How to know when is too much exhaustion? (therapy related)

[Guest guest]

Darla

if she is till wiped out from pt, it is a sign to me that pt needs to slow down. It is counterproductive if she needs 2 days to recover from a pt session.

Max stamina is greatly reduced and we have her take 'smart' breaks. We try to do it before she is totally wiped out. In a way we are trying to teach her how to pace herself as she grows up. Max's pt is very sensitive and has learned to read her well. Being uncooperative is a first sign of fatique. Max loves her pt.

Everyone else ok????/

best regards

rosy

[Guest guest]

Darla

if she is till wiped out from pt, it is a sign to me that pt needs to slow down. It is counterproductive if she needs 2 days to recover from a pt session.

Max stamina is greatly reduced and we have her take 'smart' breaks. We try to do it before she is totally wiped out. In a way we are trying to teach her how to pace herself as she grows up. Max's pt is very sensitive and has learned to read her well. Being uncooperative is a first sign of fatique. Max loves her pt.

Everyone else ok????/

best regards

rosy

[Guest guest]

Zipporrah's biggest issues seem to be more in the

equilibrium-positional/balance areas, neuro-motor planning, and sensory

dysfunction areas. After short periods of play she becomes very fatigued

and way off balance. She had an OT evaluation on Wednesday that challenged

her in different areas than she normally tries (although she LOVED the

activities) and has been totally wiped out since then. My question is if

others notice lots of fatigue following therapy and if your docs have

advised you on how much is too much when it comes to therapy causing

fatigue. Do you have to limit the activity or take breaks? I had thought

she was doing better lately on her balance/wobbly legs, but the more she did

at therapy, the worse she became. I think many of the things they tried

were challenging because they were seeing what bothered her and where all

her sensory issues have affected. We noticed lots of issues to do with

neuro-motor planning and problems with movement. If she was moved in

different directions (like on a swing or ball) or leaned backwards, she

really had a lot of problems. This is something we knew was a problem since

she was 4 months old but none of the therapists we have used in the past

specialized in sensory integration therapy. Now we have the opportunity of

doing specialized therapy to target the problems, but am wondering how much

to push or not. Any advice welcome.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)

[Guest guest]

Zipporrah's biggest issues seem to be more in the

equilibrium-positional/balance areas, neuro-motor planning, and sensory

dysfunction areas. After short periods of play she becomes very fatigued

and way off balance. She had an OT evaluation on Wednesday that challenged

her in different areas than she normally tries (although she LOVED the

activities) and has been totally wiped out since then. My question is if

others notice lots of fatigue following therapy and if your docs have

advised you on how much is too much when it comes to therapy causing

fatigue. Do you have to limit the activity or take breaks? I had thought

she was doing better lately on her balance/wobbly legs, but the more she did

at therapy, the worse she became. I think many of the things they tried

were challenging because they were seeing what bothered her and where all

her sensory issues have affected. We noticed lots of issues to do with

neuro-motor planning and problems with movement. If she was moved in

different directions (like on a swing or ball) or leaned backwards, she

really had a lot of problems. This is something we knew was a problem since

she was 4 months old but none of the therapists we have used in the past

specialized in sensory integration therapy. Now we have the opportunity of

doing specialized therapy to target the problems, but am wondering how much

to push or not. Any advice welcome.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)

[Guest guest]

Do what she can tolerate and take breaks as needed. Maybe switch to

something that doesn't have to do with sensory so that you are still

utilizing the therapist while they are there. It doesn't make sense

to me to push her for an hour therapy and then see her wiped out for

the next day or two. It seems like you would be taking one step

forward and two steps back.

Geri-Anne and Wyatt, Complex I

> Zipporrah's biggest issues seem to be more in the

> equilibrium-positional/balance areas, neuro-motor planning, and

sensory

> dysfunction areas. After short periods of play she becomes very

fatigued

> and way off balance. She had an OT evaluation on Wednesday that

challenged

> her in different areas than she normally tries (although she LOVED

the

> activities) and has been totally wiped out since then. My

question is if

> others notice lots of fatigue following therapy and if your docs

have

> advised you on how much is too much when it comes to therapy

causing

> fatigue. Do you have to limit the activity or take breaks? I had

thought

> she was doing better lately on her balance/wobbly legs, but the

more she did

> at therapy, the worse she became. I think many of the things they

tried

> were challenging because they were seeing what bothered her and

where all

> her sensory issues have affected. We noticed lots of issues to do

with

> neuro-motor planning and problems with movement. If she was moved

in

> different directions (like on a swing or ball) or leaned

backwards, she

> really had a lot of problems. This is something we knew was a

problem since

> she was 4 months old but none of the therapists we have used in

the past

> specialized in sensory integration therapy. Now we have the

opportunity of

> doing specialized therapy to target the problems, but am wondering

how much

> to push or not. Any advice welcome.

