Re: Wyatt- feeding update, again

[Guest guest]

We ended up trying the feeding again last night. Once he finally

fell asleep it worked like a charm. He stayed asleep. We only did a

half a can of pediasure mixed with water. The smaller amount seemed

to make a difference. There was no gagging in the morning. We see

the gastro tomorrow to get his opinion on it. Wy still has diarrhea

and is feeling terrible today. He has cried off and on all day and I

can't figure out why. He still has not had a seizure. Tomorrow we

will be discharged so I'm sure he will have one on the way home.

Things rarely seem to go the way they are suppose to.

Geri-Anne and Wyatt, Complex I

-- In Mito , jayvelde@a... wrote:

> Geri-Anne,

>

> I am sorry to hear about your tough nite with Wyatt. I hope last

nite was

> better=) Something to consider would be to start with a much

smaller amount over

> a shorter period and wean up on the amount of formula and time it

is given.

> Does Wyatt tolerate bolus feeds? It is possible to thicken the

formula, so

> that he is less likely to reflux, but it would have to be pumped

in by hand. HTH

>

> e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific

mito)

[Guest guest]

We ended up trying the feeding again last night. Once he finally

fell asleep it worked like a charm. He stayed asleep. We only did a

half a can of pediasure mixed with water. The smaller amount seemed

to make a difference. There was no gagging in the morning. We see

the gastro tomorrow to get his opinion on it. Wy still has diarrhea

and is feeling terrible today. He has cried off and on all day and I

can't figure out why. He still has not had a seizure. Tomorrow we

will be discharged so I'm sure he will have one on the way home.

Things rarely seem to go the way they are suppose to.

Geri-Anne and Wyatt, Complex I

-- In Mito , jayvelde@a... wrote:

> Geri-Anne,

>

> I am sorry to hear about your tough nite with Wyatt. I hope last

nite was

> better=) Something to consider would be to start with a much

smaller amount over

> a shorter period and wean up on the amount of formula and time it

is given.

> Does Wyatt tolerate bolus feeds? It is possible to thicken the

formula, so

> that he is less likely to reflux, but it would have to be pumped

in by hand. HTH

>

> e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific

mito)