Re: [SPAM]Re: Remicade hearing

[Guest guest]

Jackie, Thank you so much! Cathyjackie wrote: I have been on Plaquenil, prednisone and Methotrexate for 2 years now and they seem to be working fine. I started out on 80 oral of prednisone and am now at 10. The Methotrexate started at 6 tabs once a week and I am now on 5. It all goes together just fine. My NS seems to have come to a plateau. I am still getting my leg muscles stronger but the unstableness is still

there. I have my reg PCP, a Neuro, and a Radiologist (sp) working all together on my case. I was told by my 3 Dr.s that they have not seen this before so I am their first. I am trusting in them. It seems these Dr.s seem to want to learn about this crap as much as I do. So far I have complete faith in them. I wish the same for all of you. I will, as always, keep praying and hoping for you all. Jackie from Wisconsin land of SNOW------- Remicade hearing well just got up from a nap, meet with Drs. to hear our appeal on Remicade this a.m. had to be there at 730 am, I do not function well then, but had to. Anyway, they say that Remicade is not FDA approved for NS, but neither is Methotrexate but they are paying for that, and talked about the progression since it flare again, then the Dr

on telecom (chicken) started asking me questions,"I see your MRI is neg., have you had a LP, I have not in 4 four year, then how about an emg, not in four years, etc.. so then how did you come about the dx of NS, or even Sarcoid, So I told him that i did have a positive lymph node from bx 13 years ago, and he just said "oh", then asked why I haven't tried Imuran, I said because the Dr. didn't order it, he asked if I was seeing a Neurologist, YES, then he went over the risks involved with Remicade, OK guys have you heard this, MS ?, and then on and on about permanent nerve damage? and even Ca, which I do know of. I was silent, Like ya your point is? then he asked my symptoms, of which my husband had stated at the beginning of the hearing, so I told him, then he just said Oh again, the two Dr's present where then able to ask any questions, and they declined, so that was it????? He brought up Imuran a couple times, I know someone is taking it, right,

and if you are is it helping? My doctor just never brought this up. OK I am just ready to scream, yesterday I went out to lunch with a friend for her birthday, we all decided to go to the mall, I had my cane, going in was OK, we just went into a third of the mall, looked around, then left, I didn't think I was going to make it out of the mall, I was walking in slowwwwwwwwww motion, so hard to move one foot in front of the other, so it was both legs, Hhmmmmmmmmmm. what next, my husband told them I was using a cane and may very well be in a wheelchair very soon without help. He is prepared to sue them if necessary. In the meantime???? ????????? ??? I will keep my chin up, just wonder how it ever came about that the insurance company now plays doctor??? I know God has a plan for me, and it unfolds every day, so tomorrow hopefully we will know and move on from there. I hope you all are having a pain free day,

blessings, Marla Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Jackie, Thank you so much! Cathyjackie wrote: I have been on Plaquenil, prednisone and Methotrexate for 2 years now and they seem to be working fine. I started out on 80 oral of prednisone and am now at 10. The Methotrexate started at 6 tabs once a week and I am now on 5. It all goes together just fine. My NS seems to have come to a plateau. I am still getting my leg muscles stronger but the unstableness is still

there. I have my reg PCP, a Neuro, and a Radiologist (sp) working all together on my case. I was told by my 3 Dr.s that they have not seen this before so I am their first. I am trusting in them. It seems these Dr.s seem to want to learn about this crap as much as I do. So far I have complete faith in them. I wish the same for all of you. I will, as always, keep praying and hoping for you all. Jackie from Wisconsin land of SNOW------- Remicade hearing well just got up from a nap, meet with Drs. to hear our appeal on Remicade this a.m. had to be there at 730 am, I do not function well then, but had to. Anyway, they say that Remicade is not FDA approved for NS, but neither is Methotrexate but they are paying for that, and talked about the progression since it flare again, then the Dr

on telecom (chicken) started asking me questions,"I see your MRI is neg., have you had a LP, I have not in 4 four year, then how about an emg, not in four years, etc.. so then how did you come about the dx of NS, or even Sarcoid, So I told him that i did have a positive lymph node from bx 13 years ago, and he just said "oh", then asked why I haven't tried Imuran, I said because the Dr. didn't order it, he asked if I was seeing a Neurologist, YES, then he went over the risks involved with Remicade, OK guys have you heard this, MS ?, and then on and on about permanent nerve damage? and even Ca, which I do know of. I was silent, Like ya your point is? then he asked my symptoms, of which my husband had stated at the beginning of the hearing, so I told him, then he just said Oh again, the two Dr's present where then able to ask any questions, and they declined, so that was it????? He brought up Imuran a couple times, I know someone is taking it, right,

and if you are is it helping? My doctor just never brought this up. OK I am just ready to scream, yesterday I went out to lunch with a friend for her birthday, we all decided to go to the mall, I had my cane, going in was OK, we just went into a third of the mall, looked around, then left, I didn't think I was going to make it out of the mall, I was walking in slowwwwwwwwww motion, so hard to move one foot in front of the other, so it was both legs, Hhmmmmmmmmmm. what next, my husband told them I was using a cane and may very well be in a wheelchair very soon without help. He is prepared to sue them if necessary. In the meantime???? ????????? ??? I will keep my chin up, just wonder how it ever came about that the insurance company now plays doctor??? I know God has a plan for me, and it unfolds every day, so tomorrow hopefully we will know and move on from there. I hope you all are having a pain free day,

blessings, Marla Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

I have been on Plaquenil, prednisone and Methotrexate for 2 years now and they seem to be working fine. I started out on 80 oral of prednisone and am now at 10. The Methotrexate started at 6 tabs once a week and I am now on 5. It all goes together just fine. My NS seems to have come to a plateau. I am still getting my leg muscles stronger but the unstableness is still there. I have my reg PCP, a Neuro, and a Radiologist (sp) working all together on my case. I was told by my 3 Dr.s that they have not seen this before so I am their first. I am trusting in them. It seems these Dr.s seem to want to learn about this crap as much as I do. So far I have complete faith in them. I wish the same for all of you. I will, as always, keep praying and hoping for you all.

