[SPAM] Re: question about handicap parking

[Guest guest]

I have a sister who goes from not wanting to be around me because she is afraid she might catch what I have to thinking I am faking the whole thing. She tells me I am not sick enough to be on disability or use the placard. LOL I am in a wheel chair. She tells her friends I will be fine shortly. As soon as I work more at it. If I am tired she asks if I stayed up all night or went to a party. She doesn't know if she should believe me or not. It is depending on the mood she is in and her outlook that day. I have NS and sometimes I want to shout it from the roof tops. I cry when I see her because she makes me feel so bad. I want to hold up in my apt and stay away from everyone but I have a wonderful spouse who won't let me. I can handle the comments from others but from my own sister who I love Hurts so much. She was with me in the hospt. when I almost died. I wish I could explain to her I am ok emotionally now but I will never be the old Jackie who was independent, rode motorcycle, went where and when I wanted, worked 6 days a week and spent so much time with family and friends.

Sorry for the ranting but sometimes I just need it.

Jackie

[sPAM] Re: question about handicap parking

I know what you all mean. I was once working in an office building before I got my disability and I had already had my handicap decal. We had a parking garage and I would park in the handcap parking space because usually it would be free to use at work since not many people were handicapped there. I also parked there because it was right in front of the elevator and half of the time I couldn't remember what floor I parked on if I didn't park in the handicap spot.

One day I came back to my car and there was a note on my car door saying "You do not appear to be handicapped so why are parking in this space?" I was so outdone that someone would actually write me a note saying that when that didn't even know what I had been going through. The bad thing about it is that they didn't know me and they didn't leave their name on the note so I could respond.

As you all know, most of us don't look like anything is wrong so most people don't think that we are sick. Many think that I can do things like they can and they start to think that I am not trying to do anything. I even have some family members that don't realize the extent of the condition. They don't realize how tired I get just from standing for long periods of time or walking into the store and they were with me during some of the worse times like memory loss, extremely bad headaches,backaches, dizziness etc. But just because you look fine doesn't mean that you are.

I wish I could do the things I used to. This started in my prime at 25 just when I was enjoying things the most and then it seems all of a sudden things changed. I was tired, in pain and uncomfortable from the weight gain from prednisone. I used to be 130lbs and balloon 205lbs on prednisone and currently down to 160lbs. My body doesn't seem like my own. And the worse thing is when people you know come up to you and say wow you got big as if I sat around eating myself to death or I did it to myself. Some people have no tact. But I keep going on and think I have come a long way. I still have flare up and am still on prednisone so I don't think I will 130lbs anytime soon.

__________________________________________________

[Guest guest]

Hi Jackie,

I can totally understand where you are coming from. My daughter is the one that has hurt me a lot by not wanting to believe anything nor bringing my grandson over to see me. She felt I should drive over to her house which is over 1/2 hour away and that was when I had optic neuritis and all the other symptoms we endure.

I know you live in Wisconsin. I live in Milwaukee. Not sure what city you are in.

KatSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Hi Jackie,

I can totally understand where you are coming from. My daughter is the one that has hurt me a lot by not wanting to believe anything nor bringing my grandson over to see me. She felt I should drive over to her house which is over 1/2 hour away and that was when I had optic neuritis and all the other symptoms we endure.

I know you live in Wisconsin. I live in Milwaukee. Not sure what city you are in.

KatSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

here in Wisconsin we get our placards free also. I have two...

RE: question about handicap parking> > >> > >> > >> > > Hi Marla> > >> > > I'm starting to have trouble with buttons but mostly I weartshirts> > & sweat> > > shirts.> > >> > > I've been busy when I haven't been sleeping but thought I'd check> > in.> > > Everything is approved and I'll get the keys to the handicapped> > apartment> > > tomorrow! Yea! I'll be able to go outside without having to mess> > with steps!> > > While you guys had custody of my doctors(LOL) I've been feelingthe> > need of> > > my missed treatments.> > >> > >> > >> > > Join our Sock Challenge for Orphans in Kazakhstan> > > http://groups. yahoo.com/ group/Mittens_ for_Akkol/> > > <http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif>> > > > > > grannylunatic@> > >> > > __________________________________________________> > >

[Guest guest]

here in Wisconsin we get our placards free also. I have two...

