Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 Joy, Hang in there. Mom to 6-11-05 corrected BL CF P/M 22/7 Joy wrote: On Thursday, Oct 13, we went to see Dr. Koop. Dr. Koop had short-leg casts placed on Grant because of his one knee that needs to be exercised. The casts were only left on until Monday, Oct 17, because we wanted to make sure Grant wasn't getting blisters or sores. Since he doesn't have feeling from the knees down due to the spina bifida, he wouldn't be able to tell us he was getting sores. On Monday, we returned for the cast removal. There has been some correction in both feet, but more so in the right foot. Grant is now sporting a full-length cast and a short cast. We want his left knee to be exercised due to how inflexible it was at birth. We have seen some progress in the knee, but it still likes to do its own thing. On Friday of next week, birth to three will be coming out, and we'll be starting some therapy on his leg. Here I thought I was prepared for the whole clubfoot thing, but it seems like a different ballgame with the SB! I really want to run to Dr. Ponseti for reassurance. Rose is due for an appointment, and I think I'll be making one for her soon. Grant will be coming along. So, we are onto weekly appointments for casting changes. I can't believe how sad I was when they put Grant in his first casts, though. I really had a tough time with his little " curly toes " (my 4yo's words for them) being put in plaster. You'd think I would have been cool with it. I'm supposed to be an old pro, right?! Joy http://www.geocities.com/joybelle15/rosesclubfootpage.html __________________________________ Start your day with Yahoo! - Make it your home page! http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 Joy, Hang in there. Mom to 6-11-05 corrected BL CF P/M 22/7 Joy wrote: On Thursday, Oct 13, we went to see Dr. Koop. Dr. Koop had short-leg casts placed on Grant because of his one knee that needs to be exercised. The casts were only left on until Monday, Oct 17, because we wanted to make sure Grant wasn't getting blisters or sores. Since he doesn't have feeling from the knees down due to the spina bifida, he wouldn't be able to tell us he was getting sores. On Monday, we returned for the cast removal. There has been some correction in both feet, but more so in the right foot. Grant is now sporting a full-length cast and a short cast. We want his left knee to be exercised due to how inflexible it was at birth. We have seen some progress in the knee, but it still likes to do its own thing. On Friday of next week, birth to three will be coming out, and we'll be starting some therapy on his leg. Here I thought I was prepared for the whole clubfoot thing, but it seems like a different ballgame with the SB! I really want to run to Dr. Ponseti for reassurance. Rose is due for an appointment, and I think I'll be making one for her soon. Grant will be coming along. So, we are onto weekly appointments for casting changes. I can't believe how sad I was when they put Grant in his first casts, though. I really had a tough time with his little " curly toes " (my 4yo's words for them) being put in plaster. You'd think I would have been cool with it. I'm supposed to be an old pro, right?! Joy http://www.geocities.com/joybelle15/rosesclubfootpage.html __________________________________ Start your day with Yahoo! - Make it your home page! http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 Ah Joy, Thanks for the update. I didn't post before but he's a beautiful boy! You are very lucky to have him. I think in general... plaster and babies don't mix well lol... a little too hard and squishy at the same time :-D I totally understand how it hurts the heart. I would be interested in hearing what Dr. Ponseti says about his feet/legs as well. Are they planning on any surgical correction on his sb site? Can they improve things for him with that or not? Big Hugs, Kori At 11:50 AM 10/20/2005, you wrote: >On Thursday, Oct 13, we went to see Dr. Koop. Dr. Koop had short-leg casts >placed on Grant because of his one knee that needs to be exercised. The casts >were only left on until Monday, Oct 17, because we wanted to make sure Grant >wasn't getting blisters or sores. Since he doesn't have feeling >from the knees >down due to the spina bifida, he wouldn't be able to tell us he was getting >sores. > >On Monday, we returned for the cast removal. There has been some >correction in >both feet, but more so in the right foot. Grant is now sporting a full-length >cast and a short cast. We want his left knee to be exercised due to how >inflexible it was at birth. We have seen some progress in the knee, but it >still likes to do its own thing. On Friday of next week, birth to three will >be coming out, and we'll be starting some therapy on his leg. > >Here I thought I was prepared for the whole clubfoot thing, but it >seems like a >different ballgame with the SB! I really want to run to Dr. Ponseti for >reassurance. Rose is due for an appointment, and I think I'll be making one >for her soon. Grant will be coming along. > >So, we are onto weekly appointments for casting changes. I can't believe how >sad I was when they put Grant in his first casts, though. I really >had a tough >time with his little " curly toes " (my 4yo's words for them) being put in >plaster. You'd think I would have been cool with it. I'm supposed to be an >old pro, right?! > >Joy > > >http://www.geocities.com/joybelle15/rosesclubfootpage.html > > > >__________________________________ >Start your day with Yahoo! - Make it your home page! >http://www.yahoo.com/r/hs > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 Ah Joy, Thanks for the update. I didn't post before but he's a beautiful boy! You are very lucky to have him. I think in general... plaster and babies don't mix well lol... a little too hard and squishy at the same time :-D I totally understand how it hurts the heart. I would be interested in hearing what Dr. Ponseti says about his feet/legs as well. Are they planning on any surgical correction on his sb site? Can they improve things for him with that or not? Big Hugs, Kori At 11:50 AM 10/20/2005, you wrote: >On Thursday, Oct 13, we went to see Dr. Koop. Dr. Koop had short-leg casts >placed on Grant because of his one knee that needs to be exercised. The casts >were only left on until Monday, Oct 17, because we wanted to make sure Grant >wasn't getting blisters or sores. Since he doesn't have feeling >from the knees >down due to the spina bifida, he wouldn't be able to tell us he was getting >sores. > >On Monday, we returned for the cast removal. There has been some >correction in >both feet, but more so in the right foot. Grant is now sporting a full-length >cast and a short cast. We want his left knee to be exercised due to how >inflexible it was at birth. We have seen some progress in the knee, but it >still likes to do its own thing. On Friday of next week, birth to three will >be coming out, and we'll be starting some therapy on his leg. > >Here I thought I was prepared for the whole clubfoot thing, but it >seems like a >different ballgame with the SB! I really want to run to Dr. Ponseti for >reassurance. Rose is due for an appointment, and I think I'll be making one >for her soon. Grant will be coming along. > >So, we are onto weekly appointments for casting changes. I can't believe how >sad I was when they put Grant in his first casts, though. I really >had a tough >time with his little " curly toes " (my 4yo's words for them) being put in >plaster. You'd think I would have been cool with it. I'm supposed to be an >old pro, right?! > >Joy > > >http://www.geocities.com/joybelle15/rosesclubfootpage.html > > > >__________________________________ >Start your day with Yahoo! - Make it your home page! >http://www.yahoo.com/r/hs > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 Joy, I think it is natural, even if you have been through this all before to have those feelings when they cast your tiny little baby, and maybe even more so for Grant because you probably feel even more protective of him due to the SB. Just keep your chin up and remember that his little tootsies will be straight in no time. And you can always get that second opinion from Dr. P anytime you go to IA with Rose. Best wishes, > > On Thursday, Oct 13, we went to see Dr. Koop. Dr. Koop had short-leg casts > placed on Grant because of his one knee that needs to be exercised. The casts > were only left on until Monday, Oct 17, because we wanted to make sure Grant > wasn't getting blisters or sores. Since he doesn't have feeling from the knees > down due to the spina bifida, he wouldn't be able to tell us he was getting > sores. > > On Monday, we returned for the cast removal. There has been some correction in > both feet, but more so in the right foot. Grant is now sporting a full-length > cast and a short cast. We want his left knee to be exercised due to how > inflexible it was at birth. We have seen some progress in the knee, but it > still likes to do its own thing. On Friday of next week, birth to three will > be coming out, and we'll be starting some therapy on his leg. > > Here I thought I was prepared for the whole clubfoot thing, but it seems like a > different ballgame with the SB! I really want to run to Dr. Ponseti for > reassurance. Rose is due for an appointment, and I think I'll be making one > for her soon. Grant will be coming along. > > So, we are onto weekly appointments for casting changes. I can't believe how > sad I was when they put Grant in his first casts, though. I really had a tough > time with his little " curly toes " (my 4yo's words for them) being put in > plaster. You'd think I would have been cool with it. I'm supposed to be an > old pro, right?! > > Joy > > > http://www.geocities.com/joybelle15/rosesclubfootpage.html > > > > __________________________________ > Start your day with Yahoo! - Make it your home page! > http://www.yahoo.com/r/hs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 Joy, I think it is natural, even if you have been through this all before to have those feelings when they cast your tiny little baby, and maybe even more so for Grant because you probably feel even more protective of him due to the SB. Just keep your chin up and remember that his little tootsies will be straight in no time. And you can always get that second opinion from Dr. P anytime you go to IA with Rose. Best wishes, > > On Thursday, Oct 13, we went to see Dr. Koop. Dr. Koop had short-leg casts > placed on Grant because of his one knee that needs to be exercised. The casts > were only left on until Monday, Oct 17, because we wanted to make sure Grant > wasn't getting blisters or sores. Since he doesn't have feeling from the knees > down due to the spina bifida, he wouldn't be able to tell us he was getting > sores. > > On Monday, we returned for the cast removal. There has been some correction in > both feet, but more so in the right foot. Grant is now sporting a full-length > cast and a short cast. We want his left knee