Jackie from Wisconsin land of SNOW-------

Remicade hearing

well just got up from a nap, meet with Drs. to hear our appeal on Remicade this a.m. had to be there at 730 am, I do not function well then, but had to. Anyway, they say that Remicade is not FDA approved for NS, but neither is Methotrexate but they are paying for that, and talked about the progression since it flare again, then the Dr on telecom (chicken) started asking me questions,"I see your MRI is neg., have you had a LP, I have not in 4 four year, then how about an emg, not in four years, etc.. so then how did you come about the dx of NS, or even Sarcoid, So I told him that i did have a positive lymph node from bx 13 years ago, and he just said "oh", then asked why I haven't tried Imuran, I said because the Dr. didn't order it, he asked if I was seeing a Neurologist, YES, then he went over the risks involved with Remicade, OK guys have you heard this, MS ?, and then on and on about permanent nerve damage? and even Ca, which I do know of. I was silent, Like ya your point is? then he asked my symptoms, of which my husband had stated at the beginning of the hearing, so I told him, then he just said Oh again, the two Dr's present where then able to ask any questions, and they declined, so that was it????? He brought up Imuran a couple times, I know someone is taking it, right, and if you are is it helping? My doctor just never brought this up. OK I am just ready to scream, yesterday I went out to lunch with a friend for her birthday, we all decided to go to the mall, I had my cane, going in was OK, we just went into a third of the mall, looked around, then left, I didn't think I was going to make it out of the mall, I was walking in slowwwwwwwwww motion, so hard to move one foot in front of the other, so it was both legs, Hhmmmmmmmmmm. what next, my husband told them I was using a cane and may very well be in a wheelchair very soon without help. He is prepared to sue them if necessary. In the meantime???? ????????? ??? I will keep my chin up, just wonder how it ever came about that the insurance company now plays doctor??? I know God has a plan for me, and it unfolds every day, so tomorrow hopefully we will know and move on from there. I hope you all are having a pain free day, blessings, Marla

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

I have been on Plaquenil, prednisone and Methotrexate for 2 years now and they seem to be working fine. I started out on 80 oral of prednisone and am now at 10. The Methotrexate started at 6 tabs once a week and I am now on 5. It all goes together just fine. My NS seems to have come to a plateau. I am still getting my leg muscles stronger but the unstableness is still there. I have my reg PCP, a Neuro, and a Radiologist (sp) working all together on my case. I was told by my 3 Dr.s that they have not seen this before so I am their first. I am trusting in them. It seems these Dr.s seem to want to learn about this crap as much as I do. So far I have complete faith in them. I wish the same for all of you. I will, as always, keep praying and hoping for you all.

Jackie from Wisconsin land of SNOW-------

Remicade hearing

well just got up from a nap, meet with Drs. to hear our appeal on Remicade this a.m. had to be there at 730 am, I do not function well then, but had to. Anyway, they say that Remicade is not FDA approved for NS, but neither is Methotrexate but they are paying for that, and talked about the progression since it flare again, then the Dr on telecom (chicken) started asking me questions,"I see your MRI is neg., have you had a LP, I have not in 4 four year, then how about an emg, not in four years, etc.. so then how did you come about the dx of NS, or even Sarcoid, So I told him that i did have a positive lymph node from bx 13 years ago, and he just said "oh", then asked why I haven't tried Imuran, I said because the Dr. didn't order it, he asked if I was seeing a Neurologist, YES, then he went over the risks involved with Remicade, OK guys have you heard this, MS ?, and then on and on about permanent nerve damage? and even Ca, which I do know of. I was silent, Like ya your point is? then he asked my symptoms, of which my husband had stated at the beginning of the hearing, so I told him, then he just said Oh again, the two Dr's present where then able to ask any questions, and they declined, so that was it????? He brought up Imuran a couple times, I know someone is taking it, right, and if you are is it helping? My doctor just never brought this up. OK I am just ready to scream, yesterday I went out to lunch with a friend for her birthday, we all decided to go to the mall, I had my cane, going in was OK, we just went into a third of the mall, looked around, then left, I didn't think I was going to make it out of the mall, I was walking in slowwwwwwwwww motion, so hard to move one foot in front of the other, so it was both legs, Hhmmmmmmmmmm. what next, my husband told them I was using a cane and may very well be in a wheelchair very soon without help. He is prepared to sue them if necessary. In the meantime???? ????????? ??? I will keep my chin up, just wonder how it ever came about that the insurance company now plays doctor??? I know God has a plan for me, and it unfolds every day, so tomorrow hopefully we will know and move on from there. I hope you all are having a pain free day, blessings, Marla

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.