>

>

> See www.caringbridge.org/ia/mitomomof9 and

www.heartbeatsformito.org to see

> a photo look into what Mito looks like

> Darla: mommy to

> Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-

tube,

> hypotonicity, disautonomy, SID, global delays, asthma, cyclic

vomiting,

> bladder issues, wheelchair for distances, eye issues, autistic

behaviors,

> gastric emptying issues...

> Zipporrah (14 months) Mito, strokes, neuro-motor planning dys.,

SID, GERD,

> dysphasia, 100% G-tube fed, speech delays, extreme fatigue,

excessive

> phlegm, asthma, trach issues, aberrant subclavian artery,

disautonomy,

> hypertonicity, migraines, possible seizures, dumping syndrome, iron

> deficiency, ...

> Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia

(4), &

> Marquis (3), Joey & (12 months) (some with Mito symptoms)

[Guest guest]

Do what she can tolerate and take breaks as needed. Maybe switch to

something that doesn't have to do with sensory so that you are still

utilizing the therapist while they are there. It doesn't make sense

to me to push her for an hour therapy and then see her wiped out for

the next day or two. It seems like you would be taking one step

forward and two steps back.

Geri-Anne and Wyatt, Complex I

> Zipporrah's biggest issues seem to be more in the

> equilibrium-positional/balance areas, neuro-motor planning, and

sensory

> dysfunction areas. After short periods of play she becomes very

fatigued

> and way off balance. She had an OT evaluation on Wednesday that

challenged

> her in different areas than she normally tries (although she LOVED

the

> activities) and has been totally wiped out since then. My

question is if

> others notice lots of fatigue following therapy and if your docs

have

> advised you on how much is too much when it comes to therapy

causing

> fatigue. Do you have to limit the activity or take breaks? I had

thought

> she was doing better lately on her balance/wobbly legs, but the

more she did

> at therapy, the worse she became. I think many of the things they

tried

> were challenging because they were seeing what bothered her and

where all

> her sensory issues have affected. We noticed lots of issues to do

with

> neuro-motor planning and problems with movement. If she was moved

in

> different directions (like on a swing or ball) or leaned

backwards, she

> really had a lot of problems. This is something we knew was a

problem since

> she was 4 months old but none of the therapists we have used in

the past

> specialized in sensory integration therapy. Now we have the

opportunity of

> doing specialized therapy to target the problems, but am wondering

how much

> to push or not. Any advice welcome.

>

>

> See www.caringbridge.org/ia/mitomomof9 and

www.heartbeatsformito.org to see

> a photo look into what Mito looks like

> Darla: mommy to

> Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-

tube,

> hypotonicity, disautonomy, SID, global delays, asthma, cyclic

vomiting,

> bladder issues, wheelchair for distances, eye issues, autistic

behaviors,

> gastric emptying issues...

> Zipporrah (14 months) Mito, strokes, neuro-motor planning dys.,

SID, GERD,

> dysphasia, 100% G-tube fed, speech delays, extreme fatigue,

excessive

> phlegm, asthma, trach issues, aberrant subclavian artery,

disautonomy,

> hypertonicity, migraines, possible seizures, dumping syndrome, iron

> deficiency, ...

> Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia

(4), &

> Marquis (3), Joey & (12 months) (some with Mito symptoms)

[Guest guest]

sees PT only once a month, as thats all our health system

will provide.. otherwise its out of pocket and we just dont have the

$ for it. The therapist however is wonderful, and right now doesnt

feel is at a great need for it any more than that...

That said when we go out to 'playgroups' at the local gym and such,

will spend the whole time playing, and by the end of it (an

hour or so) he is VERY wobbly and stumbly... I definately notice

changes in activity level have a huge impact not only on his

walking/balance issues, but also on his sleep habits (he will come

home from playgroup and sleep for 4 hours if i let him... i tend to

wake him up after 2 though just to keep him on schedule, but his

afternoon is usually spent sitting and 'reading' or watching a

DVD... it really slows him down alot.

That said, really isnt in much as far as therapy goes... he

has speech every 2 weeks (again our system will only provide once a

month sessions, and were curretnly on an 18 month waiting list for

that service... in the meantime we pay out of pocket for a private

therapist... ideally he should see her once a week at least, but we

just cant swing it), and that really doesnt stress him in the least,

as most of it is spent in his high chair. OT has evaluated him, but

doesnt feel he needs them just yet.

