Re: ? for those who found out via ultrasound

October 23, 2005

I had three u/s. The only one who found the BL CF with was the

perinatalist. Since my triple marker test came back false/positive and I had

the fibroid tumor he was looking very closely at every little thing. He spotted

it right away. I could even tell until he pointed out things to us such as

deminisons, bend of feet, etc.... He also used a very high level 2 ultsasound.

I think the u/s techs aren't told to look for anything other than gender and get

actual measurements. They really are qualified to do much observing or are

they?

Cohen wrote:

I had three ultrasounds - one at the lab and two in

the OB's office - it was never detected. From what I

understand they won't often look for it if there are

no other signs there's something wrong (or no prior

history in the family). One of the moms I met at the

club foot clinic told me she only knew about her son's

foot because they had found a cyst on his brain (which

later disappeared) in her first ultrasound, so they

looked around for other things. I'm wondering if they

should just do routine screening for clubfoot since it

is so common because at least that way you would know

ahead of time. Had I known, I would have been able to

do a lot of research beforehand and then could have

chosen the doctor I wanted instead of being shuffled

off to the first one and now four months later having

to make a change because I'm not happy with the way

things have gone. (Whew - run on sentence!)

--- michele_and_collin wrote:

---------------------------------

Hey everyone, We didn't know about Collin's foot

through the ultra

sound and I was wondering if you found out through the

regular ultra

sound machine in the office or stronger ones they out

sourced you

too? I wasn't sure if you need a certain level

machine to see it.

With Collin I had several ultra sounds at the doctor's

office, at

places like labs, and also at the antinatal testing

unit, specifically

looking for birth defects, etc and no one saw his foot

so I always

wondered. We did have a feeling the one doctor saw

it, by behavior

but it was never told to us. But there had to be some

reason or

another they kept on sending us for extra ultrasounds,

etc. Just

wondering, I'm about 12 weeks pregnant now, and I want

to try to have

them look this time around specifically for clubfoot

just so we have

our game plan ready this time.

Michele

Collin's story at http://www.geocities.com/chele323232

October 23, 2005

Our ultrasound tech is the one who found the clubfoot

but they are usually, due to liability and malpractice

issues, not allowed to tell you what they see. That

information has to come from a Doctor. The tech saw

it and went out to get the doctor to bring them back

in to confirm the finding. The tech however mentioned

nothing to us. Most doctors are extremely adamant

about this point in not allowing their techs to tell

what they see.

Jenni

--- M wrote:

> I had three u/s. The only one who found the BL CF

> with was the perinatalist. Since my triple

> marker test came back false/positive and I had the

> fibroid tumor he was looking very closely at every

> little thing. He spotted it right away. I could

> even tell until he pointed out things to us such as

> deminisons, bend of feet, etc.... He also used a

> very high level 2 ultsasound.

>

> I think the u/s techs aren't told to look for

> anything other than gender and get actual

> measurements. They really are qualified to do much

> observing or are they?

>

> Cohen wrote:

> I had three ultrasounds - one at the lab and two in

> the OB's office - it was never detected. From what

> I

> understand they won't often look for it if there are

> no other signs there's something wrong (or no prior

> history in the family). One of the moms I met at

> the

> club foot clinic told me she only knew about her

> son's

> foot because they had found a cyst on his brain

> (which

> later disappeared) in her first ultrasound, so they

> looked around for other things. I'm wondering if

> they

> should just do routine screening for clubfoot since

> it

> is so common because at least that way you would

> know

> ahead of time. Had I known, I would have been able

> to

> do a lot of research beforehand and then could have

> chosen the doctor I wanted instead of being shuffled

> off to the first one and now four months later

> having

> to make a change because I'm not happy with the way

> things have gone. (Whew - run on sentence!)

>

> --- michele_and_collin

> wrote:

>

> ---------------------------------

> Hey everyone, We didn't know about Collin's foot

> through the ultra

> sound and I was wondering if you found out through

> the

> regular ultra

> sound machine in the office or stronger ones they

> out

> sourced you

> too? I wasn't sure if you need a certain level

> machine to see it.

> With Collin I had several ultra sounds at the

> doctor's

> office, at

> places like labs, and also at the antinatal testing

> unit, specifically

> looking for birth defects, etc and no one saw his

> foot

> so I always

> wondered. We did have a feeling the one doctor saw

> it, by behavior

> but it was never told to us. But there had to be

> some

> reason or

> another they kept on sending us for extra

> ultrasounds,

> etc. Just

> wondering, I'm about 12 weeks pregnant now, and I

> want

> to try to have

> them look this time around specifically for clubfoot

> just so we have

> our game plan ready this time.

>

> Michele

> Collin's story at

> http://www.geocities.com/chele323232

>

October 23, 2005

Our ultrasound tech is the one who found the clubfoot

but they are usually, due to liability and malpractice

issues, not allowed to tell you what they see. That

information has to come from a Doctor. The tech saw

it and went out to get the doctor to bring them back

in to confirm the finding. The tech however mentioned

nothing to us. Most doctors are extremely adamant

about this point in not allowing their techs to tell

what they see.

