question on Ponseti method

[Guest guest]

My son was just born with bilateral talipes. We had known about it since the

22 wk sonogram so it wasn't a surprise. My question is regarding the ponseti

technique. How soon are the casts applied post birth? Can it start 3 weeks

post birth or is this initial delay outside some Ponseti requirements? We

have organized a Ponseti " certified " (he is on the list) Dr based on this

forum and other info read.

thanks

[Guest guest]

My son was just born with bilateral talipes. We had known about it since the

22 wk sonogram so it wasn't a surprise. My question is regarding the ponseti

technique. How soon are the casts applied post birth? Can it start 3 weeks

post birth or is this initial delay outside some Ponseti requirements? We

have organized a Ponseti " certified " (he is on the list) Dr based on this

forum and other info read.

thanks

[Guest guest]

There is a certain amount of truth to that, but those first few weeks are really

not going to make a difference. Myself I believe the couple weeks to bond with

the baby, get it on it's feed good, let it adjust to being born and all that is

just as important before we start doing some foreign manipulation to them. The

bones do harden eventually but Ponseti's method has worked so well on so many

older babies that I think it's safe to say a couple weeks or even as long as a

month or two at the max wouldn't affect success at all. It's better to go in

late with your ducks in a row than rush in to chaos. Having a baby is a huge

psychological change for parents, even if it is not their first baby - I think

it's just as important for parents to " recover " emotionally/psychologically from

the birth so their head is clear to make the right decisions as it is for the

baby to be up and strong before treatment starts. started at 4 days and

I was a mess, mentally. I was in no position to be making such major deciions

about his treatment considering it was NOT a life-threatening condition.

Everett began at 2 weeks and I went in to it very clear headed and prepared to

cope and more importantly, prepared to help HIM cope. BTW, 's treatment

sucked; Everett's has been perfect. Given two weeks to adjust to having a baby,

adjust to having a baby with a Birth Defect, to get my ducks in a row, to

educate myself....man, what a difference that could have made for him but it's

too late now. I was rushed and he paid.

jmtcw.

s.

Treatment should start asap! My daughter was casted with her 1st cast at 4 days

old. The longer you go, the less flexable the foot.

Bigtoe wrote:My son was just born with bilateral talipes. We

had known about it since the

22 wk sonogram so it wasn't a surprise. My question is regarding the ponseti

technique. How soon are the casts applied post birth? Can it start 3 weeks

post birth or is this initial delay outside some Ponseti requirements? We

have organized a Ponseti " certified " (he is on the list) Dr based on this

forum and other info read.

thanks

[Guest guest]

There is a certain amount of truth to that, but those first few weeks are really

not going to make a difference. Myself I believe the couple weeks to bond with

the baby, get it on it's feed good, let it adjust to being born and all that is

just as important before we start doing some foreign manipulation to them. The

bones do harden eventually but Ponseti's method has worked so well on so many

older babies that I think it's safe to say a couple weeks or even as long as a

month or two at the max wouldn't affect success at all. It's better to go in

late with your ducks in a row than rush in to chaos. Having a baby is a huge

psychological change for parents, even if it is not their first baby - I think

it's just as important for parents to " recover " emotionally/psychologically from

the birth so their head is clear to make the right decisions as it is for the

baby to be up and strong before treatment starts. started at 4 days and

I was a mess, mentally. I was in no position to be making such major deciions

about his treatment considering it was NOT a life-threatening condition.

Everett began at 2 weeks and I went in to it very clear headed and prepared to

cope and more importantly, prepared to help HIM cope. BTW, 's treatment

sucked; Everett's has been perfect. Given two weeks to adjust to having a baby,

adjust to having a baby with a Birth Defect, to get my ducks in a row, to

educate myself....man, what a difference that could have made for him but it's

too late now. I was rushed and he paid.

jmtcw.

s.

Treatment should start asap! My daughter was casted with her 1st cast at 4 days

old. The longer you go, the less flexable the foot.