I guess i dont have much to put into the subject as far as your

question goes, but as per our doctors advice, we are to avoid tiring

him out excessively (even if that means cutting playgroup time in

half), and ensuring that he gets all the sleep his body seems to

need (this changes every day almost). We dont travel (havent in

almost a year) unless we can be sure has his own room, as he

doesnt sleep well with others in the room and he always crashes on

trips because of this. We dont go out if it interferes with his nap

schedule, as if he misses a nap he feels it for days. The doctor

said all these things are important, as they will all interfere with

his energy levels, and once they drop we all know how hard it is to

get them back up to par again...

My assumption would be that the same would hold true for therapy

sessions if they were exhausting him... the benefits of pushing him

to exhaustion cant possibly outweight the downsides of his energy

levels being so poor afterwards... Is it possible to have more

sessions in a week that are just shorter? I know this could be

difficult since you likely have ALOT of sessions already between all

the different therapists... might be worth it though?

sorry, dont have much advice... but i do agree that it cant possibly

be doing too much good if she is so tiered afterwards...

Keely

> Zipporrah's biggest issues seem to be more in the

> equilibrium-positional/balance areas, neuro-motor planning, and

sensory

> dysfunction areas. After short periods of play she becomes very

fatigued

> and way off balance. She had an OT evaluation on Wednesday that

challenged

> her in different areas than she normally tries (although she LOVED

the

> activities) and has been totally wiped out since then. My

question is if

> others notice lots of fatigue following therapy and if your docs

have

> advised you on how much is too much when it comes to therapy

causing

> fatigue. Do you have to limit the activity or take breaks? I had

thought

> she was doing better lately on her balance/wobbly legs, but the

more she did

> at therapy, the worse she became. I think many of the things they

tried

> were challenging because they were seeing what bothered her and

where all

> her sensory issues have affected. We noticed lots of issues to do

with

> neuro-motor planning and problems with movement. If she was moved

in

> different directions (like on a swing or ball) or leaned

backwards, she

> really had a lot of problems. This is something we knew was a

problem since

> she was 4 months old but none of the therapists we have used in

the past

> specialized in sensory integration therapy. Now we have the

opportunity of

> doing specialized therapy to target the problems, but am wondering

how much

> to push or not. Any advice welcome.

>

>

> See www.caringbridge.org/ia/mitomomof9 and

www.heartbeatsformito.org to see

> a photo look into what Mito looks like

> Darla: mommy to

> Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-

tube,

> hypotonicity, disautonomy, SID, global delays, asthma, cyclic

vomiting,

> bladder issues, wheelchair for distances, eye issues, autistic

behaviors,

> gastric emptying issues...

> Zipporrah (14 months) Mito, strokes, neuro-motor planning dys.,

SID, GERD,

> dysphasia, 100% G-tube fed, speech delays, extreme fatigue,

excessive

> phlegm, asthma, trach issues, aberrant subclavian artery,

disautonomy,

> hypertonicity, migraines, possible seizures, dumping syndrome, iron

> deficiency, ...

> Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia

(4), &

> Marquis (3), Joey & (12 months) (some with Mito symptoms)

[Guest guest]

sees PT only once a month, as thats all our health system

will provide.. otherwise its out of pocket and we just dont have the

$ for it. The therapist however is wonderful, and right now doesnt

feel is at a great need for it any more than that...

That said when we go out to 'playgroups' at the local gym and such,

will spend the whole time playing, and by the end of it (an

hour or so) he is VERY wobbly and stumbly... I definately notice

changes in activity level have a huge impact not only on his

walking/balance issues, but also on his sleep habits (he will come

home from playgroup and sleep for 4 hours if i let him... i tend to

wake him up after 2 though just to keep him on schedule, but his

afternoon is usually spent sitting and 'reading' or watching a

DVD... it really slows him down alot.

That said, really isnt in much as far as therapy goes... he

has speech every 2 weeks (again our system will only provide once a

month sessions, and were curretnly on an 18 month waiting list for

that service... in the meantime we pay out of pocket for a private

therapist... ideally he should see her once a week at least, but we

just cant swing it), and that really doesnt stress him in the least,

as most of it is spent in his high chair. OT has evaluated him, but

doesnt feel he needs them just yet.

