WE ARE 500 MEMBERS STRONG!!!

[Guest guest]

IT'S OFFICIAL! TODAY WE HAD OUR 500TH MEMBER JOIN OUR GROUP! WHAT AN

HONOR AND EXPERIENCE AND JOURNEY WE ALL SHARE. I KNOW THAT EACH OF US

TRULY WISHES THAT IT WAS NOT NECESSARY TO HAVE THIS GROUP-- AND IF WE

FOUND A CURE--- MAYBE SOMEDAY WE'LL NOT BE NEEDED!!!!!!!!!!!

I CAN'T TELL YOU HOW PROUD I AM TO BE A PART OF EACH OF YOUR LIVES, AND

THE WONDERFUL MODERATORS AND MY CO-OWNER-- YOU ARE SO VERY VERY SPECIAL!

FOR THOSE OF YOU THAT HAVE JUST RECENTLY JOINED, DARLENE ARNEY AND I,

TRACIE FELDHAUS ARE THE CO-OWNERS.

DEBBIE TAYLOR, ROSE EVANS, TERESA PARKER, AND KIM ALOSTAZ ARE OUR

WONDERFUL MODERATORS.

ROSE AND BECKY AND RON AND MARLA HELP WITH THE CHATROOMS-- AND GUYS, IF

IT WASN'T FOR THEM-- WE'D NOT HAVE CHATROOMS! THANK YOU ALL!

WHEN DARLENE TOOK OVER THE GROUP A COUPLE OF YEARS AGO-- ABOUT 3 IF MY

MEMORY SERVES ME-- WE HAD JUST OVER 100 MEMBERS. WE'VE BUILT UP OUR

GROUP, OUR ARCHIVES AND LINKS SO THAT ANYONE WHO NEEDS TO LEARN ABOUT

THIS " RARE " DISEASE WILL FIND THAT THEY AREN'T SO ALONE!

WE HAVE ARTICLES AND SITES FOR YOU TO LOOK AT AND PRINT OUT AND TAKE

THE INFORMATION WITH YOU TO YOUR MD'S-- SO THAT THEY CAN BE EDUCATED

ANEW ABOUT SARCOIDOSIS.

IT IS SO EASY FOR US TO BECOME COMPLACENT ABOUT OUR HEALTHCARE, AND TO

GET FRUSTRATED BECAUSE WE HAVE MORE QUESTIONS THAN MODERN MEDICINE HAS

ANSWERS. THAT IS WHERE WE HAVE TO RISE UP AND FIND THAT INNER STRENGTH-

- SO THAT AS EACH OF YOU STARTS THIS JOURNEY BACK TO WELLNESS- IT'S NOT

GOING TO BE THE SAME PATH THAT MANY OF US HAVE HAD TO NAVIGATE.

IT IS MY PRAYER, AND MY VISION THAT WE FIND A CURE-- FOR NOW, EVEN A

DOCTOR THAT IS WILLING TO LOOK PAST THE STEROID TREATMENT AND THE

ATTITUDE THAT SARCOIDOSIS IS BENIGN, AND WILL " BURN " ITSELF OUT IN A

COUPLE OF YEARS.

FOR THOSE OF US WITH MULTI-SYSTEMIC AND NEUROSARCOIDOSIS-- THIS IS

ANYTHING BUT BENIGN. IT IS WITH THIS IN MIND THAT I SHARE WITH YOU A

FOUNDATION THAT IS WONDERFUL.

THE FOUNDATION FOR SARCOIDOSIS RESEARCH--FSR-- WWW.STOPSARCOIDOSIS.ORG

IS ONE THAT I ALWAYS SHARE WITH YOU, OUR MEMBERS. THIS IS WHERE YOU CAN

PUT YOUR MONEY TOWARDS FINDING A CURE! IF YOU ARE ABLE TO DONATE

TOWARDS THE RESEARCH TO FIND A CURE-- FSR IS WONDERFUL!

AS FOR NEUROSARCOIDOSIS (AT) YAHOOGROUPS (DOT) COM------

THANK YOU ALL FOR BEING HERE! I KNOW I SPEAK FOR DARLENE, ROSE,

TERESA, DEBBIE, KIM AND MYSELF-- WE ARE BLESSED TO HAVE YOU ON THIS

JOURNEY WITH US!

LOVE TO ALL,

TRACIE

NS CO-OWNER/MODERATOR

[Guest guest]

IT'S OFFICIAL! TODAY WE HAD OUR 500TH MEMBER JOIN OUR GROUP! WHAT AN

HONOR AND EXPERIENCE AND JOURNEY WE ALL SHARE. I KNOW THAT EACH OF US

TRULY WISHES THAT IT WAS NOT NECESSARY TO HAVE THIS GROUP-- AND IF WE

FOUND A CURE--- MAYBE SOMEDAY WE'LL NOT BE NEEDED!!!!!!!!!!!

I CAN'T TELL YOU HOW PROUD I AM TO BE A PART OF EACH OF YOUR LIVES, AND

THE WONDERFUL MODERATORS AND MY CO-OWNER-- YOU ARE SO VERY VERY SPECIAL!

FOR THOSE OF YOU THAT HAVE JUST RECENTLY JOINED, DARLENE ARNEY AND I,

TRACIE FELDHAUS ARE THE CO-OWNERS.

DEBBIE TAYLOR, ROSE EVANS, TERESA PARKER, AND KIM ALOSTAZ ARE OUR

WONDERFUL MODERATORS.

ROSE AND BECKY AND RON AND MARLA HELP WITH THE CHATROOMS-- AND GUYS, IF

IT WASN'T FOR THEM-- WE'D NOT HAVE CHATROOMS! THANK YOU ALL!

WHEN DARLENE TOOK OVER THE GROUP A COUPLE OF YEARS AGO-- ABOUT 3 IF MY

MEMORY SERVES ME-- WE HAD JUST OVER 100 MEMBERS. WE'VE BUILT UP OUR

GROUP, OUR ARCHIVES AND LINKS SO THAT ANYONE WHO NEEDS TO LEARN ABOUT

THIS " RARE " DISEASE WILL FIND THAT THEY AREN'T SO ALONE!