Bigtoe wrote:My son was just born with bilateral talipes. We

had known about it since the

22 wk sonogram so it wasn't a surprise. My question is regarding the ponseti

technique. How soon are the casts applied post birth? Can it start 3 weeks

post birth or is this initial delay outside some Ponseti requirements? We

have organized a Ponseti " certified " (he is on the list) Dr based on this

forum and other info read.

thanks

[Guest guest]

I do not think that the 3 weeks would be a big deal.

My daughter started Ponseti treatment at 10 months old

and all was successful. I say take the 3 weeks to

enjoy your new baby without all the cast hassles etc.

Congratulations on the birth of your son.

Jenni

--- Bigtoe wrote:

> My son was just born with bilateral talipes. We had

> known about it since the

> 22 wk sonogram so it wasn't a surprise. My question

> is regarding the ponseti

> technique. How soon are the casts applied post

> birth? Can it start 3 weeks

> post birth or is this initial delay outside some

> Ponseti requirements? We

> have organized a Ponseti " certified " (he is on the

> list) Dr based on this

> forum and other info read.

>

> thanks

>

>

>

>

>

>

>

>

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

__________________________________

Yahoo! FareChase: Search multiple travel sites in one click.

http://farechase.yahoo.com

[Guest guest]

I do not think that the 3 weeks would be a big deal.

My daughter started Ponseti treatment at 10 months old

and all was successful. I say take the 3 weeks to

enjoy your new baby without all the cast hassles etc.

Congratulations on the birth of your son.

Jenni

--- Bigtoe wrote:

> My son was just born with bilateral talipes. We had

> known about it since the

> 22 wk sonogram so it wasn't a surprise. My question

> is regarding the ponseti

> technique. How soon are the casts applied post

> birth? Can it start 3 weeks

> post birth or is this initial delay outside some

> Ponseti requirements? We

> have organized a Ponseti " certified " (he is on the

> list) Dr based on this

> forum and other info read.

>

> thanks

>

>

>

>

>

>

>

>

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

__________________________________

Yahoo! FareChase: Search multiple travel sites in one click.

http://farechase.yahoo.com

[Guest guest]

,

Congratulations on the arrival of your baby boy!

In the Global Health booklet, it says to begin treatment within the

first 7 to 10 days.

http://www.global-help.org/publications/cf-english.pdf

Here is Dr. Herzenberg in a brief video clip happening to answer

the question, saying there's no need to begin treatment immediately, to

take time to bond with the baby, but to come in within a week, maybe

two:

http://www.lifebridgehealth.org/streams/clubfoot.asx

Of course the Ponseti method does indeed work for children even much

later, after even months of unsuccessful previous treatment. But I

think the optimum situation is to take advantage of the flexibility of

the feet in the immediate postpartum period.

Is there a reason you need to wait 3 weeks?

If the alternative is to take the baby to someone who doesn't do the

Ponseti method, and would just be putting on, say, a short leg cast,

inncorrectly applied, I would wait to see the Ponseti method doctor,

but try to get there as soon as you can.

Hope this helps,

and Claire

>

> My son was just born with bilateral talipes. We had known about it

since the

> 22 wk sonogram so it wasn't a surprise. My question is regarding the

ponseti

> technique. How soon are the casts applied post birth? Can it start 3

weeks

> post birth or is this initial delay outside some Ponseti

requirements? We

> have organized a Ponseti " certified " (he is on the list) Dr based on

this

> forum and other info read.

>

> thanks

>

>

[Guest guest]

,

Congratulations on the arrival of your baby boy!

In the Global Health booklet, it says to begin treatment within the

first 7 to 10 days.

http://www.global-help.org/publications/cf-english.pdf

Here is Dr. Herzenberg in a brief video clip happening to answer

the question, saying there's no need to begin treatment immediately, to

take time to bond with the baby, but to come in within a week, maybe

two:

http://www.lifebridgehealth.org/streams/clubfoot.asx

Of course the Ponseti method does indeed work for children even much

later, after even months of unsuccessful previous treatment. But I

think the optimum situation is to take advantage of the flexibility of

the feet in the immediate postpartum period.

