Re: New poll for Neurosarcoidosis

[Guest guest]

Hello,

I

know when I’m having a bad day I pray, while some people use profanity.

This is a rotten disease and as long as you warn others of religious or

profanity content it should be ok. I have a delete key and I can just delete if

I don’t want to see it. Each person deals with it their own way. In Dec

1998 and the first few years after I was diagnosed, I had a few choice words

for the MD’s. Now since I’m in a motorized wheelchair, oxygen 24/7,

and have VNA helping me I’ve really mellowed. As always take care and

know you all are in my thoughts and yes prayers. Always Terrie (the other

one) from Connecticut

XX Use

profanity/religious topics with a warning subject line

New

poll for Neurosarcoidosis

Enter your vote today! A new poll has been created for the

Neurosarcoidosis group:

In light of recent developments, I feel it necessary to conduct a poll

about our messages. PLEASE vote as it is important. We would like

to see the whole group vote......thank you.

The poll will close September 8, 2007 at 12:00 CST

Darlene

o Use profanity/religious topics with a warning subject line

o Do not allow profanity/religious topics

To vote, please visit the following web page:

http://groups.yahoo.com/group/Neurosarcoidosis/surveys?id=2570552

Note: Please do not reply to this message. Poll votes are

not collected via email. To vote, you must go to the Yahoo! Groups

web site listed above.

Thanks!

[Guest guest]

Hello,

I

know when I’m having a bad day I pray, while some people use profanity.

This is a rotten disease and as long as you warn others of religious or

profanity content it should be ok. I have a delete key and I can just delete if

I don’t want to see it. Each person deals with it their own way. In Dec

1998 and the first few years after I was diagnosed, I had a few choice words

for the MD’s. Now since I’m in a motorized wheelchair, oxygen 24/7,

and have VNA helping me I’ve really mellowed. As always take care and

know you all are in my thoughts and yes prayers. Always Terrie (the other

one) from Connecticut

XX Use

profanity/religious topics with a warning subject line

New

poll for Neurosarcoidosis

Enter your vote today! A new poll has been created for the

Neurosarcoidosis group:

In light of recent developments, I feel it necessary to conduct a poll

about our messages. PLEASE vote as it is important. We would like

to see the whole group vote......thank you.

The poll will close September 8, 2007 at 12:00 CST

Darlene

o Use profanity/religious topics with a warning subject line

o Do not allow profanity/religious topics

To vote, please visit the following web page:

http://groups.yahoo.com/group/Neurosarcoidosis/surveys?id=2570552

Note: Please do not reply to this message. Poll votes are

not collected via email. To vote, you must go to the Yahoo! Groups

web site listed above.

Thanks!

[Guest guest]

Hi, Terrie! It's good to hear from you. I also curse a lot less than I used to. I probably peaked at about age 40, while I was still married. (There are some things worse than neurosarcoidosis!) Now it's just once in awhile, mostly because I want to be a better influence on my grandkids, plus it takes too much energy to pitch a decent fit. Even typing all those !!!!! is hard on my wrists!

But different strokes for different folks. Whether it's habit, lifestyle, or coping mechanism, we have traditionally welcomed new members by saying this is a place you can be yourself, vent as you need to, say things you can't say anyplace else. It seems like we'll go quite awhile without much profanity, then kind of have a "flare."

Terrie, don't forget to register your vote at the website. I hope that you are getting the best care possible, and I'll lift you & up in prayer.

Ramblin' Rose

Moderator

A merry heart is good medicine. Proverbs 17:22

Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: RE: New poll for NeurosarcoidosisDate: Thu, 6 Sep 2007 20:57:18 -0400

Hello,

I know when I’m having a bad day I pray, while some people use profanity. This is a rotten disease and as long as you warn others of religious or profanity content it should be ok. I have a delete key and I can just delete if I don’t want to see it. Each person deals with it their own way. In Dec 1998 and the first few years after I was diagnosed, I had a few choice words for the MD’s. Now since I’m in a motorized wheelchair, oxygen 24/7, and have VNA helping me I’ve really mellowed. As always take care and know you all are in my thoughts and yes prayers. Always Terrie (the other one) from Connecticut