RE: question about handicap parking> > >> > >> > >> > > Hi Marla> > >> > > I'm starting to have trouble with buttons but mostly I weartshirts> > & sweat> > > shirts.> > >> > > I've been busy when I haven't been sleeping but thought I'd check> > in.> > > Everything is approved and I'll get the keys to the handicapped> > apartment> > > tomorrow! Yea! I'll be able to go outside without having to mess> > with steps!> > > While you guys had custody of my doctors(LOL) I've been feelingthe> > need of> > > my missed treatments.> > >> > >> > >> > > Join our Sock Challenge for Orphans in Kazakhstan> > > http://groups. yahoo.com/ group/Mittens_ for_Akkol/> > > <http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif>> > > > > > grannylunatic@> > >> > > __________________________________________________> > >

[Guest guest]

Jackie,

I am surprised we don't have a tax on breathing....

Terri G

> > > >

> > > > That's great news, a handicapped apartment, exciting for you and

> > > I'm so

> > > > happy for you. I picked up my handicapped parking plaque

> > > yesterday, I got

> > > > two, one to carry with me and one for my car, I had time after

my

> > > OT visit,

> > > > which was just more questions, anyway I got to Wal-Mart and

> > > wouldn't you

> > > > know no close place parking so it was the first time I used it,

> and

> > > when I

> > > > got out I wanted to scream to everyone, " I HAVE

NEUROSARCOIDOSIS "

> > > and unless

> > > > you can even spell it don't say a word! :-) OK so there really

> > > wasn't

> > > > anyone looking at me I just felt that way. I told Joe later who

> > > lives in

> > > > his computer world and doesn't know what is going on with the

rest

> > > of the

> > > > world, and he gave me that look and said Mom do you really need

> > > this, and I

> > > > said Joe you obviously don't have a clue what is happening to

your

> > > mom, so I

> > > > got down on the floor, and attempted to lift my legs, the left

> > > barely comes

> > > > up, the right sometimes ½ way and sometimes a ¼ depending

on

> > the

> > > day, he

> > > > freaked at for a minute and then said, " how the heck can you

> > > walk " , which

> > > > is my question too, but somehow I keep going, slow and unsteady,

> > > but going.

> > > > Isn't it funny how those we live with don't even think we are

> > > sick? Wishing

> > > > you all a great weekend, Marla

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > _____

> > > >

> > > > From: Neurosarcoidosis

> > > > [mailto:Neurosarcoidosis ] On Behalf Of

>

> > > > Sent: Thursday, November 01, 2007 10:23 PM

> > > > To: Neurosarcoidosis

> > > > Subject: RE: question about handicap parking

> > > >

> > > >

> > > >

> > > > Hi Marla

> > > >

> > > > I'm starting to have trouble with buttons but mostly I wear

> tshirts

> > > & sweat

> > > > shirts.

> > > >

> > > > I've been busy when I haven't been sleeping but thought I'd

check

> > > in.

> > > > Everything is approved and I'll get the keys to the handicapped

> > > apartment

> > > > tomorrow! Yea! I'll be able to go outside without having to mess

> > > with steps!

> > > > While you guys had custody of my doctors(LOL) I've been feeling

> the

> > > need of

> > > > my missed treatments.

> > > >

> > > >

> > > >

> > > > Join our Sock Challenge for Orphans in Kazakhstan

> > > > http://groups. yahoo.com/ group/Mittens_ for_Akkol/

> > > > <http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif>

> > > >

> > > > grannylunatic@

> > > >

> > > > __________________________________________________

> > > >

[Guest guest]

Jackie,

I am surprised we don't have a tax on breathing....