Is there a reason you need to wait 3 weeks?

If the alternative is to take the baby to someone who doesn't do the

Ponseti method, and would just be putting on, say, a short leg cast,

inncorrectly applied, I would wait to see the Ponseti method doctor,

but try to get there as soon as you can.

Hope this helps,

and Claire

>

> My son was just born with bilateral talipes. We had known about it

since the

> 22 wk sonogram so it wasn't a surprise. My question is regarding the

ponseti

> technique. How soon are the casts applied post birth? Can it start 3

weeks

> post birth or is this initial delay outside some Ponseti

requirements? We

> have organized a Ponseti " certified " (he is on the list) Dr based on

this

> forum and other info read.

>

> thanks

>

>

[Guest guest]

Treatment should start asap! My daughter was casted with her 1st cast at 4 days

old. The longer you go, the less flexable the foot.

Bigtoe wrote:My son was just born with bilateral talipes. We

had known about it since the

22 wk sonogram so it wasn't a surprise. My question is regarding the ponseti

technique. How soon are the casts applied post birth? Can it start 3 weeks

post birth or is this initial delay outside some Ponseti requirements? We

have organized a Ponseti " certified " (he is on the list) Dr based on this

forum and other info read.

thanks

[Guest guest]

Treatment should start asap! My daughter was casted with her 1st cast at 4 days

old. The longer you go, the less flexable the foot.

Bigtoe wrote:My son was just born with bilateral talipes. We

had known about it since the

22 wk sonogram so it wasn't a surprise. My question is regarding the ponseti

technique. How soon are the casts applied post birth? Can it start 3 weeks

post birth or is this initial delay outside some Ponseti requirements? We

have organized a Ponseti " certified " (he is on the list) Dr based on this

forum and other info read.

thanks

[Guest guest]

The sooner the better.... but if you wait 3 weeks, you should be fine though

christee dawson wrote:Treatment should start asap! My

daughter was casted with her 1st cast at 4 days old. The longer you go, the less

flexable the foot.

Bigtoe wrote:My son was just born with bilateral talipes. We

had known about it since the

22 wk sonogram so it wasn't a surprise. My question is regarding the ponseti

technique. How soon are the casts applied post birth? Can it start 3 weeks

post birth or is this initial delay outside some Ponseti requirements? We

have organized a Ponseti " certified " (he is on the list) Dr based on this

forum and other info read.

thanks

[Guest guest]

The sooner the better.... but if you wait 3 weeks, you should be fine though

christee dawson wrote:Treatment should start asap! My

daughter was casted with her 1st cast at 4 days old. The longer you go, the less

flexable the foot.

Bigtoe wrote:My son was just born with bilateral talipes. We

had known about it since the

22 wk sonogram so it wasn't a surprise. My question is regarding the ponseti

technique. How soon are the casts applied post birth? Can it start 3 weeks

post birth or is this initial delay outside some Ponseti requirements? We

have organized a Ponseti " certified " (he is on the list) Dr based on this

forum and other info read.

thanks

[Guest guest]

It is true that sooner is better, but do NOT think that means days!

Correct treatment later is better than bad treatment sooner, so it is

best to take your time and do your research ... and love those little

feet in the mean time!

Kai was born 5 weeks early and we were told by the local ortho not to

wait more than 3 weeks in getting in at Children's Hospital. It was

exactly 3 weeks, and looking back, I think we had more time

available. In fact, we could have waited a whole month more (and

avoided almost wrecking our car in a blinding snow storm) with no

problems.

My personal suggestion would be that baby should be getting treatment

no later than 2 months old

Angel

My son was just born with bilateral

talipes. We had known about it since the

> 22 wk sonogram so it wasn't a surprise. My question is regarding

the ponseti

> technique. How soon are the casts applied post birth? Can it start

3 weeks

> post birth or is this initial delay outside some Ponseti

requirements? We

> have organized a Ponseti " certified " (he is on the list) Dr based

on this

> forum and other info read.