XX Use profanity/religious topics with a warning subject line

-----Original Message-----From: Neurosarcoidosis [mailto:Neurosarcoidosis ] Sent: Thursday, September 06, 2007 7:38 PMTo: Neurosarcoidosis Subject: New poll for Neurosarcoidosis

Enter your vote today! A new poll has been created for the Neurosarcoidosis group:In light of recent developments, I feel it necessary to conduct a pollabout our messages. PLEASE vote as it is important. We would liketo see the whole group vote......thank you.The poll will close September 8, 2007 at 12:00 CSTDarleneo Use profanity/religious topics with a warning subject line o Do not allow profanity/religious topics To vote, please visit the following web page:http://groups.yahoo.com/group/Neurosarcoidosis/surveys?id=2570552 Note: Please do not reply to this message. Poll votes are not collected via email. To vote, you must go to the Yahoo! Groups web site listed above.Thanks!

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[Guest guest]

What's VNA?Join our Sock Challenge for Orphans in Kazakhstan - 265 pairs needed by 9/15/07 http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@...

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[Guest guest]

Hi,

          VNA

is the Visiting Nurse Association in town. They come out and help me wash up,

do my hair and check my butt for bedsores since I no longer stand or walk. This

way (my husband gets a break). We just moved back home after being gone

since the end of March. The house was gutted and made handicap ready it’s

wonderful, but at 50 yrs old (this year) we’ll be paying a mortgage until

we’re 90!!!!!!! I got my computer set up & email back, boy did I really

miss it. I’m unpacking slowly now, so when I get pictures I’ll post

them.  I have a journey album too, 130lbs Dec 1998 when I was first diagnosed,

to around 250lbs now after 7 years of continuous Prednisone. (YUK)!!!!! Keep

smiling and know both & I have you all in our thoughts and prayers.

Always Terrie (Connecticut one)

RE:

New poll for Neurosarcoidosis

What's VNA?

Join

our Sock Challenge for Orphans in Kazakhstan - 265 pairs needed

by 9/15/07

http://groups. yahoo.com/

group/Mittens_ for_Akkol/

grannylunatic (AT) yahoo (DOT) com

 

Be a better Globetrotter. Get

better travel answers from someone who knows.

Yahoo! Answers - Check it out.

[Guest guest]

Hi,

          VNA

is the Visiting Nurse Association in town. They come out and help me wash up,

do my hair and check my butt for bedsores since I no longer stand or walk. This

way (my husband gets a break). We just moved back home after being gone

since the end of March. The house was gutted and made handicap ready it’s

wonderful, but at 50 yrs old (this year) we’ll be paying a mortgage until

we’re 90!!!!!!! I got my computer set up & email back, boy did I really

miss it. I’m unpacking slowly now, so when I get pictures I’ll post

them.  I have a journey album too, 130lbs Dec 1998 when I was first diagnosed,

to around 250lbs now after 7 years of continuous Prednisone. (YUK)!!!!! Keep

smiling and know both & I have you all in our thoughts and prayers.

Always Terrie (Connecticut one)

RE:

New poll for Neurosarcoidosis

What's VNA?

Join

our Sock Challenge for Orphans in Kazakhstan - 265 pairs needed

by 9/15/07

http://groups. yahoo.com/

group/Mittens_ for_Akkol/

grannylunatic (AT) yahoo (DOT) com

 

Be a better Globetrotter. Get

better travel answers from someone who knows.

Yahoo! Answers - Check it out.

[Guest guest]

Please don't assume that people who swear at times... don't pray also. It's not an either/or thing. We all have moods that go up and down. I usually only swear when I am in my deepest depressions and in alot of pain or just in some weird kind goofy mood. I pray throughout the day. Like Rose said...unless you walk in someone else's shoes. I grew up with seven brothers and live in a house of guys so it's easy to fall back on what they say sometimes. I really don't like being judged for what I say. I'd rather be judged for what I do and how I treat other people. I know of people who wouldn't dare swear but treat people like crap. just my opinion. S.Terrie & Tarbox wrote: Hello, I know when I’m having a bad day I pray, while some people use profanity. This is a rotten disease and as long as you warn others of religious or profanity content it should be ok. I have a delete key and I can just delete if I don’t want to see it. Each person deals with it their