Terri G

> > > >

> > > > That's great news, a handicapped apartment, exciting for you and

> > > I'm so

> > > > happy for you. I picked up my handicapped parking plaque

> > > yesterday, I got

> > > > two, one to carry with me and one for my car, I had time after

my

> > > OT visit,

> > > > which was just more questions, anyway I got to Wal-Mart and

> > > wouldn't you

> > > > know no close place parking so it was the first time I used it,

> and

> > > when I

> > > > got out I wanted to scream to everyone, " I HAVE

NEUROSARCOIDOSIS "

> > > and unless

> > > > you can even spell it don't say a word! :-) OK so there really

> > > wasn't

> > > > anyone looking at me I just felt that way. I told Joe later who

> > > lives in

> > > > his computer world and doesn't know what is going on with the

rest

> > > of the

> > > > world, and he gave me that look and said Mom do you really need

> > > this, and I

> > > > said Joe you obviously don't have a clue what is happening to

your

> > > mom, so I

> > > > got down on the floor, and attempted to lift my legs, the left

> > > barely comes

> > > > up, the right sometimes ½ way and sometimes a ¼ depending

on

> > the

> > > day, he

> > > > freaked at for a minute and then said, " how the heck can you

> > > walk " , which

> > > > is my question too, but somehow I keep going, slow and unsteady,

> > > but going.

> > > > Isn't it funny how those we live with don't even think we are

> > > sick? Wishing

> > > > you all a great weekend, Marla

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > _____

> > > >

> > > > From: Neurosarcoidosis

> > > > [mailto:Neurosarcoidosis ] On Behalf Of

>

> > > > Sent: Thursday, November 01, 2007 10:23 PM

> > > > To: Neurosarcoidosis

> > > > Subject: RE: question about handicap parking

> > > >

> > > >

> > > >

> > > > Hi Marla

> > > >

> > > > I'm starting to have trouble with buttons but mostly I wear

> tshirts

> > > & sweat

> > > > shirts.

> > > >

> > > > I've been busy when I haven't been sleeping but thought I'd

check

> > > in.

> > > > Everything is approved and I'll get the keys to the handicapped

> > > apartment

> > > > tomorrow! Yea! I'll be able to go outside without having to mess

> > > with steps!

> > > > While you guys had custody of my doctors(LOL) I've been feeling

> the

> > > need of

> > > > my missed treatments.

> > > >

> > > >

> > > >

> > > > Join our Sock Challenge for Orphans in Kazakhstan

> > > > http://groups. yahoo.com/ group/Mittens_ for_Akkol/

> > > > <http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif>

> > > >

> > > > grannylunatic@

> > > >

> > > > __________________________________________________

> > > >

[Guest guest]

I got

mine for free too, I have two of them.  That’s in Colorado. I have to renew them every 3 years

even though there permanent, if I renew before they expire I won’t have

to get another doctors note.  Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of jackie

Sent: Monday, November 05, 2007

4:31 PM

To: Neurosarcoidosis

Subject: Re:

[sPAM] Re: question about handicap parking

here in Wisconsin

we get our placards free also. I have two...

RE: question about handicap parking

> > >

> > >

> > >

> > > Hi Marla

> > >

> > > I'm starting to have trouble with buttons but mostly I wear

tshirts

> > & sweat

> > > shirts.

> > >

> > > I've been busy when I haven't been sleeping but thought I'd

check

> > in.

> > > Everything is approved and I'll get the keys to the handicapped

> > apartment

> > > tomorrow! Yea! I'll be able to go outside without having to mess

> > with steps!

> > > While you guys had custody of my doctors(LOL) I've been feeling

the

> > need of

> > > my missed treatments.

> > >

> > >

> > >

> > > Join our Sock Challenge for Orphans in Kazakhstan

> > > http://groups. yahoo.com/

group/Mittens_ for_Akkol/

> > > <http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif>

> > >

> > > grannylunatic@

> > >

> > > __________________________________________________

> > >

[Guest guest]

I got

mine for free too, I have two of them.  That’s in Colorado. I have to renew them every 3 years

even though there permanent, if I renew before they expire I won’t have

to get another doctors note.  Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of jackie

Sent: Monday, November 05, 2007

4:31 PM

To: Neurosarcoidosis

Subject: Re:

[sPAM] Re: question about handicap parking

here in Wisconsin

we get our placards free also. I have two...

