Re: overnight feeds-kristine

January 31, 2005

Thanks for the info. I will monitor his 02 tonight. I wouldn't have

even thought of that as being a problem. It is good to know to check it.

Geri-Anne and Wyatt, Complex I

>

> In a message dated 1/31/2005 11:42:26 A.M. Eastern Standard Time,

> Gazecc@h... writes:

>

> What are the negative side affects?

>

> Weight gain, no appetite in the morning, and possibly affecting sleep.

>

> Chelsea gained too much weight when she had a significant portion of

her

> cals at nite. Now i give her 2 small snacks, one at bedtime about

80cals, and

> one in the middle of the nite, about 60 cals. Since I blend her

diet, I just

> feed her what she gets during the day, and it is a good balance of

complex

> carbs, protein, and fats. When she has had sleep studies, the tech

running them

> has pointed out to me that Chelsea's apnea increases and her O2

drops when she

> is fed. This is due to energy being diverted to the digestive

system. I am

> not sure how much or a role phenobarb played in this, since she

always had

> significant side effects from it. She has a sleep study coming up,

so hopefully

> there is improvement now that she is off it.

>

> If Wyatt seems better on overnite feeds, I would give it a trial

run. Just

> keep a close eye on his weight and O2 levels, if you have the means.

I think

> Chels had more of a problem because she was so sedentary. Good luck

with the

> EEG, I hope you get some answers=)

>

> e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito)

January 31, 2005