Re: Both girls sick again with nasty bug

[Guest guest]

i can sympathize. we have been trying to keep zach as healthy as possible. they both will be in our prayers, but avoiding these nasty bugs is an endless task specially to our medically fragile ones .

mom to zach 4, ga2 alexis 6 Darla Klein wrote:

Please pray for our girls as both are really struggling with a virus presently. Last night Zipporrah's heart rate was up to 198 while sleeping! She has been battling a temperature as well and lethargy. Asenath began going downhill today as well sleeping most of the day, having a temp of 103 degrees, having apnea tonight tons, and her heart rate is raising as well. I am pushing the fluids and hoping the girls get through it quickly without a hospital stay. Zipporrah never seems to be without a virus and it seemed that once we stopped her iron supplement last week she immediately went downhill with this virus and then it started spreading to the rest of the family. I will keep you posted. I am hoping we can keep the new member of the household free from the virus as

he just had brain surgery to revise his shunt and then his twin sister arrives on Sunday. I hope we don't give it to her either! Praying for calm waters this way. Tiz the season, huh?See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see a photo look into what Mito looks likeDarla: mommy toAsenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting, bladder issues, wheelchair for distances, eye issues, autistic behaviors, gastric emptying issues...Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD, dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency, ...Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8),

Kezia (4), & Marquis (3), Joey & (12 months) (some with Mito symptoms) Please contact mito-owner with any problems or questions. __________________________________________________

[Guest guest]

i can sympathize. we have been trying to keep zach as healthy as possible. they both will be in our prayers, but avoiding these nasty bugs is an endless task specially to our medically fragile ones .

mom to zach 4, ga2 alexis 6 Darla Klein wrote:

Please pray for our girls as both are really struggling with a virus presently. Last night Zipporrah's heart rate was up to 198 while sleeping! She has been battling a temperature as well and lethargy. Asenath began going downhill today as well sleeping most of the day, having a temp of 103 degrees, having apnea tonight tons, and her heart rate is raising as well. I am pushing the fluids and hoping the girls get through it quickly without a hospital stay. Zipporrah never seems to be without a virus and it seemed that once we stopped her iron supplement last week she immediately went downhill with this virus and then it started spreading to the rest of the family. I will keep you posted. I am hoping we can keep the new member of the household free from the virus as

he just had brain surgery to revise his shunt and then his twin sister arrives on Sunday. I hope we don't give it to her either! Praying for calm waters this way. Tiz the season, huh?See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see a photo look into what Mito looks likeDarla: mommy toAsenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting, bladder issues, wheelchair for distances, eye issues, autistic behaviors, gastric emptying issues...Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD, dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency, ...Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8),

Kezia (4), & Marquis (3), Joey & (12 months) (some with Mito symptoms) Please contact mito-owner with any problems or questions. __________________________________________________

[Guest guest]

Darla- Oh my Gosh! You have two new children now?!?!

I will need to do some archive digging to get the full story.

Sorry to hear the girls are battling another bug.

I will pray for a quick & non hospital stay recovery for them.

As always you and your family are in my prayers.

I'll just need to add on two more names.....

Lee

[Guest guest]

Darla- Oh my Gosh! You have two new children now?!?!

I will need to do some archive digging to get the full story.

Sorry to hear the girls are battling another bug.

I will pray for a quick & non hospital stay recovery for them.

As always you and your family are in my prayers.

I'll just need to add on two more names.....

Lee

[Guest guest]

Hey Darla,

You really have your hands full. I pray the best for your family, and especially Asenath and Zipporah. If we lived closer, I would love to give you a hand. Keep looking up for strength.

JoniDarla Klein wrote:

Please pray for our girls as both are really struggling with a virus presently. Last night Zipporrah's heart rate was up to 198 while sleeping! She has been battling a temperature as well and lethargy. Asenath began going downhill today as well sleeping most of the day, having a temp of 103 degrees, having apnea tonight tons, and her heart rate is raising as well. I am pushing the fluids and hoping the girls get through it quickly without a hospital stay. Zipporrah never seems to be without a virus and it seemed that once we stopped her iron supplement last week she immediately went downhill with this virus and then it started spreading to the rest of the family. I will keep you posted. I am hoping we can keep the new member of the household free from the virus as

he just had brain surgery to revise his shunt and then his twin sister arrives on Sunday. I hope we don't give it to her either! Praying for calm waters this way. Tiz the season, huh?See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see a photo look into what Mito looks likeDarla: mommy toAsenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting, bladder issues, wheelchair for distances, eye issues, autistic behaviors, gastric emptying issues...Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD, dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency, ...Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8),

Kezia (4), & Marquis (3), Joey & (12 months) (some with Mito symptoms) Please contact mito-owner with any problems or questions. __________________________________________________

[Guest guest]

Darla-

I do hope the virus will pass quickly. is still fighting a virus, going on almost 3 weeks now. Bless your girls' hearts. Praying that the virus lets up soon. I hate to hear they are so ill again/seems you never catch a break. Sending you warm hugs and well wishes.

Congrats on the new arrivals.

Ann

sarah wrote:

i can sympathize. we have been trying to keep zach as healthy as possible. they both will be in our prayers, but avoiding these nasty bugs is an endless task specially to our medically fragile ones .

mom to zach 4, ga2 alexis 6 Darla Klein wrote:

Please pray for our girls as both are really struggling with a virus presently. Last night Zipporrah's heart rate was up to 198 while sleeping! She has been battling a temperature as well and lethargy. Asenath began going downhill today as well sleeping most of the day, having a temp of 103 degrees, having apnea tonight tons, and her heart rate is raising as well. I am pushing the fluids and hoping the girls get through it quickly without a hospital stay. Zipporrah never seems to be without a virus and it seemed that once we stopped her iron supplement last week she immediately went downhill with this virus and then it started spreading to the rest of the family. I will keep you posted. I am hoping we can keep the new member of the household free from the virus as

he just had brain surgery to revise his shunt and then his twin sister arrives on Sunday. I hope we don't give it to her either! Praying for calm waters this way. Tiz the season, huh?See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see a photo look into what Mito looks likeDarla: mommy toAsenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting, bladder issues, wheelchair for distances, eye issues, autistic behaviors, gastric emptying issues...Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD, dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency, ...Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8),

Kezia (4), & Marquis (3), Joey & (12 months) (some with Mito symptoms) Please contact mito-owner with any problems or questions.

__________________________________________________

[Guest guest]

Yes, the addition was a surprise to us as well. We received a phone call

two weeks ago from our local Department of Human Services asking if we were

open to adopting twin 13 month olds. We were very hesitant and almost said

no, but after really talking about it and spending lots of time in prayer

and research on Joey's condition, we felt it was the right thing to do, SO

Joey came home from the hospital on last Tuesday and arrived this

morning. It will be an interesting transitional phase here in our home for

a while as the little ones get used to living in a new place and we hope we

are able to help them adjust quickly. In a perfect world, their parents

could have cared for them, but sadly, there are so many children needing

homes; specially special needs kids like Joey. I thought you might like to

see a photo of them so see the attachment. Hope you are doing well. Let me

know what's been up sometime when you get the chance.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)

Re: Both girls sick again with nasty bug

>

>

> Darla- Oh my Gosh! You have two new children now?!?!

> I will need to do some archive digging to get the full story.

> Sorry to hear the girls are battling another bug.

> I will pray for a quick & non hospital stay recovery for them.

>

> As always you and your family are in my prayers.

> I'll just need to add on two more names.....

>

> Lee

>

>

>

>

>

>

>

>

> Please contact mito-owner with any problems or questions.

>