>

> thanks

>

>

>

>

>

>

>

>

>

>

[Guest guest]

It is true that sooner is better, but do NOT think that means days!

Correct treatment later is better than bad treatment sooner, so it is

best to take your time and do your research ... and love those little

feet in the mean time!

Kai was born 5 weeks early and we were told by the local ortho not to

wait more than 3 weeks in getting in at Children's Hospital. It was

exactly 3 weeks, and looking back, I think we had more time

available. In fact, we could have waited a whole month more (and

avoided almost wrecking our car in a blinding snow storm) with no

problems.

My personal suggestion would be that baby should be getting treatment

no later than 2 months old

Angel

My son was just born with bilateral

talipes. We had known about it since the

> 22 wk sonogram so it wasn't a surprise. My question is regarding

the ponseti

> technique. How soon are the casts applied post birth? Can it start

3 weeks

> post birth or is this initial delay outside some Ponseti

requirements? We

> have organized a Ponseti " certified " (he is on the list) Dr based

on this

> forum and other info read.

>

> thanks

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Is there any one from Toronto Canada being treated at

Sick Kids???

__________________________________________________

[Guest guest]

Is there any one from Toronto Canada being treated at

Sick Kids???

__________________________________________________

[Guest guest]

he is the only guy in town that is the Ponseti deal. Otherwise we would have

to fly interstate as there are only 3 Ponseti doctors in all of Australia.

While I understand the Dr wants the family to bond with our new boy before

treatment I probably would have been happier with two weeks. That said,

given the posts people have made I am not too concerned now (I think). He

certainly is a good feeder.

Re: question on Ponseti method

,

Congratulations on the arrival of your baby boy!

In the Global Health booklet, it says to begin treatment within the

first 7 to 10 days.

http://www.global-help.org/publications/cf-english.pdf

Here is Dr. Herzenberg in a brief video clip happening to answer

the question, saying there's no need to begin treatment immediately, to

take time to bond with the baby, but to come in within a week, maybe

two:

http://www.lifebridgehealth.org/streams/clubfoot.asx

Of course the Ponseti method does indeed work for children even much

later, after even months of unsuccessful previous treatment. But I

think the optimum situation is to take advantage of the flexibility of

the feet in the immediate postpartum period.

Is there a reason you need to wait 3 weeks?

If the alternative is to take the baby to someone who doesn't do the

Ponseti method, and would just be putting on, say, a short leg cast,

inncorrectly applied, I would wait to see the Ponseti method doctor,

but try to get there as soon as you can.

Hope this helps,

and Claire

>

> My son was just born with bilateral talipes. We had known about it

since the

> 22 wk sonogram so it wasn't a surprise. My question is regarding the

ponseti

> technique. How soon are the casts applied post birth? Can it start 3

weeks

> post birth or is this initial delay outside some Ponseti

requirements? We

> have organized a Ponseti " certified " (he is on the list) Dr based on

this

> forum and other info read.

>

> thanks

>

>

[Guest guest]

he is the only guy in town that is the Ponseti deal. Otherwise we would have

to fly interstate as there are only 3 Ponseti doctors in all of Australia.

While I understand the Dr wants the family to bond with our new boy before

treatment I probably would have been happier with two weeks. That said,

given the posts people have made I am not too concerned now (I think). He

certainly is a good feeder.

Re: question on Ponseti method

,

Congratulations on the arrival of your baby boy!

In the Global Health booklet, it says to begin treatment within the

first 7 to 10 days.

http://www.global-help.org/publications/cf-english.pdf

Here is Dr. Herzenberg in a brief video clip happening to answer

the question, saying there's no need to begin treatment immediately, to

take time to bond with the baby, but to come in within a week, maybe

two:

http://www.lifebridgehealth.org/streams/clubfoot.asx

Of course the Ponseti method does indeed work for children even much

later, after even months of unsuccessful previous treatment. But I

think the optimum situation is to take advantage of the flexibility of

the feet in the immediate postpartum period.