WE HAVE ARTICLES AND SITES FOR YOU TO LOOK AT AND PRINT OUT AND TAKE

THE INFORMATION WITH YOU TO YOUR MD'S-- SO THAT THEY CAN BE EDUCATED

ANEW ABOUT SARCOIDOSIS.

IT IS SO EASY FOR US TO BECOME COMPLACENT ABOUT OUR HEALTHCARE, AND TO

GET FRUSTRATED BECAUSE WE HAVE MORE QUESTIONS THAN MODERN MEDICINE HAS

ANSWERS. THAT IS WHERE WE HAVE TO RISE UP AND FIND THAT INNER STRENGTH-

- SO THAT AS EACH OF YOU STARTS THIS JOURNEY BACK TO WELLNESS- IT'S NOT

GOING TO BE THE SAME PATH THAT MANY OF US HAVE HAD TO NAVIGATE.

IT IS MY PRAYER, AND MY VISION THAT WE FIND A CURE-- FOR NOW, EVEN A

DOCTOR THAT IS WILLING TO LOOK PAST THE STEROID TREATMENT AND THE

ATTITUDE THAT SARCOIDOSIS IS BENIGN, AND WILL " BURN " ITSELF OUT IN A

COUPLE OF YEARS.

FOR THOSE OF US WITH MULTI-SYSTEMIC AND NEUROSARCOIDOSIS-- THIS IS

ANYTHING BUT BENIGN. IT IS WITH THIS IN MIND THAT I SHARE WITH YOU A

FOUNDATION THAT IS WONDERFUL.

THE FOUNDATION FOR SARCOIDOSIS RESEARCH--FSR-- WWW.STOPSARCOIDOSIS.ORG

IS ONE THAT I ALWAYS SHARE WITH YOU, OUR MEMBERS. THIS IS WHERE YOU CAN

PUT YOUR MONEY TOWARDS FINDING A CURE! IF YOU ARE ABLE TO DONATE

TOWARDS THE RESEARCH TO FIND A CURE-- FSR IS WONDERFUL!

AS FOR NEUROSARCOIDOSIS (AT) YAHOOGROUPS (DOT) COM------

THANK YOU ALL FOR BEING HERE! I KNOW I SPEAK FOR DARLENE, ROSE,

TERESA, DEBBIE, KIM AND MYSELF-- WE ARE BLESSED TO HAVE YOU ON THIS

JOURNEY WITH US!

LOVE TO ALL,

TRACIE

NS CO-OWNER/MODERATOR

[Guest guest]

Tracie, I can't believe we have grown so much so fast. This is good and bad. Good because we have brought awareness to a nasty disease and the more voices the better chance for research and a chance for cure. Good because we get together and have a "home" to come to and talk, speak freely, ask questions, indulge our questions without fear of taking up someone's time. Bad because there are more Sarcoidosis patients looking for help and comfort, because nobody knows why we are at this point in our lives. But good that we have such great friends to come home to. Thanks for all the work that everyone does and may each day have blessings no matter how hard you have to look to find them. Congratulations to all involved in this group. Lynne .Tracie wrote: IT'S OFFICIAL! TODAY WE HAD OUR 500TH MEMBER JOIN OUR GROUP! WHAT AN HONOR AND EXPERIENCE AND JOURNEY WE ALL SHARE. I KNOW THAT EACH OF US TRULY WISHES THAT IT WAS NOT NECESSARY TO HAVE THIS GROUP-- AND IF WE FOUND A CURE--- MAYBE SOMEDAY WE'LL NOT BE NEEDED!!!!!!!!!!! I CAN'T TELL YOU HOW PROUD I AM TO BE A PART OF EACH OF YOUR LIVES, AND THE WONDERFUL MODERATORS AND MY CO-OWNER-- YOU ARE SO VERY VERY SPECIAL! FOR THOSE OF YOU THAT HAVE JUST RECENTLY JOINED, DARLENE ARNEY AND I, TRACIE FELDHAUS ARE THE CO-OWNERS. DEBBIE TAYLOR, ROSE EVANS, TERESA PARKER, AND KIM ALOSTAZ ARE OUR WONDERFUL MODERATORS. ROSE AND BECKY AND

RON AND MARLA HELP WITH THE CHATROOMS-- AND GUYS, IF IT WASN'T FOR THEM-- WE'D NOT HAVE CHATROOMS! THANK YOU ALL! WHEN DARLENE TOOK OVER THE GROUP A COUPLE OF YEARS AGO-- ABOUT 3 IF MY MEMORY SERVES ME-- WE HAD JUST OVER 100 MEMBERS. WE'VE BUILT UP OUR GROUP, OUR ARCHIVES AND LINKS SO THAT ANYONE WHO NEEDS TO LEARN ABOUT THIS "RARE" DISEASE WILL FIND THAT THEY AREN'T SO ALONE! WE HAVE ARTICLES AND SITES FOR YOU TO LOOK AT AND PRINT OUT AND TAKE THE INFORMATION WITH YOU TO YOUR MD'S-- SO THAT THEY CAN BE EDUCATED ANEW ABOUT SARCOIDOSIS. IT IS SO EASY FOR US TO BECOME COMPLACENT ABOUT OUR HEALTHCARE, AND TO GET FRUSTRATED BECAUSE WE HAVE MORE QUESTIONS THAN MODERN MEDICINE HAS ANSWERS. THAT IS WHERE WE HAVE TO RISE UP AND FIND THAT INNER STRENGTH- - SO THAT AS EACH OF YOU STARTS THIS JOURNEY BACK TO WELLNESS- IT'S NOT GOING TO BE THE SAME PATH THAT MANY OF US HAVE HAD TO NAVIGATE.

