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Both girls sick again with nasty bug

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Please pray for our girls as both are really struggling with a virus

presently. Last night Zipporrah's heart rate was up to 198 while sleeping!

She has been battling a temperature as well and lethargy. Asenath began

going downhill today as well sleeping most of the day, having a temp of 103

degrees, having apnea tonight tons, and her heart rate is raising as well.

I am pushing the fluids and hoping the girls get through it quickly without

a hospital stay. Zipporrah never seems to be without a virus and it seemed

that once we stopped her iron supplement last week she immediately went

downhill with this virus and then it started spreading to the rest of the

family. I will keep you posted.

I am hoping we can keep the new member of the household free from the

virus as he just had brain surgery to revise his shunt and then his twin

sister arrives on Sunday. I hope we don't give it to her either! Praying

for calm waters this way. Tiz the season, huh?

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)

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Please pray for our girls as both are really struggling with a virus

presently. Last night Zipporrah's heart rate was up to 198 while sleeping!

She has been battling a temperature as well and lethargy. Asenath began

going downhill today as well sleeping most of the day, having a temp of 103

degrees, having apnea tonight tons, and her heart rate is raising as well.

I am pushing the fluids and hoping the girls get through it quickly without

a hospital stay. Zipporrah never seems to be without a virus and it seemed

that once we stopped her iron supplement last week she immediately went

downhill with this virus and then it started spreading to the rest of the

family. I will keep you posted.

I am hoping we can keep the new member of the household free from the

virus as he just had brain surgery to revise his shunt and then his twin

sister arrives on Sunday. I hope we don't give it to her either! Praying

for calm waters this way. Tiz the season, huh?

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)

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