Jenni

--- M wrote:

> I had three u/s. The only one who found the BL CF

> with was the perinatalist. Since my triple

> marker test came back false/positive and I had the

> fibroid tumor he was looking very closely at every

> little thing. He spotted it right away. I could

> even tell until he pointed out things to us such as

> deminisons, bend of feet, etc.... He also used a

> very high level 2 ultsasound.

>

> I think the u/s techs aren't told to look for

> anything other than gender and get actual

> measurements. They really are qualified to do much

> observing or are they?

>

> Cohen wrote:

> I had three ultrasounds - one at the lab and two in

> the OB's office - it was never detected. From what

> I

> understand they won't often look for it if there are

> no other signs there's something wrong (or no prior

> history in the family). One of the moms I met at

> the

> club foot clinic told me she only knew about her

> son's

> foot because they had found a cyst on his brain

> (which

> later disappeared) in her first ultrasound, so they

> looked around for other things. I'm wondering if

> they

> should just do routine screening for clubfoot since

> it

> is so common because at least that way you would

> know

> ahead of time. Had I known, I would have been able

> to

> do a lot of research beforehand and then could have

> chosen the doctor I wanted instead of being shuffled

> off to the first one and now four months later

> having

> to make a change because I'm not happy with the way

> things have gone. (Whew - run on sentence!)

>

> --- michele_and_collin

> wrote:

>

> ---------------------------------

> Hey everyone, We didn't know about Collin's foot

> through the ultra

> sound and I was wondering if you found out through

> the

> regular ultra

> sound machine in the office or stronger ones they

> out

> sourced you

> too? I wasn't sure if you need a certain level

> machine to see it.

> With Collin I had several ultra sounds at the

> doctor's

> office, at

> places like labs, and also at the antinatal testing

> unit, specifically

> looking for birth defects, etc and no one saw his

> foot

> so I always

> wondered. We did have a feeling the one doctor saw

> it, by behavior

> but it was never told to us. But there had to be

> some

> reason or

> another they kept on sending us for extra

> ultrasounds,

> etc. Just

> wondering, I'm about 12 weeks pregnant now, and I

> want

> to try to have

> them look this time around specifically for clubfoot

> just so we have

> our game plan ready this time.

>

> Michele

> Collin's story at

> http://www.geocities.com/chele323232

>

October 24, 2005

Right. Even though we could see Everett's cf on both u/s's we had, the tech

performing the test flat refused to say anything one way or the other.

s.

Re: ? for those who found out via ultrasound

Our ultrasound tech is the one who found the clubfoot

but they are usually, due to liability and malpractice

issues, not allowed to tell you what they see. That

information has to come from a Doctor. The tech saw

it and went out to get the doctor to bring them back

in to confirm the finding. The tech however mentioned

nothing to us. Most doctors are extremely adamant

about this point in not allowing their techs to tell

what they see.

Jenni

--- M wrote:

> I had three u/s. The only one who found the BL CF

> with was the perinatalist. Since my triple

> marker test came back false/positive and I had the

> fibroid tumor he was looking very closely at every

> little thing. He spotted it right away. I could

> even tell until he pointed out things to us such as

> deminisons, bend of feet, etc.... He also used a

> very high level 2 ultsasound.

>

> I think the u/s techs aren't told to look for

> anything other than gender and get actual

> measurements. They really are qualified to do much

> observing or are they?

>

> Cohen wrote:

> I had three ultrasounds - one at the lab and two in

> the OB's office - it was never detected. From what

> I

> understand they won't often look for it if there are

> no other signs there's something wrong (or no prior

> history in the family). One of the moms I met at

> the

> club foot clinic told me she only knew about her

> son's

> foot because they had found a cyst on his brain

> (which

> later disappeared) in her first ultrasound, so they

> looked around for other things. I'm wondering if

> they

> should just do routine screening for clubfoot since

> it

> is so common because at least that way you would

> know

> ahead of time. Had I known, I would have been able

> to

> do a lot of research beforehand and then could have

> chosen the doctor I wanted instead of being shuffled

> off to the first one and now four months later

> having

> to make a change because I'm not happy with the way

> things have gone. (Whew - run on sentence!)

>

> --- michele_and_collin

> wrote:

>

> ---------------------------------

> Hey everyone, We didn't know about Collin's foot

> through the ultra

> sound and I was wondering if you found out through

> the

> regular ultra

> sound machine in the office or stronger ones they

> out

> sourced you

> too? I wasn't sure if you need a certain level

> machine to see it.

> With Collin I had several ultra sounds at the

> doctor's

> office, at

> places like labs, and also at the antinatal testing

> unit, specifically

> looking for birth defects, etc and no one saw his

> foot

> so I always

> wondered. We did have a feeling the one doctor saw

> it, by behavior

> but it was never told to us. But there had to be

> some

> reason or

> another they kept on sending us for extra

> ultrasounds,

> etc. Just

> wondering, I'm about 12 weeks pregnant now, and I

> want

> to try to have

> them look this time around specifically for clubfoot

> just so we have

> our game plan ready this time.