to be exercised due to how > inflexible it was at birth. We have seen some progress in the knee, but it > still likes to do its own thing. On Friday of next week, birth to three will > be coming out, and we'll be starting some therapy on his leg. > > Here I thought I was prepared for the whole clubfoot thing, but it seems like a > different ballgame with the SB! I really want to run to Dr. Ponseti for > reassurance. Rose is due for an appointment, and I think I'll be making one > for her soon. Grant will be coming along. > > So, we are onto weekly appointments for casting changes. I can't believe how > sad I was when they put Grant in his first casts, though. I really had a tough > time with his little " curly toes " (my 4yo's words for them) being put in > plaster. You'd think I would have been cool with it. I'm supposed to be an > old pro, right?! > > Joy > > > http://www.geocities.com/joybelle15/rosesclubfootpage.html > > > > __________________________________ > Start your day with Yahoo! - Make it your home page! > http://www.yahoo.com/r/hs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 Thanks, !! Joy --- M wrote: > Joy, > > Hang in there. > > Mom to 6-11-05 corrected BL CF P/M 22/7 Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html Iris (2-01) Spencer (3-03) Grant (9-05) __________________________________ Yahoo! FareChase: Search multiple travel sites in one click. http://farechase.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 Thanks, !! Joy --- M wrote: > Joy, > > Hang in there. > > Mom to 6-11-05 corrected BL CF P/M 22/7 Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html Iris (2-01) Spencer (3-03) Grant (9-05) __________________________________ Yahoo! FareChase: Search multiple travel sites in one click. http://farechase.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 --- frogabog wrote: > Ah Joy, > > Thanks for the update. I didn't post before but he's a beautiful > boy! You are very lucky to have him. Thanks, Kori. He is pretty handsome if I say so myself. > I think in general... plaster and babies don't mix well lol... a > little too hard and squishy at the same time :-D I totally > understand how it hurts the heart. I was taken by surprise! I just thought I had it all figured out. LOL Those lil' feet are so soft and sweet, and now they're covered in clunky casts. I'm getting used to them, I guess! > I would be interested in hearing what Dr. Ponseti says about his > feet/legs as well. Are they planning on any surgical correction on > his sb site? Can they improve things for him with that or not? I did email Dr. Ponseti, but he hasn't emailed back yet. I look forward to what he has to say. Grant had the sb site closed at around 5 hours old!! He also had a shunt put in after they were done closing the lesion. The closure won't improve things. Basically, what damage is done is done. It is pretty certain he has no feeling from the knees down, but we will learn more about his capabilities as he grows and learns more. The kid has a lot of stuff he has to go through, but he seems to be pretty cool with it so far. Joy Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html Iris (2-01) Spencer (3-03) Grant (9-05) __________________________________ Yahoo! FareChase: Search multiple travel sites in one click. http://farechase.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 --- frogabog wrote: > Ah Joy, > > Thanks for the update. I didn't post before but he's a beautiful > boy! You are very lucky to have him. Thanks, Kori. He is pretty handsome if I say so myself. > I think in general... plaster and babies don't mix well lol... a > little too hard and squishy at the same time :-D I totally > understand how it hurts the heart. I was taken by surprise! I just thought I had it all figured out. LOL Those lil' feet are so soft and sweet, and now they're covered in clunky casts. I'm getting used to them, I guess! > I would be interested in hearing what Dr. Ponseti says about his > feet/legs as well. Are they planning on any surgical correction on > his sb site? Can they improve things for him with that or not? I did email Dr. Ponseti, but he hasn't emailed back yet. I look forward to what he has to say. Grant had the sb site closed at around 5 hours old!! He also had a shunt put in after they were done closing the lesion. The closure won't improve things. Basically, what damage is done is done. It is pretty certain he has no feeling from the knees down, but we will learn more about his capabilities as he grows and learns more. The kid has a lot of stuff he has to go through, but he seems to be pretty cool with it so far. Joy Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html Iris (2-01) Spencer (3-03) Grant (9-05) __________________________________ Yahoo! FareChase: Search multiple travel sites in one click. http://farechase.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 --- wrote: > Joy, > > I think it is natural, even if you have been through this all before > to have those feelings when they cast your tiny little baby, and maybe > even more so for Grant because you probably feel even more protective > of him due to the SB. Just keep your chin up and remember that his > little tootsies will be straight in no time. And you can always get > that second opinion from Dr. P anytime you go to IA with Rose. Thanks, ! I think it's really hard because I'm not sure if it's going to work, and I hate putting him through stuff. The casts bother me a lot more than him! Dr. Koop is very encouraging that we see Dr. Ponseti, so I just have to figure out when we can! Joy Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html Iris (2-01) Spencer (3-03) Grant (9-05) __________________________________ Yahoo! FareChase: Search multiple travel sites in one click. http://farechase.