RE: question about handicap parking

> > >

> > >

> > >

> > > Hi Marla

> > >

> > > I'm starting to have trouble with buttons but mostly I wear

tshirts

> > & sweat

> > > shirts.

> > >

> > > I've been busy when I haven't been sleeping but thought I'd

check

> > in.

> > > Everything is approved and I'll get the keys to the handicapped

> > apartment

> > > tomorrow! Yea! I'll be able to go outside without having to mess

> > with steps!

> > > While you guys had custody of my doctors(LOL) I've been feeling

the

> > need of

> > > my missed treatments.

> > >

> > >

> > >

> > > Join our Sock Challenge for Orphans in Kazakhstan

> > > http://groups. yahoo.com/

group/Mittens_ for_Akkol/

> > > <http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif>

> > >

> > > grannylunatic@

> > >

> > > __________________________________________________

> > >

[Guest guest]

Jackie

you are right sometimes we do just need to vent. In august my husband and flew

out to Calif.

We had a family reunion for my Mother’s 85th birthday, it was

awesome all 7 of us were there, and we have not been together since the 70’s,

anyway, point is my family said to my husband, I thought Marla was sick, she

looks great, best I’ve ever seen her, (I sell Kay so know all the secrets)

and he says well she doesn’t look it but she is really sick, I’m

not sure they believed it. I don’t want to look sick, but sometimes I think

well I’ll just go out with no make up, then I look sick! Then people

will say, oh you must be having a bad day!

But if “I

look great, I must be feeling great”! Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of jackie

Sent: Sunday, November 04, 2007

9:49 AM

To: Neurosarcoidosis

Subject: Re:

[sPAM] Re: question about handicap parking

I have a sister who goes from not wanting to be around me

because she is afraid she might catch what I have to thinking I am faking the whole

thing. She tells me I am not sick enough to be on disability or use the

placard. LOL I am in a wheel chair. She tells her friends I

will be fine shortly. As soon as I work more at it. If I am tired

she asks if I stayed up all night or went to a party. She doesn't know if

she should believe me or not. It is depending on the mood she is in and

her outlook that day. I have NS and sometimes I want to shout it from the

roof tops. I cry when I see her because she makes me feel so bad. I

want to hold up in my apt and stay away from everyone but I have a wonderful

spouse who won't let me. I can handle the comments from others but from

my own sister who I love Hurts so much. She was with me in the

hospt. when I almost died. I wish I could explain to her I am ok

emotionally now but I will never be the old Jackie who was independent, rode

motorcycle, went where and when I wanted, worked 6 days a week and spent so

much time with family and friends.

Sorry for the ranting but sometimes I just need it.

Jackie

[sPAM]

Re: question about handicap parking

I know what you all mean. I was once working in an office

building before I got my disability and I had already had my handicap decal.

We had a parking garage and I would park in the handcap parking space because

usually it would be free to use at work since not many people were handicapped

there. I also parked there because it was right in front of the

elevator and half of the time I couldn't remember what floor I parked on if I

didn't park in the handicap spot.

One day I came back to my car and there was a note on my car door

saying " You do not appear to be

handicapped so why are parking in this space? " I

was so outdone that someone would actually write me a note saying that when

that didn't even know what I had been going through. The bad thing

about it is that they didn't know me and they didn't leave their name on the

note so I could respond.

As you all know, most of us don't look like anything is wrong so most

people don't think that we are sick. Many think that I can do things

like they can and they start to think that I am not trying to do

anything. I even have some family members that don't realize the extent

of the condition. They don't realize how tired I get just from standing

for long periods of time or walking into the store and they were with me

during some of the worse times like memory loss, extremely bad

headaches,backaches, dizziness etc. But just because you look fine

doesn't mean that you are.