I guess i dont have much to put into the subject as far as your

question goes, but as per our doctors advice, we are to avoid tiring

him out excessively (even if that means cutting playgroup time in

half), and ensuring that he gets all the sleep his body seems to

need (this changes every day almost). We dont travel (havent in

almost a year) unless we can be sure has his own room, as he

doesnt sleep well with others in the room and he always crashes on

trips because of this. We dont go out if it interferes with his nap

schedule, as if he misses a nap he feels it for days. The doctor

said all these things are important, as they will all interfere with

his energy levels, and once they drop we all know how hard it is to

get them back up to par again...

My assumption would be that the same would hold true for therapy

sessions if they were exhausting him... the benefits of pushing him

to exhaustion cant possibly outweight the downsides of his energy

levels being so poor afterwards... Is it possible to have more

sessions in a week that are just shorter? I know this could be

difficult since you likely have ALOT of sessions already between all

the different therapists... might be worth it though?

sorry, dont have much advice... but i do agree that it cant possibly

be doing too much good if she is so tiered afterwards...

Keely

> Zipporrah's biggest issues seem to be more in the

> equilibrium-positional/balance areas, neuro-motor planning, and

sensory

> dysfunction areas. After short periods of play she becomes very

fatigued

> and way off balance. She had an OT evaluation on Wednesday that

challenged

> her in different areas than she normally tries (although she LOVED

the

> activities) and has been totally wiped out since then. My

question is if

> others notice lots of fatigue following therapy and if your docs

have

> advised you on how much is too much when it comes to therapy

causing

> fatigue. Do you have to limit the activity or take breaks? I had

thought

> she was doing better lately on her balance/wobbly legs, but the

more she did

> at therapy, the worse she became. I think many of the things they

tried

> were challenging because they were seeing what bothered her and

where all

> her sensory issues have affected. We noticed lots of issues to do

with

> neuro-motor planning and problems with movement. If she was moved

in

> different directions (like on a swing or ball) or leaned

backwards, she

> really had a lot of problems. This is something we knew was a

problem since

> she was 4 months old but none of the therapists we have used in

the past

> specialized in sensory integration therapy. Now we have the

opportunity of

> doing specialized therapy to target the problems, but am wondering

how much

> to push or not. Any advice welcome.

>

>

> See www.caringbridge.org/ia/mitomomof9 and

www.heartbeatsformito.org to see

> a photo look into what Mito looks like

> Darla: mommy to

> Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-

tube,

> hypotonicity, disautonomy, SID, global delays, asthma, cyclic

vomiting,

> bladder issues, wheelchair for distances, eye issues, autistic

behaviors,

> gastric emptying issues...

> Zipporrah (14 months) Mito, strokes, neuro-motor planning dys.,

SID, GERD,

> dysphasia, 100% G-tube fed, speech delays, extreme fatigue,

excessive

> phlegm, asthma, trach issues, aberrant subclavian artery,

disautonomy,

> hypertonicity, migraines, possible seizures, dumping syndrome, iron

> deficiency, ...

> Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia

(4), &

> Marquis (3), Joey & (12 months) (some with Mito symptoms)

[Guest guest]

Hi Darla,

I don't have much advice, but wanted to tell you that we're going through something similar with Maddie. She seems to be having a "brown-out". Not losing any skills or regressing, but she is very tired, yet still tries to keep up with her siblings. All of her therapists and teacher have mentioned how fatigued she is lately. I've mentioned to everyone that we may be in need of a schedule change, as this is the first year Maddie has had so many things going on during the week. Last year it was a teacher 2 days a week and a therapist 2 days a week, all for one hour each. This year it is 3 days with the teacher for an hour, and on 2 of those days she has therapy for an hour after. On the other days she has double therapies for an hour each. She's just wiped out. We also seem to be noticing a pattern of this happening in the winter. Maybe she needs more sunlight and vitamin D. We will pray for you and yours. Take care.

Holly Rubio

How to know when is too much exhaustion? (therapy related)