IT IS MY PRAYER, AND MY VISION THAT WE FIND A CURE-- FOR NOW, EVEN A DOCTOR THAT IS WILLING TO LOOK PAST THE STEROID TREATMENT AND THE ATTITUDE THAT SARCOIDOSIS IS BENIGN, AND WILL "BURN" ITSELF OUT IN A COUPLE OF YEARS. FOR THOSE OF US WITH MULTI-SYSTEMIC AND NEUROSARCOIDOSIS-- THIS IS ANYTHING BUT BENIGN. IT IS WITH THIS IN MIND THAT I SHARE WITH YOU A FOUNDATION THAT IS WONDERFUL. THE FOUNDATION FOR SARCOIDOSIS RESEARCH--FSR-- WWW.STOPSARCOIDOSIS.ORG IS ONE THAT I ALWAYS SHARE WITH YOU, OUR MEMBERS. THIS IS WHERE YOU CAN PUT YOUR MONEY TOWARDS FINDING A CURE! IF YOU ARE ABLE TO DONATE TOWARDS THE RESEARCH TO FIND A CURE-- FSR IS WONDERFUL! AS FOR NEUROSARCOIDOSIS (AT) YAHOOGROUPS (DOT) COM------ THANK YOU ALL FOR BEING HERE! I KNOW I SPEAK FOR DARLENE, ROSE, TERESA, DEBBIE, KIM AND MYSELF-- WE ARE BLESSED TO

HAVE YOU ON THIS JOURNEY WITH US! LOVE TO ALL, TRACIE NS CO-OWNER/MODERATOR

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Tracie, I can't believe we have grown so much so fast. This is good and bad. Good because we have brought awareness to a nasty disease and the more voices the better chance for research and a chance for cure. Good because we get together and have a "home" to come to and talk, speak freely, ask questions, indulge our questions without fear of taking up someone's time. Bad because there are more Sarcoidosis patients looking for help and comfort, because nobody knows why we are at this point in our lives. But good that we have such great friends to come home to. Thanks for all the work that everyone does and may each day have blessings no matter how hard you have to look to find them. Congratulations to all involved in this group. Lynne .Tracie wrote: IT'S OFFICIAL! TODAY WE HAD OUR 500TH MEMBER JOIN OUR GROUP! WHAT AN HONOR AND EXPERIENCE AND JOURNEY WE ALL SHARE. I KNOW THAT EACH OF US TRULY WISHES THAT IT WAS NOT NECESSARY TO HAVE THIS GROUP-- AND IF WE FOUND A CURE--- MAYBE SOMEDAY WE'LL NOT BE NEEDED!!!!!!!!!!! I CAN'T TELL YOU HOW PROUD I AM TO BE A PART OF EACH OF YOUR LIVES, AND THE WONDERFUL MODERATORS AND MY CO-OWNER-- YOU ARE SO VERY VERY SPECIAL! FOR THOSE OF YOU THAT HAVE JUST RECENTLY JOINED, DARLENE ARNEY AND I, TRACIE FELDHAUS ARE THE CO-OWNERS. DEBBIE TAYLOR, ROSE EVANS, TERESA PARKER, AND KIM ALOSTAZ ARE OUR WONDERFUL MODERATORS. ROSE AND BECKY AND

RON AND MARLA HELP WITH THE CHATROOMS-- AND GUYS, IF IT WASN'T FOR THEM-- WE'D NOT HAVE CHATROOMS! THANK YOU ALL! WHEN DARLENE TOOK OVER THE GROUP A COUPLE OF YEARS AGO-- ABOUT 3 IF MY MEMORY SERVES ME-- WE HAD JUST OVER 100 MEMBERS. WE'VE BUILT UP OUR GROUP, OUR ARCHIVES AND LINKS SO THAT ANYONE WHO NEEDS TO LEARN ABOUT THIS "RARE" DISEASE WILL FIND THAT THEY AREN'T SO ALONE! WE HAVE ARTICLES AND SITES FOR YOU TO LOOK AT AND PRINT OUT AND TAKE THE INFORMATION WITH YOU TO YOUR MD'S-- SO THAT THEY CAN BE EDUCATED ANEW ABOUT SARCOIDOSIS. IT IS SO EASY FOR US TO BECOME COMPLACENT ABOUT OUR HEALTHCARE, AND TO GET FRUSTRATED BECAUSE WE HAVE MORE QUESTIONS THAN MODERN MEDICINE HAS ANSWERS. THAT IS WHERE WE HAVE TO RISE UP AND FIND THAT INNER STRENGTH- - SO THAT AS EACH OF YOU STARTS THIS JOURNEY BACK TO WELLNESS- IT'S NOT GOING TO BE THE SAME PATH THAT MANY OF US HAVE HAD TO NAVIGATE.

IT IS MY PRAYER, AND MY VISION THAT WE FIND A CURE-- FOR NOW, EVEN A DOCTOR THAT IS WILLING TO LOOK PAST THE STEROID TREATMENT AND THE ATTITUDE THAT SARCOIDOSIS IS BENIGN, AND WILL "BURN" ITSELF OUT IN A COUPLE OF YEARS. FOR THOSE OF US WITH MULTI-SYSTEMIC AND NEUROSARCOIDOSIS-- THIS IS ANYTHING BUT BENIGN. IT IS WITH THIS IN MIND THAT I SHARE WITH YOU A FOUNDATION THAT IS WONDERFUL. THE FOUNDATION FOR SARCOIDOSIS RESEARCH--FSR-- WWW.STOPSARCOIDOSIS.ORG IS ONE THAT I ALWAYS SHARE WITH YOU, OUR MEMBERS. THIS IS WHERE YOU CAN PUT YOUR MONEY TOWARDS FINDING A CURE! IF YOU ARE ABLE TO DONATE TOWARDS THE RESEARCH TO FIND A CURE-- FSR IS WONDERFUL! AS FOR NEUROSARCOIDOSIS (AT) YAHOOGROUPS (DOT) COM------ THANK YOU ALL FOR BEING HERE! I KNOW I SPEAK FOR DARLENE, ROSE, TERESA, DEBBIE, KIM AND MYSELF-- WE ARE BLESSED TO

