Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 I am living in Wyoming and feel the climate and altitude are getting the best of me. I have been considering moving to the Pheonix area but I am worried about the heat. I would also like to move to an area where the Drs do not seem afraid to try to treat me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 I am living in Wyoming and feel the climate and altitude are getting the best of me. I have been considering moving to the Pheonix area but I am worried about the heat. I would also like to move to an area where the Drs do not seem afraid to try to treat me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 Where at in Wyoming? My husband and I just moved from there to Ft. KY. He lived there his whole life and I went to Casper College. We met after high school. I have lived there for the last 5 years. Its not a great climate. It always made me feel worse when the heat got to high. This spring my husband is going to Iraq and I am going back to Alaska to hang out with my family for a few months. If the climate there treats me better then I am staying. I was actually thinking the cooler the climate the better....... Except all the neuro-sarc specialist that I have met are in Houston TX.... Maybe I will ask them?!debbie62062 wrote: I am living in Wyoming and feel the climate and altitude are getting the best of me. I have been considering moving to the Pheonix area but I am worried about the heat. I would also like to move to an area where the Drs do not seem afraid to try to treat me. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 Where at in Wyoming? My husband and I just moved from there to Ft. KY. He lived there his whole life and I went to Casper College. We met after high school. I have lived there for the last 5 years. Its not a great climate. It always made me feel worse when the heat got to high. This spring my husband is going to Iraq and I am going back to Alaska to hang out with my family for a few months. If the climate there treats me better then I am staying. I was actually thinking the cooler the climate the better....... Except all the neuro-sarc specialist that I have met are in Houston TX.... Maybe I will ask them?!debbie62062 wrote: I am living in Wyoming and feel the climate and altitude are getting the best of me. I have been considering moving to the Pheonix area but I am worried about the heat. I would also like to move to an area where the Drs do not seem afraid to try to treat me. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 I find everyone is different, the cold just kills me, I hurt so bad when it's cold, and in the summer I just stay out of the heat and the sun, we don't get very hot for very long here, but the winters can be brutal, I live in Colorado. I like the heat, but I don't feel good if I'm out in it for very long, if i am in the shade I do OK a little longer, so are you in Casper? I live in Northern Colorado a little town called Windsor. Marla Where at in Wyoming? My husband and I just moved from there to Ft. KY. He lived there his whole life and I went to Casper College. We met after high school. I have lived there for the last 5 years. Its not a great climate. It always made me feel worse when the heat got to high. This spring my husband is going to Iraq and I am going back to Alaska to hang out with my family for a few months. If the climate there treats me better then I am staying. I was actually thinking the cooler the climate the better....... Except all the neuro-sarc specialist that I have met are in Houston TX.... Maybe I will ask them?!debbie62062 wrote: I am living in Wyoming and feel the climate and altitude are getting the best of me. I have been considering moving to the Pheonix area but I am worried about the heat. I would also like to move to an area where the Drs do not seem afraid to try to treat me. Looking for last minute shopping deals? Find them fast with Yahoo! Search. -- Marla BramerIndependent Beauty Consultant Kay mbramer@...www.marykay.com/mbramer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 I have so much trouble with the sun especially and the heat that my son teases me about my vampiric ways. I live in FL and during the warm sunny days it is a nightmare. If I stay out in it any time at all I start going down like a rock, if I stay out too long I have to lay down. I did better when I lives in north central georgia, the weather there worked better for me. Connie --- Marla Bramer wrote: > I find everyone is different, the cold just kills > me, I hurt so bad when > it's cold, and in the summer I just stay out of the > heat and the sun, we > don't get very hot for very long here, but the > winters can be brutal, I live > in Colorado. I like the heat, but I don't feel good > if I'm out in it for > very long, if i am in the shade I do OK a little > longer, so are you in > Casper? I live in Northern Colorado a little town > called Windsor. Marla > > On Feb 17, 2008 7:24 PM, Kendra H > wrote: > > > Where at in Wyoming? My husband and I just moved > from there to Ft. > > KY. He lived there his whole life and I > went to Casper College. We > > met after high school. I have lived there for the > last 5 years. Its not a > > great climate. It always made me feel worse when > the heat got to high. This > > spring my husband is going to Iraq and I am going > back to Alaska to hang out > > with my family for a few months. If the climate > there treats me better then > > I am staying. I was actually thinking the cooler > the climate the > > better....... Except all the neuro-sarc specialist > that I have met are in > > Houston TX.... > > > > Maybe I will ask them?! > > *debbie62062 * wrote: > > > > I am living in Wyoming and feel the climate and > altitude are getting > > the best of me. I have been considering moving to > the Pheonix area but > > I am worried about the heat. I would also like to > move to an area > > where the Drs do not seem afraid to try to treat > me. > > > > > > ------------------------------ > > Looking for last minute shopping deals? Find them > fast with Yahoo! > Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newsearc\ h/category.php?category=shopping> > > > > > > > > -- > Marla Bramer > Independent Beauty Consultant > Kay > > mbramer@... > www.marykay.com/mbramer > ________________________________________________________________________________\ ____ OMG, Sweet deal for Yahoo! users/friends:Get A Month of Blockbuster Total Access, No Cost. W00t http://tc.deals.yahoo.com/tc/blockbuster/text2.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 I have so much trouble with the sun especially and the heat that my son teases me about my vampiric ways. I live in FL and during the warm sunny days it is a nightmare. If I stay out in it any time at all I start going down like a rock, if I stay out too long I have to lay down. I did better when I lives in north central georgia, the weather there worked better for me. Connie --- Marla Bramer wrote: > I find everyone is different, the cold just kills > me, I hurt so bad when > it's cold, and in the summer I just stay out of the > heat and the sun, we > don't get very hot for very long here, but the > winters can be brutal, I live > in Colorado. I like the heat, but I don't feel good > if I'm out in it for > very long, if i am in the shade I do OK a little > longer, so are you in > Casper? I live in Northern Colorado a little town > called Windsor. Marla > > On Feb 17, 2008 7:24 PM, Kendra H > wrote: > > > Where at in Wyoming? My husband and I just moved > from there to Ft. > > KY. He lived there his whole life and I > went to Casper College. We > > met after high school. I have lived there for the > last 5 years. Its not a > > great climate. It always made me feel worse when > the heat got to high. This > > spring my husband is going to Iraq and I am going > back to Alaska to hang out > > with my family for a few months. If the climate > there treats me better then > > I am staying. I was actually thinking the cooler > the climate the > > better....... Except all the neuro-sarc specialist > that I have met are in > > Houston TX.... > > > > Maybe I will ask them?! > > *debbie62062 * wrote: > > > > I am living in Wyoming and feel the climate and > altitude are getting > > the best of me. I have been considering moving to > the Pheonix area but > > I am worried about the heat. I would also like to > move to an area > > where the Drs do not seem afraid to try to treat > me. > > > > > > ------------------------------ > > Looking for last minute shopping deals? Find them > fast with Yahoo! > Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newsearc\ h/category.php?category=shopping> > > > > > > > > -- > Marla Bramer > Independent Beauty Consultant > Kay > > mbramer@... > www.marykay.com/mbramer > ________________________________________________________________________________\ ____ OMG, Sweet deal for Yahoo! users/friends:Get A Month of Blockbuster Total Access, No Cost. W00t http://tc.deals.yahoo.com/tc/blockbuster/text2.