own way. In Dec 1998 and the first few years after I was diagnosed, I had a few choice words for the MD’s. Now since I’m in a motorized wheelchair, oxygen 24/7, and have VNA helping me I’ve really mellowed. As always take care and know you all are in my thoughts and yes prayers. Always Terrie (the other one) from Connecticut XX Use profanity/religious topics with a warning subject line New poll for Neurosarcoidosis Enter your vote today! A new poll has been created for the Neurosarcoidosis group: In light of recent developments, I feel it necessary to conduct a poll about our messages. PLEASE vote as it is important. We would like to see the whole group vote......thank you. The poll will close September 8, 2007 at 12:00 CST Darlene

o Use profanity/religious topics with a warning subject line o Do not allow profanity/religious topics To vote, please visit the following web page: http://groups.yahoo.com/group/Neurosarcoidosis/surveys?id=2570552 Note: Please do not reply to this message. Poll votes are not collected via email. To vote, you must go to the Yahoo! Groups web site listed above. Thanks!

Be a better Globetrotter. Get better travel answers from someone who knows.Yahoo! Answers - Check it out.

[Guest guest]

Hi

,

I

agree with what you said. I didn’t mean that some don’t do both. I

use to when I had the strengh to. Now it’s better for me since I have the

pain patch and Neurontin (2000mgs a day). Sorry for my spelling and grammer but

I had my monthly Remicade Wednesday and I’m as the saying goes “Dragging

Butt and Brain Dead”. I hope nobody felt I was judging them, that’s

the last thing I would ever do. I’ve become so mellow and “bendable”

with the Sarcoid you cann call me Gumby. For those to young that’s Pokey’s

friend from the cartoon’s. Take care and know you’re in my thoughts

& prayers, Always Terrie & (CT)

New

poll for Neurosarcoidosis

Enter your vote today! A new poll has been created for the

Neurosarcoidosis group:

In light of recent developments, I feel it necessary to conduct a poll

about our messages. PLEASE vote as it is important. We would like

to see the whole group vote......thank you.

The poll will close September 8, 2007 at 12:00 CST

Darlene

o Use profanity/religious topics with a warning subject line

o Do not allow profanity/religious topics

To vote, please visit the following web page:

http://groups.yahoo.com/group/Neurosarcoidosis/surveys?id=2570552

Note: Please do not reply to this message. Poll votes are

not collected via email. To vote, you must go to the Yahoo! Groups

web site listed above.

Thanks!

Be a better Globetrotter. Get

better travel answers from someone who knows.

Yahoo! Answers - Check it out.

[Guest guest]

Thanks Terri, I guess I am just upset about this voting about whether we can be who we really are. Haven't we given up enough. D*** it, now I'm crying again. This whole thing is really upsetting me and I have thought several times of leaving this group which means alot to me. Here they go again. I need to go lay down. love ya S.Terrie & Tarbox wrote: Hi , I agree with what you said. I didn’t mean that some don’t do both. I use to when I had the strengh to. Now it’s better for me since I have the pain patch and Neurontin (2000mgs a day). Sorry

for my spelling and grammer but I had my monthly Remicade Wednesday and I’m as the saying goes “Dragging Butt and Brain Dead”. I hope nobody felt I was judging them, that’s the last thing I would ever do. I’ve become so mellow and “bendable” with the Sarcoid you cann call me Gumby. For those to young that’s Pokey’s friend from the cartoon’s. Take care and know you’re in my thoughts & prayers, Always Terrie & (CT) -----Original Message-----From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of

SolbergSent: Friday, September 07, 2007 4:59 PMTo: Neurosarcoidosis Subject: RE: New poll for Neurosarcoidosis Please don't assume that

people who swear at times... don't pray also. It's not an either/or thing. We all have moods that go up and down. I usually only swear when I am in my deepest depressions and in alot of pain or just in some weird kind goofy mood. I pray throughout the day. Like Rose said...unless you walk in someone else's shoes. I grew up with seven brothers and live in a house of guys so it's easy to fall back on what they say sometimes. I really don't like being judged for what I say. I'd rather be judged for what I do and how I treat other people. I know of people who wouldn't dare swear but treat people like crap. just my opinion. S.Terrie & Tarbox <tarbox5 (AT) cox (DOT) net> wrote: Hello, I know when I’m having a bad day I pray, while some people use profanity. This is a rotten disease and as long as you warn others of religious or profanity content it should be ok. I have a delete key and I can just delete if I don’t want to see it. Each person deals with it their own way. In Dec 1998 and the first few years after I

