr. A if we change. Ridiculous. As if she will even care - she has plenty of clients. The description of the tendon is interesting - when I am doing the stretches on Hayden's feet, his left tendon in particular feels very taut and almost rope-like or as hard as a bone when I do the dorsi-flexion. It would see to me that since Dr. A has been using the Botox for five years and probably treating clubfoot for longer than that, that she would know about the detriments of slipping casts and also about atypical clubfoot. This is why I want to see Dr. Pirani so much. I'm going to go and get the referral this week and then see him on the 25th. Kind of did it backwards (thanks to )), but there you go. I think what angers me the most about this situation is that we were not offered options in the beginning. We were referred immediately to the Children's Hospital because it is joined to the Women's Hospital where Hayden was born. No one said " go home and get used to the idea and do some research and make a decision because there is Option A and Option B, etc. " We were given the choice of casting him at two days or waiting a week, but the assumption was there that we were returning to Children's for the treatment at any rate. I am so mad that I didn't take a moment to think about it and explore the options, but it was all such a blur and so overwhelming. When I was told I had to have another c-section after my other birth, I researched for two years and guess what? No c-section. Thank goodness that it isn't too late and he is still very little and his feet will get fixed. Ijust want to start enjoying his infancy and relax a little bit. --- angelmommy23 wrote: --------------------------------- , I am Kai's mother. I can tell you that all my children have small feet for their ages as well, but they are kind of small children LOL Kai's clubfoot has always been exceptionally shorter than the other - by 3/4 " or more - except for two times in his life. The first was after Dr Ponseti casted him, and the second is right now. He just came out of another set of two casts and his foot is within 1/2 inch of his normal foot. So, you see there are small feet, and then there are giesha feet ... Anyway, something that is pretty consistent in atypical clubfoot is an extremely short achilles. I know that Dr Alvarez has had some great success with Botox, but it seems she has forgotten to screen children for suitability. If Hayden's achilles is anything like Kai's was, no amount of stretching - even while paralyzed - is going to make it normal length. Dr Mosca told us once that some achilles tendons kind of gently drop when cut, and some snap. Kai's was one that snapped ... and his heel dropped from roughly the position of Hayden's to normal in moments. See, the difference in the photos you posted and those of Kai's foot is that Kai was actually standing with his heel on the floor. But right before the tenotomy his foot looked just like Hayden's. Dr Pirani has all the necessary experience and skill to help Hayden. We have even approached him about seeing Kai even tho we are American, and he has eagerly agreed if this last casting doesnt stay. Slipping in casts in extremely detrimental to the foot and can do alot of damage. If the casts are not staying on, there is a reason, and it needs to be addressed. Good luck, Angel Hi there, I have > made a folder for Hayden and uploaded some photos. > As you can see from the 12th casts, his left foot is > still quite > sloped at the heel, much more than the right, even > though the rotation > appears to be 70 degrees. But when you see his feet > after just a few > weeks out of the casts, and supposedly in the shoes, > you can see the > left one already wanting to turn back in. Arrgh! > > I'm going to collect my thoughts and see if I can > compose something > coherent to Dr. Ponseti. I am not sure if the photos > I have taken are > good enough for him to see what's happening, though. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 Good. I'm glad you're going to someone else. One thing you should keep in mind is atypical feet don't usually work with Markell's. I've only heard of two cases now in the year and a half I've been active on the board where the Makell's actually worked with these feet. i would look into shoes with a Poneti brace before Hayden gets ready to go into shoes again. Most of us got to the point you are at now... Markell shoes... crying... screaming.. blisters... before we found out about our kids atypical feet. The shoes are hand-made for each child. They work with the chubby/short feet and the limited dorsiflextion. They also help to correct the cavus deformity.... often more than casting does. I'd still contact Ponseti and send him these pictures. I'm sure he'll tell you the same. I don't have the 's new info right on hand, but if you want it I can send you the info and the pamphlet that comes with the shoes. Cohen wrote: Geisha feet...heehee! I took ink prints of Hayden's feet the other day and they are as wide as they are long! I had a good chuckle over how cute they were! Basically what I have been doing is taking the shoes off as soon as Hayden begins to fuss (and I notice they are slipping). Then I just massage his feet and stretch them a little and put the shoes back on when I feel like it. My husband and I are going to take him to the ortho place on Monday