HAVE YOU ON THIS JOURNEY WITH US! LOVE TO ALL, TRACIE NS CO-OWNER/MODERATOR

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Tracie, I'd like to say it's a good thing, but knowing so many people are sick saddens me. Just a few years ago I never heard of NS, it makes me wonder. Thanks for all your hard and dedicated time to make this group work. RickTracie wrote: IT'S OFFICIAL! TODAY WE HAD OUR 500TH MEMBER JOIN OUR GROUP! WHAT AN HONOR AND EXPERIENCE AND JOURNEY WE ALL SHARE. I KNOW THAT EACH OF US TRULY WISHES THAT IT WAS NOT NECESSARY TO HAVE THIS GROUP-- AND IF WE

FOUND A CURE--- MAYBE SOMEDAY WE'LL NOT BE NEEDED!!!!!!!!!!!I CAN'T TELL YOU HOW PROUD I AM TO BE A PART OF EACH OF YOUR LIVES, AND THE WONDERFUL MODERATORS AND MY CO-OWNER-- YOU ARE SO VERY VERY SPECIAL!FOR THOSE OF YOU THAT HAVE JUST RECENTLY JOINED, DARLENE ARNEY AND I, TRACIE FELDHAUS ARE THE CO-OWNERS.DEBBIE TAYLOR, ROSE EVANS, TERESA PARKER, AND KIM ALOSTAZ ARE OUR WONDERFUL MODERATORS. ROSE AND BECKY AND RON AND MARLA HELP WITH THE CHATROOMS-- AND GUYS, IF IT WASN'T FOR THEM-- WE'D NOT HAVE CHATROOMS! THANK YOU ALL!WHEN DARLENE TOOK OVER THE GROUP A COUPLE OF YEARS AGO-- ABOUT 3 IF MY MEMORY SERVES ME-- WE HAD JUST OVER 100 MEMBERS. WE'VE BUILT UP OUR GROUP, OUR ARCHIVES AND LINKS SO THAT ANYONE WHO NEEDS TO LEARN ABOUT THIS "RARE" DISEASE WILL FIND THAT THEY AREN'T SO ALONE! WE HAVE ARTICLES AND SITES FOR YOU TO LOOK AT AND PRINT OUT AND TAKE THE INFORMATION WITH YOU TO YOUR

MD'S-- SO THAT THEY CAN BE EDUCATED ANEW ABOUT SARCOIDOSIS. IT IS SO EASY FOR US TO BECOME COMPLACENT ABOUT OUR HEALTHCARE, AND TO GET FRUSTRATED BECAUSE WE HAVE MORE QUESTIONS THAN MODERN MEDICINE HAS ANSWERS. THAT IS WHERE WE HAVE TO RISE UP AND FIND THAT INNER STRENGTH-- SO THAT AS EACH OF YOU STARTS THIS JOURNEY BACK TO WELLNESS- IT'S NOT GOING TO BE THE SAME PATH THAT MANY OF US HAVE HAD TO NAVIGATE. IT IS MY PRAYER, AND MY VISION THAT WE FIND A CURE-- FOR NOW, EVEN A DOCTOR THAT IS WILLING TO LOOK PAST THE STEROID TREATMENT AND THE ATTITUDE THAT SARCOIDOSIS IS BENIGN, AND WILL "BURN" ITSELF OUT IN A COUPLE OF YEARS. FOR THOSE OF US WITH MULTI-SYSTEMIC AND NEUROSARCOIDOSIS-- THIS IS ANYTHING BUT BENIGN. IT IS WITH THIS IN MIND THAT I SHARE WITH YOU A FOUNDATION THAT IS WONDERFUL. THE FOUNDATION FOR SARCOIDOSIS RESEARCH--FSR-- WWW.STOPSARCOIDOSIS.ORG IS ONE THAT I ALWAYS SHARE

WITH YOU, OUR MEMBERS. THIS IS WHERE YOU CAN PUT YOUR MONEY TOWARDS FINDING A CURE! IF YOU ARE ABLE TO DONATE TOWARDS THE RESEARCH TO FIND A CURE-- FSR IS WONDERFUL! AS FOR NEUROSARCOIDOSIS (AT) YAHOOGROUPS (DOT) COM------THANK YOU ALL FOR BEING HERE! I KNOW I SPEAK FOR DARLENE, ROSE, TERESA, DEBBIE, KIM AND MYSELF-- WE ARE BLESSED TO HAVE YOU ON THIS JOURNEY WITH US!LOVE TO ALL,TRACIENS CO-OWNER/MODERATOR

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Tracie, I'd like to say it's a good thing, but knowing so many people are sick saddens me. Just a few years ago I never heard of NS, it makes me wonder. Thanks for all your hard and dedicated time to make this group work. RickTracie wrote: IT'S OFFICIAL! TODAY WE HAD OUR 500TH MEMBER JOIN OUR GROUP! WHAT AN HONOR AND EXPERIENCE AND JOURNEY WE ALL SHARE. I KNOW THAT EACH OF US TRULY WISHES THAT IT WAS NOT NECESSARY TO HAVE THIS GROUP-- AND IF WE

FOUND A CURE--- MAYBE SOMEDAY WE'LL NOT BE NEEDED!!!!!!!!!!!I CAN'T TELL YOU HOW PROUD I AM TO BE A PART OF EACH OF YOUR LIVES, AND THE WONDERFUL MODERATORS AND MY CO-OWNER-- YOU ARE SO VERY VERY SPECIAL!FOR THOSE OF YOU THAT HAVE JUST RECENTLY JOINED, DARLENE ARNEY AND I, TRACIE FELDHAUS ARE THE CO-OWNERS.DEBBIE TAYLOR, ROSE EVANS, TERESA PARKER, AND KIM ALOSTAZ ARE OUR WONDERFUL MODERATORS. ROSE AND BECKY AND RON AND MARLA HELP WITH THE CHATROOMS-- AND GUYS, IF IT WASN'T FOR THEM-- WE'D NOT HAVE CHATROOMS! THANK YOU ALL!WHEN DARLENE TOOK OVER THE GROUP A COUPLE OF YEARS AGO-- ABOUT 3 IF MY MEMORY SERVES ME-- WE HAD JUST OVER 100 MEMBERS. WE'VE BUILT UP OUR GROUP, OUR ARCHIVES AND LINKS SO THAT ANYONE WHO NEEDS TO LEARN ABOUT THIS "RARE" DISEASE WILL FIND THAT THEY AREN'T SO ALONE! WE HAVE ARTICLES AND SITES FOR YOU TO LOOK AT AND PRINT OUT AND TAKE THE INFORMATION WITH YOU TO YOUR

