Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 I should have known there would be more to it then just giving him feeds. Thanks for the info though. He does have reflux and he does have seizures, so I would have to definately outweigh the risks vs. the benefits of sleep. Not sure how long it would take to get accepted for overnight coverage and if they would do it just so he could sleep at night. Thanks for the great info, it gives me a lot to think about that I wouldn't have otherwise. You have been a huge help. Geri-Anne and Wyatt, Complex I > > Hi Geri-Anne, my son has been overnight feeds via g-tube, > for 7 years now, he has severe reflux-gerd, and seizure disorder, he > is also monitored by pulse ox machine for o2 stats and heart rate > because of seizures and sleeping disorder. I've always had > overnight nursing for the overnight feeds, because #1 you dont want > your child to reflux in thier sleep, they can asperate, our nurses > need to keep Matt in Fowlers position which is him sleeping propped > up on pillows, so his reflux is not so bad, as laying flat. #2 if > your child has a seizure during overnight feed, they can asperate, > pull over Iv pole and feeding, and hurting themselves, also can get > tangled in tubing, expecially if sleep is restless. We have o2 > right in his bedroom and also a suction machine incase of > asperation. And the nursing is very important as a parent must be > able to get sleep at night too. So if you can prove a seizure > disorder, or severe reflux, or a sleeping disorder or even behavior > disorder eg... autism or autistic tendencies, ocd, or odd, where the > child might interfere with the feeding, your might be able to get > overnight nursing so you can sleep with peace of mind. I dont want > to scare you, some children do just fine with overnight feeds, but > Matt is not one of those children, And although Matt has been potty- > trained since age 5, alot of his medications knock him out so deep, > that he is fully incontenant at night and the nurses change his > diapers and keep him, clean and dry. They also give meds through > out the night that he needs, and it is a great opportunity for extra > hydration with every tube flush. If you cannot get overnight > nursing, and your son does have reflux or seiure disorder you > defenitly want a pulse ox machine during overnight feeds so it can > alarm, and wake you up so you can help him if needed. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 I should have known there would be more to it then just giving him feeds. Thanks for the info though. He does have reflux and he does have seizures, so I would have to definately outweigh the risks vs. the benefits of sleep. Not sure how long it would take to get accepted for overnight coverage and if they would do it just so he could sleep at night. Thanks for the great info, it gives me a lot to think about that I wouldn't have otherwise. You have been a huge help. Geri-Anne and Wyatt, Complex I > > Hi Geri-Anne, my son has been overnight feeds via g-tube, > for 7 years now, he has severe reflux-gerd, and seizure disorder, he > is also monitored by pulse ox machine for o2 stats and heart rate > because of seizures and sleeping disorder. I've always had > overnight nursing for the overnight feeds, because #1 you dont want > your child to reflux in thier sleep, they can asperate, our nurses > need to keep Matt in Fowlers position which is him sleeping propped > up on pillows, so his reflux is not so bad, as laying flat. #2 if > your child has a seizure during overnight feed, they can asperate, > pull over Iv pole and feeding, and hurting themselves, also can get > tangled in tubing, expecially if sleep is restless. We have o2 > right in his bedroom and also a suction machine incase of > asperation. And the nursing is very important as a parent must be > able to get sleep at night too. So if you can prove a seizure > disorder, or severe reflux, or a sleeping disorder or even behavior > disorder eg... autism or autistic tendencies, ocd, or odd, where the > child might interfere with the feeding, your might be able to get > overnight nursing so you can sleep with peace of mind. I dont want > to scare you, some children do just fine with overnight feeds, but > Matt is not one of those children, And although Matt has been potty- > trained since age 5, alot of his medications knock him out so deep, > that he is fully incontenant at night and the nurses change his > diapers and keep him, clean and dry. They also give meds through > out the night that he needs, and it is a great opportunity for extra > hydration with every tube flush. If you cannot get overnight > nursing, and your son does have reflux or seiure disorder you > defenitly want a pulse ox machine during overnight feeds so it can > alarm, and wake you up so you can help him if needed. Barb Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.