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Hi, I've spoken to several doctors about this and they all agree that a warm dry climate like the south west is best. High humidity is the worst thing for NS and problems from sunlight are more related to the meds your on than the NS. We should have from stats from this group, where are most of the NS members from? regards, RickConnie Griffis wrote: I have so much trouble with the sun especially and theheat that my son teases me about my vampiric ways. Ilive in FL and during the warm sunny days it is anightmare. If I stay out in it any time at all Istart going down like a rock, if I stay out too long Ihave to lay down. I did better when I lives in northcentral georgia, the weather there worked better forme. Connie--- Marla Bramer <mebramer (AT) gmail (DOT) com> wrote:> I find everyone is different, the cold just kills> me, I hurt so bad when> it's cold, and in the summer I just stay out of the> heat and the sun, we> don't get very hot for very long here, but the> winters can be brutal, I live> in Colorado. I like the heat, but I don't feel good> if I'm out in it for> very long, if i am in the shade I do OK a little> longer, so are you in> Casper? I live in Northern Colorado a little town> called Windsor. Marla> > On Feb 17, 2008 7:24 PM, Kendra H> <kluvsrsanda (AT) yahoo (DOT) com> wrote:> > > Where at in Wyoming? My husband and I just moved> from there to Ft.> > KY. He lived there his whole life and I> went to Casper College. We> > met after high school. I have lived there for the> last 5 years. Its not a> > great climate. It always made me feel worse when> the heat got to high. This> > spring my husband is going to Iraq and I am going> back to Alaska to hang out> > with my family for a few months. If the climate> there treats me better then> > I am staying. I was actually thinking the cooler> the climate the> > better....... Except all the neuro-sarc specialist> that I have met are in> > Houston TX....> >> > Maybe I will ask them?!> > *debbie62062 <debbie62062 (AT) yahoo (DOT) com>* wrote:> >> > I am living in Wyoming and feel the climate and> altitude are getting> > the best of me. I have been considering moving to> the Pheonix area but> > I am worried about the heat. I would also like to> move to an area> > where the Drs do not seem afraid to try to treat> me.> >> >> > ------------------------------> > Looking for last minute shopping deals? Find them> fast with Yahoo!>Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newsearch/category.php?category=shopping>> > > >> > > > -- > Marla Bramer> Independent Beauty Consultant> Kay> > mbramer (AT) marykay (DOT) com> www.marykay.com/mbramer> __________________________________________________________OMG, Sweet deal for Yahoo! users/friends:Get A Month of Blockbuster Total Access, No Cost. W00t http://tc.deals.yahoo.com/tc/blockbuster/text2.com Like movies? Here's a limited-time offer: Blockbuster Total Access for one month at no cost. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Hi, I've spoken to several doctors about this and they all agree that a warm dry climate like the south west is best. High humidity is the worst thing for NS and problems from sunlight are more related to the meds your on than the NS. We should have from stats from this group, where are most of the NS members from? regards, RickConnie Griffis wrote: I have so much trouble with the sun especially and theheat that my son teases me about my vampiric ways. Ilive in FL and during the warm sunny days it is anightmare. If I stay out in it any time at all Istart going down like a rock, if I stay out too long Ihave to lay down. I did better when I lives in northcentral georgia, the weather there worked better forme. Connie--- Marla Bramer <mebramer (AT) gmail (DOT) com> wrote:> I find everyone is different, the cold just kills> me, I hurt so bad when> it's cold, and in the summer I just stay out of the> heat and the sun, we> don't get very hot for very long here, but the> winters can be brutal, I live> in Colorado. I like the heat, but I don't feel good> if I'm out in it for> very long, if i am in the shade I do OK a little> longer, so are you in> Casper? I live in Northern Colorado a little town> called Windsor. Marla> > On Feb 17, 2008 7:24 PM, Kendra H> <kluvsrsanda (AT) yahoo (DOT) com> wrote:> > > Where at in Wyoming? My husband and I just moved> from there to Ft.> > KY. He lived there his whole life and I> went to Casper College. We> > met after high school. I have lived there for the> last 5 years. Its not a> > great climate. It always made me feel worse when> the heat got to high. This> > spring my husband is going to Iraq and I am going> back to Alaska to hang out> > with my family for a few months. If the climate> there treats me better then> > I am staying. I was actually thinking the cooler> the climate the> > better....... Except all the neuro-sarc specialist> that I have met are in> > Houston TX....> >> > Maybe I will ask them?!> > *debbie62062 <debbie62062 (AT) yahoo (DOT) com>* wrote:> >> > I am living in Wyoming and feel the climate and> altitude are getting> > the best of me. I have been considering moving to> the Pheonix area but> > I am worried about the heat. I would also like to> move to an area> > where the Drs do not seem afraid to try to treat> me.> >> >> > ------------------------------> > Looking for last minute shopping deals? Find them> fast with Yahoo!>Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newsearch/category.php?category=shopping>> > > >> > > > -- > Marla Bramer> Independent Beauty Consultant> Kay> > mbramer (AT) marykay (DOT) com> www.marykay.com/mbramer> __________________________________________________________OMG, Sweet deal for Yahoo! users/friends:Get A Month of Blockbuster Total Access, No Cost. W00t http://tc.deals.yahoo.com/tc/blockbuster/text2.com Like movies? Here's a limited-time offer: Blockbuster Total Access for one month at no cost. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Rick, You know it's interesting, I can't handle real cold dry air-- but the heat of desert states would totally do me in-- my body can no longer control body temperature-- so I've adapted by using a " cooling vest " when temps hit 80+. as far as stats-- we don't do anything in that way-- we're here to teach coping skills, and share what works for us, and what is new to sarc research. We have 2 owners, Darlene and myself, and 4 moderators-- Rose, , Debbie, Kim. Kim has been too sick for the last several years to help-- so we're down 1. Then Rose is having family health issues with her daughter (Jennie just had pancreatic sx yesterday) and her mom has Alzheimers. So she's not available right now. Debbie is seriously ill- so not available-3. is also very very ill, and I don't know how she's holding up--between vertigo, blurred vision, dizziness, and progressive sarc with idiot docs treating her-- she's trying to be here as she can- and I know she needs to not have to be counted on. Darlene is not only fighting her own battle with sarc, but also takes care of her premie granddaughter-- and that is enough to drain anyone when healthy. So--it really is just and I right now-- and I too am fighting my own battle. So--statistically, it's not gonna happen. However, if you are a stats person-- FSR Foundation for sarcoidosis research-- may have those kind of answers. Also, there was a study done just a couple of years back-- the ACCESS study- that did do alot of statistical stuff. Anyway I don't mean to sound pissy, and I'm sure I am-- so I apologize, send me a rope I can put around my neck please... Hugs, Tracie NS Coowner/moderator --- Rick Jack wrote: > Hi, > I've spoken to several doctors about this and > they all agree that a warm dry climate like the > south west is best. High humidity is the worst thing > for NS and problems from sunlight are more related > to the meds your on than the NS. > We should have from stats from this group, where > are most of the NS members from? > regards, > Rick > > Connie Griffis wrote: > I have so much trouble with the sun > especially and the > heat that my son teases me about my vampiric ways. I > live in FL and during the warm sunny days it is a > nightmare. If I stay out in it any time at all I > start going down like a rock, if I stay out too long > I > have to lay down. I did better when I lives in north > central georgia, the weather there worked better for > me. Connie > --- Marla Bramer wrote: > > > I find everyone is different, the cold just kills > > me, I hurt so bad when > > it's cold, and in the summer I just stay out of > the > > heat and the sun, we > > don't get very hot for very long