MD'S-- SO THAT THEY CAN BE EDUCATED ANEW ABOUT SARCOIDOSIS. IT IS SO EASY FOR US TO BECOME COMPLACENT ABOUT OUR HEALTHCARE, AND TO GET FRUSTRATED BECAUSE WE HAVE MORE QUESTIONS THAN MODERN MEDICINE HAS ANSWERS. THAT IS WHERE WE HAVE TO RISE UP AND FIND THAT INNER STRENGTH-- SO THAT AS EACH OF YOU STARTS THIS JOURNEY BACK TO WELLNESS- IT'S NOT GOING TO BE THE SAME PATH THAT MANY OF US HAVE HAD TO NAVIGATE. IT IS MY PRAYER, AND MY VISION THAT WE FIND A CURE-- FOR NOW, EVEN A DOCTOR THAT IS WILLING TO LOOK PAST THE STEROID TREATMENT AND THE ATTITUDE THAT SARCOIDOSIS IS BENIGN, AND WILL "BURN" ITSELF OUT IN A COUPLE OF YEARS. FOR THOSE OF US WITH MULTI-SYSTEMIC AND NEUROSARCOIDOSIS-- THIS IS ANYTHING BUT BENIGN. IT IS WITH THIS IN MIND THAT I SHARE WITH YOU A FOUNDATION THAT IS WONDERFUL. THE FOUNDATION FOR SARCOIDOSIS RESEARCH--FSR-- WWW.STOPSARCOIDOSIS.ORG IS ONE THAT I ALWAYS SHARE

WITH YOU, OUR MEMBERS. THIS IS WHERE YOU CAN PUT YOUR MONEY TOWARDS FINDING A CURE! IF YOU ARE ABLE TO DONATE TOWARDS THE RESEARCH TO FIND A CURE-- FSR IS WONDERFUL! AS FOR NEUROSARCOIDOSIS (AT) YAHOOGROUPS (DOT) COM------THANK YOU ALL FOR BEING HERE! I KNOW I SPEAK FOR DARLENE, ROSE, TERESA, DEBBIE, KIM AND MYSELF-- WE ARE BLESSED TO HAVE YOU ON THIS JOURNEY WITH US!LOVE TO ALL,TRACIENS CO-OWNER/MODERATOR

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Rick, I agree totally with you-- it is sad that 500

people are suffering with NS. And that is a small

section of us-- so many haven't even got a clue that

they have NS.

Compared to 1999-- when only a handful of us existed,

and our dear Aisha Elderwyn founded this group-- we

have been able to finally get the message out to our

MD's that NS exists.

Our MD's may think this is still a " rare " problem--

but at least now we are getting articles in medical

journals on a regular basis, we are - as the

" pioneers " of this disease- having to still do the

legwork-- and at least now 500 people and their

families and loved ones and caregivers know that NS is

real. It's not a disease that we thought up, and

because of the work of this site and several others--

sarcoidosis is beginning to be looked at as the

serious disease it can be.

From the bottom of my heart-- I wish not one of us had

to be here, personally, I rather be working, playing

on a women's fastpitch softball team, riding my bike

through the park, and camping and hiking and all the

rest--

For now, I'll keep taking my Plaquenil, my

Methotrexate, my Remicade-- and counting my blessings

that I am at least alive enough to complain about

being sick!

Two short years ago-- we weren't counting on my being

alive even 6 more months--LOL! My husband and I made

the decision to enroll me into Life insurance and

after doing the math -- we knew if I lived longer than

7 yrs, if we put the same amount of money into a CD--

we'd be ahead of where we are know-- but we didn't

figure I'd make it-- so we bought the life insurance--

now that I've outlived the expectations-- the CD would

have been the better deal!

IS that an oxymoron?????

Blessings to us all,

Tracie

NS Co-owner/moderator

--- Rick Jack wrote:

> Tracie,

> I'd like to say it's a good thing, but knowing

> so many people are sick saddens me. Just a few years

> ago I never heard of NS, it makes me wonder.

> Thanks for all your hard and dedicated time to

> make this group work.

> Rick

>

> Tracie wrote:

> IT'S OFFICIAL! TODAY WE HAD OUR 500TH

> MEMBER JOIN OUR GROUP! WHAT AN

> HONOR AND EXPERIENCE AND JOURNEY WE ALL SHARE. I

> KNOW THAT EACH OF US

> TRULY WISHES THAT IT WAS NOT NECESSARY TO HAVE THIS

> GROUP-- AND IF WE

> FOUND A CURE--- MAYBE SOMEDAY WE'LL NOT BE

> NEEDED!!!!!!!!!!!

>

> I CAN'T TELL YOU HOW PROUD I AM TO BE A PART OF EACH

> OF YOUR LIVES, AND

> THE WONDERFUL MODERATORS AND MY CO-OWNER-- YOU ARE

> SO VERY VERY SPECIAL!

>

> FOR THOSE OF YOU THAT HAVE JUST RECENTLY JOINED,

> DARLENE ARNEY AND I,

> TRACIE FELDHAUS ARE THE CO-OWNERS.

>

> DEBBIE TAYLOR, ROSE EVANS, TERESA PARKER, AND KIM

> ALOSTAZ ARE OUR

> WONDERFUL MODERATORS.

>

> ROSE AND BECKY AND RON AND MARLA HELP WITH THE

> CHATROOMS-- AND GUYS, IF

> IT WASN'T FOR THEM-- WE'D NOT HAVE CHATROOMS! THANK

> YOU ALL!

>

> WHEN DARLENE TOOK OVER THE GROUP A COUPLE OF YEARS

> AGO-- ABOUT 3 IF MY

> MEMORY SERVES ME-- WE HAD JUST OVER 100 MEMBERS.