Is there a reason you need to wait 3 weeks?

If the alternative is to take the baby to someone who doesn't do the

Ponseti method, and would just be putting on, say, a short leg cast,

inncorrectly applied, I would wait to see the Ponseti method doctor,

but try to get there as soon as you can.

Hope this helps,

and Claire

>

> My son was just born with bilateral talipes. We had known about it

since the

> 22 wk sonogram so it wasn't a surprise. My question is regarding the

ponseti

> technique. How soon are the casts applied post birth? Can it start 3

weeks

> post birth or is this initial delay outside some Ponseti

requirements? We

> have organized a Ponseti " certified " (he is on the list) Dr based on

this

> forum and other info read.

>

> thanks

>

>

[Guest guest]

We are in Vancouver but I know that a few parents on this site are from

the TO area. You should post this question on the clubfootcanada site,

the link is: http://health.groups.yahoo.com/group/clubfootcanada/

You may get some advise from some folks from ON there.

& Grace

>

>

> Is there any one from Toronto Canada being treated at

> Sick Kids???

>

> __________________________________________________

>

[Guest guest]

We are in Vancouver but I know that a few parents on this site are from

the TO area. You should post this question on the clubfootcanada site,

the link is: http://health.groups.yahoo.com/group/clubfootcanada/

You may get some advise from some folks from ON there.

& Grace

>

>

> Is there any one from Toronto Canada being treated at

> Sick Kids???

>

> __________________________________________________

>

[Guest guest]

My son was almost a month old before his casting started. He's 11

months now, and his feet are just fine.

We didn't have much choice but to start later. He was born 6 1/2

weeks early, and the hospital he was born in didn't use the Ponseti

method and recommended that we go to Gillette. Since we weren't

entirely sure how long he'd be in the NICU, we couldn't set up an

appointment until he was out of the hospital, and that was so close

to Christmas, he ended up in his first casts a few days before

Christmas, when he was nearly a month old.

My son was just born with bilateral

talipes. We had known about it since the

> 22 wk sonogram so it wasn't a surprise. My question is regarding

the ponseti

> technique. How soon are the casts applied post birth? Can it start

3 weeks

> post birth or is this initial delay outside some Ponseti

requirements? We

> have organized a Ponseti " certified " (he is on the list) Dr based

on this

> forum and other info read.

>

> thanks

>

>

>

>

>

>

>

>

>

>

[Guest guest]

My son was almost a month old before his casting started. He's 11

months now, and his feet are just fine.

We didn't have much choice but to start later. He was born 6 1/2

weeks early, and the hospital he was born in didn't use the Ponseti

method and recommended that we go to Gillette. Since we weren't

entirely sure how long he'd be in the NICU, we couldn't set up an

appointment until he was out of the hospital, and that was so close

to Christmas, he ended up in his first casts a few days before

Christmas, when he was nearly a month old.

My son was just born with bilateral

talipes. We had known about it since the

> 22 wk sonogram so it wasn't a surprise. My question is regarding

the ponseti

> technique. How soon are the casts applied post birth? Can it start

3 weeks

> post birth or is this initial delay outside some Ponseti

requirements? We

> have organized a Ponseti " certified " (he is on the list) Dr based

on this

> forum and other info read.

>

> thanks

>

>

>

>

>

>

>

>

>

>

[Guest guest]

he is the only guy in town that is the Ponseti deal. Otherwise we

would have to fly interstate as there are only 3 Ponseti doctors in

all of Australia. While I understand the Dr wants the family to bond

with our new boy before treatment I probably would have been happier

with two weeks. That said, given the posts people have made I am not

too concerned now (I think). He certainly is a good feeder. Thanks

for people sharing their experiences.

Re: question on Ponseti method

,

Congratulations on the arrival of your baby boy!

