Re: - how do you get the ER dr to listen?

[Guest guest]

How blessed you are to have that type of protocol. It seems that most

of our docs just don't realize the importance of hydration and treating

aggressively. Even after everything we have dealt with our ped (who I do

really like) keeps saying, " It's only a virus " when I bring the girls to see

her. I always respond, " Yeah, but in my girls, viruses cause strokes. " I

really thought we were going to get some help from the GI but not sure if

she will have much pull anymore after speaking to Dr. Whiteman. It sure

sounds like Dr. Cohen has the ability to say what he wants done with his

patients.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)

RE: how do you get the ER dr to listen?

> We have completely eliminated the need for the ER with Grace when fluids

> are needed. Dr. Cohen very willingly called my pediatrician and explaned

> her need for fluids and when. All we need to do is call our pediatrician

> when we feel it is necessary to go and she will direct admit her. We

> usually get very funny looks from the residents and nurses when they first

> assess her, but there is nothing they can do because they have to follow

> the admitting doctors orders.

>

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> Claim your Space NOW! Have fun sharing blogs, photos and music lists

> online.

>

> Please contact mito-owner with any problems or questions.

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>

[Guest guest]

How blessed you are to have that type of protocol. It seems that most

of our docs just don't realize the importance of hydration and treating

aggressively. Even after everything we have dealt with our ped (who I do

really like) keeps saying, " It's only a virus " when I bring the girls to see

her. I always respond, " Yeah, but in my girls, viruses cause strokes. " I

really thought we were going to get some help from the GI but not sure if

she will have much pull anymore after speaking to Dr. Whiteman. It sure

sounds like Dr. Cohen has the ability to say what he wants done with his

patients.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)

RE: how do you get the ER dr to listen?

> We have completely eliminated the need for the ER with Grace when fluids

> are needed. Dr. Cohen very willingly called my pediatrician and explaned

> her need for fluids and when. All we need to do is call our pediatrician

> when we feel it is necessary to go and she will direct admit her. We

> usually get very funny looks from the residents and nurses when they first

> assess her, but there is nothing they can do because they have to follow

> the admitting doctors orders.

>

>

>

>

>

>

>

--------------------------------------------------------------------------------

> Claim your Space NOW! Have fun sharing blogs, photos and music lists

> online.

>

> Please contact mito-owner with any problems or questions.

>

>

>

>

--------------------------------------------------------------------------------

>