> WE'VE BUILT UP OUR

> GROUP, OUR ARCHIVES AND LINKS SO THAT ANYONE WHO

> NEEDS TO LEARN ABOUT

> THIS " RARE " DISEASE WILL FIND THAT THEY AREN'T SO

> ALONE!

>

> WE HAVE ARTICLES AND SITES FOR YOU TO LOOK AT AND

> PRINT OUT AND TAKE

> THE INFORMATION WITH YOU TO YOUR MD'S-- SO THAT THEY

> CAN BE EDUCATED

> ANEW ABOUT SARCOIDOSIS.

>

> IT IS SO EASY FOR US TO BECOME COMPLACENT ABOUT OUR

> HEALTHCARE, AND TO

> GET FRUSTRATED BECAUSE WE HAVE MORE QUESTIONS THAN

> MODERN MEDICINE HAS

> ANSWERS. THAT IS WHERE WE HAVE TO RISE UP AND FIND

> THAT INNER STRENGTH-

> - SO THAT AS EACH OF YOU STARTS THIS JOURNEY BACK TO

> WELLNESS- IT'S NOT

> GOING TO BE THE SAME PATH THAT MANY OF US HAVE HAD

> TO NAVIGATE.

>

> IT IS MY PRAYER, AND MY VISION THAT WE FIND A CURE--

> FOR NOW, EVEN A

> DOCTOR THAT IS WILLING TO LOOK PAST THE STEROID

> TREATMENT AND THE

> ATTITUDE THAT SARCOIDOSIS IS BENIGN, AND WILL " BURN "

> ITSELF OUT IN A

> COUPLE OF YEARS.

>

> FOR THOSE OF US WITH MULTI-SYSTEMIC AND

> NEUROSARCOIDOSIS-- THIS IS

> ANYTHING BUT BENIGN. IT IS WITH THIS IN MIND THAT I

> SHARE WITH YOU A

> FOUNDATION THAT IS WONDERFUL.

>

> THE FOUNDATION FOR SARCOIDOSIS RESEARCH--FSR--

> WWW.STOPSARCOIDOSIS.ORG

> IS ONE THAT I ALWAYS SHARE WITH YOU, OUR MEMBERS.

> THIS IS WHERE YOU CAN

> PUT YOUR MONEY TOWARDS FINDING A CURE! IF YOU ARE

> ABLE TO DONATE

> TOWARDS THE RESEARCH TO FIND A CURE-- FSR IS

> WONDERFUL!

>

> AS FOR NEUROSARCOIDOSIS (AT) YAHOOGROUPS (DOT) COM------

>

> THANK YOU ALL FOR BEING HERE! I KNOW I SPEAK FOR

> DARLENE, ROSE,

> TERESA, DEBBIE, KIM AND MYSELF-- WE ARE BLESSED TO

> HAVE YOU ON THIS

> JOURNEY WITH US!

>

> LOVE TO ALL,

> TRACIE

> NS CO-OWNER/MODERATOR

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Rick, I agree totally with you-- it is sad that 500

people are suffering with NS. And that is a small

section of us-- so many haven't even got a clue that

they have NS.

Compared to 1999-- when only a handful of us existed,

and our dear Aisha Elderwyn founded this group-- we

have been able to finally get the message out to our

MD's that NS exists.

Our MD's may think this is still a " rare " problem--

but at least now we are getting articles in medical

journals on a regular basis, we are - as the

" pioneers " of this disease- having to still do the

legwork-- and at least now 500 people and their

families and loved ones and caregivers know that NS is

real. It's not a disease that we thought up, and

because of the work of this site and several others--

sarcoidosis is beginning to be looked at as the

serious disease it can be.

From the bottom of my heart-- I wish not one of us had

to be here, personally, I rather be working, playing

on a women's fastpitch softball team, riding my bike

through the park, and camping and hiking and all the

rest--

For now, I'll keep taking my Plaquenil, my

Methotrexate, my Remicade-- and counting my blessings

that I am at least alive enough to complain about

being sick!

Two short years ago-- we weren't counting on my being

alive even 6 more months--LOL! My husband and I made

the decision to enroll me into Life insurance and

after doing the math -- we knew if I lived longer than

7 yrs, if we put the same amount of money into a CD--

we'd be ahead of where we are know-- but we didn't

figure I'd make it-- so we bought the life insurance--

now that I've outlived the expectations-- the CD would

have been the better deal!

IS that an oxymoron?????

Blessings to us all,

Tracie

NS Co-owner/moderator

--- Rick Jack wrote:

> Tracie,

> I'd like to say it's a good thing, but knowing

> so many people are sick saddens me. Just a few years

> ago I never heard of NS, it makes me wonder.

> Thanks for all your hard and dedicated time to

> make this group work.

> Rick

>

> Tracie wrote:

> IT'S OFFICIAL! TODAY WE HAD OUR 500TH

> MEMBER JOIN OUR GROUP! WHAT AN

> HONOR AND EXPERIENCE AND JOURNEY WE ALL SHARE. I

> KNOW THAT EACH OF US

> TRULY WISHES THAT IT WAS NOT NECESSARY TO HAVE THIS

> GROUP-- AND IF WE

> FOUND A CURE--- MAYBE SOMEDAY WE'LL NOT BE

> NEEDED!!!!!!!!!!!

>

> I CAN'T TELL YOU HOW PROUD I AM TO BE A PART OF EACH

> OF YOUR LIVES, AND

> THE WONDERFUL MODERATORS AND MY CO-OWNER-- YOU ARE

> SO VERY VERY SPECIAL!

>

> FOR THOSE OF YOU THAT HAVE JUST RECENTLY JOINED,

> DARLENE ARNEY AND I,

> TRACIE FELDHAUS ARE THE CO-OWNERS.

>

> DEBBIE TAYLOR, ROSE EVANS, TERESA PARKER, AND KIM

> ALOSTAZ ARE OUR

> WONDERFUL MODERATORS.

>

> ROSE AND BECKY AND RON AND MARLA HELP WITH THE

> CHATROOMS-- AND GUYS, IF

> IT WASN'T FOR THEM-- WE'D NOT HAVE CHATROOMS! THANK

> YOU ALL!

