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Matt in Seattle

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Hi - I have been fairly sick the past several months and now have

deloped kidney stones again for about the 20th time and some of my

docs say it is connected to Sarcoid and some say no- does anyone else

have continued problems with kidney stones-They have also sharply

reduced my predisone and hsvnt given me anything else so i was

wondering what meds others have taken to replace it- I am also

thinking of again going elsewhere for medical treatment and was

wondering where people have felt that they have recieved good medical

care. would appreciate any help that i can get as i am feeling very

discouraged about this and sometimes feel lke I am ready to give up MATT

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Hi - I have been fairly sick the past several months and now have

deloped kidney stones again for about the 20th time and some of my

docs say it is connected to Sarcoid and some say no- does anyone else

have continued problems with kidney stones-They have also sharply

reduced my predisone and hsvnt given me anything else so i was

wondering what meds others have taken to replace it- I am also

thinking of again going elsewhere for medical treatment and was

wondering where people have felt that they have recieved good medical

care. would appreciate any help that i can get as i am feeling very

discouraged about this and sometimes feel lke I am ready to give up MATT

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Matt:

No giving up allowed. I am on the East Coast so I don't have any

suggestions on where you might want to go, but I just wanted to give you

some encouragment. While we may live far apart, we have similar lives

and if I have to keep going so do you.

Hopefully, someone else can give you ideas where else to go but as far

as meds have you tried Imuran? Just a suggestion. I suffered too many

side effects but while I was on it, I had no cranial neuropathy at all.

Take care and get some rest.

Terri G.

>

> Hi - I have been fairly sick the past several months and now have

> deloped kidney stones again for about the 20th time and some of my

> docs say it is connected to Sarcoid and some say no- does anyone else

> have continued problems with kidney stones-They have also sharply

> reduced my predisone and hsvnt given me anything else so i was

> wondering what meds others have taken to replace it- I am also

> thinking of again going elsewhere for medical treatment and was

> wondering where people have felt that they have recieved good medical

> care. would appreciate any help that i can get as i am feeling very

> discouraged about this and sometimes feel lke I am ready to give up

MATT

>

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Matt:

No giving up allowed. I am on the East Coast so I don't have any

suggestions on where you might want to go, but I just wanted to give you

some encouragment. While we may live far apart, we have similar lives

and if I have to keep going so do you.

Hopefully, someone else can give you ideas where else to go but as far

as meds have you tried Imuran? Just a suggestion. I suffered too many

side effects but while I was on it, I had no cranial neuropathy at all.

Take care and get some rest.

Terri G.

>

> Hi - I have been fairly sick the past several months and now have

> deloped kidney stones again for about the 20th time and some of my

> docs say it is connected to Sarcoid and some say no- does anyone else

> have continued problems with kidney stones-They have also sharply

> reduced my predisone and hsvnt given me anything else so i was

> wondering what meds others have taken to replace it- I am also

> thinking of again going elsewhere for medical treatment and was

> wondering where people have felt that they have recieved good medical

> care. would appreciate any help that i can get as i am feeling very

> discouraged about this and sometimes feel lke I am ready to give up

MATT

>

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