Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 My doctor recently suggested all my family members see him so that he could explain the disease better. We will probably do that after the Easter holidays. It takes a special doctor to be able to pull that off, and of course your family members must be willing to go in the first place. Not only is denial a problem, but burnout is also. That is where we are at right now. My disease started in 2000 and we are all burned out and just want some respite! I've asked the doctor to not change my medication for a while, since I am on a fairly OK routine and feeling OK. I can't cope with another crisis right now. Neither can my husband and sons. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 , That is a special doctor that wants to work with you and your family like that. I know that my family and especially my husband is either in a state of a denial or as in my kids case, don't understand what is going on! I have even overheard them say to one other "Oh, is Mom laying in bed all day again? They think I am faking it or something. Well, good luck with your group meeting. I sincerely hope it goes well. Hugs, Debbie T. Co-Moderatorwendy_cidp wrote: My doctor recently suggested all my family members see him so that hecould explain the disease better. We will probably do that after theEaster holidays. It takes a special doctor to be able to pull thatoff, and of course your family members must be willing to go in thefirst place. Not only is denial a problem, but burnout is also. Thatis where we are at right now. My disease started in 2000 and we areall burned out and just want some respite! I've asked the doctor tonot change my medication for a while, since I am on a fairly OKroutine and feeling OK. I can't cope with another crisis right now.Neither can my husband and sons.------------------------------------~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- FAITH CHAT: SUNDAY 4PM-5PM EASTERN TIME CHATROOM LINK: http://www.emxpc.net/chat/index.php Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 , That is a special doctor that wants to work with you and your family like that. I know that my family and especially my husband is either in a state of a denial or as in my kids case, don't understand what is going on! I have even overheard them say to one other "Oh, is Mom laying in bed all day again? They think I am faking it or something. Well, good luck with your group meeting. I sincerely hope it goes well. Hugs, Debbie T. Co-Moderatorwendy_cidp wrote: My doctor recently suggested all my family members see him so that hecould explain the disease better. We will probably do that after theEaster holidays. It takes a special doctor to be able to pull thatoff, and of course your family members must be willing to go in thefirst place. Not only is denial a problem, but burnout is also. Thatis where we are at right now. My disease started in 2000 and we areall burned out and just want some respite! I've asked the doctor tonot change my medication for a while, since I am on a fairly OKroutine and feeling OK. I can't cope with another crisis right now.Neither can my husband and sons.------------------------------------~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- FAITH CHAT: SUNDAY 4PM-5PM EASTERN TIME CHATROOM LINK: http://www.emxpc.net/chat/index.php Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
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