>

> Michele

> Collin's story at

> http://www.geocities.com/chele323232

>

October 24, 2005

Right. Even though we could see Everett's cf on both u/s's we had, the tech

performing the test flat refused to say anything one way or the other.

s.

Re: ? for those who found out via ultrasound

Our ultrasound tech is the one who found the clubfoot

but they are usually, due to liability and malpractice

issues, not allowed to tell you what they see. That

information has to come from a Doctor. The tech saw

it and went out to get the doctor to bring them back

in to confirm the finding. The tech however mentioned

nothing to us. Most doctors are extremely adamant

about this point in not allowing their techs to tell

what they see.

Jenni

--- M wrote:

> I had three u/s. The only one who found the BL CF

> with was the perinatalist. Since my triple

> marker test came back false/positive and I had the

> fibroid tumor he was looking very closely at every

> little thing. He spotted it right away. I could

> even tell until he pointed out things to us such as

> deminisons, bend of feet, etc.... He also used a

> very high level 2 ultsasound.

>

> I think the u/s techs aren't told to look for

> anything other than gender and get actual

> measurements. They really are qualified to do much

> observing or are they?

>

> Cohen wrote:

> I had three ultrasounds - one at the lab and two in

> the OB's office - it was never detected. From what

> I

> understand they won't often look for it if there are

> no other signs there's something wrong (or no prior

> history in the family). One of the moms I met at

> the

> club foot clinic told me she only knew about her

> son's

> foot because they had found a cyst on his brain

> (which

> later disappeared) in her first ultrasound, so they

> looked around for other things. I'm wondering if

> they

> should just do routine screening for clubfoot since

> it

> is so common because at least that way you would

> know

> ahead of time. Had I known, I would have been able

> to

> do a lot of research beforehand and then could have

> chosen the doctor I wanted instead of being shuffled

> off to the first one and now four months later

> having

> to make a change because I'm not happy with the way

> things have gone. (Whew - run on sentence!)

>

> --- michele_and_collin

> wrote:

>

> ---------------------------------

> Hey everyone, We didn't know about Collin's foot

> through the ultra

> sound and I was wondering if you found out through

> the

> regular ultra

> sound machine in the office or stronger ones they

> out

> sourced you

> too? I wasn't sure if you need a certain level

> machine to see it.

> With Collin I had several ultra sounds at the

> doctor's

> office, at

> places like labs, and also at the antinatal testing

> unit, specifically

> looking for birth defects, etc and no one saw his

> foot

> so I always

> wondered. We did have a feeling the one doctor saw

> it, by behavior

> but it was never told to us. But there had to be

> some

> reason or

> another they kept on sending us for extra

> ultrasounds,

> etc. Just

> wondering, I'm about 12 weeks pregnant now, and I

> want

> to try to have

> them look this time around specifically for clubfoot

> just so we have

> our game plan ready this time.

>

> Michele

> Collin's story at

> http://www.geocities.com/chele323232

>

October 24, 2005

Due dates are mostly fictional anyway, I wouldn't put much store in one but

give/take a couple weeks in both directions. All in God's time I say. Due

dates cause a lot of induced labors which cause a lot of delivery problems and

sick babies being born but that's another soap box and I " m sorry.

s.

Re: ? for those who found out via ultrasound

Hi Michele~

Just to answer your question, we found out about Maddie's club feet via

ultrasound. My OB does a new (but not standard) test called a nuchal

translucency test that is performed between 12-16 weeks. This test requires

a " better " sonogram machine. Specifically, one that uses Doppler (like the

weather) technology. It is made by GE. It is* very* clear! Much better than

the standard sono technology. They have it at the University of MD Medical

Center, Center for Advance Fetal Care. Not too far from Dr. Herzenberg in

Baltimore, 15 mins or so. A perinatologist found and diagnosed her

immediately. FYI, they wanted to preform an amnio, which I agreed. Knowing

what I know now, I would not have gotten the amnio.

Once she was diagnosed, we continued to go there for follow up sonos, just

to ensure that her legs were developing properly. I did have a " regular "

sono toward the end of my pregnancy, and I could definitely notice the

difference. If you can not get to U of MD after one of appointments,

maybe you could call them and ask about the GE machine.

Best of luck to you. BTW, I have sono pics if you are interested.

Kim

Mom to Maddie, BCF 06/16/2005.

>

> Hey everyone, We didn't know about Collin's foot through the ultra

> sound and I was wondering if you found out through the regular ultra

> sound machine in the office or stronger ones they out sourced you

> too? I wasn't sure if you need a certain level machine to see it.

> With Collin I had several ultra sounds at the doctor's office, at

> places like labs, and also at the antinatal testing unit, specifically

> looking for birth defects, etc and no one saw his foot so I always

> wondered. We did have a feeling the one doctor saw it, by behavior

> but it was never told to us. But there had to be some reason or

> another they kept on sending us for extra ultrasounds, etc. Just

> wondering, I'm about 12 weeks pregnant now, and I want to try to have

> them look this time around specifically for clubfoot just so we have

> our game plan ready this time.

>

> Michele

> Collin's story at http://www.geocities.com/chele323232

>

October 24, 2005