here, but the > > winters can be brutal, I live > > in Colorado. I like the heat, but I don't feel > good > > if I'm out in it for > > very long, if i am in the shade I do OK a little > > longer, so are you in > > Casper? I live in Northern Colorado a little town > > called Windsor. Marla > > > > On Feb 17, 2008 7:24 PM, Kendra H > > wrote: > > > > > Where at in Wyoming? My husband and I just moved > > from there to Ft. > > > KY. He lived there his whole life and I > > went to Casper College. We > > > met after high school. I have lived there for > the > > last 5 years. Its not a > > > great climate. It always made me feel worse when > > the heat got to high. This > > > spring my husband is going to Iraq and I am > going > > back to Alaska to hang out > > > with my family for a few months. If the climate > > there treats me better then > > > I am staying. I was actually thinking the cooler > > the climate the > > > better....... Except all the neuro-sarc > specialist > > that I have met are in > > > Houston TX.... > > > > > > Maybe I will ask them?! > > > *debbie62062 * wrote: > > > > > > I am living in Wyoming and feel the climate and > > altitude are getting > > > the best of me. I have been considering moving > to > > the Pheonix area but > > > I am worried about the heat. I would also like > to > > move to an area > > > where the Drs do not seem afraid to try to treat > > me. > > > > > > > > > ------------------------------ > > > Looking for last minute shopping deals? Find > them > > fast with Yahoo! > > > Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newsearc\ h/category.php?category=shopping> > > > > > > > > > > > > > > -- > > Marla Bramer > > Independent Beauty Consultant > > Kay > > > > mbramer@... > > www.marykay.com/mbramer > > > > __________________________________________________________ > OMG, Sweet deal for Yahoo! users/friends:Get A Month > of Blockbuster Total Access, No Cost. W00t > http://tc.deals.yahoo.com/tc/blockbuster/text2.com > > > > > > --------------------------------- > Like movies? Here's a limited-time offer: > Blockbuster Total Access for one month at no cost. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Rick, You know it's interesting, I can't handle real cold dry air-- but the heat of desert states would totally do me in-- my body can no longer control body temperature-- so I've adapted by using a " cooling vest " when temps hit 80+. as far as stats-- we don't do anything in that way-- we're here to teach coping skills, and share what works for us, and what is new to sarc research. We have 2 owners, Darlene and myself, and 4 moderators-- Rose, , Debbie, Kim. Kim has been too sick for the last several years to help-- so we're down 1. Then Rose is having family health issues with her daughter (Jennie just had pancreatic sx yesterday) and her mom has Alzheimers. So she's not available right now. Debbie is seriously ill- so not available-3. is also very very ill, and I don't know how she's holding up--between vertigo, blurred vision, dizziness, and progressive sarc with idiot docs treating her-- she's trying to be here as she can- and I know she needs to not have to be counted on. Darlene is not only fighting her own battle with sarc, but also takes care of her premie granddaughter-- and that is enough to drain anyone when healthy. So--it really is just and I right now-- and I too am fighting my own battle. So--statistically, it's not gonna happen. However, if you are a stats person-- FSR Foundation for sarcoidosis research-- may have those kind of answers. Also, there was a study done just a couple of years back-- the ACCESS study- that did do alot of statistical stuff. Anyway I don't mean to sound pissy, and I'm sure I am-- so I apologize, send me a rope I can put around my neck please... Hugs, Tracie NS Coowner/moderator --- Rick Jack wrote: > Hi, > I've spoken to several doctors about this and > they all agree that a warm dry climate like the > south west is best. High humidity is the worst thing > for NS and problems from sunlight are more related > to the meds your on than the NS. > We should have from stats from this group, where > are most of the NS members from? > regards, > Rick > > Connie Griffis wrote: > I have so much trouble with the sun > especially and the > heat that my son teases me about my vampiric ways. I > live in FL and during the warm sunny days it is a > nightmare. If I stay out in it any time at all I > start going down like a rock, if I stay out too long > I > have to lay down. I did better when I lives in north > central georgia, the weather there worked better for > me. Connie > --- Marla Bramer wrote: > > > I find everyone is different, the cold just kills > > me, I hurt so bad when > > it's cold, and in the summer I just stay out of > the > > heat and the sun, we > > don't get very hot for very long here, but the > > winters can be brutal, I live > > in Colorado. I like the heat, but I don't feel > good > > if I'm out in it for > > very long, if i am in the shade I do OK a little > > longer, so are you in > > Casper? I live in Northern Colorado a little town > > called Windsor. Marla > > > > On Feb 17, 2008 7:24 PM, Kendra H > > wrote: > > > > > Where at in Wyoming? My husband and I just moved > > from there to Ft. > > > KY. He lived there his whole life and I > > went to Casper College. We > > > met after high school. I have lived there for > the > > last 5 years. Its not a > > > great climate. It always made me feel worse when > > the heat got to high. This > > > spring my husband is going to Iraq and I am > going > > back to Alaska to hang out > > > with my family for a few months. If the climate > > there treats me better then > > > I am staying. I was actually thinking the cooler > > the climate the > > > better....... Except all the neuro-sarc > specialist > > that I have met are in > > > Houston TX.... > > > > > > Maybe I will ask them?! > > > *debbie62062 * wrote: > > > > > > I am living in Wyoming and feel the climate and > > altitude are getting > > > the best of me. I have been considering moving > to > > the Pheonix area but > > > I am worried about the heat. I would also like > to > > move to an area > > > where the Drs do not seem afraid to try to treat > > me. > > > > > > > > > ------------------------------ > > > Looking for last minute shopping deals? Find > them > > fast with Yahoo! > > > Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newsearc\ h/category.php?category=shopping> > > > > > > > > > > > > > > -- > > Marla Bramer > > Independent Beauty Consultant > > Kay > > > > mbramer@... > > www.marykay.com/mbramer > > > > __________________________________________________________ > OMG, Sweet deal for Yahoo! users/friends:Get A Month > of Blockbuster Total Access, No Cost. W00t > http://tc.deals.yahoo.com/tc/blockbuster/text2.com > > > > > > --------------------------------- > Like movies? Here's a limited-time offer: > Blockbuster Total Access for one month at no cost. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Rick, My biggest heat issue has nothing to do with meds; I have problems with being able to regulate my temp. If I get too hot I get sick if I get too cold I am miserable. I do have one medicine that can cause problems with the sun but I don't go in the sun. I can get overheated just sitting next to a lamp. I agree that anywhere with low humidity would probably be good. We have pretty high humidity here in the summer and it is a bummer! Talk to you again soon. Terri > > > > > > I am living in Wyoming and feel the climate and > > altitude are getting > > > the best of me. I have been considering moving to > > the Pheonix area but > > > I am worried about the heat. I would also like to > > move to an area > > > where the Drs do not seem afraid to try to treat > > me. > > > > > > > > > ------------------------------ > > > Looking for last minute shopping deals? Find them > > fast with Yahoo! > > > Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/\ newsearch/category.php?category=shopping> > > > > > > > > > > > > > > -- > > Marla Bramer > > Independent Beauty Consultant > > Kay > > > > mbramer@... > > www.marykay.com/mbramer > > > > __________________________________________________________ > OMG, Sweet deal for Yahoo! users/friends:Get A Month of Blockbuster Total Access, No Cost. W00t > http://tc.deals.yahoo.com/tc/blockbuster/text2.com > > > > > > --------------------------------- > Like movies? Here's a limited-time offer: Blockbuster Total Access for one month at no cost. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Rick, My biggest heat issue has nothing to do with meds; I have problems with being able to regulate my temp. If I get too hot I get sick if I get too cold I am miserable. I do have one medicine that can cause problems with the sun but I don't go in the sun. I can get overheated just sitting next to a lamp. I agree that anywhere with low humidity would probably be good. We have pretty high humidity here in the summer and it is a bummer! Talk to you again soon. Terri > > > > > > I am living in Wyoming and feel the climate and > > altitude are getting > > > the best of me. I have been considering moving to > > the Pheonix area but > > > I am worried about the heat. I would also like to > > move to an area > > > where the Drs do not seem afraid to try to treat > > me. > > > > > > > > > ------------------------------ > > > Looking for last minute shopping deals? Find them > > fast with Yahoo! > > > Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/\ newsearch/category.php?category=shopping> > > > > > > > > > > > > > > -- > > Marla Bramer > > Independent Beauty Consultant > > Kay > > > > mbramer@... > > www.marykay.com/mbramer > > > > __________________________________________________________ > OMG, Sweet deal for Yahoo! users/friends:Get A Month of Blockbuster Total Access, No Cost. W00t > http://tc.deals.yahoo.com/tc/blockbuster/text2.com > > > > > > --------------------------------- > Like movies? Here's a limited-time offer: Blockbuster Total Access for one month at no cost. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Tracie, No need to ever apologize for anything here, you've helped so many people with your knowledge. I think one of the symptoms of NS is acting pissy now and then...and with what we are going through we are allowed to. Getting back to locations. Everyone's situation is different, for me when my NS acts up I can't get warm enough, even during summer. Cold rainy weather is a killer, my knees want to lock up. I can tell two days in advance when it's going to rain by the amount of pain I'm in. My turn to get pissy...I'm so mad that I got this. I think I got it at work. I work in a biology department that is doing studies on immune diseases along with AIDS and cancer. I was very run down and under stress and all of a sudden I wound up in the hospital. I read about all the people who have it worse than me, it's all so unfair. God bless you Tracie. Ricktracie feldhaus wrote: Rick,You know it's interesting, I can't handle real colddry air-- but the heat of desert states would totallydo me in-- my body can no longer control bodytemperature-- so I've adapted by using a "coolingvest" when temps hit 80+. as far as stats-- we don't do anything in that way--we're here to teach coping skills, and share whatworks for us, and what is new to sarc research. We have 2 owners, Darlene and myself, and 4moderators-- Rose, , Debbie, Kim. Kim has been too sick for the last several years tohelp-- so we're down 1. Then Rose is having familyhealth issues with her daughter (Jennie just hadpancreatic sx yesterday) and her mom has Alzheimers. So she's not available right now. Debbie is seriously ill- so not available-3. is also very very ill, and I don't know how she'sholding up--between vertigo, blurred vision,dizziness, and progressive sarc with idiot docstreating her-- she's trying to be here as she can- andI know she needs to not have to be counted on.Darlene is not only fighting her own battle with sarc,but also takes care of her premie granddaughter-- andthat is enough to drain anyone when healthy.So--it really is just and I right now-- and Itoo am fighting my own battle. So--statistically, it's not gonna happen. However, if you are a stats person-- FSR Foundationfor sarcoidosis research-- may have those kind ofanswers.Also, there was a study done just a couple of yearsback-- the ACCESS study- that did do alot ofstatistical stuff. Anyway I don't mean to sound pissy, and I'm sure Iam-- so I apologize, send me a rope I can put aroundmy neck please...Hugs,TracieNS Coowner/moderator--- Rick Jack <jack11973 (AT) yahoo (DOT) com> wrote:> Hi,> I've spoken to several doctors about this and> they all agree that a warm dry climate like the> south west is best. High humidity is the worst thing> for NS and problems from sunlight are more related> to the meds your on than the NS.> We should have from stats from this group, where> are most of the NS members from?> regards,> Rick> > Connie Griffis <conaugusta (AT) yahoo (DOT) com> wrote:> I have so much trouble with the sun> especially and the> heat that my son teases me about my vampiric ways. I> live in FL and during the warm sunny days it is a> nightmare. If I stay out in it any time at all I> start going down like a rock, if I stay out too long> I> have to lay down. I did better when I lives in north> central georgia, the weather there worked better for> me. Connie> --- Marla Bramer <mebramer (AT) gmail (DOT) com> wrote:> > > I find everyone is different, the cold just kills> > me, I hurt so bad when> > it's cold, and in the summer I just stay out of> the> > heat and the sun, we> > don't get very hot for very long here, but the> > winters can be brutal, I live> > in Colorado. I like the heat, but I don't feel> good> > if I'm out in it for> > very long, if i am in the shade I do OK a little> > longer, so are you in> > Casper? I live in Northern Colorado a little town> > called Windsor. Marla> > > > On Feb 17, 2008 7:24 PM, Kendra H> > <kluvsrsanda (AT) yahoo (DOT) com> wrote:> > > > > Where at in Wyoming? My husband and I just moved> > from there to Ft.> > > KY. He lived there his whole life and I> > went to Casper College. We> > > met after high school. I have lived there for> the> > last 5 years. Its not a> > > great climate. It always made me feel worse when> > the heat got to high. This> > > spring my husband is going to Iraq and I am> going> > back to Alaska to hang out> > > with my family for a few months. If the climate> > there treats me better then> > > I am staying. I was actually thinking the cooler> > the climate the> > > better....... Except all the neuro-sarc> specialist> > that I have met are in> > > Houston TX....> > >> > > Maybe I will ask them?!> > > *debbie62062 <debbie62062 (AT) yahoo (DOT) com>* wrote:> > >> > > I am living in Wyoming and feel the climate and> > altitude are getting> > > the best of me. I have been considering moving> to> > the Pheonix area but> > > I am worried about the heat. I would also like> to> > move to an area> > > where the Drs do not seem afraid to try to treat> > me.> > >> > >> > > ------------------------------> > > Looking for last minute shopping deals? Find> them> > fast with Yahoo!> >>Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newsearch/category.php?category=shopping>> > > > > >> > > > > > > > -- > > Marla Bramer> > Independent Beauty Consultant> > Kay> > > > mbramer (AT) marykay (DOT) com> > www.marykay.com/mbramer> > > >__________________________________________________________> OMG, Sweet deal for Yahoo! users/friends:Get A Month> of Blockbuster Total Access, No Cost. W00t > http://tc.deals.yahoo.com/tc/blockbuster/text2.com> > > > > > ---------------------------------> Like movies? Here's a limited-time offer:> Blockbuster Total Access for one month at no cost. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Tracie, No need to ever apologize for anything here, you've helped so many people with your knowledge. I think one of the symptoms of NS is acting pissy now and then...and with what we are going through we are allowed to. Getting back to locations. Everyone's situation is different, for me when my NS acts up I can't get warm enough, even during summer. Cold rainy weather is a killer, my knees want to lock up. I can tell two days in advance when it's going to rain by the amount of pain I'm in. My turn to get pissy...I'm so mad that I got this. I think I got it at work. I work in a biology department that is doing studies on immune diseases along with AIDS and cancer. I was very run down and under stress and all of a sudden I wound up in the hospital. I read about all the people who have it worse than me, it's all so unfair. God bless you Tracie. Ricktracie feldhaus wrote: Rick,You know it's interesting, I can't handle real colddry air-- but the heat of desert states would totallydo me in-- my body can no longer control bodytemperature-- so I've adapted by using a "coolingvest" when temps hit 80+. as far as stats-- we don't do anything in that way--we're here to teach coping skills, and share whatworks for us, and what is new to sarc research. We have 2 owners, Darlene and myself, and 4moderators-- Rose, , Debbie, Kim. Kim has been too sick for the last several years tohelp-- so we're down 1. Then Rose is having familyhealth issues with her daughter (Jennie just hadpancreatic sx yesterday) and her mom has Alzheimers. So she's not available right now. Debbie is seriously ill- so not available-3. is also very very ill, and I don't know how she'sholding up--between vertigo, blurred vision,dizziness, and progressive sarc with idiot docstreating her-- she's trying to be here as she can- andI know she needs to not have to be counted on.Darlene is not only fighting her own battle with sarc,but also takes care of her premie granddaughter-- andthat is enough to drain anyone when healthy.So--it really is just and I right now-- and Itoo am fighting my own battle. So--statistically, it's not gonna happen. However, if you are a stats person-- FSR Foundationfor sarcoidosis research-- may have those kind ofanswers.Also, there was a study done just a couple of yearsback-- the ACCESS study- that did do alot ofstatistical stuff. Anyway I don't mean to sound pissy, and I'm sure Iam-- so I apologize, send me a rope I can put aroundmy neck please...Hugs,TracieNS Coowner/moderator--- Rick Jack <jack11973 (AT) yahoo (DOT) com> wrote:> Hi,> I've spoken to several doctors about this and> they all agree that a warm dry climate like the> south west is best. High humidity is the worst thing> for NS and problems from sunlight are more related> to the meds your on than the NS.