to ask what more can be done. Well, HE is - this is my concession to him agreeing to let Hayden see Dr. Pirani. We kind of " had it out " last night and I think what a lot of his resistance boils down to is that he might be embarrassed and feel he is losing face in the eyes of Dr. A if we change. Ridiculous. As if she will even care - she has plenty of clients. The description of the tendon is interesting - when I am doing the stretches on Hayden's feet, his left tendon in particular feels very taut and almost rope-like or as hard as a bone when I do the dorsi-flexion. It would see to me that since Dr. A has been using the Botox for five years and probably treating clubfoot for longer than that, that she would know about the detriments of slipping casts and also about atypical clubfoot. This is why I want to see Dr. Pirani so much. I'm going to go and get the referral this week and then see him on the 25th. Kind of did it backwards (thanks to )), but there you go. I think what angers me the most about this situation is that we were not offered options in the beginning. We were referred immediately to the Children's Hospital because it is joined to the Women's Hospital where Hayden was born. No one said " go home and get used to the idea and do some research and make a decision because there is Option A and Option B, etc. " We were given the choice of casting him at two days or waiting a week, but the assumption was there that we were returning to Children's for the treatment at any rate. I am so mad that I didn't take a moment to think about it and explore the options, but it was all such a blur and so overwhelming. When I was told I had to have another c-section after my other birth, I researched for two years and guess what? No c-section. Thank goodness that it isn't too late and he is still very little and his feet will get fixed. Ijust want to start enjoying his infancy and relax a little bit. --- angelmommy23 wrote: --------------------------------- , I am Kai's mother. I can tell you that all my children have small feet for their ages as well, but they are kind of small children LOL Kai's clubfoot has always been exceptionally shorter than the other - by 3/4 " or more - except for two times in his life. The first was after Dr Ponseti casted him, and the second is right now. He just came out of another set of two casts and his foot is within 1/2 inch of his normal foot. So, you see there are small feet, and then there are giesha feet ... Anyway, something that is pretty consistent in atypical clubfoot is an extremely short achilles. I know that Dr Alvarez has had some great success with Botox, but it seems she has forgotten to screen children for suitability. If Hayden's achilles is anything like Kai's was, no amount of stretching - even while paralyzed - is going to make it normal length. Dr Mosca told us once that some achilles tendons kind of gently drop when cut, and some snap. Kai's was one that snapped ... and his heel dropped from roughly the position of Hayden's to normal in moments. See, the difference in the photos you posted and those of Kai's foot is that Kai was actually standing with his heel on the floor. But right before the tenotomy his foot looked just like Hayden's. Dr Pirani has all the necessary experience and skill to help Hayden. We have even approached him about seeing Kai even tho we are American, and he has eagerly agreed if this last casting doesnt stay. Slipping in casts in extremely detrimental to the foot and can do alot of damage. If the casts are not staying on, there is a reason, and it needs to be addressed. Good luck, Angel Hi there, I have > made a folder for Hayden and uploaded some photos. > As you can see from the 12th casts, his left foot is > still quite > sloped at the heel, much more than the right, even > though the rotation > appears to be 70 degrees. But when you see his feet > after just a few > weeks out of the casts, and supposedly in the shoes, > you can see the > left one already wanting to turn back in. Arrgh! > > I'm going to collect my thoughts and see if I can > compose something > coherent to Dr. Ponseti. I am not sure if the photos > I have taken are > good enough for him to see what's happening, though. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 , what you describe happens more often than you might realize - how you are ushered in to a treatment and not encouraged to seek information / alternatives. That's hwo it was when my oldest was born. The midwife pushed me to see a doctor asap, the baby-doctor pushed me to see this certain orthodic (?) specialist....it just snow balled, everyone was in this big @$$ hurry to get their hands on his feet and when a momma is still freshly post-partum and faced with a surprise birth defect, you just find yourself rolling with that snow ball that you eventually get burried in. You are very fortunate to have information now. Seven years ago there was surprisingly little information about cf on the internet, and even less about Dr. Ponseti. But that aside, I didn't look in to alternatives. That was my mistake, and my ignorance, and now, my cross to bear. I've had sons treated by both traditional and Ponseti methods, the difference is black and white and I promise you won't regret making the change. Your life will become suddenly simplified! That's one of the main differences I found was how " Simple " the ponseti method was compared to the traditional method, and yet the results were so amazing. When my 2nd son was born two years ago the hospital pediatritian came in twice pushing me to start casting before we even went home, telling me it'll be months of casting and probably surgery, etc. I kept trying to tell him about the Ponseti method but he was not open to hearing it. I finally had to just stand firm (rude?) and refuse to let him touch Everett's feet. We went home for 2 weeks, then drove to Iowa City. Hang in there! s. Re: Re: Photos Uploaded Geisha feet...heehee! I took ink prints of Hayden's feet the other day and they are as wide as they are long! I had a good chuckle over how cute they were! Basically what I have been doing is taking the shoes off as soon as Hayden begins to fuss (and I notice they are slipping). Then I just massage his feet and stretch them a little and put the shoes back on when I feel like it. My husband and I are going to take him to the ortho place on Monday to ask what more can be done. Well, HE is - this is my concession to him agreeing to let Hayden see Dr. Pirani. We kind of " had it out " last night and I think what a lot of his resistance boils down to is that he might be embarrassed and feel he is losing face in the eyes of Dr. A if we change. Ridiculous. As if she will even care - she has plenty of clients. The description of the tendon is interesting - when I am doing the stretches on Hayden's feet, his left tendon in particular feels very taut and almost rope-like or as hard as a bone when I do the dorsi-flexion. It would see to me that since Dr. A has been using the Botox for five years and probably treating clubfoot for longer than that, that she would know about the detriments of slipping casts and also about atypical clubfoot. This is why I want to see Dr. Pirani so much. I'm going to go and get the referral this week and then see him on the 25th. Kind of did it backwards (thanks to )), but there you go. I think what angers me the most about this situation is that we were not offered options in the beginning. We were referred immediately to the Children's Hospital because it is joined to the Women's Hospital where Hayden was born. No one said " go home and get used to the idea and do some research and make a decision because there is Option A and Option B, etc. " We were given the choice of casting him at two days or waiting a week, but the assumption was there that we were returning to Children's for the treatment at any rate. I am so mad that I didn't take a moment to think about it and explore the options, but it was all such a blur and so overwhelming. When I was told I had to have another c-section after my other birth, I researched for two years and guess what? No c-section. Thank goodness that it isn't too late and he is still very little and his feet will get fixed. Ijust want to start enjoying his infancy and relax a little bit. --- angelmommy23 wrote: --------------------------------- , I am Kai's mother. I can tell you that all my children have small feet for their ages as well, but they are kind of small children LOL Kai's clubfoot has always been exceptionally shorter than the other - by 3/4 " or more - except for two times in his life. The first was after Dr Ponseti casted him, and the second is right now. He just came out of another set of two casts and his foot is within 1/2 inch of his normal foot. So, you see there are small feet, and then there are giesha feet ... Anyway, something that is pretty consistent in atypical clubfoot is an extremely short achilles. I know that Dr Alvarez has had some great success with Botox, but it seems she has forgotten to screen children for suitability. If Hayden's achilles is anything like Kai's was, no amount of stretching - even while paralyzed - is going to make it normal length. Dr Mosca told us once that some achilles tendons kind of gently drop when cut, and some snap. Kai's was one that snapped ... and his heel dropped from roughly the position of Hayden's to normal in moments. See, the difference in the photos you posted and those of Kai's foot is that Kai was actually standing with his heel on the floor. But right before the tenotomy his foot looked just like Hayden's. Dr Pirani has all the necessary experience and skill to help Hayden. We have even approached him about seeing Kai even tho we are American, and he has eagerly agreed if this last casting doesnt stay. Slipping in casts in extremely detrimental to the foot and can do alot of damage. If the casts are not staying on, there is a reason, and it needs to be addressed. Good luck, Angel Hi there, I have > made a folder for Hayden and uploaded some photos. > As you can see from the 12th casts, his left foot is > still quite > sloped at the heel, much more than the right, even > though the rotation > appears to be 70 degrees. But when you see his feet > after just a few > weeks out of the casts, and supposedly in the shoes, > you can see the > left one already wanting to turn back in. Arrgh! > > I'm going to collect my thoughts and see if I can > compose something > coherent to Dr. Ponseti. I am not sure if the photos > I have taken are > good enough for him to see what's happening, though. > > > > > > Quote Link to comment Share on other sites More sharing options...
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