Reaction to the cocktail this fast??

[Guest guest]

started on the cocktail on Friday...

I was told to expect it to take up to 3 months to see a difference,

so i totally didnt expect anything at all.

He is a new child already. in his entire life i have never seen him

with this much energy, and this happy...

He RUNS all day, is sleeping about 15 hours a day (compared to 17-19

normally), is sleeping BETTER when hes down... hes eating more, and

is seriously acting like a normal 2 year old!!

I wouldnt read much into it except that it is seriusly night and

day... he is a completley different boy than he was a week ago...

he usually sits down and looks at books or colors for up to 3 hours

a day, but now its maybe 20 minutes all day... hes just SO active!

Its wonderful!

Has anyone else experienced such a fast dramatic change?? I was not

expecting anything to happen this quick...

also his pee is a funky color... bright orange... the pharmacist

said it was probably the Vitamin B1 and B2... anyone else

experience this?

Keely

[Guest guest]

started on the cocktail on Friday...

I was told to expect it to take up to 3 months to see a difference,

so i totally didnt expect anything at all.

He is a new child already. in his entire life i have never seen him

with this much energy, and this happy...

He RUNS all day, is sleeping about 15 hours a day (compared to 17-19

normally), is sleeping BETTER when hes down... hes eating more, and

is seriously acting like a normal 2 year old!!

I wouldnt read much into it except that it is seriusly night and

day... he is a completley different boy than he was a week ago...

he usually sits down and looks at books or colors for up to 3 hours

a day, but now its maybe 20 minutes all day... hes just SO active!

Its wonderful!

Has anyone else experienced such a fast dramatic change?? I was not

expecting anything to happen this quick...

also his pee is a funky color... bright orange... the pharmacist

said it was probably the Vitamin B1 and B2... anyone else

experience this?

Keely

[Guest guest]

Keely,

The bright orange is definitely from the B2.

Emilie had a pretty quick improvement when she started, too. She began

with the carnitor about three years after symptoms started and then the

CoQ10 about a year later, and I remember thinking with both, wow, it's

our old Emilie! I'd forgotten how much energy she used to have before

she her mito started showing...she really was a different person all of

a sudden. She didn't keep up that much energy forever, but she's still

much, much better than she was before the carnitor & CoQ10.

, Mom to Emilie, 18, cp & mito complex IV

Kaitlin, 18, cp

Ian, 23

> Has anyone else experienced such a fast dramatic change?? I was not

> expecting anything to happen this quick...

>

> also his pee is a funky color... bright orange... the pharmacist

> said it was probably the Vitamin B1 and B2... anyone else

> experience this?

[Guest guest]

Keely,

The bright orange is definitely from the B2.

Emilie had a pretty quick improvement when she started, too. She began

with the carnitor about three years after symptoms started and then the

CoQ10 about a year later, and I remember thinking with both, wow, it's

our old Emilie! I'd forgotten how much energy she used to have before

she her mito started showing...she really was a different person all of

a sudden. She didn't keep up that much energy forever, but she's still

much, much better than she was before the carnitor & CoQ10.

, Mom to Emilie, 18, cp & mito complex IV

Kaitlin, 18, cp

Ian, 23

> Has anyone else experienced such a fast dramatic change?? I was not

> expecting anything to happen this quick...

>

> also his pee is a funky color... bright orange... the pharmacist

> said it was probably the Vitamin B1 and B2... anyone else

> experience this?

[Guest guest]

Dear Keely,

I am so happy to hear such good news and yes Leanna's urine is very dark

colored from the B complex and that is ok because her body gets rid of the

excess. Best of luck to you and hope to hear more good news.

 

 

Suhad Haddad  --  Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna

with same disease.

Samya's Memorial Site: www.samyahaddad.com/.org/.net

Email: Suhad1970@...

Alt Email: Suhad@...

AiM Chat: Suhad1970

Reaction to the cocktail this fast??

started on the cocktail on Friday...

I was told to expect it to take up to 3 months to see a difference,

so i totally didnt expect anything at all.

He is a new child already. in his entire life i have never seen him

with this much energy, and this happy...

He RUNS all day, is sleeping about 15 hours a day (compared to 17-19

normally), is sleeping BETTER when hes down... hes eating more, and

is seriously acting like a normal 2 year old!!

I wouldnt read much into it except that it is seriusly night and

day... he is a completley different boy than he was a week ago...

he usually sits down and looks at books or colors for up to 3 hours

a day, but now its maybe 20 minutes all day... hes just SO active!

Its wonderful!

Has anyone else experienced such a fast dramatic change?? I was not

expecting anything to happen this quick...

also his pee is a funky color... bright orange... the pharmacist

said it was probably the Vitamin B1 and B2... anyone else

experience this?

Keely

Please contact mito-owner with any problems or questions.

[Guest guest]

Dear Keely,

I am so happy to hear such good news and yes Leanna's urine is very dark

colored from the B complex and that is ok because her body gets rid of the

excess. Best of luck to you and hope to hear more good news.

 

 

Suhad Haddad  --  Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna

with same disease.

Samya's Memorial Site: www.samyahaddad.com/.org/.net

Email: Suhad1970@...

Alt Email: Suhad@...

AiM Chat: Suhad1970

Reaction to the cocktail this fast??

started on the cocktail on Friday...

I was told to expect it to take up to 3 months to see a difference,

so i totally didnt expect anything at all.