>

> WHEN DARLENE TOOK OVER THE GROUP A COUPLE OF YEARS

> AGO-- ABOUT 3 IF MY

> MEMORY SERVES ME-- WE HAD JUST OVER 100 MEMBERS.

> WE'VE BUILT UP OUR

> GROUP, OUR ARCHIVES AND LINKS SO THAT ANYONE WHO

> NEEDS TO LEARN ABOUT

> THIS " RARE " DISEASE WILL FIND THAT THEY AREN'T SO

> ALONE!

>

> WE HAVE ARTICLES AND SITES FOR YOU TO LOOK AT AND

> PRINT OUT AND TAKE

> THE INFORMATION WITH YOU TO YOUR MD'S-- SO THAT THEY

> CAN BE EDUCATED

> ANEW ABOUT SARCOIDOSIS.

>

> IT IS SO EASY FOR US TO BECOME COMPLACENT ABOUT OUR

> HEALTHCARE, AND TO

> GET FRUSTRATED BECAUSE WE HAVE MORE QUESTIONS THAN

> MODERN MEDICINE HAS

> ANSWERS. THAT IS WHERE WE HAVE TO RISE UP AND FIND

> THAT INNER STRENGTH-

> - SO THAT AS EACH OF YOU STARTS THIS JOURNEY BACK TO

> WELLNESS- IT'S NOT

> GOING TO BE THE SAME PATH THAT MANY OF US HAVE HAD

> TO NAVIGATE.

>

> IT IS MY PRAYER, AND MY VISION THAT WE FIND A CURE--

> FOR NOW, EVEN A

> DOCTOR THAT IS WILLING TO LOOK PAST THE STEROID

> TREATMENT AND THE

> ATTITUDE THAT SARCOIDOSIS IS BENIGN, AND WILL " BURN "

> ITSELF OUT IN A

> COUPLE OF YEARS.

>

> FOR THOSE OF US WITH MULTI-SYSTEMIC AND

> NEUROSARCOIDOSIS-- THIS IS

> ANYTHING BUT BENIGN. IT IS WITH THIS IN MIND THAT I

> SHARE WITH YOU A

> FOUNDATION THAT IS WONDERFUL.

>

> THE FOUNDATION FOR SARCOIDOSIS RESEARCH--FSR--

> WWW.STOPSARCOIDOSIS.ORG

> IS ONE THAT I ALWAYS SHARE WITH YOU, OUR MEMBERS.

> THIS IS WHERE YOU CAN

> PUT YOUR MONEY TOWARDS FINDING A CURE! IF YOU ARE

> ABLE TO DONATE

> TOWARDS THE RESEARCH TO FIND A CURE-- FSR IS

> WONDERFUL!

>

> AS FOR NEUROSARCOIDOSIS (AT) YAHOOGROUPS (DOT) COM------

>

> THANK YOU ALL FOR BEING HERE! I KNOW I SPEAK FOR

> DARLENE, ROSE,

> TERESA, DEBBIE, KIM AND MYSELF-- WE ARE BLESSED TO

> HAVE YOU ON THIS

> JOURNEY WITH US!

>

> LOVE TO ALL,

> TRACIE

> NS CO-OWNER/MODERATOR

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Tracie, it is wonderful to see how well the group is doing. Cherokee23Tracie wrote: IT'S OFFICIAL! TODAY WE HAD OUR 500TH MEMBER JOIN OUR GROUP! WHAT AN HONOR AND EXPERIENCE AND JOURNEY WE ALL SHARE. I KNOW THAT EACH OF US TRULY WISHES THAT IT WAS NOT NECESSARY TO HAVE THIS GROUP-- AND IF WE FOUND A CURE--- MAYBE SOMEDAY WE'LL NOT BE NEEDED!!!!!!!!!!! I CAN'T TELL YOU HOW PROUD I AM TO BE A PART OF EACH OF YOUR LIVES, AND THE WONDERFUL MODERATORS AND MY CO-OWNER-- YOU ARE SO VERY VERY

SPECIAL! FOR THOSE OF YOU THAT HAVE JUST RECENTLY JOINED, DARLENE ARNEY AND I, TRACIE FELDHAUS ARE THE CO-OWNERS. DEBBIE TAYLOR, ROSE EVANS, TERESA PARKER, AND KIM ALOSTAZ ARE OUR WONDERFUL MODERATORS. ROSE AND BECKY AND RON AND MARLA HELP WITH THE CHATROOMS-- AND GUYS, IF IT WASN'T FOR THEM-- WE'D NOT HAVE CHATROOMS! THANK YOU ALL! WHEN DARLENE TOOK OVER THE GROUP A COUPLE OF YEARS AGO-- ABOUT 3 IF MY MEMORY SERVES ME-- WE HAD JUST OVER 100 MEMBERS. WE'VE BUILT UP OUR GROUP, OUR ARCHIVES AND LINKS SO THAT ANYONE WHO NEEDS TO LEARN ABOUT THIS "RARE" DISEASE WILL FIND THAT THEY AREN'T SO ALONE! WE HAVE ARTICLES AND SITES FOR YOU TO LOOK AT AND PRINT OUT AND TAKE THE INFORMATION WITH YOU TO YOUR MD'S-- SO THAT THEY CAN BE EDUCATED ANEW ABOUT SARCOIDOSIS. IT IS SO EASY FOR US TO BECOME COMPLACENT ABOUT OUR HEALTHCARE, AND TO GET FRUSTRATED BECAUSE WE HAVE MORE QUESTIONS