was diagnosed, I had a few choice words for the MD’s. Now since I’m in a motorized wheelchair, oxygen 24/7, and have VNA helping me I’ve really mellowed. As always take care and know you all are in my thoughts and yes prayers. Always Terrie (the other one) from Connecticut XX Use profanity/religious topics with a warning subject line -----Original Message-----From: Neurosarcoidosis [mailto:Neurosarcoidosis ] Sent: Thursday, September 06, 2007 7:38 PMTo: Neurosarcoidosis Subject: New poll for Neurosarcoidosis Enter your vote today! A new poll has been created for the Neurosarcoidosis group:In light of recent developments, I feel it necessary to conduct a pollabout our messages. PLEASE vote as it is important. We would liketo see the whole group vote......thank you.The poll will close September 8, 2007 at 12:00 CSTDarleneo Use profanity/religious topics with a warning subject line o Do not allow profanity/religious topics To vote, please visit the following web page:http://groups.yahoo.com/group/Neurosarcoidosis/surveys?id=2570552 Note:

Please do not reply to this message. Poll votes are not collected via email. To vote, you must go to the Yahoo! Groups web site listed above.Thanks! Be a better Globetrotter. Get better travel answers from someone who knows.Yahoo! Answers - Check it out.

Sick sense of humor? Visit Yahoo! TV's Comedy with an Edge to see what's on, when.

[Guest guest]

Don’t

cry, I was doing that all day today. This disease really sucks!!!! Don’t

be upset and think of leaving you always got us crazy fools to make you smile

too. Have a good night. And remember crying just makes the steroid face bigger (Is

that possible?????)Love & wishes for a pain free night and a good Sarcoid

day tomorrow. Always Terrie (CT)

New

poll for Neurosarcoidosis

Enter your vote today! A new poll has been created for the

Neurosarcoidosis group:

In light of recent developments, I feel it necessary to conduct a poll

about our messages. PLEASE vote as it is important. We would like

to see the whole group vote......thank you.

The poll will close September 8, 2007 at 12:00 CST

Darlene

o Use profanity/religious topics with a warning subject line

o Do not allow profanity/religious topics

To vote, please visit the following web page:

http://groups.yahoo.com/group/Neurosarcoidosis/surveys?id=2570552

Note: Please do not reply to this message. Poll votes are

not collected via email. To vote, you must go to the Yahoo! Groups

web site listed above.

Thanks!

Be a better Globetrotter. Get

better travel answers from someone who knows.

Yahoo! Answers - Check it out.

Sick sense of humor? Visit Yahoo! TV's Comedy

with an Edge to see what's on, when.

[Guest guest]

When your brain is affected it does different things. Some people swear who don't normally swear from the chemical changes. I am not affected by it as I realize this is a painful condition and then most people do not know what it is and like we all know when you find out your results are normal and you have all these abnormal, horrendous things happening to you it is difficult. It is difficult to handle personally and then difficult to handle the attitudes you encounter. Like we have talked about before, you get to know WHO your real friends are during a crisis like this. And, then, you look sort of normal so everyone thinks you are making it up. So like I said I don't normally swear but I found myself the last 8 months spouting off and I thought where is that coming from?

I am trying spiritual healing by going to a life transformation coach/educator. I have made great progress for myself and my doctor was amazed today. This might work for some and not for others but he took one look at my face and I know it is working for the past month. He even asked for her referral cards as they do believe in spiritual healing for MS, NS etc. It has been a lot of work, daily changes to my life but positive changes but well worth it.

KatSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Neurontin (2000mgs a day). I'm on 2400 a day. I ran out (forgot to refill AGAIN) my daughter picked them up for me late and I think I didn't space my doses out right. If I got any mellower I'd be a jellyfish! Oh well no sock knitting tonight just 60 of Cymbalta & it's lights out in KY!

Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online.

[Guest guest]

I'm with Stu on this one- if it weren't for cussing out this damn

disease and the day to day pain I probably wouldnt be around now.