> We should have from stats from this group, where> are most of the NS members from?> regards,> Rick> > Connie Griffis <conaugusta (AT) yahoo (DOT) com> wrote:> I have so much trouble with the sun> especially and the> heat that my son teases me about my vampiric ways. I> live in FL and during the warm sunny days it is a> nightmare. If I stay out in it any time at all I> start going down like a rock, if I stay out too long> I> have to lay down. I did better when I lives in north> central georgia, the weather there worked better for> me. Connie> --- Marla Bramer <mebramer (AT) gmail (DOT) com> wrote:> > > I find everyone is different, the cold just kills> > me, I hurt so bad when> > it's cold, and in the summer I just stay out of> the> > heat and the sun, we> > don't get very hot for very long here, but the> > winters can be brutal, I live> > in Colorado. I like the heat, but I don't feel> good> > if I'm out in it for> > very long, if i am in the shade I do OK a little> > longer, so are you in> > Casper? I live in Northern Colorado a little town> > called Windsor. Marla> > > > On Feb 17, 2008 7:24 PM, Kendra H> > <kluvsrsanda (AT) yahoo (DOT) com> wrote:> > > > > Where at in Wyoming? My husband and I just moved> > from there to Ft.> > > KY. He lived there his whole life and I> > went to Casper College. We> > > met after high school. I have lived there for> the> > last 5 years. Its not a> > > great climate. It always made me feel worse when> > the heat got to high. This> > > spring my husband is going to Iraq and I am> going> > back to Alaska to hang out> > > with my family for a few months. If the climate> > there treats me better then> > > I am staying. I was actually thinking the cooler> > the climate the> > > better....... Except all the neuro-sarc> specialist> > that I have met are in> > > Houston TX....> > >> > > Maybe I will ask them?!> > > *debbie62062 <debbie62062 (AT) yahoo (DOT) com>* wrote:> > >> > > I am living in Wyoming and feel the climate and> > altitude are getting> > > the best of me. I have been considering moving> to> > the Pheonix area but> > > I am worried about the heat. I would also like> to> > move to an area> > > where the Drs do not seem afraid to try to treat> > me.> > >> > >> > > ------------------------------> > > Looking for last minute shopping deals? Find> them> > fast with Yahoo!> >>Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newsearch/category.php?category=shopping>> > > > > >> > > > > > > > -- > > Marla Bramer> > Independent Beauty Consultant> > Kay> > > > mbramer (AT) marykay (DOT) com> > www.marykay.com/mbramer> > > >__________________________________________________________> OMG, Sweet deal for Yahoo! users/friends:Get A Month> of Blockbuster Total Access, No Cost. W00t > http://tc.deals.yahoo.com/tc/blockbuster/text2.com> > > > > > ---------------------------------> Like movies? Here's a limited-time offer:> Blockbuster Total Access for one month at no cost. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Terri, We all have find out what works best for us and stick to it. Eating light meals and plenty of sleep seems to help the most. I want to retire asap and I can't afford to stay where I am, so this information is very helpful in deciding which direction to go. regards, Rickmosaicgirl1 wrote: Rick,My biggest heat issue has nothing to do with meds; I have problems withbeing able to regulate my temp. If I get too hot I get sick if I gettoo cold I am miserable. I do have one medicine that can cause problemswith the sun but I don't go in the sun. I can get overheated justsitting next to a lamp.I agree that anywhere with low humidity would probably be good. We havepretty high humidity here in the summer and it is a bummer!Talk to you again soon.Terri> > >> > > I am living in Wyoming and feel the climate and> > altitude are getting> > > the best of me. I have been considering moving to> > the Pheonix area but> > > I am worried about the heat. I would also like to> > move to an area> > > where the Drs do not seem afraid to try to treat> > me.> > >> > >> > > ------------------------------> > > Looking for last minute shopping deals? Find them> > fast with Yahoo!> >>Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/\newsearch/category.php?category=shopping>> > >> > >> >> >> >> > --> > Marla Bramer> > Independent Beauty Consultant> > Kay> > > > mbramer@...> > www.marykay.com/mbramer> >>> __________________________________________________________> OMG, Sweet deal for Yahoo! users/friends:Get A Month of BlockbusterTotal Access, No Cost. W00t> http://tc.deals.yahoo.com/tc/blockbuster/text2.com>>>>>> ---------------------------------> Like movies? Here's a limited-time offer: Blockbuster Total Access forone month at no cost.> Like movies? Here's a limited-time offer: Blockbuster Total Access for one month at no cost. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Terri, We all have find out what works best for us and stick to it. Eating light meals and plenty of sleep seems to help the most. I want to retire asap and I can't afford to stay where I am, so this information is very helpful in deciding which direction to go. regards, Rickmosaicgirl1 wrote: Rick,My biggest heat issue has nothing to do with meds; I have problems withbeing able to regulate my temp. If I get too hot I get sick if I gettoo cold I am miserable. I do have one medicine that can cause problemswith the sun but I don't go in the sun. I can get overheated justsitting next to a lamp.I agree that anywhere with low humidity would probably be good. We havepretty high humidity here in the summer and it is a bummer!Talk to you again soon.Terri> > >> > > I am living in Wyoming and feel the climate and> > altitude are getting> > > the best of me. I have been considering moving to> > the Pheonix area but> > > I am worried about the heat. I would also like to> > move to an area> > > where the Drs do not seem afraid to try to treat> > me.> > >> > >> > > ------------------------------> > > Looking for last minute shopping deals? Find them> > fast with Yahoo!> >>Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/\newsearch/category.php?category=shopping>> > >> > >> >> >> >> > --> > Marla Bramer> > Independent Beauty Consultant> > Kay> > > > mbramer@...> > www.marykay.com/mbramer> >>> __________________________________________________________> OMG, Sweet deal for Yahoo! users/friends:Get A Month of BlockbusterTotal Access, No Cost. W00t> http://tc.deals.yahoo.com/tc/blockbuster/text2.com>>>>>> ---------------------------------> Like movies? Here's a limited-time offer: Blockbuster Total Access forone month at no cost.> Like movies? Here's a limited-time offer: Blockbuster Total Access for one month at no cost. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Rick, When I read that you contracted the sarc via work-- I can relate. The 3 major components we seem to share is that we ended up around pesticides, agricultural dust (or were is Saudi or Desert Storm or such) and that we had exposure to stuff that no one should be around. You all know that my husband and I worked for a pest control company-- It was my job to tell him where to go-- and when the pesticides came in, they delivered to the office, and most of it was under my desk until the techs came by to pick it up. I grew up in the middle of the Almond and Walnut orchards-- and rice fields of No California. I was working for an Internal Medicine doc when i got sick with this-- and he was the doc for all the Missionaires from his church-- so we had some weird stuff from some 3rd world countries come in. Was it virus or bacterial-- no one knows- but boy did it knock me out. I totally get it Rick-- this is one roller coaster ride from hell. LET US ALL OFF!!!!!!!!!!!!!! Sincerely, Tracie --- Rick Jack wrote: > Tracie, > No need to ever apologize for anything here, > you've helped so many people with your knowledge. > I think one of the symptoms of NS is acting pissy > now and then...and with what we are going through we > are allowed to. > Getting back to locations. Everyone's situation > is different, for me when my NS acts up I can't get > warm enough, even during summer. Cold rainy weather > is a killer, my knees want to lock up. I can tell > two days in advance when it's going to rain by the > amount of pain I'm in. > My turn to get pissy...I'm so mad that I got > this. I think I got it at work. I work in a biology > department that is doing studies on immune diseases > along with AIDS and cancer. I was very run down and > under stress and all of a sudden I wound up in the > hospital. I read about all the people who have it > worse than me, it's all so unfair. > God bless you Tracie. > Rick > > tracie feldhaus wrote: > Rick, > You know it's interesting, I can't handle real cold > dry air-- but the heat of desert states would > totally > do me in-- my body can no longer control body > temperature-- so I've adapted by using a " cooling > vest " when temps hit 80+. > as far as stats-- we don't do anything in that way-- > we're here to teach coping skills, and share what > works for us, and what is new to sarc research. > We have 2 owners, Darlene and myself, and 4 > moderators-- Rose, , Debbie, Kim. > Kim has been too sick for the last several years to > help-- so we're down 1. Then Rose is having family > health issues with her daughter (Jennie just had > pancreatic sx yesterday) and her mom has Alzheimers. > > So she's not available right now. > Debbie is seriously ill- so not available-3. > is also very very ill, and I don't know how she's > holding up--between vertigo, blurred vision, > dizziness, and progressive sarc with idiot docs > treating her-- she's trying to be here as she can- > and > I know she needs to not have to be counted on. > Darlene is not only fighting her own battle with > sarc, > but also takes care of her premie granddaughter-- > and > that is enough to drain anyone when healthy. > So--it really is just and I right now-- and I > too am fighting my own battle. > So--statistically, it's not gonna happen. > However, if you are a stats person-- FSR Foundation > for sarcoidosis research-- may have those kind of > answers. > Also, there was a study done just a couple of years > back-- the ACCESS study- that did do alot of > statistical stuff. > > Anyway I don't mean to sound pissy, and I'm sure I > am-- so I apologize, send me a rope I can put around > my neck please... > > Hugs, > Tracie > NS Coowner/moderator > --- Rick Jack wrote: > > > Hi, > > I've spoken to several doctors about this and > > they all agree that a warm dry climate like the > > south west is best. High humidity is the worst > thing > > for NS and problems from sunlight are more related > > to the meds your on than the NS. > > We should have from stats from this group, where > > are most of the NS members from? > > regards, > > Rick > > > > Connie Griffis wrote: > > I have so much trouble with the sun > > especially and the > > heat that my son teases me about my vampiric ways. > I > > live in FL and during the warm sunny days it is a > > nightmare. If I stay out in it any time at all I > > start going down like a rock, if I stay out too > long > > I > > have to lay down. I did better when I lives in > north > > central georgia, the weather there worked better > for > > me. Connie > > --- Marla Bramer wrote: > > > > > I find everyone is different, the cold just > kills > > > me, I hurt so bad when > > > it's cold, and in the summer I just stay out of > > the > > > heat and the sun, we > > > don't get very hot for very long here, but the > > > winters can be brutal, I live > > > in Colorado. I like the heat, but I don't feel > > good > > > if I'm out in it for > > > very long, if i am in the shade I do OK a little > > > longer, so are you in > > > Casper? I live in Northern Colorado a little > town > > > called Windsor. Marla > > > > > > On Feb 17, 2008 7:24 PM, Kendra H > > > wrote: > > > > > > > Where at in Wyoming? My husband and I just > moved > > > from there to Ft. > > > > KY. He lived there his whole life and > I > > > went to Casper College. We > > > > met after high school. I have lived there for > > the > > > last 5 years. Its not a > > > > great climate. It always made me feel worse > when > > > the heat got to high. This > > > > spring my husband is going to Iraq and I am > > going > > > back to Alaska to hang out > > > > with my family for a few months. If the > climate > > > there treats me better then > > > > I am staying. I was actually thinking the > cooler > > > the climate the > > > > better....... Except all the neuro-sarc > > specialist > > > that I have met are in > > > > Houston TX.... > > > > > > > > Maybe I will ask them?! > > > > *debbie62062 * wrote: > > > > > > > > I am living in Wyoming and feel the climate > and > > > altitude are getting > > > > the best of me. I have been considering moving > > to > > > the Pheonix area but > > > > I am worried about the heat. I would also like > > to > > > move to an area > > > > where the Drs do not seem afraid to try to > treat > > > me. > > > > > > > > > > > > ------------------------------ > > > > Looking for last minute shopping deals? Find > > them > > > fast with Yahoo! > > > > > > Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newsearc\ h/category.php?category=shopping> > > > > > > > > > > > > > > > > > > > > -- > > > Marla Bramer > > > Independent Beauty Consultant > > > Kay > > > > > > mbramer@... > > > www.marykay.com/mbramer > > > > > > > > __________________________________________________________ > > OMG, Sweet deal for Yahoo! users/friends:Get A > Month > > of Blockbuster Total Access, No Cost. W00t > > http://tc.deals.yahoo.com/tc/blockbuster/text2.com > > > > > > > > > > > > --------------------------------- > > Like movies? Here's a limited-time offer: > > Blockbuster Total Access for one month at no cost. > > > === message truncated === Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Rick, When I read that you contracted the sarc via work-- I can relate. The 3 major components we seem to share is that we ended up around pesticides, agricultural dust (or were is Saudi or Desert Storm or such) and that we had exposure to stuff that no one should be around. You all know that my husband and I worked for a pest control company-- It was my job to tell him where to go-- and when the pesticides came in, they delivered to the office, and most of it was under my desk until the techs came by to pick it up. I grew up in the middle of the Almond and Walnut orchards-- and rice fields of No California. I was working for an Internal Medicine doc when i got sick with this-- and he was the doc for all the Missionaires from his church-- so we had some weird stuff from some 3rd world countries come in. Was it virus or bacterial-- no one knows- but boy did it knock me out. I totally get it Rick-- this is one roller coaster ride from hell. LET US ALL OFF!!!!!!!!!!!!!! Sincerely, Tracie --- Rick Jack wrote: > Tracie, > No need to ever apologize for anything here, > you've helped so many people with your knowledge. > I think one of the symptoms of NS is acting pissy > now and then...and with what we are going through we > are allowed to. > Getting back to locations. Everyone's situation > is different, for me when my NS acts up I can't get > warm enough, even during summer. Cold rainy weather > is a killer, my knees want to lock up. I can tell > two days in advance when it's going to rain by the > amount of pain I'm in. > My turn to get pissy...I'm so mad that I got > this. I think I got it at work. I work in a biology > department that is doing studies on immune diseases > along with AIDS and cancer. I was very run down and > under stress and all of a sudden I wound up in the > hospital. I read about all the people who have it > worse than me, it's all so unfair. > God bless you Tracie. > Rick > > tracie feldhaus wrote: > Rick, > You know it's interesting, I can't handle real cold > dry air-- but the heat of desert states would > totally > do me in-- my body can no longer control body > temperature-- so I've adapted by using a " cooling > vest " when temps hit 80+. > as far as stats-- we don't do anything in that way-- > we're here to teach coping skills, and share what > works for us, and what is new to sarc research. > We have 2 owners, Darlene and myself, and 4 > moderators-- Rose, , Debbie, Kim. > Kim has been too sick for the last several years to > help-- so we're down 1. Then Rose is having family > health issues with her daughter (Jennie just had > pancreatic sx yesterday) and her mom has Alzheimers. > > So she's not available right now. > Debbie is seriously ill- so not available-3. > is also very very ill, and I don't know how she's > holding up--between vertigo, blurred vision, > dizziness, and