THAN MODERN MEDICINE HAS ANSWERS. THAT IS WHERE WE HAVE TO RISE UP AND FIND THAT INNER STRENGTH- - SO THAT AS EACH OF YOU STARTS THIS JOURNEY BACK TO WELLNESS- IT'S NOT GOING TO BE THE SAME PATH THAT MANY OF US HAVE HAD TO NAVIGATE. IT IS MY PRAYER, AND MY VISION THAT WE FIND A CURE-- FOR NOW, EVEN A DOCTOR THAT IS WILLING TO LOOK PAST THE STEROID TREATMENT AND THE ATTITUDE THAT SARCOIDOSIS IS BENIGN, AND WILL "BURN" ITSELF OUT IN A COUPLE OF YEARS. FOR THOSE OF US WITH MULTI-SYSTEMIC AND NEUROSARCOIDOSIS-- THIS IS ANYTHING BUT BENIGN. IT IS WITH THIS IN MIND THAT I SHARE WITH YOU A FOUNDATION THAT IS WONDERFUL. THE FOUNDATION FOR SARCOIDOSIS RESEARCH--FSR-- WWW.STOPSARCOIDOSIS.ORG IS ONE THAT I ALWAYS SHARE WITH YOU, OUR MEMBERS. THIS IS WHERE YOU CAN PUT YOUR MONEY TOWARDS FINDING A CURE! IF YOU ARE ABLE TO DONATE TOWARDS THE RESEARCH TO FIND A CURE-- FSR IS

WONDERFUL! AS FOR NEUROSARCOIDOSIS (AT) YAHOOGROUPS (DOT) COM------ THANK YOU ALL FOR BEING HERE! I KNOW I SPEAK FOR DARLENE, ROSE, TERESA, DEBBIE, KIM AND MYSELF-- WE ARE BLESSED TO HAVE YOU ON THIS JOURNEY WITH US! LOVE TO ALL, TRACIE NS CO-OWNER/MODERATOR

[Guest guest]

Tracie, it is wonderful to see how well the group is doing. Cherokee23Tracie wrote: IT'S OFFICIAL! TODAY WE HAD OUR 500TH MEMBER JOIN OUR GROUP! WHAT AN HONOR AND EXPERIENCE AND JOURNEY WE ALL SHARE. I KNOW THAT EACH OF US TRULY WISHES THAT IT WAS NOT NECESSARY TO HAVE THIS GROUP-- AND IF WE FOUND A CURE--- MAYBE SOMEDAY WE'LL NOT BE NEEDED!!!!!!!!!!! I CAN'T TELL YOU HOW PROUD I AM TO BE A PART OF EACH OF YOUR LIVES, AND THE WONDERFUL MODERATORS AND MY CO-OWNER-- YOU ARE SO VERY VERY

SPECIAL! FOR THOSE OF YOU THAT HAVE JUST RECENTLY JOINED, DARLENE ARNEY AND I, TRACIE FELDHAUS ARE THE CO-OWNERS. DEBBIE TAYLOR, ROSE EVANS, TERESA PARKER, AND KIM ALOSTAZ ARE OUR WONDERFUL MODERATORS. ROSE AND BECKY AND RON AND MARLA HELP WITH THE CHATROOMS-- AND GUYS, IF IT WASN'T FOR THEM-- WE'D NOT HAVE CHATROOMS! THANK YOU ALL! WHEN DARLENE TOOK OVER THE GROUP A COUPLE OF YEARS AGO-- ABOUT 3 IF MY MEMORY SERVES ME-- WE HAD JUST OVER 100 MEMBERS. WE'VE BUILT UP OUR GROUP, OUR ARCHIVES AND LINKS SO THAT ANYONE WHO NEEDS TO LEARN ABOUT THIS "RARE" DISEASE WILL FIND THAT THEY AREN'T SO ALONE! WE HAVE ARTICLES AND SITES FOR YOU TO LOOK AT AND PRINT OUT AND TAKE THE INFORMATION WITH YOU TO YOUR MD'S-- SO THAT THEY CAN BE EDUCATED ANEW ABOUT SARCOIDOSIS. IT IS SO EASY FOR US TO BECOME COMPLACENT ABOUT OUR HEALTHCARE, AND TO GET FRUSTRATED BECAUSE WE HAVE MORE QUESTIONS

THAN MODERN MEDICINE HAS ANSWERS. THAT IS WHERE WE HAVE TO RISE UP AND FIND THAT INNER STRENGTH- - SO THAT AS EACH OF YOU STARTS THIS JOURNEY BACK TO WELLNESS- IT'S NOT GOING TO BE THE SAME PATH THAT MANY OF US HAVE HAD TO NAVIGATE. IT IS MY PRAYER, AND MY VISION THAT WE FIND A CURE-- FOR NOW, EVEN A DOCTOR THAT IS WILLING TO LOOK PAST THE STEROID TREATMENT AND THE ATTITUDE THAT SARCOIDOSIS IS BENIGN, AND WILL "BURN" ITSELF OUT IN A COUPLE OF YEARS. FOR THOSE OF US WITH MULTI-SYSTEMIC AND NEUROSARCOIDOSIS-- THIS IS ANYTHING BUT BENIGN. IT IS WITH THIS IN MIND THAT I SHARE WITH YOU A FOUNDATION THAT IS WONDERFUL. THE FOUNDATION FOR SARCOIDOSIS RESEARCH--FSR-- WWW.STOPSARCOIDOSIS.ORG IS ONE THAT I ALWAYS SHARE WITH YOU, OUR MEMBERS. THIS IS WHERE YOU CAN PUT YOUR MONEY TOWARDS FINDING A CURE! IF YOU ARE ABLE TO DONATE TOWARDS THE RESEARCH TO FIND A CURE-- FSR IS

WONDERFUL! AS FOR NEUROSARCOIDOSIS (AT) YAHOOGROUPS (DOT) COM------ THANK YOU ALL FOR BEING HERE! I KNOW I SPEAK FOR DARLENE, ROSE, TERESA, DEBBIE, KIM AND MYSELF-- WE ARE BLESSED TO HAVE YOU ON THIS JOURNEY WITH US! LOVE TO ALL, TRACIE NS CO-OWNER/MODERATOR

[Guest guest]

Very good to see so many of us with the sarc monster come out of the woodwork, makes us feel so much like were not alone.

happy Easter and love ya all and many hugs and blessings on this beautiful day

jessica in paCreate a Home Theater Like the Pros. Watch the video on AOL Home.

[Guest guest]

Very good to see so many of us with the sarc monster come out of the woodwork, makes us feel so much like were not alone.

happy Easter and love ya all and many hugs and blessings on this beautiful day

jessica in paCreate a Home Theater Like the Pros. Watch the video on AOL Home.