Guest guest Posted January 30, 2005 Report Share Posted January 30, 2005 Hi all, I don't post very often because it is rare that I have a question that someone else hasn't also had! But this time is I do. I have two kiddos with mito. My youngest was diagnosed with Complex I & IV through muscle biopsy. My oldest has started showing more signs in the last year so the docs are working on the assumption that he has mito as well. My question to everyone is about my oldest. Does anyone have experience with their mito kiddo having one pupil larger than the other? It has just been in the last couple of weeks that I have noticed he has one pupil that is larger than the other. I am wondering if this is mito related or not. I have been unsuccessful in finding any specific information saying that this can happen as part of a mito disease. He has had no other symptoms: headache, blurred vision etc. He hasn't complained about his eye at all although I have noticed him rubbing it quite often. We have seen an opthamologist who says the structure of the eye looks good. We go back next week to have the pupil looked at again. I have not taken him to the neuro yet. Without any info pointing to the probability that this is mito related and the fact he has no other symptoms, I'm afraid i will have a hard time getting a CT or MRI done. Sorry this was so lenghty! i would appreciate any and all input! Steph-mom to Seth(7) and Sydnie(3 1/2) Complex I & IV Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2005 Report Share Posted January 30, 2005 Hi all, I don't post very often because it is rare that I have a question that someone else hasn't also had! But this time is I do. I have two kiddos with mito. My youngest was diagnosed with Complex I & IV through muscle biopsy. My oldest has started showing more signs in the last year so the docs are working on the assumption that he has mito as well. My question to everyone is about my oldest. Does anyone have experience with their mito kiddo having one pupil larger than the other? It has just been in the last couple of weeks that I have noticed he has one pupil that is larger than the other. I am wondering if this is mito related or not. I have been unsuccessful in finding any specific information saying that this can happen as part of a mito disease. He has had no other symptoms: headache, blurred vision etc. He hasn't complained about his eye at all although I have noticed him rubbing it quite often. We have seen an opthamologist who says the structure of the eye looks good. We go back next week to have the pupil looked at again. I have not taken him to the neuro yet. Without any info pointing to the probability that this is mito related and the fact he has no other symptoms, I'm afraid i will have a hard time getting a CT or MRI done. Sorry this was so lenghty! i would appreciate any and all input! Steph-mom to Seth(7) and Sydnie(3 1/2) Complex I & IV Quote Link to comment Share on other sites More sharing options...
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