Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Create a Home Theater Like the Pros. Watch the video on AOL Home. I just wanted to welcome you to the group. Sorry we have to meet under this condition, but we are all going through the same thing. I wrote you personally because everyone in group heard all our stories a million times , not that they mind, but I find this a little more personal. Here is my story; my first headache started when I was 16 it was so bad my parents had to take me to the dr to get a shot to kill the pain. than I all through my childhood I had what the dr's called colitus, sever in my abdomen. at 20 I got pregnant and I was healthy throughout my pregnancy until my 38 week than my blood pressure shot up real high and I got a sever headache again like when I was 16. After I had my son he was 8months old and I got what they thought was Asthma . Than when he was about 2 yrs old the headaches started but came back with a vengence.!!! I was at the dr's and Er constantly for demoral shots to just numb the pain for a few hours. Than the dr's did a cat-scan and found a tumor in the left lobe of the brain. they put me in the hospital that night and did a mri and lots of tests, consulted a neuro-surgeron. ect. the surgeron didn't want to touch it. so time went on and it was to the point I was at the dr's 3 times a day for demoral shots and ER over the weekends to just kill the pain until the next shot. at 33 myself I ended up in the hospital with my heart raceing and blood pressure real high, all test regards to my heart was fine except they found I have borderline Pumanary hypertention. and another tumor found in my left adrenal gland. my liver function started to go high, I had blue lips and I was not cold, I got this RSD in my right hand. this is to list a few of the problems at the time. I saw more dr's than I wanted to in and out of state, in patient at hospital way to many times. Tests, tests tests it was so crazy. than finally I found the greatest dr He is Chief Neuro at Hershey med center in Pa. and he did 3 spinal taps and each one got worse and worse, he sent me to a rheumy, lung dr, liver dr. they did a liver biopsy, lung function test, found out I had Neurosarcoid not asthma, and NS in my liver, lungs, spleen, L-adrenal gland, brain, spnial cord. I live with sever pain in my arms and legs where somedays I can't even get out of bed or off the sofa. to cut this a little short .. the meds I am on; Imuran, plaquneil,senimet, oxycontin,elevil,xananx,zoloft,Vicoden ES for break through pain, and Tenormin to control my heart rate, without it , my heart goes 170 sleeping. I have learned to live with a level of pain in my head daily with a 7/10 , compared to a ten plus everyday. Im sure I am forgetting a few things, oh and that's the worse thing the short term memory loss and cognititve loss. oh and yes I was DX with secondary CNSV. along with NS. If you have any questions feel free to email me back. hugs and blessings and a pain free day in PaCreate a Home Theater Like the Pros. Watch the video on AOL Home. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Create a Home Theater Like the Pros. Watch the video on AOL Home. I just wanted to welcome you to the group. Sorry we have to meet under this condition, but we are all going through the same thing. I wrote you personally because everyone in group heard all our stories a million times , not that they mind, but I find this a little more personal. Here is my story; my first headache started when I was 16 it was so bad my parents had to take me to the dr to get a shot to kill the pain. than I all through my childhood I had what the dr's called colitus, sever in my abdomen. at 20 I got pregnant and I was healthy throughout my pregnancy until my 38 week than my blood pressure shot up real high and I got a sever headache again like when I was 16. After I had my son he was 8months old and I got what they thought was Asthma . Than when he was about 2 yrs old the headaches started but came back with a vengence.!!! I was at the dr's and Er constantly for demoral shots to just numb the pain for a few hours. Than the dr's did a cat-scan and found a tumor in the left lobe of the brain. they put me in the hospital that night and did a mri and lots of tests, consulted a neuro-surgeron. ect. the surgeron didn't want to touch it. so time went on and it was to the point I was at the dr's 3 times a day for demoral shots and ER over the weekends to just kill the pain until the next shot. at 33 myself I ended up in the hospital with my heart raceing and blood pressure real high, all test regards to my heart was fine except they found I have borderline Pumanary hypertention. and another tumor found in my left adrenal gland. my liver function started to go high, I had blue lips and I was not cold, I got this RSD in my right hand. this is to list a few of the problems at the time. I saw more dr's than I wanted to in and out of state, in patient at hospital way to many times. Tests, tests tests it was so crazy. than finally I found the greatest dr He is Chief Neuro at Hershey med center in Pa. and he did 3 spinal taps and each one got worse and worse, he sent me to a rheumy, lung dr, liver dr. they did a liver biopsy, lung function test, found out I had Neurosarcoid not asthma, and NS in my liver, lungs, spleen, L-adrenal gland, brain, spnial cord. I live with sever pain in my arms and legs where somedays I can't even get out of bed or off the sofa. to cut this a little short .. the meds I am on; Imuran, plaquneil,senimet, oxycontin,elevil,xananx,zoloft,Vicoden ES for break through pain, and Tenormin to control my heart rate, without it , my heart goes 170 sleeping. I have learned to live with a level of pain in my head daily with a 7/10 , compared to a ten plus everyday. Im sure I am forgetting a few things, oh and that's the worse thing the short term memory loss and cognititve loss. oh and yes I was DX with secondary CNSV. along with NS. If you have any questions feel free to email me back. hugs and blessings and a pain free day in PaCreate a Home Theater Like the Pros. Watch the video on AOL Home. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.