I wish I could do the things I used to. This started in my prime

at 25 just when I was enjoying things the most and then it seems all of a

sudden things changed. I was tired, in pain and uncomfortable from the

weight gain from prednisone. I used to be 130lbs and balloon 205lbs on

prednisone and currently down to 160lbs. My body doesn't seem like my

own. And the worse thing is when people you know come up to you and say wow you

got big as if I sat around eating myself to death or I did it to myself.

Some people have no tact. But I keep going on and think I have come a

long way. I still have flare up and am still on prednisone so I don't

think I will 130lbs anytime soon.

__________________________________________________

[Guest guest]

Jackie

you are right sometimes we do just need to vent. In august my husband and flew

out to Calif.

We had a family reunion for my Mother’s 85th birthday, it was

awesome all 7 of us were there, and we have not been together since the 70’s,

anyway, point is my family said to my husband, I thought Marla was sick, she

looks great, best I’ve ever seen her, (I sell Kay so know all the secrets)

and he says well she doesn’t look it but she is really sick, I’m

not sure they believed it. I don’t want to look sick, but sometimes I think

well I’ll just go out with no make up, then I look sick! Then people

will say, oh you must be having a bad day!

But if “I

look great, I must be feeling great”! Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of jackie

Sent: Sunday, November 04, 2007

9:49 AM

To: Neurosarcoidosis

Subject: Re:

[sPAM] Re: question about handicap parking

I have a sister who goes from not wanting to be around me

because she is afraid she might catch what I have to thinking I am faking the whole

thing. She tells me I am not sick enough to be on disability or use the

placard. LOL I am in a wheel chair. She tells her friends I

will be fine shortly. As soon as I work more at it. If I am tired

she asks if I stayed up all night or went to a party. She doesn't know if

she should believe me or not. It is depending on the mood she is in and

her outlook that day. I have NS and sometimes I want to shout it from the

roof tops. I cry when I see her because she makes me feel so bad. I

want to hold up in my apt and stay away from everyone but I have a wonderful

spouse who won't let me. I can handle the comments from others but from

my own sister who I love Hurts so much. She was with me in the

hospt. when I almost died. I wish I could explain to her I am ok

emotionally now but I will never be the old Jackie who was independent, rode

motorcycle, went where and when I wanted, worked 6 days a week and spent so

much time with family and friends.

Sorry for the ranting but sometimes I just need it.

Jackie

[sPAM]

Re: question about handicap parking

I know what you all mean. I was once working in an office

building before I got my disability and I had already had my handicap decal.

We had a parking garage and I would park in the handcap parking space because

usually it would be free to use at work since not many people were handicapped

there. I also parked there because it was right in front of the

elevator and half of the time I couldn't remember what floor I parked on if I

didn't park in the handicap spot.

One day I came back to my car and there was a note on my car door

saying " You do not appear to be

handicapped so why are parking in this space? " I

was so outdone that someone would actually write me a note saying that when

that didn't even know what I had been going through. The bad thing

about it is that they didn't know me and they didn't leave their name on the

note so I could respond.

As you all know, most of us don't look like anything is wrong so most

people don't think that we are sick. Many think that I can do things

like they can and they start to think that I am not trying to do

anything. I even have some family members that don't realize the extent

of the condition. They don't realize how tired I get just from standing

for long periods of time or walking into the store and they were with me

during some of the worse times like memory loss, extremely bad

headaches,backaches, dizziness etc. But just because you look fine

doesn't mean that you are.

I wish I could do the things I used to. This started in my prime

at 25 just when I was enjoying things the most and then it seems all of a

sudden things changed. I was tired, in pain and uncomfortable from the

weight gain from prednisone. I used to be 130lbs and balloon 205lbs on

prednisone and currently down to 160lbs. My body doesn't seem like my

own. And the worse thing is when people you know come up to you and say wow you

got big as if I sat around eating myself to death or I did it to myself.

Some people have no tact. But I keep going on and think I have come a

long way. I still have flare up and am still on prednisone so I don't

think I will 130lbs anytime soon.

