NS & Vitamin D?

[Guest guest]

A little background first. One of my sisters is suspected to have sarcoidosis. She developed lumps/growths on her arms when she was nursing her first child. A chest xray was also suspicious, but she was also told sarcoidosis is impossible to definitively diagnose. Fortunately, she hasn't had any more problems.

Several years later, I had my first of many kidney stone attacks. As part of the testing, it turns out my Vitamin D level was high, which I was told can be diagnostic for sarcoid, not many things cause a high vitamin D level. Some of the other bloodwork was also possibly indicative of sarcoid.

Now I'm living in New England, and my vitamin D level tested low (apparently some 40% of women in New England test low because of lack of sunlight). Endocrinologist put me on megadoses for several weeks, then 1000 IUs once a day. I developed ringing in my ears, but I was also taking Vicodin for hip dysplasia (replacement on Feb. 26).

Everyone assumed the ringing was from the Vicodin, but I've since read that vitamin D supplements can cause toxicity pretty quickly in someone with sarcoidosis (I also have high calcium levels), so I just stopped the vitamin D. Does anyone know anything about this? Also, is this list just for people with neurological symptoms from sarcoid? If so, is there a more general list.

[Guest guest]

A little background first. One of my sisters is suspected to have sarcoidosis. She developed lumps/growths on her arms when she was nursing her first child. A chest xray was also suspicious, but she was also told sarcoidosis is impossible to definitively diagnose. Fortunately, she hasn't had any more problems.

Several years later, I had my first of many kidney stone attacks. As part of the testing, it turns out my Vitamin D level was high, which I was told can be diagnostic for sarcoid, not many things cause a high vitamin D level. Some of the other bloodwork was also possibly indicative of sarcoid.

Now I'm living in New England, and my vitamin D level tested low (apparently some 40% of women in New England test low because of lack of sunlight). Endocrinologist put me on megadoses for several weeks, then 1000 IUs once a day. I developed ringing in my ears, but I was also taking Vicodin for hip dysplasia (replacement on Feb. 26).

Everyone assumed the ringing was from the Vicodin, but I've since read that vitamin D supplements can cause toxicity pretty quickly in someone with sarcoidosis (I also have high calcium levels), so I just stopped the vitamin D. Does anyone know anything about this? Also, is this list just for people with neurological symptoms from sarcoid? If so, is there a more general list.