Zipporrah's biggest issues seem to be more in the equilibrium-positional/balance areas, neuro-motor planning, and sensorydysfunction areas. After short periods of play she becomes very fatigued and way off balance. She had an OT evaluation on Wednesday that challenged her in different areas than she normally tries (although she LOVED the activities) and has been totally wiped out since then. My question is if others notice lots of fatigue following therapy and if your docs have advised you on how much is too much when it comes to therapy causing fatigue. Do you have to limit the activity or take breaks? I had thought she was doing better lately on her balance/wobbly legs, but the more she did at therapy, the worse she became. I think many of the things they tried were challenging because they were seeing what bothered her and where all her sensory issues have affected. We noticed lots of issues to do with neuro-motor planning and problems with movement. If she was moved in different directions (like on a swing or ball) or leaned backwards, she really had a lot of problems. This is something we knew was a problem since she was 4 months old but none of the therapists we have used in the past specialized in sensory integration therapy. Now we have the opportunity of doing specialized therapy to target the problems, but am wondering how much to push or not. Any advice welcome. :)See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to seea photo look into what Mito looks likeDarla: mommy toAsenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,bladder issues, wheelchair for distances, eye issues, autistic behaviors,gastric emptying issues...Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessivephlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,hypertonicity, migraines, possible seizures, dumping syndrome, irondeficiency, ...Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), & Marquis (3), Joey & (12 months) (some with Mito symptoms) Please contact mito-owner with any problems or questions.

[Guest guest]

Hi Darla,

I don't have much advice, but wanted to tell you that we're going through something similar with Maddie. She seems to be having a "brown-out". Not losing any skills or regressing, but she is very tired, yet still tries to keep up with her siblings. All of her therapists and teacher have mentioned how fatigued she is lately. I've mentioned to everyone that we may be in need of a schedule change, as this is the first year Maddie has had so many things going on during the week. Last year it was a teacher 2 days a week and a therapist 2 days a week, all for one hour each. This year it is 3 days with the teacher for an hour, and on 2 of those days she has therapy for an hour after. On the other days she has double therapies for an hour each. She's just wiped out. We also seem to be noticing a pattern of this happening in the winter. Maybe she needs more sunlight and vitamin D. We will pray for you and yours. Take care.

Holly Rubio

How to know when is too much exhaustion? (therapy related)

Zipporrah's biggest issues seem to be more in the equilibrium-positional/balance areas, neuro-motor planning, and sensorydysfunction areas. After short periods of play she becomes very fatigued and way off balance. She had an OT evaluation on Wednesday that challenged her in different areas than she normally tries (although she LOVED the activities) and has been totally wiped out since then. My question is if others notice lots of fatigue following therapy and if your docs have advised you on how much is too much when it comes to therapy causing fatigue. Do you have to limit the activity or take breaks? I had thought she was doing better lately on her balance/wobbly legs, but the more she did at therapy, the worse she became. I think many of the things they tried were challenging because they were seeing what bothered her and where all her sensory issues have affected. We noticed lots of issues to do with neuro-motor planning and problems with movement. If she was moved in different directions (like on a swing or ball) or leaned backwards, she really had a lot of problems. This is something we knew was a problem since she was 4 months old but none of the therapists we have used in the past specialized in sensory integration therapy. Now we have the opportunity of doing specialized therapy to target the problems, but am wondering how much to push or not. Any advice welcome. :)See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to seea photo look into what Mito looks likeDarla: mommy toAsenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,bladder issues, wheelchair for distances, eye issues, autistic behaviors,gastric emptying issues...Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessivephlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,hypertonicity, migraines, possible seizures, dumping syndrome, irondeficiency, ...Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), & Marquis (3), Joey & (12 months) (some with Mito symptoms) Please contact mito-owner with any problems or questions.

[Guest guest]

Darla,

With Grace we limit her therapies to 1/2 hour OT, 1/2 hour speech therapy back to back, once a week. From what her OT has suggested (also specializes in SID) more than that is just a waste, because she looses focus, and just gets too tired. She proved this to me this week, but not for the same reasons. What she did was have her do her normal routine but after that she put her on the platform swing and tried to have her figure out how to get bean bags into a bucket without getting off the swing. I was amazed that she could not do it. She has all the physical abilites to be able to move herself on the swing but her brain was unable to connect her logic with physical ability. I have also notice that on the days of her therapies she usually is asleep in the car on the way home. On a typical day (without her therapy) she would not normally take a nap at all.

Best wishes

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[Guest guest]

Darla,

With Grace we limit her therapies to 1/2 hour OT, 1/2 hour speech therapy back to back, once a week. From what her OT has suggested (also specializes in SID) more than that is just a waste, because she looses focus, and just gets too tired. She proved this to me this week, but not for the same reasons. What she did was have her do her normal routine but after that she put her on the platform swing and tried to have her figure out how to get bean bags into a bucket without getting off the swing. I was amazed that she could not do it. She has all the physical abilites to be able to move herself on the swing but her brain was unable to connect her logic with physical ability. I have also notice that on the days of her therapies she usually is asleep in the car on the way home. On a typical day (without her therapy) she would not normally take a nap at all.

Best wishes

Try the new Beta version of MSN Messenger - it's FREE!