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 --- wrote: > Joy, > > I think it is natural, even if you have been through this all before > to have those feelings when they cast your tiny little baby, and maybe > even more so for Grant because you probably feel even more protective > of him due to the SB. Just keep your chin up and remember that his > little tootsies will be straight in no time. And you can always get > that second opinion from Dr. P anytime you go to IA with Rose. Thanks, ! I think it's really hard because I'm not sure if it's going to work, and I hate putting him through stuff. The casts bother me a lot more than him! Dr. Koop is very encouraging that we see Dr. Ponseti, so I just have to figure out when we can! Joy Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html Iris (2-01) Spencer (3-03) Grant (9-05) __________________________________ Yahoo! FareChase: Search multiple travel sites in one click. http://farechase.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2005 Report Share Posted October 22, 2005 Joy- Hugs to your family! Grant really is beautiful. I am glad for the update-your family is in our thoughts and prayers! Kathleen ps-have you contacted your local spina bifida organization?? I run concessions for Notre Dame-and their group is one of our non-profit volunteers. They are fabulous, wonderful people!! Just a thought. > > On Thursday, Oct 13, we went to see Dr. Koop. Dr. Koop had short- leg casts > placed on Grant because of his one knee that needs to be exercised. The casts > were only left on until Monday, Oct 17, because we wanted to make sure Grant > wasn't getting blisters or sores. Since he doesn't have feeling from the knees > down due to the spina bifida, he wouldn't be able to tell us he was getting > sores. > > On Monday, we returned for the cast removal. There has been some correction in > both feet, but more so in the right foot. Grant is now sporting a full-length > cast and a short cast. We want his left knee to be exercised due to how > inflexible it was at birth. We have seen some progress in the knee, but it > still likes to do its own thing. On Friday of next week, birth to three will > be coming out, and we'll be starting some therapy on his leg. > > Here I thought I was prepared for the whole clubfoot thing, but it seems like a > different ballgame with the SB! I really want to run to Dr. Ponseti for > reassurance. Rose is due for an appointment, and I think I'll be making one > for her soon. Grant will be coming along. > > So, we are onto weekly appointments for casting changes. I can't believe how > sad I was when they put Grant in his first casts, though. I really had a tough > time with his little " curly toes " (my 4yo's words for them) being put in > plaster. You'd think I would have been cool with it. I'm supposed to be an > old pro, right?! > > Joy > > > http://www.geocities.com/joybelle15/rosesclubfootpage.html > > > > __________________________________ > Start your day with Yahoo! - Make it your home page! > http://www.yahoo.com/r/hs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2005 Report Share Posted October 22, 2005 Joy- Hugs to your family! Grant really is beautiful. I am glad for the update-your family is in our thoughts and prayers! Kathleen ps-have you contacted your local spina bifida organization?? I run concessions for Notre Dame-and their group is one of our non-profit volunteers. They are fabulous, wonderful people!! Just a thought. > > On Thursday, Oct 13, we went to see Dr. Koop. Dr. Koop had short- leg casts > placed on Grant because of his one knee that needs to be exercised. The casts > were only left on until Monday, Oct 17, because we wanted to make sure Grant > wasn't getting blisters or sores. Since he doesn't have feeling from the knees > down due to the spina bifida, he wouldn't be able to tell us he was getting > sores. > > On Monday, we returned for the cast removal. There has been some correction in > both feet, but more so in the right foot. Grant is now sporting a full-length > cast and a short cast. We want his left knee to be exercised due to how > inflexible it was at birth. We have seen some progress in the knee, but it > still likes to do its own thing. On Friday of next week, birth to three will > be coming out, and we'll be starting some therapy on his leg. > > Here I thought I was prepared for the whole clubfoot thing, but it seems like a > different ballgame with the SB! I really want to run to Dr. Ponseti for > reassurance. Rose is due for an appointment, and I think I'll be making one > for her soon. Grant will be coming along. > > So, we are onto weekly appointments for casting changes. I can't believe how > sad I was when they put Grant in his first casts, though. I really had a tough > time with his little " curly toes " (my 4yo's words for them) being put in > plaster. You'd think I would have been cool with it. I'm supposed to be an > old pro, right?! > > Joy > > > http://www.geocities.com/joybelle15/rosesclubfootpage.html > > > > __________________________________ > Start your day with Yahoo! - Make it your home page! > http://www.yahoo.com/r/hs > Quote Link to comment Share on other sites More sharing options...
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