Guest guest Posted March 21, 2008 Report Share Posted March 21, 2008 Hi - I have been fairly sick the past several months and now have deloped kidney stones again for about the 20th time and some of my docs say it is connected to Sarcoid and some say no- does anyone else have continued problems with kidney stones-They have also sharply reduced my predisone and hsvnt given me anything else so i was wondering what meds others have taken to replace it- I am also thinking of again going elsewhere for medical treatment and was wondering where people have felt that they have recieved good medical care. would appreciate any help that i can get as i am feeling very discouraged about this and sometimes feel lke I am ready to give up MATT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2008 Report Share Posted March 21, 2008 Hi - I have been fairly sick the past several months and now have deloped kidney stones again for about the 20th time and some of my docs say it is connected to Sarcoid and some say no- does anyone else have continued problems with kidney stones-They have also sharply reduced my predisone and hsvnt given me anything else so i was wondering what meds others have taken to replace it- I am also thinking of again going elsewhere for medical treatment and was wondering where people have felt that they have recieved good medical care. would appreciate any help that i can get as i am feeling very discouraged about this and sometimes feel lke I am ready to give up MATT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2008 Report Share Posted March 22, 2008 Matt: No giving up allowed. I am on the East Coast so I don't have any suggestions on where you might want to go, but I just wanted to give you some encouragment. While we may live far apart, we have similar lives and if I have to keep going so do you. Hopefully, someone else can give you ideas where else to go but as far as meds have you tried Imuran? Just a suggestion. I suffered too many side effects but while I was on it, I had no cranial neuropathy at all. Take care and get some rest. Terri G. > > Hi - I have been fairly sick the past several months and now have > deloped kidney stones again for about the 20th time and some of my > docs say it is connected to Sarcoid and some say no- does anyone else > have continued problems with kidney stones-They have also sharply > reduced my predisone and hsvnt given me anything else so i was > wondering what meds others have taken to replace it- I am also > thinking of again going elsewhere for medical treatment and was > wondering where people have felt that they have recieved good medical > care. would appreciate any help that i can get as i am feeling very > discouraged about this and sometimes feel lke I am ready to give up MATT > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2008 Report Share Posted March 22, 2008 Matt: No giving up allowed. I am on the East Coast so I don't have any suggestions on where you might want to go, but I just wanted to give you some encouragment. While we may live far apart, we have similar lives and if I have to keep going so do you. Hopefully, someone else can give you ideas where else to go but as far as meds have you tried Imuran? Just a suggestion. I suffered too many side effects but while I was on it, I had no cranial neuropathy at all. Take care and get some rest. Terri G. > > Hi - I have been fairly sick the past several months and now have > deloped kidney stones again for about the 20th time and some of my > docs say it is connected to Sarcoid and some say no- does anyone else > have continued problems with kidney stones-They have also sharply > reduced my predisone and hsvnt given me anything else so i was > wondering what meds others have taken to replace it- I am also > thinking of again going elsewhere for medical treatment and was > wondering where people have felt that they have recieved good medical > care. would appreciate any help that i can get as i am feeling very > discouraged about this and sometimes feel lke I am ready to give up MATT > Quote Link to comment Share on other sites More sharing options...
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