He is a new child already. in his entire life i have never seen him

with this much energy, and this happy...

He RUNS all day, is sleeping about 15 hours a day (compared to 17-19

normally), is sleeping BETTER when hes down... hes eating more, and

is seriously acting like a normal 2 year old!!

I wouldnt read much into it except that it is seriusly night and

day... he is a completley different boy than he was a week ago...

he usually sits down and looks at books or colors for up to 3 hours

a day, but now its maybe 20 minutes all day... hes just SO active!

Its wonderful!

Has anyone else experienced such a fast dramatic change?? I was not

expecting anything to happen this quick...

also his pee is a funky color... bright orange... the pharmacist

said it was probably the Vitamin B1 and B2... anyone else

experience this?

Keely

Please contact mito-owner with any problems or questions.

[Guest guest]

I don't recall exactly how long it took for Grace to start improving from the cocktail, but it was also much sooner than three months. We were amazed just noticing color starting to show in her face and the dark rings under her eyes begin to fade. At that point we were at an assumption that she probally would not be with us for very long, and to see that was such a relief. Also I had never really had Grace ever look healthy before since she started getting sick at about 3 weeks of age, and she did not start on the cocktail until she was almost a year old.

Now she is a relatively healthy 2 year old. She always will have her issues, but with the help of the cocktail we no longer have to worry so much about not having her around. I hope you have the same success with the cocktail as our Grace has.

Best wishes.

Find just what you're after with the new, more precise MSN Search - try it now!

[Guest guest]

I don't recall exactly how long it took for Grace to start improving from the cocktail, but it was also much sooner than three months. We were amazed just noticing color starting to show in her face and the dark rings under her eyes begin to fade. At that point we were at an assumption that she probally would not be with us for very long, and to see that was such a relief. Also I had never really had Grace ever look healthy before since she started getting sick at about 3 weeks of age, and she did not start on the cocktail until she was almost a year old.

Now she is a relatively healthy 2 year old. She always will have her issues, but with the help of the cocktail we no longer have to worry so much about not having her around. I hope you have the same success with the cocktail as our Grace has.

Best wishes.

Find just what you're after with the new, more precise MSN Search - try it now!

[Guest guest]

Asenath also had a VERY positive and fast reaction to the Carnitor in

particular. We also began Citra-3 for her metabolic acidosis at the same

time so not sure if one had more of an effect than the other but whatever

did it was amazing. After only three days on the two items her 9 week

straight horrible migraine lessened dramatically and her energy level

increased so much. Then after a couple of months we also added the COQ10

and although we didn't notice a difference, we knew she needed it due to her

labs. We know that Asenath would not be here today had she not been started

on the cocktail when she did. Dr. Whiteman started her based on labs rather

than waiting for a biopsy than the Lord.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)

RE: Reaction to the cocktail this fast??

>

> I don't recall exactly how long it took for Grace to start improving from

> the cocktail, but it was also much sooner than three months. We were

> amazed just noticing color starting to show in her face and the dark rings

> under her eyes begin to fade. At that point we were at an assumption that

> she probally would not be with us for very long, and to see that was such

> a relief. Also I had never really had Grace ever look healthy before

> since she started getting sick at about 3 weeks of age, and she did not

> start on the cocktail until she was almost a year old.

>

> Now she is a relatively healthy 2 year old. She always will have her

> issues, but with the help of the cocktail we no longer have to worry so

> much about not having her around. I hope you have the same success with

> the cocktail as our Grace has.

>

> Best wishes.

>

>

>

>

>

>

>

--------------------------------------------------------------------------------

> Find just what you're after with the new, more precise MSN Search - try it

> now!

>

> Please contact mito-owner with any problems or questions.

>

>

>

>

--------------------------------------------------------------------------------

>

[Guest guest]

Asenath also had a VERY positive and fast reaction to the Carnitor in

particular. We also began Citra-3 for her metabolic acidosis at the same

time so not sure if one had more of an effect than the other but whatever

did it was amazing. After only three days on the two items her 9 week

straight horrible migraine lessened dramatically and her energy level

increased so much. Then after a couple of months we also added the COQ10

and although we didn't notice a difference, we knew she needed it due to her

labs. We know that Asenath would not be here today had she not been started

on the cocktail when she did. Dr. Whiteman started her based on labs rather

than waiting for a biopsy than the Lord.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)

RE: Reaction to the cocktail this fast??

>

> I don't recall exactly how long it took for Grace to start improving from

> the cocktail, but it was also much sooner than three months. We were

> amazed just noticing color starting to show in her face and the dark rings

> under her eyes begin to fade. At that point we were at an assumption that

> she probally would not be with us for very long, and to see that was such

> a relief. Also I had never really had Grace ever look healthy before

> since she started getting sick at about 3 weeks of age, and she did not

> start on the cocktail until she was almost a year old.

>

> Now she is a relatively healthy 2 year old. She always will have her

> issues, but with the help of the cocktail we no longer have to worry so

> much about not having her around. I hope you have the same success with

> the cocktail as our Grace has.

>

> Best wishes.

>

>

>

>

>

>

>

--------------------------------------------------------------------------------

> Find just what you're after with the new, more precise MSN Search - try it

> now!

>

> Please contact mito-owner with any problems or questions.

>

>

>

>

--------------------------------------------------------------------------------

>