progressive sarc with idiot docs > treating her-- she's trying to be here as she can- > and > I know she needs to not have to be counted on. > Darlene is not only fighting her own battle with > sarc, > but also takes care of her premie granddaughter-- > and > that is enough to drain anyone when healthy. > So--it really is just and I right now-- and I > too am fighting my own battle. > So--statistically, it's not gonna happen. > However, if you are a stats person-- FSR Foundation > for sarcoidosis research-- may have those kind of > answers. > Also, there was a study done just a couple of years > back-- the ACCESS study- that did do alot of > statistical stuff. > > Anyway I don't mean to sound pissy, and I'm sure I > am-- so I apologize, send me a rope I can put around > my neck please... > > Hugs, > Tracie > NS Coowner/moderator > --- Rick Jack wrote: > > > Hi, > > I've spoken to several doctors about this and > > they all agree that a warm dry climate like the > > south west is best. High humidity is the worst > thing > > for NS and problems from sunlight are more related > > to the meds your on than the NS. > > We should have from stats from this group, where > > are most of the NS members from? > > regards, > > Rick > > > > Connie Griffis wrote: > > I have so much trouble with the sun > > especially and the > > heat that my son teases me about my vampiric ways. > I > > live in FL and during the warm sunny days it is a > > nightmare. If I stay out in it any time at all I > > start going down like a rock, if I stay out too > long > > I > > have to lay down. I did better when I lives in > north > > central georgia, the weather there worked better > for > > me. Connie > > --- Marla Bramer wrote: > > > > > I find everyone is different, the cold just > kills > > > me, I hurt so bad when > > > it's cold, and in the summer I just stay out of > > the > > > heat and the sun, we > > > don't get very hot for very long here, but the > > > winters can be brutal, I live > > > in Colorado. I like the heat, but I don't feel > > good > > > if I'm out in it for > > > very long, if i am in the shade I do OK a little > > > longer, so are you in > > > Casper? I live in Northern Colorado a little > town > > > called Windsor. Marla > > > > > > On Feb 17, 2008 7:24 PM, Kendra H > > > wrote: > > > > > > > Where at in Wyoming? My husband and I just > moved > > > from there to Ft. > > > > KY. He lived there his whole life and > I > > > went to Casper College. We > > > > met after high school. I have lived there for > > the > > > last 5 years. Its not a > > > > great climate. It always made me feel worse > when > > > the heat got to high. This > > > > spring my husband is going to Iraq and I am > > going > > > back to Alaska to hang out > > > > with my family for a few months. If the > climate > > > there treats me better then > > > > I am staying. I was actually thinking the > cooler > > > the climate the > > > > better....... Except all the neuro-sarc > > specialist > > > that I have met are in > > > > Houston TX.... > > > > > > > > Maybe I will ask them?! > > > > *debbie62062 * wrote: > > > > > > > > I am living in Wyoming and feel the climate > and > > > altitude are getting > > > > the best of me. I have been considering moving > > to > > > the Pheonix area but > > > > I am worried about the heat. I would also like > > to > > > move to an area > > > > where the Drs do not seem afraid to try to > treat > > > me. > > > > > > > > > > > > ------------------------------ > > > > Looking for last minute shopping deals? Find > > them > > > fast with Yahoo! > > > > > > Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newsearc\ h/category.php?category=shopping> > > > > > > > > > > > > > > > > > > > > -- > > > Marla Bramer > > > Independent Beauty Consultant > > > Kay > > > > > > mbramer@... > > > www.marykay.com/mbramer > > > > > > > > __________________________________________________________ > > OMG, Sweet deal for Yahoo! users/friends:Get A > Month > > of Blockbuster Total Access, No Cost. W00t > > http://tc.deals.yahoo.com/tc/blockbuster/text2.com > > > > > > > > > > > > --------------------------------- > > Like movies? Here's a limited-time offer: > > Blockbuster Total Access for one month at no cost. > > > === message truncated === Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 Connie, My husband says I am the whitest girl he has ever seen. I say tough tuckus. Terri > > > > > > I am living in Wyoming and feel the climate and > > altitude are getting > > > the best of me. I have been considering moving to > > the Pheonix area but > > > I am worried about the heat. I would also like to > > move to an area > > > where the Drs do not seem afraid to try to treat > > me. > > > > > > > > > ------------------------------ > > > Looking for last minute shopping deals? Find them > > fast with Yahoo! > > > Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/\ newsearch/category.php?category=shopping> > > > > > > > > > > > > > > -- > > Marla Bramer > > Independent Beauty Consultant > > Kay > > > > mbramer@... > > www.marykay.com/mbramer > > > > > > ________________________________________________________________________\ ____________ > OMG, Sweet deal for Yahoo! users/friends:Get A Month of Blockbuster Total Access, No Cost. W00t > http://tc.deals.yahoo.com/tc/blockbuster/text2.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 Connie, My husband says I am the whitest girl he has ever seen. I say tough tuckus. Terri > > > > > > I am living in Wyoming and feel the climate and > > altitude are getting > > > the best of me. I have been considering moving to > > the Pheonix area but > > > I am worried about the heat. I would also like to > > move to an area > > > where the Drs do not seem afraid to try to treat > > me. > > > > > > > > > ------------------------------ > > > Looking for last minute shopping deals? Find them > > fast with Yahoo! > > > Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/\ newsearch/category.php?category=shopping> > > > > > > > > > > > > > > -- > > Marla Bramer > > Independent Beauty Consultant > > Kay > > > > mbramer@... > > www.marykay.com/mbramer > > > > > > ________________________________________________________________________\ ____________ > OMG, Sweet deal for Yahoo! users/friends:Get A Month of Blockbuster Total Access, No Cost. W00t > http://tc.deals.yahoo.com/tc/blockbuster/text2.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 Rick, I reread my email and it sounded condescending; sorry. I spent the entire day out with my husband yesterday and was tired so I didn't realized how it sounded. You are right about finding what works for us and the advice people share helps us to find those things also. I would love to find somewhere I could live comfortable but I couldn't live in the South (humidity) or the North (too cold) so I guess I am in as good a place as any. Now if I could get my husband to let me control the thermostat - he does not understand that the hotter I am the less I can do. He wonders why I feel bad all the time. He doesn't understand I physically get ill if I am too hot. We have a digital touch screen thermostat. When I walk by I turn it down and when he walks by he turns it up. In the winter he keeps it at 74 degrees. Arrgh! Take care and I hope you find somewhere to move that will help you. Can you take some short jaunts to different locations to see how you react? Terri G. > > > > > > > > I am living in Wyoming and feel the climate and > > > altitude are getting > > > > the best of me. I have been considering moving to > > > the Pheonix area but > > > > I am worried about the heat. I would also like to > > > move to an area > > > > where the Drs do not seem afraid to try to treat > > > me. > > > > > > > > > > > > ------------------------------ > > > > Looking for last minute shopping deals? Find them > > > fast with Yahoo! > > > > > > Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/\ \ > newsearch/category.php?category=shopping> > > > > > > > > > > > > > > > > > > > > -- > > > Marla Bramer > > > Independent Beauty Consultant > > > Kay > > > > > > mbramer@ > > > www.marykay.com/mbramer > > > > > > > __________________________________________________________ > > OMG, Sweet deal for Yahoo! users/friends:Get A Month of Blockbuster > Total Access, No Cost. W00t > > http://tc.deals.yahoo.com/tc/blockbuster/text2.com > > > > > > > > > > > > --------------------------------- > > Like movies? Here's a limited-time offer: Blockbuster Total Access for > one month at no cost. > > > > > > > > > --------------------------------- > Like movies? Here's a limited-time offer: Blockbuster Total Access for one month at no cost. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 Rick, I reread my email and it sounded condescending; sorry. I spent the entire day out with my husband yesterday and was tired so I didn't realized how it sounded. You are right about finding what works for us and the advice people share helps us to find those things also. I would love to find somewhere I could live comfortable but I couldn't live in the South (humidity) or the North (too cold) so I guess I am in as good a place as any. Now if I could get my husband to let me control the thermostat - he does not understand that the hotter I am the less I can do. He wonders why I feel bad all the time. He doesn't understand I physically get ill if I am too hot. We have a digital touch screen thermostat. When I walk by I turn it down and when he walks by he turns it up. In the winter he keeps it at 74 degrees. Arrgh! Take care and I hope you find somewhere to move that will help you. Can you take some short jaunts to different locations to see how you react? Terri G. > > > > > > > > I am living in Wyoming and feel the climate and > > > altitude are getting > > > > the best of me. I have been considering moving to > > > the Pheonix area but > > > > I am worried about the heat. I would also like to > > > move to an area > > > > where the Drs do not seem afraid to try to treat > > > me. > > > > > > > > > > > > ------------------------------ > > > > Looking for last minute shopping deals? Find them > > > fast with Yahoo! > > > > > > Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/\ \ > newsearch/category.php?category=shopping> > > > > > > > > > > > > > > > > > > > > -- > > > Marla Bramer > > > Independent Beauty Consultant > > > Kay > > > > > > mbramer@ > > > www.marykay.com/mbramer > > > > > > > __________________________________________________________ > > OMG, Sweet deal for Yahoo! users/friends:Get A Month of Blockbuster > Total Access, No Cost. W00t > > http://tc.deals.yahoo.com/tc/blockbuster/text2.com > > > > > > > > > > > > --------------------------------- > > Like movies? Here's a limited-time offer: Blockbuster Total Access for > one month at no cost. > > > > > > > > > --------------------------------- > Like movies? Here's a limited-time offer: Blockbuster Total Access for one month at no cost. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2008 Report Share Posted March 31, 2008 Connie I too have that problem, I can only tolerate the heat for about 15-30 mins, and I have to come in and lay down, I feel ill that the flu, not to mention it can trigger a rash to develop, of which leads to more permanent lesions, so I don't do well in the heat or sun, I can manage air cond home to air cond car to air cond where ever I am going. We have been having more days with temps in the 90s here lately, and can't do that, I love the 70s, so I just deal with it, I would think that somewhere where the temps stay in the 60s or 70s would be nice, if you have that flexibility, I do not, I just try to stay out of the sun, I try to keep my arms covered even while driving. hope that helps, marl a I have so much trouble with the sun especially and the heat that my son teases me about my vampiric ways. I live in FL and during the warm sunny days it is a nightmare. If I stay out in it any time at all I start going down like a rock, if I stay out too long I have to lay down. I did better when I lives in north central georgia, the weather there worked better for me. Connie --- Marla Bramer wrote: > I find everyone is different, the cold just kills > me, I hurt so bad when > it's cold, and in the summer I just stay out of the > heat and the sun, we > don't get very hot for very long here, but the > winters can be brutal, I live > in Colorado. I like the heat, but I don't feel good > if I'm out in it for > very long, if i am in the shade I do OK a little > longer, so are you in > Casper? I live in Northern Colorado a little town > called Windsor. Marla > > On Feb 17, 2008 7:24 PM, Kendra H > wrote: > > > Where at in Wyoming? My husband and I just moved > from there to Ft. > > KY. He lived there his whole life and I > went to Casper College. We > > met after high school. I have lived there for the > last 5 years. Its not a > > great climate. It always made me feel worse when > the heat got to high. This > > spring my husband is going to Iraq and I am going > back to Alaska to hang out > > with my family for a few months. If the climate > there treats me better then > > I am staying. I was actually thinking the cooler > the climate the > > better....... Except all the neuro-sarc specialist > that I have met are in > > Houston TX.... > > > > Maybe I will ask them?! > > *debbie62062 * wrote: > > > > I am living in Wyoming and feel the climate and > altitude are getting > > the best of me. I have been considering moving to > the Pheonix area but > > I am worried about the heat. I would also like to > move to an area > > where the Drs do not seem afraid to try to treat > me. > > > > > > ------------------------------ > > Looking for last minute shopping deals? Find them > fast with Yahoo! > Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newsearch/category.php?category=shopping> > > > > > > > > -- > Marla Bramer > Independent Beauty Consultant > Kay > > mbramer@... > www.marykay.com/mbramer > __________________________________________________________ OMG, Sweet deal for Yahoo! users/friends:Get A Month of Blockbuster Total Access, No Cost. W00t http://tc.deals.yahoo.com/tc/blockbuster/text2.com -- Marla BramerIndependent Beauty Consultant Kay mbramer@...www.marykay.com/mbramer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2008 Report Share Posted March 31, 2008 Connie I too have that problem, I can only tolerate the heat for about 15-30 mins, and I have to come in and lay down, I feel ill that the flu, not to mention it can trigger a rash to develop, of which leads to more permanent lesions, so I don't do well in the heat or sun, I can manage air cond home to air cond car to air cond where ever I am going. We have been having more days with temps in the 90s here lately, and can't do that, I love the 70s, so I just deal with it, I would think that somewhere where the temps stay in the 60s or 70s would be nice, if you have that flexibility, I do not, I just try to stay out of the sun, I try to keep my arms covered even while driving. hope that helps, marl a I have so much trouble with the sun especially and the heat that my son teases me about my vampiric ways. I live in FL and during the warm sunny days it is a nightmare. If I stay out in it any time at all I start going down like a rock, if I stay out too long I have to lay down. I did better when I lives in north central georgia, the weather there worked better for me. Connie --- Marla Bramer wrote: > I find everyone is different, the cold just kills > me, I hurt so bad when > it's cold, and in the summer I just stay out of the > heat and the sun, we > don't get very hot for very long here, but the > winters can be brutal, I live > in Colorado. I like the heat, but I don't feel good > if I'm out in it for > very long, if i am in the shade I do OK a little > longer, so are you in > Casper? I live in Northern Colorado a little town > called Windsor. Marla > > On Feb 17, 2008 7:24 PM, Kendra H > wrote: > > > Where at in Wyoming? My husband and I just moved > from there to Ft. > > KY. He lived there his whole life and I > went to Casper College. We > > met after high school. I have lived there for the > last 5 years. Its not a > > great climate. It always made me feel worse when > the heat got to high. This > > spring my husband is going to Iraq and I am going > back to Alaska to hang out > > with my family for a few months. If the climate > there treats me better then > > I am staying. I was actually thinking the cooler > the climate the > > better....... Except all the neuro-sarc specialist > that I have met are in > > Houston TX.... > > > > Maybe I will ask them?! > > *debbie62062 * wrote: > > > > I am living in Wyoming and feel the climate and > altitude are getting > > the best of me. I have been considering moving to > the Pheonix area but > > I am worried about the heat. I would also like to > move to an area > > where the Drs do not seem afraid to try to treat > me. > > > > > > ------------------------------ > > Looking for last minute shopping deals? Find them > fast with Yahoo! > Search.<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newsearch/category.php?category=shopping> > > > > > > > > -- > Marla Bramer > Independent Beauty Consultant > Kay > > mbramer@... > www.marykay.com/mbramer > __________________________________________________________ OMG, Sweet deal for Yahoo! users/friends:Get A Month of Blockbuster Total Access, No Cost. W00t http://tc.deals.yahoo.com/tc/blockbuster/text2.com -- Marla BramerIndependent Beauty Consultant Kay mbramer@...www.marykay.com/mbramer Quote Link to comment Share on other sites More sharing options...
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