__________________________________________________

[Guest guest]

I agree with you Marla. If you look great they think you are feeling ok. I don't want to go around looking like I am dying. It makes me feel a little better if I look decent and put on a little makeup (smile) and act like I feel better than I really do. Shauna in Atl __________________________________________________

[Guest guest]

I agree with you Marla. If you look great they think you are feeling ok. I don't want to go around looking like I am dying. It makes me feel a little better if I look decent and put on a little makeup (smile) and act like I feel better than I really do. Shauna in Atl __________________________________________________

[Guest guest]

Yes so

true, like tonight I taught my daughters Religious class, and even though I parked

in Handicap as the lot was full, and my daughter thinks it’s the coolest

thing, then walked into the building holding on to the wall, everyone walks by

saying hi Marla you look great, (and I do, you know it’s all the Kay

I use). But no one sees that I am holding on to the building?? Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Shauna Glaspie

Sent: Tuesday, November 06, 2007

6:50 AM

To: Neurosarcoidosis

Subject: Re:

[sPAM] Re: question about handicap parking

I agree with you Marla. If you look great they think you are feeling

ok. I don't want to go around looking like I am dying. It makes me

feel a little better if I look decent and put on a little makeup (smile) and

act like I feel better than I really do.

Shauna in Atl

__________________________________________________

[Guest guest]

Yes so

true, like tonight I taught my daughters Religious class, and even though I parked

in Handicap as the lot was full, and my daughter thinks it’s the coolest

thing, then walked into the building holding on to the wall, everyone walks by

saying hi Marla you look great, (and I do, you know it’s all the Kay

I use). But no one sees that I am holding on to the building?? Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Shauna Glaspie

Sent: Tuesday, November 06, 2007

6:50 AM

To: Neurosarcoidosis

Subject: Re:

[sPAM] Re: question about handicap parking

I agree with you Marla. If you look great they think you are feeling

ok. I don't want to go around looking like I am dying. It makes me

feel a little better if I look decent and put on a little makeup (smile) and

act like I feel better than I really do.

Shauna in Atl

__________________________________________________

[Guest guest]

Marla, my mom raised me with the saying, "If you can't say something nice...don't say anything at all." Maybe they're just trying to say that 'something nice'. I try to find something nice to say to people, too, even if they may be having a bad day. Cuz what goes around comes around. The other point is that they just don't 'get it' cuz they're not sick and they won't get it til they are. I have to admit that in my younger, not-so-sick days i couldn't have imagined what this type of sickness felt like. And in a way I quess we should be glad they don't get it cuz I wouldn't wish this on anyone(except a few clueless doctors). hugs S.Marla Bramer wrote: Yes so true, like tonight I taught my daughters Religious class, and even though I parked in Handicap as the lot was full, and my daughter thinks it’s the coolest thing, then walked into the building holding on to the wall, everyone walks by saying hi Marla you look great, (and I do, you know it’s all the Kay I use). But no one sees that I am holding on to the building??

Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Shauna Glaspie Sent: Tuesday, November 06, 2007 6:50 AM To: Neurosarcoidosis Subject: Re: [sPAM] Re: question about handicap parking I agree with you Marla. If you look great they think you are feeling ok. I don't want to go around looking like I am dying. It makes me feel a little better if I look decent and put on a little makeup (smile) and act like I feel better than I really

do. Shauna in Atl __________________________________________________

[Guest guest]

Marla, my mom raised me with the saying, "If you can't say something nice...don't say anything at all." Maybe they're just trying to say that 'something nice'. I try to find something nice to say to people, too, even if they may be having a bad day. Cuz what goes around comes around. The other point is that they just don't 'get it' cuz they're not sick and they won't get it til they are. I have to admit that in my younger, not-so-sick days i couldn't have imagined what this type of sickness felt like. And in a way I quess we should be glad they don't get it cuz I wouldn't wish this on anyone(except a few clueless doctors). hugs S.Marla Bramer wrote: Yes so true, like tonight I taught my daughters Religious class, and even though I parked in Handicap as the lot was full, and my daughter thinks it’s the coolest thing, then walked into the building holding on to the wall, everyone walks by saying hi Marla you look great, (and I do, you know it’s all the Kay I use). But no one sees that I am holding on to the building??

Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Shauna Glaspie Sent: Tuesday, November 06, 2007 6:50 AM To: Neurosarcoidosis Subject: Re: [sPAM] Re: question about handicap parking I agree with you Marla. If you look great they think you are feeling ok. I don't want to go around looking like I am dying. It makes me feel a little better if I look decent and put on a little makeup (smile) and act like I feel better than I really

do. Shauna in Atl __________________________________________________

[Guest guest]

  

you are so right, and I should concentrate on the good not the bad, and I’m

sure my husband is getting tired of hearing it anywy, and as for the doctor

thing, ya I could think of a few too J  Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Solberg

Sent: Thursday, November 08, 2007

1:24 AM

To: Neurosarcoidosis

Subject: RE:

[sPAM] Re: question about handicap parking

Marla, my mom

raised me with the saying, " If you can't say something nice...don't say

anything at all. " Maybe they're just trying to say that 'something

nice'. I try to find something nice to say to people, too, even if they

may be having a bad day. Cuz what goes around comes around. The other point is that they just

don't 'get it' cuz they're not sick and they won't get it til they are. I

have to admit that in my younger, not-so-sick days i couldn't have imagined

what this type of sickness felt like. And in a way I quess we

should be glad they don't get it cuz I wouldn't wish this on anyone(except a

few clueless doctors). hugs S.

Marla Bramer

<mebramer (AT) gmail (DOT) com> wrote:

Yes so

true, like tonight I taught my daughters Religious class, and even though I

parked in Handicap as the lot was full, and my daughter thinks it’s the

coolest thing, then walked into the building holding on to the wall, everyone

walks by saying hi Marla you look great, (and I do, you know it’s all the

Kay I use). But no one sees that I am holding on to the building??

Marla

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ]

On Behalf Of Shauna Glaspie

Sent: Tuesday, November 06, 2007

6:50 AM

To: Neurosarcoidosis

Subject: Re: [sPAM]

Re: question about handicap parking

I agree with you Marla. If you look great they think you are feeling

ok. I don't want to go around looking like I am dying. It makes me

feel a little better if I look decent and put on a little makeup (smile) and

act like I feel better than I really do.

Shauna in Atl

__________________________________________________

[Guest guest]

  

you are so right, and I should concentrate on the good not the bad, and I’m

sure my husband is getting tired of hearing it anywy, and as for the doctor

thing, ya I could think of a few too J  Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Solberg

Sent: Thursday, November 08, 2007

1:24 AM

To: Neurosarcoidosis

Subject: RE:

[sPAM] Re: question about handicap parking

Marla, my mom

raised me with the saying, " If you can't say something nice...don't say

anything at all. " Maybe they're just trying to say that 'something

nice'. I try to find something nice to say to people, too, even if they

may be having a bad day. Cuz what goes around comes around. The other point is that they just

don't 'get it' cuz they're not sick and they won't get it til they are. I

have to admit that in my younger, not-so-sick days i couldn't have imagined

what this type of sickness felt like. And in a way I quess we

should be glad they don't get it cuz I wouldn't wish this on anyone(except a

few clueless doctors). hugs S.

Marla Bramer

<mebramer (AT) gmail (DOT) com> wrote:

Yes so

true, like tonight I taught my daughters Religious class, and even though I

parked in Handicap as the lot was full, and my daughter thinks it’s the

coolest thing, then walked into the building holding on to the wall, everyone

walks by saying hi Marla you look great, (and I do, you know it’s all the

Kay I use). But no one sees that I am holding on to the building??

Marla

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ]

On Behalf Of Shauna Glaspie

Sent: Tuesday, November 06, 2007

6:50 AM

To: Neurosarcoidosis

Subject: Re: [sPAM]

Re: question about handicap parking

I agree with you Marla. If you look great they think you are feeling

ok. I don't want to go around looking like I am dying. It makes me

feel a little better if I look decent and put on a little makeup (smile) and

act like I feel better than I really do.

Shauna in Atl

__________________________________________________