Sometimes the only thing you can do is pray to God and cuss out the

pain at the same time. Sticks and Stones may break your bones but

words can never hurt you- not really true, but cussin never hurt me

one bit- its venting anger and that is healthy, ask any shrink. Irene

from NC formerly 46 years in good old NY (gee maybe thats why I curse

like a truck driver???)

> Hello,

>

> I know when I'm having a bad day I pray, while some

people use profanity. This is a rotten disease and as long as you

warn others of religious or profanity content it should be ok. I have

a delete key and I can just delete if I don't want to see it. Each

person deals with it their own way. In Dec 1998 and the first few

years after I was diagnosed, I had a few choice words for the MD's.

Now since I'm in a motorized wheelchair, oxygen 24/7, and have VNA

helping me I've really mellowed. As always take care and know you all

are in my thoughts and yes prayers. Always Terrie (the other one)

from Connecticut

>

>

>

>

>

>

>

> XX Use profanity/religious topics with a warning subject line

>

>

>

> New poll for Neurosarcoidosis

>

>

>

>

> Enter your vote today! A new poll has been created for the

> Neurosarcoidosis group:

>

> In light of recent developments, I feel it necessary to conduct a

poll

> about our messages. PLEASE vote as it is important. We would like

> to see the whole group vote......thank you.

>

> The poll will close September 8, 2007 at 12:00 CST

>

> Darlene

>

>

> o Use profanity/religious topics with a warning subject line

> o Do not allow profanity/religious topics

>

> To vote, please visit the following web page:

> http://groups.yahoo.com/group/Neurosarcoidosis/surveys?id=2570552

>

> Note: Please do not reply to this message. Poll votes are

> not collected via email. To vote, you must go to the Yahoo! Groups

> web site listed above.

>

> Thanks!

>

>

>

>

>

>

>

>

>

> ---------------------------------

>

> Be a better Globetrotter. Get better travel answers from someone

who knows.

> Yahoo! Answers - Check it out.

>

>

>

>

>

>

>

>

>

> ---------------------------------

> Sick sense of humor? Visit Yahoo! TV's Comedy with an Edge to see

what's on, when.

>

[Guest guest]

I'm with Stu on this one- if it weren't for cussing out this damn

disease and the day to day pain I probably wouldnt be around now.

Sometimes the only thing you can do is pray to God and cuss out the

pain at the same time. Sticks and Stones may break your bones but

words can never hurt you- not really true, but cussin never hurt me

one bit- its venting anger and that is healthy, ask any shrink. Irene

from NC formerly 46 years in good old NY (gee maybe thats why I curse

like a truck driver???)

> Hello,

>

> I know when I'm having a bad day I pray, while some

people use profanity. This is a rotten disease and as long as you

warn others of religious or profanity content it should be ok. I have

a delete key and I can just delete if I don't want to see it. Each

person deals with it their own way. In Dec 1998 and the first few

years after I was diagnosed, I had a few choice words for the MD's.

Now since I'm in a motorized wheelchair, oxygen 24/7, and have VNA

helping me I've really mellowed. As always take care and know you all

are in my thoughts and yes prayers. Always Terrie (the other one)

from Connecticut

>

>

>

>

>

>

>

> XX Use profanity/religious topics with a warning subject line

>

>

>

> New poll for Neurosarcoidosis

>

>

>

>

> Enter your vote today! A new poll has been created for the

> Neurosarcoidosis group:

>

> In light of recent developments, I feel it necessary to conduct a

poll

> about our messages. PLEASE vote as it is important. We would like

> to see the whole group vote......thank you.

>

> The poll will close September 8, 2007 at 12:00 CST

>

> Darlene

>

>

> o Use profanity/religious topics with a warning subject line

> o Do not allow profanity/religious topics

>

> To vote, please visit the following web page:

> http://groups.yahoo.com/group/Neurosarcoidosis/surveys?id=2570552

>

> Note: Please do not reply to this message. Poll votes are

> not collected via email. To vote, you must go to the Yahoo! Groups

> web site listed above.

>

> Thanks!

>

>

>

>

>

>

>

>

>

> ---------------------------------

>

> Be a better Globetrotter. Get better travel answers from someone

who knows.

> Yahoo! Answers - Check it out.

>

>

>

>

>

>

>

>

>

> ---------------------------------

> Sick sense of humor? Visit Yahoo! TV's Comedy with an Edge to see

what's on, when.

>