In the Global Health booklet, it says to begin treatment within the

first 7 to 10 days.

http://www.global-help.org/publications/cf-english.pdf

Here is Dr. Herzenberg in a brief video clip happening to

answer

the question, saying there's no need to begin treatment immediately,

to

take time to bond with the baby, but to come in within a week, maybe

two:

http://www.lifebridgehealth.org/streams/clubfoot.asx

Of course the Ponseti method does indeed work for children even

much

later, after even months of unsuccessful previous treatment. But I

think the optimum situation is to take advantage of the flexibility

of

the feet in the immediate postpartum period.

Is there a reason you need to wait 3 weeks?

If the alternative is to take the baby to someone who doesn't do the

Ponseti method, and would just be putting on, say, a short leg cast,

inncorrectly applied, I would wait to see the Ponseti method doctor,

but try to get there as soon as you can.

Hope this helps,

and Claire

[Guest guest]

he is the only guy in town that is the Ponseti deal. Otherwise we

would have to fly interstate as there are only 3 Ponseti doctors in

all of Australia. While I understand the Dr wants the family to bond

with our new boy before treatment I probably would have been happier

with two weeks. That said, given the posts people have made I am not

too concerned now (I think). He certainly is a good feeder. Thanks

for people sharing their experiences.

Re: question on Ponseti method

,

Congratulations on the arrival of your baby boy!

In the Global Health booklet, it says to begin treatment within the

first 7 to 10 days.

http://www.global-help.org/publications/cf-english.pdf

Here is Dr. Herzenberg in a brief video clip happening to

answer

the question, saying there's no need to begin treatment immediately,

to

take time to bond with the baby, but to come in within a week, maybe

two:

http://www.lifebridgehealth.org/streams/clubfoot.asx

Of course the Ponseti method does indeed work for children even

much

later, after even months of unsuccessful previous treatment. But I

think the optimum situation is to take advantage of the flexibility

of

the feet in the immediate postpartum period.

Is there a reason you need to wait 3 weeks?

If the alternative is to take the baby to someone who doesn't do the

Ponseti method, and would just be putting on, say, a short leg cast,

inncorrectly applied, I would wait to see the Ponseti method doctor,

but try to get there as soon as you can.

Hope this helps,

and Claire

[Guest guest]

Just enjoy the time.... It will all work out. You will be amazed......

B.

Proud mommy to (6-11-2005) corrected BL CF

Bigtoe wrote:

he is the only guy in town that is the Ponseti deal. Otherwise we would have

to fly interstate as there are only 3 Ponseti doctors in all of Australia.

While I understand the Dr wants the family to bond with our new boy before

treatment I probably would have been happier with two weeks. That said,

given the posts people have made I am not too concerned now (I think). He

certainly is a good feeder.

Re: question on Ponseti method

,

Congratulations on the arrival of your baby boy!

In the Global Health booklet, it says to begin treatment within the

first 7 to 10 days.

http://www.global-help.org/publications/cf-english.pdf

Here is Dr. Herzenberg in a brief video clip happening to answer

the question, saying there's no need to begin treatment immediately, to

take time to bond with the baby, but to come in within a week, maybe

two:

http://www.lifebridgehealth.org/streams/clubfoot.asx

Of course the Ponseti method does indeed work for children even much

later, after even months of unsuccessful previous treatment. But I

think the optimum situation is to take advantage of the flexibility of

the feet in the immediate postpartum period.

Is there a reason you need to wait 3 weeks?

If the alternative is to take the baby to someone who doesn't do the

Ponseti method, and would just be putting on, say, a short leg cast,

inncorrectly applied, I would wait to see the Ponseti method doctor,

but try to get there as soon as you can.

Hope this helps,

and Claire

>

> My son was just born with bilateral talipes. We had known about it

since the

> 22 wk sonogram so it wasn't a surprise. My question is regarding the

ponseti

> technique. How soon are the casts applied post birth? Can it start 3

weeks

> post birth or is this initial delay outside some Ponseti

requirements? We

> have organized a Ponseti " certified " (he is on the list) Dr based on

this

> forum and other info read.

>

> thanks

>

>